Feeling lonely and isolated PVC's and SVT

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capesidedreamin
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/26/2006 6:41 PM (GMT -6)   
Hey everyone
 
Its about midnight here and Im desperately trying to make sence of my life.  Ive been suffering with funny heart senssations for about 4 years now, since the birth of my son.  At first they put it down to PNI, but when that went the heart stuff stayed.  Ive had numerous ECG's and a total of 5 days monitoring.  They've said nothing unusual, but a few skips, when I mentioned PVC, they just said yes.  Why couldnt they just call it that, insted of saying its normal.  If its normal, why didnt it happen before my son.  Anyway, my symptons are, every now and then (once every few months) I get an episode where my heart clicks into a rapid beat, at about 200bpm (theyve never caught it on a tracer, but a paramedic caught my pulse just after it finished at 187bpm) They've said this sounds like SVT.
 
Then, I often have skipped beats, sometimes my chest feels hollow and sometimes I get a fizzy sensation in my chest.  I feel a very rapid beat below my heart, like a pulsating vein.  I get that strong beat and tingling down your arms, sometimes after Ive eaten.  I dread going to bed, as I think Im going to die.  Its always worse when I lie down at night, but once asleep it doesnt wake me.  If I get woken in the night, or if I startle wilst dropping off, my heart rate flies up.  I went for a gym induction today and they wont let me near the equipment until my GP writes a note because my resting heartrate was 94!  (I was a little nervous, now its 74ish)   There is no pattern to the anxiety thing.  I often feel nothing if Im streesed or whatever, but get them when Ive calmed down.  I darent get happy-excited because they always happen then.  Im sitting here now, and my heart feels blippy.  In actual fact, when I feel depressed about it all, it happens less.
 
They've prescribed 40mg of some beta-blocker, but Ive never heard of it and Im just not happy.  Ive seen a cardiologist once in 4 years and always get palmed off with the junior, who rushes off ever few mins, because he needs to check something.  Not confidence building!
 
I honestly feel like Im going mad in this little coccoon.  I feel isolated from my family and friends, because although I contantly think about it (and dying) I dont talk about it.  Im sure they just think its anxiety and panic attacks, but it cant be can it.  It happens, whether or not Im anxious.
 
Im just after some advice and support.
 
Thanks for taking the time to read my ramblings.

DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 3/26/2006 8:58 PM (GMT -6)   
:-)  hi, sounds like you are having quite the time, it is truly a bummer when you cannot get deinitive answers to what is going on. i am not a doctor or a therapist, but i can tell you are really stressed out, as anyone would be, no crime there, but try to stay calm(even though that sounds like it doesn't help)  anxiety can elelvate your numbers but not to the levels you talked about.  my sister has a high pulse, in the ninetys all the time too,  noone seems concerned with her eithr. her blood pressure is high so they have put her on a beta blocker too, which one are you on? she is on atenolol, and has not had any problems with it, but it has not lowered her pulse. are you a relatively new mother? take care, i will check postings tomorrow to see how you are. bye for now

David_
Regular Member


Date Joined Mar 2006
Total Posts : 68
   Posted 3/27/2006 1:12 AM (GMT -6)   
I know exactly what you are going through. After having read what you posted, it was thinking my symptoms over again. Originally (for two months) I could not even fall asleep at night, my resting heart rate would go through the roof (110-150) and it would make it impossible to sleep. I would wander around the house bothering my wife until I fell asleep on the couch. For some reason, sitting up makes it feel better (or did at that point). Now I'm at the final stage (I hope?) where it is only a random occurance and I get it mostly after eating or in the late evening.

I have noticed the fizzy feeling you describe - I've come to find that it's gas from somewhere - what causes it? I really cannot say. What makes it better? I've found that phazyme works really really well. I'm seeing a gastrointerist now and he wants to run all kinds of tests (most of which involve painful insertations ...YUCK!). Perhaps the symptoms we both suffer from are caused by intestinal gas somehow? I don't know =(

Hopes
Regular Member


Date Joined Feb 2006
Total Posts : 297
   Posted 3/27/2006 9:35 AM (GMT -6)   

Hi! I'm sorry you are having such a difficul time. I have had these premature heart beats for over 5 1/2 years and I understand what you are going through. They told you it was a few skipped beats and that means it could be PAC's or PVC's. PAC's originate in the upper chamber and PVC's originate in the lower chamber. Both are benign in a structurally normal heart. It is not uncommon to feel them more at night or when resting because you don't have other things to distract you. Some people say they feel it start up right after eating a large meal. I notice it can also occur if I get too hungry. For some bending over or twisting will fire one off. I believe it all has to do with the vagus nerve that runs through the center of your body. If it gets aggravated, the ectopic beats occur.You are fortunate to only get "a few". I have read about people who have over 10,000 a day. I suggest you go to www.medhelp.org and check out the heart forum. You will be surprised and probably relieved by reading some of the questions answered by cardiologists at the Cleveland Clinic Heart Center and the posts given by people just like you and me. I read it regularly and it helps me alot.

When I first started having my 'problems', my daughter was young and my husband worked out of town most nights. I had a great fear of dying in my sleep and my daughter being left alone unable to unlock the door or know how to call for help with my husband gone for two days. I know what FEAR is and how it grows and consumes and feeds on itself. I taught my daughter to use the phone, programmed in numbers for her easy use to grandma's, talked about when to use 911 and made sure she learned to unlock the deadbolt. Also I made a deal with my mom to call at a certain time in the morning if she had not heard from me. All simply to give me peace of mind and feel more empowered about the situation.

At first, I could not accept that this was 'normal' or that it would not kill me. Reading other peoples' reaction to this has made me realise it is a common belief for people who are beginning to experience these things. It is hard to accept. The above website helped there too. It can answer so many questions and misunderstandings.

I also understand SVT. It is probaly PSVT meaning it comes and goes-paroxsymal. I've had that also. Its onset is abrupt and its ending is abrupt. My cardiologist never could catch one on a monitor but he is quite sure that is what I have experienced on and off. Have you tried wearing a monitor for a month where you can push the button to catch these episodes? However anxiety can cause what you are experiecing or can make the episodes worse. I read somewhere that if the heart gradually increases over a few minutes to the fast heart rate and then gradually decreases at the end of the episode, then it is probably a panic attack. However if it has an abrupt onset and ending, then it is SVT. I am not sure if that is correct and you might want to check with your doctor. Mine was always very abrupt. I use to have them for 2-6hrs but I did not want to go on a beta blocker. So I went to a psychologist and learned biofeedback. If I have an episode now, it lasts for no more than 10-20 minutes. It is usually now just a couple of minutes. What I learned from the psychologist is that an episode would start and I would get anxious because I did not understand what was happening and thought I was going to die. That is what KEPT the episode going for me. It started as PSVT and ended up as an anxiety attack. I AM NOT SAYING that this is what everyone with this condition experiences-ONLY ME! It is what was happening to me!

Also I learned from the psychologist that you don't have to feel anxious for a panic attack to happen. Panic Attacks occur because of the parasympathetic nervous system. You may not be aware of it. If your system suddenly dumps adrenaline into your body and you are prone to or your body is conditioned to experience panic attacks, then you are off to the races! My point is that there are things you can do to help with all this no matter what it is! Knowledge is key and support which you can find here. Medication might help or some counseling or learning techniques like biofeedback. You are not alone in what you are feeling. :-) Even after 5 1/2yrs there are times I feel afraid or I don't want to go somewhere or I just want someone to tell me they experience it too.The good news is I don't live in that state anymore and most days are good.


deltacece
Regular Member


Date Joined Aug 2005
Total Posts : 95
   Posted 3/27/2006 3:26 PM (GMT -6)   
Welcome Capes to the HW, if your not happy with what your current docs are telling you, i would get a new cardiologist. Congrats on the new baby, i'm sure this adds extra stress. I've been fighting heart disease 6 years now and it's still scarry at times. I'll keep you in my prayers. DELTA

{ Listen to your body talk. } Deltacece


capesidedreamin
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/27/2006 4:22 PM (GMT -6)   
Thankyou everyone for taking the time to reply to me.

Hopes I cried my eyes out reading about your daughter, it was like reading my own mind on paper. Its really good to know that Im not the only one to think that way - you have no idea what a comfort that has been. It makes sence, what you said about the panic attacks, and when I had one of these episodes last year, although the onset came out of nowhere Im sure it ended much sooner than I thought, but turned into a panic attack, because although to begin with my rate was about 190bpm, when the paramedic arrived, it went down in minutes to about 110bpm. I had a quick look at info about biofeedback, it looks really interesting, I will def be asking around about that locally. I also certainly have an increase in the skips when Im hungry, and most def when I bend from the middle, or raise my arms above my head suddenly.

Dream girl - the meds they presibed are called solotol I think. Like you sis my rate usually runs high. My little boy is four now, so Im not a new Mum. Thanks for your kind words.

dm - intersting about the gas theory, I guess it could be? Just feels like its in my veins (if that makes sence!) I hope the yucky investigations go well!

Thanks for your prayers Delta, that is the best thing anyone can do for me at the moment. Thanks

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4029
   Posted 3/28/2006 10:57 AM (GMT -6)   
Hi capesidedreamin,  I just wanted to welcome you to Healing Well forum.  I see that you have already received some excellent advice so far.  I hope that you continue to post here this can be an excellent place for support, questions or helping someone else.  Take care.....

~elisha
Cats are like potato chips ~ you can't have just one
 


Genice
New Member


Date Joined Mar 2006
Total Posts : 1
   Posted 3/30/2006 4:39 PM (GMT -6)   
confused  Im new and was told yesterday that I was thowinig alot of pvcs with massive amounts of shortness of breath,I see the cardioligist wed .Please how can I get the pounding and flip flopping in my chest to slow down till then.

capesidedreamin
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/30/2006 4:47 PM (GMT -6)   
Hi Genice
 
I was feeling a bit desperate last week, so I dont know how much help I can be.  I was told that PVC's can be made worse by worrying about them, and to try not to get anxious.  Avoid caffeine for sure, and chocolate, that always shoots a few out for me.  Personally I cry out to God when Im having a day full of runs.  Just remember, that this is perfectly normal in that loads of people suffer with PVC's and as annoying as they can be they are not life threatening.  Dont be afraid, I'll remember you in my prayers.
 
Take care
 
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4029
   Posted 3/30/2006 5:36 PM (GMT -6)   
Hi Genice,  I just wanted to welcome you to Healing Well forum.  We are glad to have you but really sorry it is under these circumstances.  I am not sure that there is a treatment for PVC's.  But as capesidedreamin stated in her post try to avoid caffeine and overly rich foods.  Also there are several threads dedicated here just for PVC's if you haven't checked them out already.  Please let us know how your appointment goes and keep posting we would love to hear more from you.  Take care..

~elisha~ 
 
ways to help support healing well:
 
 


onewaypockets
New Member


Date Joined Feb 2006
Total Posts : 10
   Posted 4/3/2006 1:24 AM (GMT -6)   
The posters above suffering from PVC's really should try magnesium supplements. I started taking a good quality multi-vit (Twin Lab Daily One without Iron) and 500mg Magnesium Citrate (Now brand) and my PVC's were completly gone after a week. I was having them daily before this.

Here is a link for the magnesium http://www.iherb.com/magcitrate2.html

And the multi-vitamin http://www.vitacost.com/TwinlabDailyOneWithoutIron

Chrissmithx
Regular Member


Date Joined Apr 2006
Total Posts : 31
   Posted 4/10/2006 5:18 AM (GMT -6)   
I seem to have gotten rid of my PVCs through my doctor's tests (only about the heart- nothing found) and internet research- partly from this forum.

My problem seems to stem from my stomach and how well it functions. The magnesium connection is a good one, though I wouldn't recommend this as a supplement. So what did I do?

I drink yogurt twice a day to improve stomach function. I also take a standard adult multivitamin + minerals tablet, because as well as magnesium, there are probably other things missing from my diet. Balance.

I started eating a variety of nuts, mainly for their good HDL cholesterol content, and later found they were an excellent source of magnesium (almonds and cashews).

These diet additions (as well as a glass a day of red wine) changed my daytime symptoms greatly. That left the dreaded nighttime episodes.

I used to eat quite a lot of fruit before I went to sleep. No problem with the fruit, just the time of eating it. Now I follow the rule of not eating anything for the three hours before bed. Amazingly, this has allowed me to sleep without those strange flopping events, and the "fizzy" thing is much reduced.

As "Hopes" posted above:

"For some, bending over or twisting will fire one off. I believe it all has to do with the vagus nerve that runs through the center of your body."

For me, this was the key information- supporting the nervous system. My PVCs would fire if I bent over, squatted, lay down, ate a meal (evenings) and on the wind down from exercising.

The nighttime tip came through reading about the "Enteric Nervous System" which are the nerves in the gut which deal with digestion. Allowing this to sleep with the rest of my body ended my troublesome nights.

Hope this helps others who are struggling with these unexpected symptoms.

Friss
New Member


Date Joined Apr 2006
Total Posts : 1
   Posted 4/15/2006 2:30 PM (GMT -6)   

Hi There!

I have had the same thing for 9 years!  Very upsetting to say the least.  Have had holter, echo and 2 week event monitor (apparently all benign).  Have recently been prescribed a beta-blocker as well, but I am going to hold off and try more digilently to monitor food, exercise regularly, meditate, just keep a more conscious approach to the barages of stress. These pvc's, pac's and svt's have altered my life dramatically. I seldom go out and never go out alone!  I don't work anymore.......I searching for more of a cure for the fear now than the heart arrythmias.  Hang in there, you are not alone with dealing with these darn things.

Friss

 

 


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4029
   Posted 4/15/2006 7:16 PM (GMT -6)   
Hi Chrissmithx,  I wanted to welcome you to Healing Well forum altho it is a little late.... eyes .  Thank you for posting the things you have learned that have helped you in dealing with your symptoms of PVC's and SVT's.  I am sure it will be valuable information to many.  I hope that you continue to post here...looking forward to hearing more from you...take care

 ~elisha~ 

ways to help support healing well:

http://www.healingwell.com/community/default.aspx?f=19&m=437927


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4029
   Posted 4/15/2006 7:26 PM (GMT -6)   
HI Friss,  I wanted to take the time to welcome you to Healing Well also.  There are quite a few post threads on this forum regarding this topic, I don't know if you have reviewed them as yet but they are pretty informative.  Everyone here is pretty support of each other and always willing to help.  I do hope you stick around and become a regular.  Take care.

 ~elisha~ 

ways to help support healing well:

http://www.healingwell.com/community/default.aspx?f=19&m=437927


Chrissmithx
Regular Member


Date Joined Apr 2006
Total Posts : 31
   Posted 4/17/2006 3:04 AM (GMT -6)   

Thanks for the welcome, elisha (?)

I do have a question for anyone who has the experience to answer. Although my PVBs are down to one or two a day, and are much less noticable now that my nervous system is functioning better, my stress test did produce some results.

Done on a treadmill, there were three stages of the test. The first was a medium paced walk on the flat. The second was the same pace up an incline, and the third was a brisk walk up the same incline. Each stage ran for three minutes with my blood pressure being checked at each transition point. By the time I reached the third stage, my heartbeat was stable at 160 beats per min. The nurse in charch told me that the rate wasn't high enough, and the goal was 180 bpm, so they cranked up the pace to a fast jog (?) up the same incline. After about three more minutes, I reached the target while discussing my symptoms with the nurse.

The question- my performance while building up the pace was noted as very good and very exercise tolerant, but while warming down, I started to get a series of events that showed up clearly on the monitor (about 7 or 8). So why do these events show themselves when the "stress" element of the test is over? I was taken down carefully from the peak.

Thanks for any responses,

Chris


Chrissmithx
Regular Member


Date Joined Apr 2006
Total Posts : 31
   Posted 4/23/2006 11:49 PM (GMT -6)   

Hmm... The weather seems to play a key role in my episodes.

After a period of gradual Spring warming and stability with my heart rate, yesterday there was a sudden temperature drop and a few thunder storms. For whatever reason, this had quite an impact on the frequency and effect of my arrhythmia. Even when the beat is stable, I can sense a difference centrally in my chest. Is this an air pressure issue?

Another thing I discovered was not to eat Thai food in the evening. Actually I guess this covers any spicy/complex foods that would be challenging to digest. My stomach was comfortable, but bubbled away all night and caused me episodes every minute or so until the digestion process ended.

I get my final diagnosis this coming Friday. I expect to have sinus arrhythmia. Is this a lifelong condition or just a phase? Whichever, it is bloody annoying.

Chris

April C
New Member


Date Joined Aug 2006
Total Posts : 7
   Posted 11/4/2006 2:19 PM (GMT -6)   

To onewaypockets....

if it's ok to ask, how much do you weigh? I'm just asking this because I thought that one's weight might affect how much of a vitamin or supplement they should take. I'm trying desperately to find something that will slow down or put an end to the pac's and pvc's I get (have been getting for 8 months, ever since my first "panic attack"), and currently have been taking magnesium oxide 250 mg twice a day for a little over a week now but have not noticed a great reduction in the skipping. I've heard that this form of magnesium isn't the best since it's not as absorbable, and I also don't know if I'm taking enough or not. I don't want to take too much though, as I'm scared that taking too much could make it worse too. I had a very bad day, the worst I can remember as far as the skipping is concerned, this past week....on that particular day, I had them on and off all day long, and had taken 1 and a half of the magnesium supplements twice on that day. I was told by a cardiologist that the supplement didn't have anything to do with having that many on that particular day, so I guess I need to believe her on that. But at the same time part of me is still scared to take too much of anything. These stupid things bother me so much that I have to take medication to fall asleep, otherwise I don't sleep because of my fear of them and the constant state of anxiety they keep me in. I'm scared all the time, wondering when the next one will be. Oh, I had one more question for you, did you have both pac's and pvc's? I was actually diagnosed as having both of them....bad enough to have either one, but to have both kinds just made it worse! Anyway, I figure that if you can alleviate your skipping with the supplements you take, then maybe it'd work for me too. I just needed to know if you get both kinds of skips and what your weight is. I'm very small, I just recently gained some weight as I really needed to put on a little more (went from around 103 at 5' 7", to 118 currently) and am a 29 year old female. Please help, share anything you think will help!! I've tried fish oil and vitamin C, although I may not have taken enough of either one to make a difference, but I've heard even more about magnesium helping. Please share!!

April


pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 11/10/2006 5:41 PM (GMT -6)   

Dear April Cousart:  I'm 52, 5'4", and weight 127.  I started having arrythmias after my first child in 1982.  Mainly PVCs.  MD said I was healthy and not to worry about them.  After a long time, I became used to the feeling.  I was diagnosed w/Cardiac Syndrome X, MVP, A-Fib, PSVTs, and PVCs in the last 10 years.  I am now controlled w/beta blockers and calcium channel blockers.  They seem to do the trick.  I do know one thing ... beware of any herbal meds.  These meds do not go through the FDA.  I have seen pts come into the ER with rectal bleeding, severe stomach pain,etc all becaused they were trying to stay healthy.  If a person eats healthy, herbal meds are not needed (I know a lot of people live by herbal meds, but I just know what I've seen).  The best advise I can give is to eat healthy, exercise, and set aside a quiet time each night before sleeping.  My heartbeat can go from 35 - 200 in 3 seconds flat and then back into the 50s which my norm.  I let stress from Hurricane Katrina, working long shifts at hospital, etc get the best of me.  I didn't take my advise and ended up having severe health problems.  I am back on the health track and hope to stay there.  The damage stress caused on me cannot be reversed on my cognitive thinking, but I'm working on reversing imbalance, gait problems, and weakness through physical therapy.  Remember, the more you worry, the more stress you place on your heart.  Good luck. yeah tongue


bookem
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/7/2007 11:29 AM (GMT -6)   
Finally a site that I could have used some time ago. I have been diagnosed with SVT just this past October. I have been having these episodes since I was 13 years old. The doctor said I was most likely born with this condition.They were scary then and even more so now. My October attack was the worst yet as they have become more severe as I have gotten older. I am now almost 54. The attack in October lasted about 3 1/2 hours and my heart rate was at times up to 240 per min. The only good thing about this is that it lasted long enough and was caught on the ekg by my GP and by the EMT's. Then they had me go through the stress and echogram tests and wearing of the monitor for 30 days. The monitor did pick up on some things that have proved of benifit. I will be having surgery this Monday,April 8th to hopefully correct this problem. It has ben a long road over the years with never feeling well and always being tired and then becoming depressed because the doctors and even your relatives tell you it is all in your head.Thank God I changed doctors a year ago because I felt the old ones did not give a hoot. I think God was directing me.  I now have a wonderful  doctor who takes the time to really listen to me and I also have a very compassionate group of cardio specialist. I just pray that after Monday all I have to do is recoop and get back to real life. My heart goes out to anyone with this condition. God bless you all.

sb
New Member


Date Joined Jan 2007
Total Posts : 12
   Posted 4/7/2007 2:52 PM (GMT -6)   

Hi, I was also diagnosed with SVT in November. I have had svt since i was about 15 yrs old (27 now) but the docs misdiagnosed it as panic attacks until i had a really long episode which i had to have stopped at hospital. sad   I am sure i never had pvcs until then. I'm not sure why they started that day maybe it was stress that triggered them but i'm not sure if that's even possible?? I have about 10-100 pvcs a day.

I just wanted to ask other pvc and svt sufferers if you too have about that many pvcs and if they started before or after the svt? Also do you have pvcs independantly of the svt or only when you have an svt??

BOOKEM: Do you have frequent svts? What did they do for you at the hospital to stop the svt? Have you ever had adenosine? Good luck with the procedure i'm assumong you are having an ablation? My cardio wants me to have one too. Please let us know how it goes??

Capesidedreamin: How many pvcs do you get a day? have you ever had a few in arow with no normal beat in between? That really really frightens me sad

 


bookem
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/11/2007 12:51 PM (GMT -6)   
Had the ablation on Monday 4/ 9/ 07 . Was awake for the 3 plus hours but did not feel a thing. A little sore from the caths right now and chest is sore from the induced increase in heartbeat. Also very tired. They put me back to 25 mg toprol 2x a day. Suppose to go back to work on 16th but not so sure about that at this point since I am a building engineer and my job requires a lot of lifting and standing. Any response or guidelines on returning to work?
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