Globus syndrome?

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zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 192
   Posted 6/29/2010 1:13 PM (GMT -6)   
Hello forum! I really need to know some things about this. My throat lump thing is the one thing that is making me upset, and the main reason is, that it NEVER GOES AWAY!

Do any of you have this 24/7? I mean, sure it has varying intensity, and when its not terrible it just feels like there is food or something stuck, mid range it feels like a tablet in there, stuck, and at worst, it is like someone is strangling me, stopping me breathing. It is very hard to deal with. If it is at its worst at night, I feel like my throat is going up into my nose and a snort/snore happens.

So I have had to concede to the medical professionals, after all the testing, ok, ok, its NOT a lump, I am not gonna die from it...but surely that isn't enough? I want it to stop!

I am in for the gastroscopy tomorrow, and my main massive fear that makes my stomach bottom out and my legs go weak is the docs NOT finding anything and me being left to get on with this lump/globus/spasm/whatever it is for the rest of my life. I am terrified of that. I have heard of people having globus coming and going, but not having it continually like this. I would be very interested to hear from others about this. To date, I have had this constantly from about July of 09. I just have no idea what to do.

Things that help:

Eating
Chewing gum
Gastrocote/Gaviscon < Mainly because it coats the throat, not related to the acid bashing thing, I don't think.


Things that make it worse:

Alcohol
Talking lots
Not talking at all
Water, specially cold water.

Please can anyone advise me? I am so miserable!

Liz x

Post Edited By Moderator (stkitt) : 3/18/2014 12:09:40 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12405
   Posted 6/29/2010 1:42 PM (GMT -6)   
Have you had the motility test yet? You could have nutcracker syndrome.

Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 192
   Posted 6/29/2010 2:37 PM (GMT -6)   
Hi Joy, no, Dr says that the GI scope tomorrow is to sort of see how the land lies as a precursor to the motility test at a later date. He says they "need to know where to go".

I have never heard of nutcracker syndrome. Is there anything you can tell me about it?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12405
   Posted 6/29/2010 2:49 PM (GMT -6)   
Nutcracker esophagus is an abnormality in which swallowing contractions are too powerful. In up to half of patients, this condition is caused by gastroesophageal reflux.


Symptoms include:Chest pain. Experienced by most patients with nutcracker esophagus, chest pain may feel the same as the pain produced by a heart attack.Dsyphagia. This is characterized by the sensation of food getting stuck under the breast bone.Heartburn. This is a burning sensation under the breastbone.



In confirming this condition, a doctor will do certain tests, including:

Esophageal manometry. This test identifies the excessively powerful swallowing contractions.

Upper GI endoscopy. This test is almost always done if a patient describes food sticking in the esophagus after swallowing to make sure that no abnormal growths or scars in the esophagus are causing this symptom.



TreatmentAmong the options for helping people with nutcracker esophagus are:

Anti-reflux therapy. This is usually tried first since many patients with nutcracker esophagus have GERD.Drugs, such as nitrates or calcium channel blockers. These help relax the muscles of the esophagus and stomach. They do relieve some patients, but overall they are not very effective.

Tricyclic antidepressants. These drugs work by lowering the sensation of pain for some patients.



I hope this answers your questions.



Joy

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 192
   Posted 6/29/2010 3:07 PM (GMT -6)   
That's really interesting Joy, as I have all those symptoms. I will be having the motility done soon so I hope if there is any possibility of such a thing, it will be detected.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12405
   Posted 6/29/2010 3:43 PM (GMT -6)   
It will definitely tell what's happening.
I hope you do well on the motility test. Just take your mind elsewhere during it and it helps you get through it.

Joy

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 6/29/2010 7:52 PM (GMT -6)   
i have the same thing..one doc said anxiety but all the tests say gerd to essentially having no les. get the tests and let us know. lots of help here.

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 192
   Posted 7/4/2010 3:08 AM (GMT -6)   
Are there any more out there with this? I am also interested to know if anyone has had it badly like this and recovered.

paultimson
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/15/2011 6:25 PM (GMT -6)   
Hi Liz,
I literally just got diagnosed as having Globus Syndrome today.
Its an unbelievably uncomfortable and quite an alienating feeling!
I believe there is no cure for this at all aat present, my throat specialist
Today advised me to take a spoonful of Gaviscon at night time 15 minutes
Before I go to bed!
I have the sensation 24/7 also, not. Just when I swallow, but in between swallows it Is also there too. A combination of feelings from a pill being stuck in my throat, to the feeling that I have a hair stuck in my throat, and often the sensation that there is a blister on the back of my tongue.

I'm looking into herbal and alternative remedies.
There is no approximation on how long this syndrome lasts,
I guess each person is different. I do find that if I can keep myself busy
I tend to forget about it briefly.
I thinks its very much a stress related illness!

Paul.

belljar1995
Regular Member


Date Joined Dec 2011
Total Posts : 93
   Posted 12/15/2011 9:30 PM (GMT -6)   
HI all
GERD/LPR can produce the globus sensation. My ent told me it is because of the swelling--you really do feel some of it and it won't unfortunately go away until the swelling goes down. In the absence of swelling and if eating and chewing gum helps, you could have a simple cricopharyngeal spasm. I have gotten these in the past and they can last for weeks. Things that will help are warm tea (if you don't have GERD/LPR), eating, chewing gum and a muscle relaxer (like valium).

Of course a lump in the throat feeling can be a symptom of a number of conditions, so it is good to be cleared by your doctor, but if it is a simple spasm with no GERD/LPR or other issues, you can usually get a very small number of muscle relaxers to deal with the problem until you can learn to relax the muscle yourself.

PS- usually people with simple spasm, feel worse at night, better in the am

ClownLoach
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 12/15/2011 9:36 PM (GMT -6)   
TC, I had/have the same problem.

After an acid reflux attack last year, I had throat problems ever since. The AR was taken care of with ppis, but I still had globus throat and hoarse voice etc.

ENT originally diagnose AR, but later went to GI who did endoscopy. I was expecting hiatal hernia etc, but he said everything looked ok except one thing that may be causing throat problems and that is something called "inlet patch".

Biopsy of patch sent for analysis, and no abnormalities just cells consistant with inlet patch, meaning they are the same as whats in the stomach and can give off acid etc.

daniboy
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/26/2013 3:13 PM (GMT -6)   
I have a friend who just told me her Globus went away...but I didn't know what it was so I was just looking it up and saw this thread. She started using essential oils for hormone balance and some other things, and when she added one new oil, that was when she noticed her globus went away. She is thrilled!

OHSOBAD
Regular Member


Date Joined Apr 2013
Total Posts : 87
   Posted 9/27/2013 10:54 AM (GMT -6)   
HI! I had a more severe case of "nutcracker" esophagus.  It took over a year to finally get any relief.  We started with the ususal GERD drugs, which did nothing; moved on to the calcium channel blockers and the nitrates which worked for a little while and then not at all.  Tried sildenafil (viagra), diltiazem, hyscyamine and other anti-spasmodics, after a 50lb weight loss and the inablility to eat or drink anything without severe chest pain and nausea I had surgery.  The procedure is called POEM and is usually performed for achalasia (lack of esophageal peristalsis) however, it worked for me and I am so relieved.  BTW, POEM is per oral endoscopic myotomy and was performed at Johns Hopkins in Baltimore MD. turn

lobstahguy
Regular Member


Date Joined Jul 2013
Total Posts : 331
   Posted 9/27/2013 6:35 PM (GMT -6)   
I woke up with this on March 10th out of the blue when i had a Bravo capsule in my esophagus. I went to the ER and they put me on ativan. Biggest mistake of my life. I am now going thru ativan withdrawal hell and i also fear living with the globus sensation. I dont think i could do it.

CaptB
New Member


Date Joined Jan 2014
Total Posts : 2
   Posted 1/12/2014 10:28 PM (GMT -6)   
I have been recently diagnosed with nutcracker esophagus through manometry after 2 years of GERD meds (gerd is NOT a contributor or cause of my NE although it is in some cases), nitro, calcium channel blockers, and the like...all with no relief. I am beside myself with constant intense chest pain, globus, and the feeling of being strangled with deep pressure and pain in my throat and neck.
i am scheduled to have the POEM procedure within the next month. With little up to date info on the internet on treating Nutcracker with this surgery (usually only done for alchasia) I am disheartened and scared by what info I have found...being...that this surgery can actually make my pain WORSE. The though of that makes me want to go over the deep end. I am hoping the person who replied on this thread in Sept will see this and comment on their results. My surgeon has not done much to foster any confidence in what I am going to have done..it seems his only concern is to tell me that most of the time it is rather worthless for nutcracker. No one else in my area performs this POEM surgery.
Thanks to any who can comment.

Jasper607
New Member


Date Joined Nov 2013
Total Posts : 14
   Posted 1/12/2014 10:59 PM (GMT -6)   
I've been living with the globus sensation for almost 5 years now. I too tried the Ativan for a few months after going to the mayo clinic. Thinking it was stress related I hoped it might help me sleep. Also the worst mistake of my life. I went off cold turkey when I couldn't get the rx refilled. I was sick for a week and couldn't sleep for many days. Glad to get off that. My lump started small and has gradually increased to 24/7 lump pain, difficult swallowing, swollen glands, itchy ears, mysterious aches and pains in my neck, tingly sensation in the neck, sometimes less intense but stress definitely makes it worse. I felt sick and nauseated a lot of the time especially after exercise. It's been a long road of suffering and praying for a cure. After finding this forum it amazes me how many people out there are suffering the same symptoms. I also have found that I get relief temporarily with chewing gum, cough drops and eating helps too. It's worse at night and less intense in the am. But quickly escalates as soon as I get up and start my day. I drink warm tea throughout the day.

CaptB
New Member


Date Joined Jan 2014
Total Posts : 2
   Posted 1/14/2014 12:23 PM (GMT -6)   
I also have all the globus symptoms...which are caused by my Nutcracker esophagus.....it is the esophageal spasms that migrate into the throat area that instigates that "always something stuck' feeling. I am having my surgery in 3 weeks and am told that this will alleviate this and all my other symptoms.
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