Post Edited By Moderator (stkitt) : 3/19/2013 1:13:01 PM (GMT-6)
Hi, I don't know if my story will be of interest to you?
I have had 3 ablations and am waiting for a fourth. I was originally diagnosed with AVNRT. After the first ablation this returned after a couple of weeks so I was put back on Flecainide and on the waiting list for a second ablation.(I don't tolerate betablockers well). It was clear while I was having this second ablation done that it wasn't going to work so I carried on with Flecainide and waited for a third ablation. By this time I had what was described as 'multi-focal left atrial tachycardia' too.A few months after this second try while I was waiting for the third and still taking Flecainide I had an episode of coupled beats and atrial fibrillation and had to go to hospital overnight for Adenosine. This got my heartrate back to 'normal', ie no coupled beats and AF but still having the other problems. I never really got an explanation as to why this happened, and it never happened again.The third ablation showed that the AVNRT had gone, but found left septal tachycardia, so I am waiting for a fourth ablation!
I had the ablations over the last 4 years. The reason for the long gaps is because I live in Britain, so you get put on waiting lists and there are problems getting new technology. I don't know when the next one will be, I think it should be before the end of the year - you don't always get much notice. As for the fatigue and shortness of breath, well, I don't remember anyone really telling me what causes it. I just assumed that I may not always get enough oxygen circulating when I'm not pumping properly. Hope that doesn't sound too stupid! I have really bad tachycardia when I wake up because of the changes that occur when everything kicks in on waking, and bouts of breathlessness and tachycardia during the day, but those are never more than 130 BPM. Fortunately, I don't get skipped beats. I have to lay down for an hour or two after I wake up. It is strange how one puts up with all this and accepts it as feeling 'deconditioned', as you said. My GP really annoys me sometimes, he says how ill I am/how I should behave re. exercise is determined by what my quality of life is like; if its good then that's all OK then. How do I know how good it is? I've forgotten how I felt before this all started! Almost any aerobic exercise puts my heartrate up, including vacuuming and going upstairs. I have also found that as time has gone on I've paid less attention to the detail I've been told about my condition. I've just gone along with things lately. I really do hope that you get some definite answers soon. There is a lot of information on this site about tachycardia, perhaps it would help you to formulate some questions to ask your cardio and EP? (I hope that doesn't sound patronising). Thanks for your interest, take care,
Post Edited (Juliette1) : 9/26/2006 1:37:08 PM (GMT-6)
Has anyone out there had an ablation and still having problems?? Would like to hear from you.......
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