Heartburn 4 1/2 weeks post Esophyx TIF. Thoughts on Reglan?

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Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/21/2011 7:33 AM (GMT -6)   
I have a small hiatal hernia that has given me heartburn troubles for 15 years (I am 39). I finally bit the bullet and had the Esophyx TIF surgery about 4 1/2 weeks ago, with one of the best surgeons here in the Washington DC area. As for food, he told me to go on "SPLAT" diet. (If the food would go splat when it hit the floor, it was OK to eat.) He took me off PPIs after 1 1/2 weeks.

My recovery has been sketchy. I had no soreness, just a lot of spasms and fatigue for about a week, then I felt pretty good. Trouble is, my heartburn returned a few days after the surgery. Doc said we should give it a little time and gave me Carafate. As of last week, the burning in my throat got much worse, so my doc prescribed Reglan. The stuff has a terrible list of side effects and I am afraid to take it. Anyone ever taken this drug? Is it common to have burning after surgery?

In the meantime I have had a barium swallow test and will see the doc again in a week and a half.

dencha
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Date Joined Feb 2009
Total Posts : 6948
   Posted 3/21/2011 12:21 PM (GMT -6)   
Hi Sophie,
Welcome to Healing Well!

While I didn't have the TIF, I had a Nissen Fundoplication, so I can speak from that perspective. After surgery, almost anything can happen...Things are swollen and it takes time for them to fall into place. Laproscopic surgery is deceiving. (is the TIF placed through an endoscopy? If so, it's even more deceiving, as you have no external evidence of what has gone on inside.)

You've had a revision to your upper GI tract, and it often takes time for things to work the way they're meant to.

Try to be patient. Follow your doctor's directions, and give yourself time to heal.

As far as Reglan goes, there are quite a few here who have or are taking it. I took it for many years--prescribed by my family doc. My GI docs weren't fond of it because of the side effect risks and probably their own risk of lawsuits.

I never had a problem taking it, but I never noticed that it helped me. I haven't taken it in several years. My doc put me on it again a few years back, and it didn't help...when I told him I was getting thumb twitching, he took me off of it.

It'll be your call. Pretty much all meds have long lists of horrible side effects. If it is a short term thing you might want to follow his advice and take it to see if it helps. When it comes down to it, you are the one to make the decision.

Take care and good luck,
Denise

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/21/2011 1:44 PM (GMT -6)   
Thank you for your response! The surgeon painted a somewhat rosy picture about this procedure and made it seem, if the procedure worked, that I would be feeling better in a pretty short time. So imagine my surprise when here I am weeks later, really suffering. The TIF requires no incisions, so recovery is very deceiving because I felt fine by week 2...except for the awful reflux!!

Thanks also for your take on Reglan. After reading about it I was afraid to come anywhere near it. So it is good to hear from someone who took it for years. I guess I can handle it for just a couple of weeks.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/21/2011 7:35 PM (GMT -6)   
 
Welcome to HealingWell.  I am so sorry to read of your issues.  You may want to talk with your GI Physician re using Aciphex in place of Reglan.  The side effects from Reglan appear to be the reason MD's do not prescribe the medication as much as they used to.
 
Take care and hope you solve your issues.
 
Kindly,
Kitt

~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
www.healingwell.com

"If you can't change the world, change your world"

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/22/2011 9:03 AM (GMT -6)   
Thanks for the tip - I definitely do not want to stay on this medication for very long at all and it is good to know there are options.

Peacedove
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/22/2011 9:48 PM (GMT -6)   
Hello all I am a new member so I hope I am doing this right. I am reaching out to people wo have had the TIF procedure. I a 57yr. old female in pretty good shape. My Doctor did a check and found that I have Microsopic, it is pre-cancerous and Barrett's mucosa must be considered, That's what is on my path report. I saw a different Doctor that does this kind of procedure. He told me that the TIF was right for me. But as we all know some Doctors are just out for the $ and I am not sure just what I am going to decide. I really could use some feedback from anyone. Thanks

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 636
   Posted 3/22/2011 10:07 PM (GMT -6)   
I was on Reglan for about 2 years. The only side effect I had was it made me tired. My dr didn't want me taking it longer than 3 months but it was the only thing that somewhat helped with the nausea.
Michelle

~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/23/2011 5:47 PM (GMT -6)   
Thanks for the info on the Reglan. Glad to hear that it didn't really affect you. I have been taking it for a few days and have had no side effects, so that's good.

Peacedove,
I was also told that I am a perfect candidate for the TIF. I am 39, lead a healthy lifestyle, and not overweight. My hiatal hernia is small and that is the only reason for 15 years of heartburn troubles (no other complications). My surgeon was very honest with me. He has done about 1000 Nissen procedures in the last 10 years, but the TIF only about 10 times. He is highly regarded in the area (D.C. metro) and regularly often travels abroad to teach others surgical techniques.

He explained that the Nissen is more likely to be "permanent" due to scarring that occurs - (although I am noticing on this forum there are several people who have had it more than once).
The two surgeries are equally involved, but the TIF can be adjusted or redone with scarring being less of an issue. Plus recovery is easier since there are no incisions. If for some reason the TIF doesn't work, a Nissen can be done, no problem.

So, I took my chances. I am now 5 weeks post-op. I felt NO pain after surgery and stayed in the hospital one night. I walked right out of there a little more than 24 hours later. My first week, I had trouble swallowing much, and my esophagus would often occasionally spasm for about 30 seconds (ouch!!). I was also just a bit tired from the surgery. But all that passed in less than a week's time and I really felt normal in less than 7 days. I still continue to carefully watch my diet. HOWEVER, I started having heartburn about 3-4 days after the procedure, and it has gotten progressively worse since then. Hence, the Reglan, which definitely helps, albeit temporarily. I don't have an explanation for it, so I am seeing the surgeon next Thursday to talk about my barium test results. Hopefully he knows what's going on!

Hope that helps you. I am happy to follow up with another report in the near future. I know how nerve-wracking all of this is.

Peacedove
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/23/2011 6:41 PM (GMT -6)   
Sophie1016,
Thank you so very very much for all the infor. See I didn't even know I had any problems until I went to have my ulcer checked. Then I was told I had this Barrett's, and he asked me if I had any problems swallowing. I said NO, not at all. I have never felt heartburn nor acid reflex. I also like you, have a small hiatal hernia. The doctor I went to see about the TIF told me he thinks that is why the acid is coming up, my opening is larger. He said he would also fix that when he gos in. Now that spring is here, I am going to put it off till Nov./Dec. sometime. I want to enjoy my summer, lol... I was scheduled to have it done Feb.7 But I came down with a sinus infection that I just couldn't shake. So for now this gives me more time to connect with others who have had this. What I have read so far sure is not a walk in the park. Oh and the diet is something else, WOW no real food for almost 3 months. This is going to be hard work I see !

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 3/25/2011 2:35 PM (GMT -6)   
Hi,

i had Tif done 1 week back and i am regretting doing it, i am suffering more post TIF, my life is more miserable than it was before surgery. i was suffering only from mild LPR and now heartburn, sore throat has worsen and voice worse, if try to talk it pains a lot. i would advise anyone please think a million of time before going for TIF. now i am planning for LNF. i am on 2x40mg Nexium plus 3malox plus.

Peacedove
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/25/2011 3:58 PM (GMT -6)   
Hello Shaeyne, I am so sorry to hear what you are going through. It has only been a week, as of any surgery things take time to heal. The next week and the next week should get better. I am going to have the TIF this coming fall. I wish I knew of someone I could talk to in person who had it done, I think I would feel better about this. I just found this site afew days ago, and have been reading about what others have gone through. I am really worried my self, and the Doctor of course says nothing but great things about it. So for now I will keep coming hear to see what people have to say. Please let me know as times goes by how you are doing. I will pray for you that you will be fine, it just takes time.
Warmly, Marsha

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 3/25/2011 11:18 PM (GMT -6)   
Hi, Marsha

i am sorry i have LPR so voice too bad, i just can say this, i am not discouraging you to have tif, if you have funds its OK if it fails you still have LNF to do, it cost a lot for TIF, Now i have to wait for some 3-4 month has need to arrange for about 15,000 usd, all my life saving is over and i am indebted in two years, since am ill i have already spend more than 70,000usd. the thing is as i said before post tif my symptoms are worse, i eat very little even before OP, i was 90kg today i am 65kg. we can chat msn, skype, or any im or through this forum

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/26/2011 8:13 PM (GMT -6)   
Shaeyne,
Try not to be too discouraged this early on. I was pretty miserable for a while also, with the heartburn and spasms. I burst into tears at the doc's office at my follow-up visit, so worried about what I had just done. He reassured me that it takes a while to heal, and says a barium swallow and ph test can tell us what is going on. If they do show that acid is coming back up, he can make adjustments to the valve. At first it was all so inflamed, I really couldn't eat more than little bitty bites of liquidy food for at least 2 weeks.

Now more than 5 weeks later, I have nearly completely resumed normal activities (today was yard work). With the help of a half-day's dose of Reglan, my reflux feels a good bit more under control. For dinner tonight I had a plate of soft veggie lasagna and chocolate ice cream. Not so bad! So give yourself a little time before you get too worried.

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 3/26/2011 11:59 PM (GMT -6)   
Hi Sophie,

The thing is i know am having reflux as my mouth is in fire after sometime i finish eating, so that's what worrying me most and i know after 2 month TIF can be redone. its good to hear you are getting better. its only 1 week now post TIF. and i am on reglan too.

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/27/2011 10:02 AM (GMT -6)   
If you don't feel better after a bit, it might be a good idea to follow up with the doc. He may want you to have those tests and have a look and see what's going on.

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 3/27/2011 1:32 PM (GMT -6)   
Hi Spohie,

My doc, is more than 10 thousand miles from me, i emailed him, he is saying we have to wait for 6 weeks, that's means 4 weeks more and now itself am suffering, i am more dosage of PP I's and meds allowed already. nowadays almost no doc have moral conscience its just business.

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 4/1/2011 12:46 AM (GMT -6)   
Hey Sophie,

how are you doing now.

Sophie1016
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 4/9/2011 7:16 PM (GMT -6)   
Just an update - I saw the doctor about my barium test results. He said that it all looked very good and that it showed no reflux at all. I continue to have a LOT of burning in my esophagus, though. So my next step is to have the 24-hour ph test this coming Thursday. I cannot take any medicine to help the heartburn symptoms until after the test is done - and I am very uncomfortable. It will be a long few days!

I can't imagine what is causing this awful feeling if it is not reflux!

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 4/12/2011 7:14 AM (GMT -6)   
Well, i am bad too, almost no voice, doctor says valve if tight and perfect, i don't get heartburn, but LPR and that's awful, TIF has failed and these doctors don't want to accept the fact, i know i need to do for LNF, which i am prepared to, in 2 to 3 month time. keep u posted.

Callie213
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 5/19/2011 10:50 AM (GMT -6)   
Hi Sophie,

I had TIF surgery 7 months ago by a well thought of surgeon who had done over 40 TIF procedures. The spasms and fatigue went away quickly, but it took weeks of Carafate before the burning stopped. Now I feel the same as I did before the surgery. I'm still taking Nexium and I still can't eat trigger foods. The doctor told me BEFORE surgery that the surgery was about 70% successful. Interestingly, AFTER the surgery he told me of a new study where it was only 30% successful. My surgery is intact, but my ph readings haven't improved. If I had it to do over, I would do the nissen. At least though, I'm not any worse off. As far as a redo, it is more complicated than it sounds. Also there are surgeons who have done a Nissen after a Nissen, but it is hard to find a qualified surgeon who has done a Nissen or another TIF after a TIF. According to my surgeon there is scar tissue after a TIF. I hope Sophie, that with time, your situation improves. It is early yet. Good luck.

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 5/21/2011 1:48 PM (GMT -6)   
Hi Callie,

i had Tif too,but poet surgery my condition has worsen, now i am having trouble swallowing, which i never had. i am considering Nissen too as i am suffering form LPR much more than GERD, i still have to go again for pH. hope you will get better you too.

Callie213
New Member


Date Joined Nov 2010
Total Posts : 9
   Posted 5/21/2011 4:58 PM (GMT -6)   
Hi Shaeyne,
Sorry your condition is worse. My surgeon told me before the surgery that if I had problems swallowing after the surgery there was a procedure they could do to loosen the valve. Since I didn't have that problem I never looked into it. Have you heard of this before? Maybe it would help. I am so disappointed that the surgery didn't work. I thought I'd be eating chocolate by now!

shaeyne
Regular Member


Date Joined Mar 2011
Total Posts : 29
   Posted 5/26/2011 1:26 PM (GMT -6)   
Its not easy, trying to cope with it, will be heading for surgery, once everything is sorted with surgeon as i am try ti get an experience surgeon for LNF.

jjva
New Member


Date Joined Mar 2011
Total Posts : 7
   Posted 6/20/2011 7:50 PM (GMT -6)   
I am 3 months post FIT. I am still experiencing pain. I am resorting to TUMS. The pain is improved over the pre-FIT, but still not normal. Do not take reglan. It caused me to have facial tics that have no cure.

jjva
New Member


Date Joined Mar 2011
Total Posts : 7
   Posted 6/20/2011 7:52 PM (GMT -6)   
I had the Nissen in 2004 which did not work. Just had the TIF in March. So far the results have been marginal. Wish all those with this problem the best of luck.
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