Hi Sixy, All these disorders/illnesses are devastating no matter how old we are. I have gotten through the "why me" phase...really had no choice to tell you truth, my mother has pushed me all the way, God Bless her. I dont know what I would with out her.
The waiting for results is hard. Hospitals, doctors and nurses tend to take their time not really realizing that the person is sitting on the edge of their patience waiting to hear how the rest of their life is going to play out. I understand that. I was lucky in that area, my mom is a cardic nurse at our local hosp. and was able to get my results as soon as they were entered into the system.
It may be a good idea for you and your husband to look at different options (while you can) for perhaps maybe the FMLA (Family Medical Leave Act) with your work if you feel your not ready to go back quite yet. Or perhaps, other options that are out there. I dont know what kind of work that you do. You do need to protect what you have made and because of a disability like this there shouldnt be any reason that it should make you lose what you have earned though your lives if you plan smart.
I just want to say for a sec here and I know at this point it isnt going to mean much but...for me my quality of life has changed so very much since I became sick. I cant no where come close to doing things I used to do or what I liked to do. However, quality of life is always what we make it and it changes. At being almost 34 and not being able to make my body do what I would like it to sometimes and yeah, it is fustrating at times, I have to say that I have actually made a pretty good quality of life right now. I have great friends, family, take care of myself the best I can and am as independant as I can be.
You will get there dear, hang in there and keep letting me know how your doing and how those result come out. Hugs to you ~ Elisha