Normal Heart Rate for POTS?

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CinnamonSticks
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/12/2017 1:06 PM (GMT -6)   
I am a 21 y/o female, and I've been diagnosed with POTS for about 7 months, although I've been dealing with it for much longer. I am going in to be tested for MALS soon with a vascular ultrasound, but I am concerned that my heart rate is too high in general. When I am sitting or laying down, it's usually between 110 and 135, when I stand up it goes to between 130 and 160, and with any light exercise (walking, walking up a hill) it goes to 160 easily (recently it's been getting to 195ish). Do other POTS people have similar heart rates? It's disconcerting to check my siblings and see them at 60-80 while I'm at 140.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14995
   Posted 10/12/2017 2:11 PM (GMT -6)   
CinnamonSticks, this forum is pretty slow. I would ask my cardiologist about your heart rate to get his thoughts. Try to stay away from comparing your situation to others. Whether they have POTS or not, every person's situation is different. Good luck with ultrasound. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

CinnamonSticks
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/12/2017 2:23 PM (GMT -6)   
My cardiologist doesn't know. POTS patients are few and far between. I've also tried asking my neurologist (he only has 1 other POTS patient), my GI, and searched thoroughly on the web. Unfortunately, there are very few places to get this sort of information.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19782
   Posted 10/12/2017 6:21 PM (GMT -6)   
you serious!! a cardiologist not knowing about pots!! go elsewhere-and fast. bpm goes up 30 bpm usually and in 10 minute cycles, in the main. this is a median range. 160 is not that high at small intervals. 195 at longer intervals would need a consult. i am 130 with walking going up hill i hate to think. i carry weight, making the ticker work harder. are you carrying more weight than the docs like?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14995
   Posted 10/12/2017 7:31 PM (GMT -6)   
Oh no, you need a new cardiologist, POTS has been around a long time. And he doesn't know, seriously get a new dr ASAP.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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