Constant Burning Pain for months after Gallbladder removal

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Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/2/2009 9:58 AM (GMT -6)   
I had gallstone filled gallbladder removed along with emergency ERCP for stone in common duct on 10/28/08. Now it's Feb 1 and I've had GERD or acid-flux according to drs, ever since. I've been given Pepcid (worked for 2 weeks), prilosec (did nothing), Prevacid for 2 months (helped a bit maybe) and now on my third day of Aciphex - burning, shooting pains are getting worse. My dr wants to do another ERCP for possible missed stone. Has anyone had any thing like this? Also, since the surgery I've had a couple bouts of severe trapped gas, burping all day, hunger pang type pains (similar to what I had before the surgery!!). This is debilitating and depressing - no medication apparently is helping.
Help anyone??

momangel
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/2/2009 11:13 AM (GMT -6)   

So sorry about all you are going through.  I had my gb removed 10/8.  I must say I haven't been the same since.  I did't have any trapped stones and hopefully still don't, but my Dr. feels I have IBS and Reflux, not necessarily from the Sx but possibly contributed to my GB attacks and symptoms.  I do experience discomforts such as gas, belching, D and C off and on, stomach or ab pain.  I am presently very nauseaus constantly, maybe from the meds I was on.  Yes, very depressed. This is not quality of life.  So I took antidepressants that made me very sick to my stomach and gave meget as anxiety attacks. Still having them.  life has changed for me. Now I need to learn how to cope with this life the best way I can.  This forum has a big part in that.   Hope you can get as much help as you can from being here. 

Hang in there with the rest of us!

Carolyn

 

Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/2/2009 2:02 PM (GMT -6)   
Carolyn, I read that there is an unsubstantiated connection between gallstones and acid-reflux. I had a touch of it that started a week or two before my surgery, though it is WAY worse now. I have constant burning pain in either abdomen, chest, throat, at any given time, nothing seems to help, or if it does, it's just for a short time. Do you have constant discomfort of some kind? I don't understand doctors - my latest specialist scheduled another ERCP for me on April 1 - two months away! Yet when I saw him Friday he said a stone stuck in the common duct is very dangerous - so if he really thinks I have this - why the wait?

momangel
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/2/2009 2:18 PM (GMT -6)   

Wow...I don't know much about the surgery that you are going to have but if it is in the bile duct it seems that it would be something that you need out asap.  Did you have an ultrasound to determine that there is a stone?  Have you had an endoscopy?  That would probably show what all is going on in your gut and esophagus.  Get a second opinion if you feel that your Dr. is questionable.  Where are you from?  It shouldn't take 2 months to  get on a surgery schedule, unless you are out of the USA. If you are in that much pain I would get a second opinion. You don't want to end up in the ER like you did the first time. 

My Dr. suspects that I have reflux so he put me on Nexium.  I never had very noticable symptoms, which I hear is very possible.  But, yes I do know that the gallbladder, stones and GB Sx are all connected to reflux and even IBS.  Once in awhile I do have burning/heat sensations in my chest and back.  Symptoms vary from person to person.

Hang in there.  We are here for you.

Carolyn

 


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/2/2009 2:34 PM (GMT -6)   
I am in Chicago but the dr doing the ERCP only works out of my hospital one day a week (that's where my insurance is). I have an ultra sound scheduled for this coming Thursday, but now hearing about the MRCP - that sounds much more reliable. I just left a voicemail at drs office asking about that. I doubt if the ultrasound will show anything, but I hope it shows something to explain the constant burning pain.
Thanks!

momangel
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/2/2009 2:59 PM (GMT -6)   

Yes, you are right. I think that the mrcp would be the best way to go.  You are on the right track.  let me know how it goes, if you don't mind.  Whenever I have questions about anything I google it.  Maybe you can find some info. on bile stones and how long they can be in the duct.  It might put your mind at ease, although you still have to wait 2 months to hopefully resolve the pain.  Best wishes to you.

Carolyn


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/2/2009 3:55 PM (GMT -6)   
Well I have sort of good news - they are doing the ERCP on Feb 25. I'm still waiting to hear about an MRCP. The doctor probably didn't even know the girl scheduled me for April 1 - office just called me back with the new date! As for the bile stone in the duct - maybe if it's a small stone, not completely blocking it, it can be in there for months. Maybe that's what I have, because if it was completely blocked I would be jaundiced and have other symptoms. Thanks so much for staying in touch. Living with constant pain is so awful - it takes over your life doesn't it?

momangel
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/2/2009 4:23 PM (GMT -6)   

That is GREAT news.  I am sure you must be a little nervous. but you are on the road to a healthier life.  Apparently this is rather common after GB Sx.  We still can produce stones after Sx. Yes, it must be a somewhat smaller stone otherwise you would be presenting worse symptoms like jaundice.Hopefully it will relieve all of your pain. Do they do this Sx with the Lap or do they have to cut you open?  Hopefully it isn't too invasive.

Now try to relax, take a deep breath and do some praying. I find that always helps.

Carolyn


Ailie
Regular Member


Date Joined Dec 2008
Total Posts : 51
   Posted 2/2/2009 4:29 PM (GMT -6)   
The ERCP is with a tube down throat, but I will be asleep. They have a camera somehow they can see the duct and remove a stone. I had it done during my surgery in October, so it's disappointing to have it done again, but I'm in so much pain, I'm willing to try anything. I just hope they can be on the lookout for other things that could be causing the pain while they do it.
Thanks for replying! I just wish I could come up with something to eat or drink that would be soothing.

momangel
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/2/2009 4:57 PM (GMT -6)   

It is amazing what kind of sophisticated surgical procedures have been developed.  It sounds like a simple same day surgery.  In fact, I think that my mom was supposed to have that procedure done when she had pancreatitis, but instead she had her GB removed.  If you need suggestions on what to eat for your tummy why don't you start a new topic and get peoples suggestions on what helped the. I was just on a website for a drink called Haldi. Someone just posted the suggestion on one of the threads, and she drinks it for her stomach problems instead of taking a ppi like Nexium.  I think you will get allot of feedback.  I'll be interested to see the response.


Liz V.
Regular Member


Date Joined Sep 2005
Total Posts : 28
   Posted 1/6/2013 3:02 PM (GMT -6)   
Hello Allie,
This is a super old thread but I was wondering if you ended with the ERCP and if any stones were found and if so, did it get rid of the burning?
I hope you are doing well now!
Liz
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