NEW! SVT AND ABLATION

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Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 10/24/2006 11:44 PM (GMT -6)   
Hi Everyone,
 
Im new here, Im 28 and have suffered from SVT since i was about 4, but was diagnosed about 2 years ago.  My SVT goes upto 320bpm.  I currently take flecainide which does control the attacks, but i have gained 4 stone in weight in almost a year since I have been taking Flecainide.  Its such a nusience as i have a young child to care for, so i have decided to go for the ablation!!!! sad
 
I am going for my ablation on the 16th November and am so scared.  All I think about is "What if i die" etc....
 
I would love to hear from anyone who has SVT or have had an Ablation.  I would like to know if it hurts when they burn the heart etc... confused
 
Please feel free to leave a reply or email me.
 
Take Care everyone
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 10/25/2006 10:44 AM (GMT -6)   
Hi Queen, I just wanted to take a moment to welcome you to Healing Well forum.  We are happy to have you join us here.  I dont have SVT's so I cant relate to you there.  I do hope that some other members will respond to your post soon.  Sometimes the heart forum here tends to come and go in spurts so it may take a little bit, hang in there.  I do hope your surgery goes well please post again and let us know how your doing.  This is a great forum for support and information.  Also feel free to visit some of the other sites we have to offer if you like.  Looking forward to hearing more from you.  Take care :-)

Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


dave z
Regular Member


Date Joined Dec 2004
Total Posts : 164
   Posted 10/25/2006 12:02 PM (GMT -6)   
Hi Queen 1978 Dave Z here.  I just read your post regarding SVT and catherter for ablation.  A little history in 1997 i was taken from work with SVT to the ER where i received a shot which resulted in a normal sinus rhythym.  My 2nd SVT was in January of 2000.  Ambulance trip to ER and another shot which resulted in normal sinus rhythym.  Then i had a 3rd SVT in august 2001, which was of a short duration and then reverted back to normal. My 4th SVT was in April of 02 it also reverted back to normal on its own.  Thruout those years the doctors kept changing my heart medicines betta blockers, which slow down your heart rate, which i did not like the sluggish feeling I got from the meds.  So as catherter ablations came on scene I desperately wanted to get off the heart drugs.  Therefore in July of 2003 I had a atrioventricular catherter of the right AV Node.  MY ablation results were excellent, I am now off all heart medication and since the ablation 3yrs ago I have had no SVT's what so ever.I no longer have the nagging thought of oh when am i going to have another SVT.  The procedure itself is done under general anesthisia and you will not feel anything.  The doctor will thread the catheter up to your heart from entering your femoral artery in your left groin and it is a very small incision.  Then the doctor will proceed to test your hearts rhythym channels or pathways to find out where it is at that the rhythym is firing off.  After mapping your heart he will then ablate or burn the offending area.  This you will not feel at all.  You may have some slight chest pain for a few days afterwards which will heal and not cause further pain.  In my particular case I did not have any chest soreness after my proceedure.  After the procedure they will apply pressure at the entrance site in your groin.  Sometimes there is brusing, or a possibility of infection in that area.  However I also had no problem with that.  As i said above since having the ablation i have had no problems and no further SVT'S.  In my opinion I think it may be a very good procedure for you to have.  The success rate for this procedure is 96%.  The other 4  percent sometimes have to have the procedure repeated.  There is also a slight chance of slowing down the rhythym to much then requires a pacemaker, dont let that scare you.  I was fortunate to be in the 96 percentil of the success rate.  However knowing all of the possibilite having it done was one of the best medical procedure I have ever had.  Gook luck to you and God speed.

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 10/25/2006 1:50 PM (GMT -6)   
Hi Dave,

Thanks for your reply I feel a little bit more at ease now. Well apart from the bit about them slowing down the heart too much. OMG that must feel like your going to die, what would happen if they dont get the pacemaker in, in time. I bet thats scary. My surgeon also told me that i would feel the burning and that i must try to stay as still as possible while they burn it, because they can burn too deep and perforate the heart. I also found someones experience of this procedure on the net, which has really scared me, i wish i had never read it. http://www.nderf.org/andy_s's_nde.htm that is the story of his experience just incase you wanted to have a read.

Im happy to hear you had success from the ablation, as most places i have looked have been negative, and people have had the procedure repeated numerous time.

Take Care x

FUNNEL
New Member


Date Joined Oct 2006
Total Posts : 11
   Posted 10/26/2006 11:50 AM (GMT -6)   
Dear Queen1978,
 
I had a catheter ablation of my AV node in January 2005.
at the same time....they put in a dual chamber lead pacemaker.
I was awake for the hole thing....they did give me a relaxant.
 
Dave Z explained the procedure pretty well.  I had to have mine done Because of intense bouts of Atrial fibrillation with Some SVT. 
 
Dave Z is so Right about the beta blockers....landed me in bed i was so fatigued.  So I told them never again...no beta blockers!!
 
I take Diltiazem for rate control along with my pacemaker.
and Altace for my blood pressure
..despite having the procedure done... i am not A-Fib free.
But, I don't regret at all having the Ablation, it has improved alot. 
 
I was expected to lay flat for 4-6 hours....with a weight on my groin on the artery where they put in the angio catheter.
if they keep you awake...you must lie very very still.
If you are on diuretics...you might want a foley catheter in your bladder...cause it's hard to hold for 6 hours....lols...
and I personally couldnt lay flat while on a bed pan
 
Good luck....
funnel
 
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 10/27/2006 7:10 AM (GMT -6)   

Hi Funnel, I just wanted to welcome you to healing well forum.  I too have a duel lead pacemaker.  I am 33 yrs old female and have had it for a year for sick sinus syndrom and bradycardia.  I wasnt awake during placement (thank God).  However, I have an autonomic disorder that causes my BP to drop and I pass out often which I ended up pulling out my leads within 2 weeks of placement.  It wasnt caught until 6 weeks afterwards at another hospital.  During the lead revision I was awake and aware of what was going on and felt everything that done...it was quite horrific. 

Anyhow I just read your post and felt for you.  Please do feel free to continue to post here we are very happy to have you join us.  Take care.


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


ccc
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted 10/28/2006 2:57 PM (GMT -6)   
Hi Queen!
 
I had my SVT ablation done yesterday.  I too felt like I should say all my goodbyes in case I didn't make it.  It's a scary thing when they're messing with your heart. 
 
My experience was a piece of cake.  After being taken into the lab, I was given sedation which made me a little sleepy.  Then once the doctor got in there, he apparently was able to produce via a mechanism the way my heart feels when I have a tachycardia experience.  He asked me if that was what it felt like, and I said yes.  The next thing I knew, they increased the sedation and I slept through the whole thing.  It took 2 hours.  I was ablated 9 times.  They only had to go in on the right groin through the vein, although I was prepped to go on the left side through the artery should it have been necessary. 
 
Next thing I knew, I was back in the room for another 4 hours to lie down and keep my leg still.  I slept through that, slept through the ride home, and went to sleep as soon as I got home until this morning. 
 
I feel fine, my heart feels fine.  I only still feel a little groggy and my incision site in my groin is sore to touch, but is fine.  I had mine done at Wake Medical Center in Raleigh, NC and I had excellent care. 
 
Don't worry.  If you hear one horror story, there are billions that are more like mine!  Relax and good luck!

JanBrian
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted Today 10:59 AM (GMT -6)   
I have had SVT since a pre-teen and recently dizziness has accompanied the increased heart rate. I too was on Flecainide but it has since ceased to work. Over the past 30 years I have been on different meds until each stopped working for me.

This past friday I had the ablation. Interestingly, I went into SVT while being prepped for the surgery. The worst part of the procedure was numbing the groin. after that, the sedation kicked in and I woke up in the recovery room. Saturday, I was a bit tender where they entered the groin but was up and about and feeling fine. I am now off the meds, back to work as of Monday and doing fine.

Hope that helps.

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted Today 1:27 PM (GMT -6)   
Just wanted to say thankyou to everyone who has replied. yeah
 
I am also wondering about the sedative they give you, how does it make you feel?  Are you still aware what is going on too?
 
Queen X

JanBrian
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted Today 1:45 PM (GMT -6)   
I don't know about anyone else, but I was introduced to the man administering it, said hello, answered 1 or 2 questions... then woke up in recovery 5 hours later. I did have a headache the next day, but nothing an asprin didn't fix.

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted Today 2:27 PM (GMT -6)   
Hi again, Ive just been reading through the site and people seem to be having different types of ablations, my specialist said that they will only go through the groin in one leg. Never mentioned a thing about the neck confused .
 
Im having a radiofrequency ablation, but after reading some things on here, am getting a bit wary of having it done now.  I feel like cancelling it.  It seems most people are having to have this done more than once eyes

legllyblnde
Regular Member


Date Joined Oct 2006
Total Posts : 22
   Posted Today 5:11 PM (GMT -6)   
I have just scheduled an ablation for Dec. 1st and feel very much like you Queen. I'm hoping that the anesthesia will knock me out and I'll wake up in the recovery room and it will be over, but I'm worried that won't be the case. I don't handle doctors or pain well, but I want to do this badly enough to suck it up and hope for the best.

I'm a 24-year-old who has been diagnosed with AVNRT. I had my first episode about 2 weeks ago and presented to the ER with a heartrate of 240. It took two shots to get it down and I stayed slightly elevated for the rest of the 48 hours I was there. Since then, I have had four minor episodes in the 130-140 range that I was able to control with the manuevers the doctor showed me. I've also been on 25mg of Toprol twice a day since being in the hospital. I've opted to go ahead and do the ablation even though I've only had a few episodes. My doctor made me swear off caffeine, alcohol, chocolate and smoking (the latter I've never done). Between that and the constant anxiety of waiting for another attack, I think the ablation is the best option. I'm young and athletic and want to lead a normal life (with caffiene and alcohol when I choose). Right now I'd be terrified to fly or travel as I'd never want an episode while in the air and away from a hospital. I just don't want to live in fear like that. My doctor says I'm a textbook case and that the ablation should be successful, so I'm hoping that's true.

I too want to hear more from those who've had it done - how awake were you during the procedure? Did it hurt? Also, how long of a recovery? I live on the third floor of my apartments and there's no elevator, so I need to know about how many days I need to find alternate accomodations before I can navigate all those stairs.

Thanks all! Good luck Queen, I'm rooting for you!!

pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 11/10/2006 5:50 PM (GMT -6)   
I'm glad to hear all the good news on ablation. I had one 8 yrs ago or rather an attempted one. Mine did not go well mainly due to the location of the main arrythmia problem (right in the middle of the Bundle of hiss). They did not have a pacemaker ready and almost knocked out my AV and SA node. I work codes and know that's exactly what they would have done on me until they got the pacemaker. My cardiologist keeps asking me to try again since so much has changed in the technology (mapping,etc), but I'm a huge coward. I also have severe spasms of the small arteries of the heart (rare). With all the good news from ya'll, I just might one day be brave enough to try again! Keep giving me the good news!

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 442
   Posted 11/14/2006 8:44 PM (GMT -6)   

  Hi Queen 1978.   I do know how you feel.   I'm in my late 50s & have had frequent attacks of SVT.....so much that it impacts my life.    I'm afraid to go out for a long time--want to be close to my bed.   Taking an airplane--it's like "anxiety time"!

   Anyway--i TOO- would like to know IF --during ablation you remain awake (tho sedated)--or are completley  out!

  I think i can handle being "out" & then waking up when it's over---but--being AWAKE & feeling tht catheter---i don't think i could handle that.     SO--my question----(which IF i decide to get it done--i'll just ask my cardio)--but----are you OUT...or just sedated & awake---hoping for some answers--Thanks 

 

 


legllyblnde
Regular Member


Date Joined Oct 2006
Total Posts : 22
   Posted 11/15/2006 9:28 AM (GMT -6)   
I asked my EP's nurse a few days ago and she said that they can't put you completely out, but that chances are I'll sleep the whole time and not remember a thing. She said I'll fall asleep, but that if they need to talk to me, they'll be able to wake me up and I'll be responsive. However, they put some sort of amnesia drug in the IV too so that you don't remember any of it when you wake up in the recovery room. She said some people remember waking up and seeing the monitors for a minute and going back to sleep, but that's it. The drugs just make you not care apparently.

I'm having mine done Dec. 1st, so I'll be sure and report back after that.

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 442
   Posted 11/18/2006 6:15 PM (GMT -6)   
Thanks Dave, Queen , legallyblnd & all for your very helpful input.  I'm in my mid 50s & have been having frequent--tho short bursts--of arrythmias for over 25 yrs.         Now, they become more frequent & sometimes of longer & scarier duration.          My "plumbing" is good (had a stress EKG w isotopes, ) my arteries clear etc.   Just as the attending cardiologist said--"You don't need a plumber you need an electrician."  lol.
 
 ANYWAY w that being said---some more feedback from any & all who have had this procedure would be most welcome.
#1) I HOPE the person who said he/she "slept thru" the procedure is what they do!    THIS alone is holding me back--i can suck it up...as long as i know i'll be out & wake up WHEN the procedure is over!  More on this.
 
#2) I do NOT want any kind of "urinary" catheter.   Can't you just lay still-for a few hrs --until you can get on your feet?
 
#3) I'd like to know about how this procedure has "advanced" (& improved)--say in the last 15-20 years.
 
#4) Lastly----I want to hear as many "success" stories as possible.
 
Thanks to all of you again---Bless you all---your words are a comfort to me--as I WANT this procedure--but fear it.   My "emotional" conditions are improving & I'm off all meds except my good ol' faithful Valium....(just 5-10 mg)----Tenormin---25 mg--once/day....   --My other "numbers" are great--very good-low cholesterol & trigycerides.......I just want these arrythmias to stop!
 
I too-fear going on airplanes---i think--"my gosh, what IF i get an episode while on the plane"--& even going places--
 
So--i eagarly ...look forward to hearing from as many "peeps" as possible & to our member here who is having their procedure done Dec. 1---My prayers are with you.  I know you'll be fine---That's it...no, I'd like to get some info----Thanks---Wotan (Robert)

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 11/21/2006 5:13 AM (GMT -6)   
OMG sad
 
That was the worst ever experience of my whole life. 
 
Before you read this i suggest you first think to yourself this is probably a one off, and doesnt happen to everyone.... i dont think.
 
I had my ablation on the 16th and i am still recovering.  This is going to be a very long post as i wanted to know the ins and outs of the procedure and i couldnt find anyone who told me them, so im going to tell u step by step about my procedure.
 
I was walked down to the theatre where i was told to lay on this freezing cold table thing.  Then they put 4 freezing cold pads on my body and the usual sticky pads so they can monitor your heart rate.  They pulled a big screen at one side of me and right above me i had a big machine that moved up and down my body quite often during the procedure, and very close to my chest.  Then they started to give me the local anasthetic in my groin, this took about 15 mins i think it felt like he was nippping my vein and pulling it through my skin it was very painful for me.  Then he started on my other groin mad
 
I was very upset at this time so they decided to give me morpheine, they didnt give me the other drug they said because i was allergic to eggs confused  . So the nurse started to flush this morpheine through my body and i felt pain in my chest and neck so the surgeon told her to stop the flushing.  So during my procedure i had no sedative what so ever.  It was awful as i couldnt see anyone apart from the nurse stood miles away from me, because of the radiography thing above me.  All i could hear was about 8 people saying they couldnt understand how easy they could set my tachycardia off.  They were setting off my tachycardia then stopping it continuously i felt like a guinea pig.  It was start the AV node again, start this again.  I was so scared as i had no-one telling me what was going on.
 
After about 2 hours i shouted STOP and they came round to me and asked what was wrong, i told them i had had enough and i wanted them to stop this procedure right away.  The surgeon said he just wanted to try one more thing as he couldnt ablate me anyway confused confused confused
 
He wanted to start my arythmia and give me that drug (dont know its name) that makes u feel like u r dying, to see if it slowed down my heart rate.  I knew exactly what he meant and i refused.
 
So they took out the wires and WHOOPEE just my luck mad   I had my tachycardia start on its own sad    So they asked me if i wanted then to insert the wires again to stop it, i agreed so they inserted the wires but they said they couldnt stop it and they needed to give me that awful drug.  I yet again disagreed to it but they gave me it anyway confused   what a awful feeling that was.  It didnt stop my tachycardia so they gave me a stronger dose. 
 
After they had finished playing with me mad   mad   mad   I was took back to my bed. I was shivering so much, they let me go home later on.
 
Since after having this procedure I have felt so ill.  Ive had a temperature, i have been getting violent headaches and i can hardly move my neck.  I dont feel myself at all. Maybe its a reaction to some of the drugs i have no idea.  My headaches go for about 30 mins and then its back with avengence.  I am still feeling ill and this headache is coming again so my mum is taking me to the doctors.
 
Apparantly after they have studied what they did to me, they believe now that they have found the problem and it is in the centre of the heart, which he says is more riskier but i can have it ablated in 2 months time confused confused confused   I dont know about that, i dont think i can go through all this again. 
 
I hope i havent put people off this procedure, this is my personal experience and we are all different. I have to go now before my head explodes take care everyone xxx

legllyblnde
Regular Member


Date Joined Oct 2006
Total Posts : 22
   Posted 11/21/2006 9:15 AM (GMT -6)   
I'm so sorry to hear about your horrible experience Queen! I don't think I'd do the procedure if I couldn't have the anesthesia. You're very brave! It seems like people either have a really easy experience or a really awful experience. I'm so sorry that you had one of the bad experiences! I hope you get to feeling better soon. Please keep us posted.

For others, I found a good thread from awhile back where several people talked about their experiences. There are some good experiences discussed here if Queen's has scared you away from having the procedure: http://www.healingwell.com/community/default.aspx?f=42&p=1&m=228089. I think anyone planning to have this done should really question their EP about whether there will be anesthesia and just how out you will be. I questioned my EP nurse about what other people's complaints and experiences had been in the past as well.

If anyone else has any ablation stories, good or bad, please share.

Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 442
   Posted 11/21/2006 9:35 AM (GMT -6)   
....Hi legilgyblnd
Thanks for your post.  I too, was sorry to hear about Queens experience.   Also, I TOO would want to be put "out"!    I'm HOPING i can read some GOOD experience & succesful experiences w this procedure.    The research i've done shows it coming out VERY well (96% success rate)----Please--i HOPE there are some good, succesful stories out there.       Blessings--Robert

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 11/21/2006 6:42 PM (GMT -6)   
Hi again everyone, just keeping you posted I have had the doc and he said I have picked up a infection whilst been in the theatre and that my groin has been leaking. So hes giving me 2 days and if im no better hes admitting me.

Juliette1
Regular Member


Date Joined Feb 2005
Total Posts : 72
   Posted 11/23/2006 3:47 PM (GMT -6)   
Hi Queen,

I was really shocked to hear what a terrible time you had with your ablation, and now you've got an infection too! How did they manage that? I'm sorry for your troubles. You describe very vividly that horrible feeling of being treated like a lump of meat and being powerless. The first time I was sent an appointment for an ablation (I'm waiting for my 4th) a leaflet was enclosed. It described the procedure as being slightly uncomfortable and said I'd be back to normal in 24 hours. Actually the procedure and nursing care were horrible and I had complications with my leg, so no, I wasn't back at work the next day. My point is that I do think the medical people should be honest with us and not give these unrealistic blanket reassurances. I know that most people have no trouble at all with ablations, but that doesn't make our experiences less valid.

Regarding anaesthesia, I had some morphine last time (which made me throw up) but other than that just the local anaesthetic as I can't cope with being half awake, half not. I have asked for a general for my next ablation but the anaesthetists at my hospital don't do electrophysiological work, so that is under negotiaton.

I don't blame you for sounding angry, Queen. I hope the infection clears up soon and that you don't have to go back in.

Dear Robert, I'm afraid none of this is very encouraging for you and I'm sorry for that. You are right though -the success rate is very high. I wonder if we read on here about so many unsuccessful attempts because the forum is often used by people who haven't found things straightforward. Regards, Juliette

Queen1978
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 11/23/2006 10:05 PM (GMT -6)   
Hi Juliette,
 
You are absolutely right, I also have a problem with my leg... when i first came out the pains were terrible for about 4 days and were extremly swollen with lumps in them the size of peas.  The swelling seems to have almost gone down now but these pea size lumps are still there, i was a bit scared thinking they might be bloodclots.  After my procedure i was desperate for a wee and a nurse tried to move me ALONE!!! told me to bend my knees and roll over, which i found very hard to do.  But before she came another nurse had told me to keep my legs flat and to not bend my knees for 2-3 hours because my groin could leak.  So maybe thats why it leaked ive no idea.
 
Also I dont know about you but the after care was terrible..... They gave me no buzzer so when i needed a nurse, I had to shout!!
 
I have no idea how i got the infection as i was first in the operating theatre.  So much for these places to be sterile, it obviously wasnt!
 
Im feeling alot better now, but still keep getting the headaches, and terrible pain in my groin and stomach at the left side when i need a wee.  Maybe I am a bit sorer as most people as they have been in both groins.... 4 times in my left groin for some reason!!!!  I heard them saying its too deep a few times so maybe thats the reason.
 
During my procedure I had no care from a nurse, she was stood at the door because of the machine above me. I looked at her as if to say "Oi im here dont leave me on my own" and she came over for about 2 mins then said because of the radiography machine or xray thing that she works with it everyday and had to keep back because of exposure confused confused confused confused    (but she had protective clothing on anyway)  I feel she just wanted to stand back and see what was going on because of the problems they had with my procedure.
 
During my procedure i heard lots of voices "I cant understand it", "We can start it so easily", "Mmmmm go back and start off av node again" etc.  And that is something u definately dont want to hear when ur layed awake on your own.
 
After the procedure the surgeon came and said "It was difficult, but he thinks the problem is in the center of my heart"  *** THINKS!!!! WHAT AM I A GUINEA PIG  Well to me "THINKS" is no good. I want "TO KNOW" not "THINKS".  Its not good enough, I dont want to go through all that again to come out not been ablated..... or to be ablated when the problem isnt there.
 
One thing i also cant understand is why some people have to be ablated several times! Surely if they know what they are doing you would only need ablating the once, unless of course they are ablating the wrong parts!  Once again I revert back to us been "Human Guinea Pigs".
 
After the procedure the surgeon asked if there was anything i didnt like, I told him i didnt like the fact that i could hear all the voices and not knowing what was goin on, and also that i was left alone.  His reply was "Oh yes, im sorry sometimes we forget there is a someone at the top end of the bed mad mad mad mad .
 
Well I think ive said enough for now, so im going to make a coffee as i cant sleep and the sleeping pills aint working.
 
Bye for now and take care everyone XXXXXXXXXXXXXXXXX

legllyblnde
Regular Member


Date Joined Oct 2006
Total Posts : 22
   Posted 11/26/2006 9:27 AM (GMT -6)   
Queen, it definitely sounds like they made some mistakes with you. Most of the things I've read say that you have to lie flat for 7-8 hours before they start moving you around. And I've never been in a hospital where you didn't have a buzzer for the nurse. Maybe things are just different in Great Brittain (that's where you are, right?)...

I too wonder about why some people are ablated more than once. According to my research, the procedure is 95-98% successful for what I have (AVNRT). The 2-5% it's not successful for apparently have to have it done again. The people I've read about that have to have it done a second time seem to be those who had more than one spot that needed to be ablated or those whose tachycardia they can't get started during the procedure.

I just received an email from someone who had the procedure done at the same place I'm going later this week and it sounded like a pretty easy experience. I'll ask her if I can post it here so the rest of you can see a better experience.

Queen, is your infection better? What about the leaking? Hope you haven't had to be admitted again!

Juliette1
Regular Member


Date Joined Feb 2005
Total Posts : 72
   Posted 11/27/2006 5:27 PM (GMT -6)   
hello Queen
I hope you're feeling a bit better by now. Are you sleeping properly? I do so know what you mean about the 'guinea pig' thing. I have come to the conclusion that however well-intentioned the doctors are, they don't actually know everything. (Otherwise why have I had three unsuccessful ablations)? I think it's partly because of the rapid changes in technology, they have to work hard to keep up with it all. I also think that some of them are so highly motivated that they overestimate their abilities. Having said that, I don't think they do any physical harm!! I sort of think that on balance it's best to trust them even if they don't know 100%. I don't want to be taking Warfarin, I can't tolerate betablockers and I would rather not be taking Flecainide for the rest of my life. So I have to accept that while they don't know everything there's a good chance that they might help me.

I have had various places that needed ablating so that backs up what legallyblonde said in her post. I had some AVNRT ablated at the second try but they found some more somewhere else, so I'm waiting to have that done, but only if I can have a general anaesthetic. legallyblonde also wondered if our nursing care is different in England...I wonder about that too! And I'm a nurse. What on earth is happening to the NHS?Of course you shouldn't have been told to bend your knees and been lugged about. I've also been on the receiving end of some truly awful nursing care. As for being left to stare at the ceiling for hours during the procedure and treated like a car engine...can that be right?
I don't want to be wholly negative! I'm not a negative sort of person actually! I think we just have to trust 'em. But I wanted you to know that perhaps I understand your shock and dismay.

All you many, many people who've had lovely straightforward successful ablations must think we're terrible wusses! Sorry about that.

urmama
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 11/30/2006 5:47 AM (GMT -6)   
well hi my name is Aaron i have had svt attacks over the last 2 years on and off which last no more than 5-10 minutes at a time it always worried me and asked my gp and he said it was nothing to worry about so i would just let them pass and think nothing of it ruling it out as some sort of sudden adrenalin rush.
Last night i was taken to hospital with a major svt with a 230bpm heart rate which lasted just over an hour till the doctors carried out some vagal techniques to bring it back to normal.
You guys would know how scared i was not knowing what was going on or weather my heart was just going to stop and cause my partner is away i was alone so now that i know what is wrong with me and that there are other people who have the same problems as me gives me relief i will be seeing my gp in a couple of days to find out what I need to do. but i see some of you have had problems for years so is this what i am to expect for many years to come?????.and how long will i have to put up with this????
thank you for taking the time to read this but it is nice i can talk to other people with the same condition.

cheers
Aaron

ps: posted in another thread but this thread is more recent so thought id post here.
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