Gastritis and Esophagitis, severe inflammation for 2 mths

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Ariona
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Date Joined Jan 2011
Total Posts : 56
   Posted 1/3/2011 7:58 PM (GMT -6)   
I need advice...help...The doctor told me today... what else do you want me to do... I have had blood work...a hida scan...ultra sounds. etc etc. Today she put me on carafate and dexilant. I haven't tried the dexilant yet...The carafate seems to make my already mad at me esophagus and stomach even more upset. burning...i just may need to give it time. The anxiety and frustration  of all of this makes me feel worse. I am to switch my nexium to dexilant...i noticed when i started taking the nexium my right side started hurting worse. My hida scan and ultrasounds were before all the meds. I have severe burning where my esophagus meets my stomach... my esophagus burns...stomach pain.. and a sore throat. Please i need advice. I have bought books researched and i am at my wits end.

slicer
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Date Joined Jul 2010
Total Posts : 18
   Posted 1/6/2011 10:05 AM (GMT -6)   
You have the exact same probs as I have.
I have weeks when I can stay on the nexium and feel a bit better, then have to stop taking them as they give my lower stomach probs.
I'm in the same boat Ariona, I feel your frustration every day 2!
The throat pain seems to get worse on a monthly basis.
I have surgery date booked for toupet fundoplication, but am also considering the Linx device, and have been offered this as a private procedure.
How long have you had these problems?
Have you considered surgery?
 
Regards,
Lewis.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 1/6/2011 12:52 PM (GMT -6)   
I started with mild heartburn here and there the end of Oct. I stay basically on a liquid blan mashed up diet. Because I hurt the whole way down...they say my lower esophagus into my stomach are very inflamed. My stomach is inflamed also. I go to a new gi monday...my other gi told me what else do you want me to do for you. You r rejecting more of the meds. Its painful. I wish u the best and some relief soon. How long has this been for you?

Now what?
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/12/2011 11:56 AM (GMT -6)   
I have had stomach and esophagus issues now since April 28, 2010. I was on prednisone for severe posion ivy and had a major attack. It seems the prednisone ate my stomach lining and the esophagus. I went to the ER they put me on Zantac 150 mg a day for 14 days. After two weeks of non stop pain I went and saw my regular dr. He put me on Dexilant and Carafate. After about two weeks and a very bland diet it seems to help. It's now Jan. 2011 and I am still unable to eat regular food. I went off the Dexilant and back on Zantac 150 and just watched what I ate. I drank some tea that had caffine in it and put me back to square one. Unbelievable! I called my dr to get more dexilant, and it seems to help as long as I take it, and stay away from just about every food. No caffine, no spices, no onions, nothing that has any kind of aciditity, nothing carbonated. Pretty much bland food. Or else I pay for it. The pain is just unbearable. What else can be done to lead a normal life to eat what I want with my family?

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 1/12/2011 12:47 PM (GMT -6)   
I undertand...boy do I ever. I just saw my new GI doc on Monday. He switched all my meds. I was reacting to the carafate and nexium. I did not even touch the Dexilant. He gave me Aciphex to try. So far it seems to help a bit. I do know if I eat or Drink 1 wrong thing, I pay. he is running all kinds of tests. he diagnosed me with bad IBS...that doeant help at all. It seems like I never go with out the scratchy burning...but its more bareable than other days. Its all trial and error with food. I know I have researched online for diet, natural ways,relaxation tips. I know with esophagitis...it has to be blan until u heal. I cant eat onions, garlic,sauce, caffine,soda,juices,spices, red meat,cheese. I have added fresh wild caught fish to my diet...more organic, some fat free protein shakes, grilled chicken done in a little evoo shreaded, mashed potaotes with free range fat free chicken broth,organic greek yogurt on a baked potato, hummus ( but I have to watch),rice milk, almond milk,very well cooked veggies mashes. no broccli or anything gasy,oatmeal, baby food rice cereal,bananas,some well cooked pasta with parsely and mushrooms sauted in a tiny bit of evoo. I even got some soft flat bread, with non fat turkey or make a turkey and shred it.with some greek yogurt or hummus spread on it, bagel thins not toasted with some greek yogurt or low fat hummus. Days that I'm bad i stick to some protein shakes, noodles in chix broth, unsalted salteens with chicken broth. My GI doc is great..I highly recomend a good gi doc. u will have to find whats right for u. My aunt and girl friend had this and they said it takes a long time to heal. My friend said it took her 2 yrs until she could start introducing some of the things she couldnt eat. She still has to watch. I try to more water...only bottled. I know I also want to eat with my family but until I am healed up enough, I know I cant. I keep propped up at night. I know daily life is hard...I hurt. I have little kids so its def hard. I have bought cook books but I cant even touch them until I heal. I recommend researching...trial and error. Keep your stressers down to a minimum. eat small meals more often. And trust me I understand cause I love to eat. My whole world was turned upside down with this. I did a big boo boo today...I ate organic oatmeal...just figured out on the days i am sickest I have eaten that for breakfast. I read the package and it said oat meal and sea salt. I think its the sea salt. I am here if u ever want to chat...message me anytime. Take care and feel better.

Now what?
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/12/2011 1:23 PM (GMT -6)   
Thank you Ariona. It's nice to know that I am not crazy and not the only one going through this. Everyone here at work thinks I'm nuts and don't understand why I'm not back to normal. My diet first consisted of scrambled eggs, which was one egg with extra milk, so I wouldn't put oil in the pan. =) disgusting sounding, but when you can't eat, it works. I also kept to milk which my dr couldn't figure out how I tolerated that, but 2% worked great. Baked potato nothing on it. I will check into organic foods and see what I can find. The only good out come was, I wanted to lose weight, and now I am down 35 lbs. =) Husband thinks that part is great but he wished I felt better and so do my two girls. We are planning a trip to Walt Disney World in June, but not so sure how I am going to eat there at all. Nice to know also that your friend was able to eat after 2 years, so that means I am almost half way there. I just hate it when my dr just shakes his head and doesn't know what else to do. But like I said, it's nice to know someone else understands the pain and what I am going through. You take care too.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 1/12/2011 1:48 PM (GMT -6)   
I know the pain. Its an every day thing. Today is Bad with a capital B! My Aunt had this yrs ago and can eat but has to watch. Like my gi doc said...this didn't happen over night. My friends doc said its like having a cut on your insides with something always bothering it. My diet is not all organic... But I use honey to flavor things here and there. i find a good acid reflux cook book. Thay talk about ph. I have i think 6 books 2 of them cook books. I have researched natural oils that help along with other things. I am also on some natural supplements...my doc said were ok. I use very little salt...no sugar. I know its hard not to just break down and cry when I am in pain. Its also hard not to let the pain and frustration get the best of me. I know the weight thing. I did not need to loose weight and have lost 18 in 2 and a half months now down to 100 lbs. I know I keep my diet as low fat as possible. Mashed potatoes with chix broth, salmon broiled with a little salt and honey...tilapia...all soft and flakey fish. I know my family has been great and crying over it doesn't help but we all have those days of bad pain and building frustration. Hang in there. I know its hard. I am here when ever u need. I love hearing u look so good...and its like ppl don't think your sick of your make up and hair is done and u r dressed nice. I know its a complement but I just want to scream and say I feel so horrible. Life being so limited to one of lifes great gifts...food.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/21/2011 12:29 PM (GMT -6)   
I'm so glad I found your posts! I have been struggling with everything you've described since November. I've lost 20lbs and am not able to eat much except chicken, brown rice, avocados, apples, bananas, and oatmeal. I tried some shrimp yesterday - bad idea. Oh tilapia seems to be ok too.

My esophagus, stomach and lower GI tract are all a mess. Every PPI and H2 blocker I've tried causes excrutiating stomach pain. I have found a little mixture called a pink lady (they gave me this in the ER) and it helps when the esophagus pain is excrutiaing. The last 3 months have been non-stop pain; either my esophagus, my stomach or my intestines.

I think GI pain has to be the worst thing. I feel as though I've been in labor for months - it's unrelenting. I'm afraid to take anything for the anxiety as they irritate my esophagus. The pain relievers make me so dopey and cotton brained. The whole experience has been awful.

My scopes are scheduled for next month and I feel like I'm hanging on by my fingernails to get that far. I admire how well you both seem to be handling the situation and I will keep checking back to see how you're doing.

Thanks so much for posting your experience. I'm so glad I'm not alone in this!

One other thing - this started in earnest when I took antibiotics last fall so I've been trying to repopulate my gut with probiotics. I now have post infectious IBS so yogurt is not an option as I've lost my ability to ingest milk products.

And finally my family dr had the same words for me 'what do you want me to? We've run every test I can think of'. It's important to just keep pushing when faced with that attitude and I don't think it's terribly professional of a dr to say such a thing, instead of admitting that they are at a loss. His second comment was 'I don't think Western medicine has an answer for you'. That increased my despair a great deal for a while.

I wish you both a speedy recovery!

(I tried posting this earlier but I don't think it succeeded. Sorry if it's a double post)

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 1:05 PM (GMT -6)   
I am so glad u posted. I know my gerd is worse along with anxiety and feeling week and kinda like I'm not here around certain times of the month if u know what I mean. I hurt every day. All the medicine makes me sick. My esophagus and stomach are so inflamed and my stomach even hurts. I have mucosal lining missing in my esophagus. They r telling me it because of IBS. I think that is what they use when they can't find anything else. I am miserable...I've tried ativan, celexa,protonix,nexium...prilosec, carafate, maalox,pepcid, aciphex. All which burn worse. I have a family so it makes it hard. I hurt all day everyday. I was sleeping all night...well not anymore. I hate the nervous, anxious feeling, yet I'm tired all the time. Go figure. Mornings are my worst. I am also at my wits end. I am hoping we all heal soon. Start journling your symptoms and day. I know I am worse if I get excited, mad, or my adrenalin get pumping. Mornings are my worst...when everything in my body says rise and shine. They are horrible. I can't even decribe the pain. I know we have to get through this. We will stick together. Please let me know how u r doing. Keep in touch!!

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 1:12 PM (GMT -6)   
They will not give me pain relievers because they said it will make me worse. Just be careful taking them. I am going to try aloe juice. We will c. I have started some dgl licorice 2. We will c.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/21/2011 5:18 PM (GMT -6)   
Things that have worked or at least relieved some symptoms:

Mastic Gum
Cabbage juice (take a look on pubmed for studies of the GI benefits of cabbage juice)
Probiotics for IBS symptoms


things that haven't worked:
Manuka Honey


Not sure if they help:

DGL Licorice

It would be so much easier if it was just one symptom to deal with - a whole constellation of them is a challenge.

The pink lady numbs the esophagus temporarily so it's a method with fewer side effects than some other alternatives

Let me know how the aloe vera juice works. I've heard of it but haven't tried it yet

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 5:32 PM (GMT -6)   
I have also been doing manuka honey...but in warm water because it burns where I have lining missing. What is mastic gum? I was told cabbage juice would irritate and give me gas and make my ibs worse. I am on probiotics and organic flax pills for my ibs. Probiotics are awesome. How do u do your cabbage? Raw and juice it or cooked drinking the water from the cooked cabbage.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 5:45 PM (GMT -6)   
Also I have had *n endonoscopy in dec 3 10 and another 1 Jan 26, 11 along with a colonoscopy. Horrible. No hiatel hernia. But it is horrible when I bend over. I c a more natural nutritionist... He is trying to help and listens to me. I feel like my esophagus in the lower part of my breast bone contracts or tightens and that's when I get a lot of acid reflux symptoms. I am in pain all the time. I have so much money invested in this disease its not funny. I am willing to try anything so I can heal. I am off all meds. Just doing the natural thing right now. I may have to break down and take protonix and just lay on my couch sick for 2 months. They make me so ill. They even burn when I take them. But what doesn't burn. I do have some days where its hard. My kids are almost 9 yrs apart. So I am running and taking care of a my little dude who is so full of energy. Its hard. My nerves get bad.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/21/2011 6:05 PM (GMT -6)   
Mastic gum is a supplement (or a gum if you can find it) from Greece that has been used for thousands of years for gastric issues. There's evidence to show that it can supress h pylori which I'm waiting to be tested for when I'm scoped next month.

There haven't been any side effects documented from mastic gum so I figure it can't hurt & might help.

When did you have your scope? Is it confirmed that it's GERD? How do they determine that? I've been told about a dozen different things & have found the symptoms very confusing. I wish I could bypass my esophagus for a month and let the darn thing heal. It's hard to cope with pain but at least it will heal eventually.

Which probiotics are you using? I've been taking Ultimate Flora, Florastor and just started on TuZen. I introduce them slowly as I was so bloated for a couple of months that I couldn't drive - too uncomfortable to sit because I was so bloated. It would push on everything that was already inflammed.

Do you know any sources of info on low inflammation foods?

I juice the cabbage and mixit with carrot juice. It irritates sometimes but I don't know what else to do for the stomach pain - it's the only thing that helps.

Thankfully my kids are grown so I don't have anyone but me to worry about. My son takes care of the animals. This has knocked me on my arse - I haven't been able to work for 3 month and was unemployed before that. I can hardly wait to get back on my feet. It must be very hard to have a little one in the house and feel like this - I can't imagine.

I will share anything I find helpful.

One thing you mentioned earlier about hormones. I was doing okish until my period arrived last week then all hell broke loose again. I was surprised at how profound an effect my period had on my symptoms. I'd like to turn off my hormones til this is over!

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 6:43 PM (GMT -6)   
I have researched and reasearched. It is so bad during that time of the month because estrogen levels line your digestive tract along with serotin and melotin. My IBS is really bad at that time of the month. My first gi just said it was gerd...nothing else but gerd and nerves. My second gi said acid reflux caused by ibs. I think they just come up with something to tell u. I do not have h-plyori or canidia or celicas disease. I do have female issues. My son is a miracle. I take ulrts flora also but just bought a powder by metagenics. I am going to try. I go c a more natural person tomorrow. Try and do some relaxing breathing techniques...and massage. Our mind and gi tract goes together. Mine stated when I was going through a stressful time along with antibiotics and steroids. I was eating a lot of citris fruit and spicy foods also. I bascially burnt my insides. Stay relaxed when u eat. Research pressure points for your stomach and intestines. Massage them. I have bought book and books. Be sure to drink bottled water 8 to 10 glasses a day. I was told no gum chewing because it is hard on my intestines. I take an organic flax to help with constipation. I do not understand the contractions in in th bottom of my esophagus. It could be my les muscle is weak. I have been eating cook carrots and organic baked swwet pototoes they say vitamin a is a good healer. I may even start taking vitamin e. Idk. I will wait and c. The docs rather give u med after med. Instead of really getting down to the issue. I will take the protonix if I have to. The side effects for me r horrible. They say aloe juice heals, so does dgl licorice and slippery elm. Ginger 2 but I am afraid to try it due to the burning. I wish I knew why my intestines burn also. I think its because they r so sensitive. I even started drizzling organic olive oil on my potatoes. I've cut proteins. They r to hard to digest. I drink almond milk, coconut milk, and rice milk. All at room temp. I was told nothing to hot nothing to cold. I also was told not to mix meat with starches. Fruit alone. Only starches with veggies...or meat with veggies. I am down 28 lbs. - am 96 lbs now. I am willing to share anything helpful. I also if I just need a quick snack get organic baby food. Lol. It is soft ...I cook organic brown rice...add some agave nectar and rice milk or almond milk.(Not cold or to hot) and blend and make a pudding. It is a great stomach buffer and it is high in fiber. Boost also even though it burns. It is lactose free and makes a quick snack on the go. Again room temp. I keep loosing weight because my diet is so low fat and my metabolism is very high. I before this illness could eat anything and not gain weight. This sucks. I am here to talk. Whenever. I hope u have a speedy recovery. Try and keep stressors to a minimum. I know easier said than done when u r in pain 24 -7. If u need to cry or vent do so. 3elax and do some relaxing breaths before bed and find something in your day that was good funny or happy and just say I am thank ful that happened to day.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 7:08 PM (GMT -6)   
I wanted to ask. If u take a pill can u feel the fumes from it into your esophagus? I can. Every pill I take either burns or tingles and I can feel them into my throat. A fizzly feeling. Kinda like pop rocks. I have also been suffering since November. What is funny the doc put me on antibiotics and pregnisone for a throat infection when it was acid reflux. Made me very worse. I had my first scope in dec 2010...and my second jan 26. I another thing is sometimes my esophagus gets an itchy feeling by my breast bone near my stomach. I do not get that either. I do know when I get my period and or I get stresses or yell or get excited I get worse. If you or anyone needs advice or just to vent or a shoulder. I am here. I hate that anyone else is going through what I am. I am so sick of health problems. But I just tell my self it could be worse. Explore all aspects of your health hormones, stress, foods, anything. They say not to research but that has helped me start to heal. It take up to a year to 2 yrs to heal. At least that's what it took my aunt and girl friend. You will always have to watch what you have to eat but I've been told u will be able to eat again. Please take care.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/21/2011 7:51 PM (GMT -6)   
My GI doc also mentioned it can take up to 2 yrs to recover. I am sure I've had problems for 8 years so if I know I'm getting better I'm ok with that, as long as there is an improvement. Slow is better than nothing.

I've had weird sensations from different things but nothing like pop rocks.

I agree - no one should have to go through this. It's absolutely horrible. I've ordered a book on meditation; I'm hoping that and some exercise will help.
It's hard not to dwell on the symptoms. I do have to say things have slowly improved since November but it's certainly a slow process. It's interesting that we both had a turn for the worse after antibiotics. I'm convinced that the key to this lies there and repopulating the gut is going to help a great deal with this problem.

You're lucky, in a weird way, to know a couple of people who've been through this problem. I'm glad they've gotten through it!

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 8:12 PM (GMT -6)   
I now know 6 people who have been through this. Most of them had it at very stresful points in their life. Stress and nerves play a huge role in this. Antibiotics and citrus fruits did not help. I am a person who's mind never shuts off. It is hard to relax when u. Are in pain and have a family. It I also hard not and dwell on your symptoms. I am thinking that is something I need to learn. I just want the horrible weather to break and I would love to be able to get out and take a walk. I should have decribed the feeling I was having better than pop rocks, its more like fizzling or gas, fumes. I do know 4 women who are recovered from this. One of my friend is currently going through the same thing. She just goes about her day like nothing. She has 3 kids and a husband that works away. Her esophagus was 10 times worse than mine and her stomach is full of gastritis. No bacteria or gallbladder problems with her...just stress and a slight hiatel hernia. Nothing serious. I though of joining gym. Just to get out and work off my nervous energy. My family has a lot of digestive issues. My uncle had had gerdfor yrs. He just has his scope and is very inflamed. But he work 40 to 50 hrs a week and doesn't think about it. He is also a nervous high stress person. I feel if I could get my stomach and esophagus healed I would be able to do more about my nervousness esp around that time of the month when I am the worst. I feel like I can't have an emotion or I get bad gerd symptoms. I hate laughing or crying or being mad or sad...my symptoms seem to worsen what they already r.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/21/2011 8:13 PM (GMT -6)   
Just wondered if you are taking a ppi or h2 blocker or just doing natural???

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/21/2011 8:18 PM (GMT -6)   
I keep trying different ppi's, have tried one H2. My stomach turns into a very painful, hard rock and goes into spasms. It seems like it's so inflammed that anything like that is just excrutiating.

I wanted to mention about the anxiety. I read an article that the probiotic strain in Align may be implicated in relief of anxiety. There is a one page article on probiotics and that was one of the highlights. I found it very interesting.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/22/2011 6:38 AM (GMT -6)   
I will have to read it. That is very interesting. Thank you.

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/22/2011 6:43 AM (GMT -6)   
And that is funny you say that. It is the same way for me. I can taste them it feels like the gases come into my throat and like my chest contracts. Wow we have a lot of the same symptoms. I am worse in the morning. When my body says wake up and everything else wakes up.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/22/2011 2:11 PM (GMT -6)   
It really depends for me. My stomach hurts in the morning for sure, due to whatever inflammation there is and no food being in the stomach. The last couple of days have been acidy mid-day to evening, not sure what has changed...

Ariona
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 2/22/2011 2:57 PM (GMT -6)   
I just know I am very irritated and swollen feeling into my abdomen. I am scared. I am bloated with gas and constipated. I burn in my breast bone and everything irritates me into my throat. I do not wish this on anybody. With muscoal lining missing and an inflammed stomach and esophagus everything burns. It scares me it is burning me worse. My intestines even burn. I am glad to have support. I just wish I could find a way to reverse this.

GI_Jane-pain
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 2/22/2011 3:01 PM (GMT -6)   
There will be an answer eventually! If it were terminal people would be dropping from it and that's not the case
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