Injury to lining of Esophagus

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KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/23/2011 7:12 PM (GMT -6)   
Hello - I am so glad I found this forum and registered to this site. Naturally, I am in genuine need of some direction and assurance. First, I want to say that I am under the care of a Gastroenterologist. Of course, he is quick, busy and lean on direction. So I come to you. On or about middle of February, just last month, I burned the lining of my Esophagus as a result of drinking pure & undiluted lemon juice from 8 lemons, as recommended by a You Tube Video on how to dissolve kidney stones. Foolish me did drink this just like the Man demonstrated...after few minutes, I vomited violently. My kidney stones did pass in the form of sand, not from swallowing the lemon juice but from all the water I was drinking. At that time, I didn't know how I had harmed myself, I was still an ignorant fool. I then came down with lung congestion (didn't know this was symptom of injury) I thought I was coming down with a cold, so I inhaled some warm steam with two drops of oregano oil, that made me significantly worse. Then I was delicate and got a little better, foolish me then ate my Goji Berry nutty cereal - that's when my severe problems started. I ended up at Urgent Care, ER, ENT Doctor and now GI Doctor. I was in terrible pain, thought I was going to die! Felt like a knot at the mouth of my esophagus, was able to swallow but with discomfort. I've lost 13 pounds that I could not afford to lose since I am a slender health conscious vegetarian. I'm on Carafate, 1Gram 4 times a day and Doctor wants me to take Aciphex to help healing. This is all sounds good and I've graduated to creamy foods. Here's my question to you: I developed some tightness or feeling of thickness at what I believe is the mouth of my esophagus. I get discomfort I turn my head sharply to the left or to the right, for this reason I'm not driving right now. The thick sensation or feeling like a flap is caught gets worse after being on the phones all day, even a very low voice or whisper. So now, I'm 100% silent and trying this experiment for 4 days. The scary question: Do you think I'm developing a stricture or narrowing? Is this just the way healing feels? I understand it takes 2 months to grow back a new lining. Considering what I did to myself, do you think I'll return to normal? I'm on a bland/creamy diet, no spices, no citrus, no tomato, no onions or anything acidic. I'm not even taking liquid vitamins at request of GI Doctor. Any thoughts on my case? After all, I didn't swallow lye, however pure lemon juice can be bad enough. Did I use up 3 strikes and am I out to dry? Thank you for your thoughts!!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/23/2011 8:17 PM (GMT -6)   
Hi KindHeart,
Welcome to Healing Well! I'm glad you've joined us! It sounds like your esophagus is burned pretty badly. The good news is that it will heal. The bad news is that type of healing takes a long time.

I've also had a burned esophagus...not from what was sent down, but from what was sent up...through a loose valve where the esophagus and stomach join. I have asthma, and when I got an very irritated and acid stomach (usually caused by taking an antibiotic that it couldn't tolerate), I would end up with a burned esophagus and bad asthma. One time I even spent a week in the hospital due to the GERD caused asthma.

It sounds like you're doing a lot of things right. Glad to hear you're a vegetarian, and not a vegan. That would be tougher. You will want to keep whatever you send down your esophagus smooth. No popcorn for you! Well cooked oatmeal, egg custard, soft scrambled egg, etc. You can figure it out.

There's just one thing that I think might make a difference for you. Ask your doctor to order Carafate Suspension (provided you have prescription insurance, as it is expensive). The suspension would coat your esophagus better than the Carafate pill.

If you can't get the suspension, you might try putting the pill in a little medicine cup, adding a little warm water, stirring it with a toothpick, and "throwing it back" so it coats your esophagus on the way down (avoiding your mouth as much as possible, so it doesn't go to waste. I think you might notice it would help. Now I am sharing my own experience. Everyone is different, and I have heard of people who don't like what Carafate does. Personally, I have always found it very helpful.

Most importantly, you need to relax, and accept the fact that this will take some time. I always lost weight as I healed. Also, don't be surprised if a full recovery is months, rather than days or weeks.

I asked my GI doc when I could safely eat normally again after an episode of severe irritation. He told me to wait until 2 weeks after I felt perfect.

Good luck with your recovery. You're in the right place! Hang around, ask questions, and accept the support of the great members here!

Take care,
Denise

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/23/2011 10:47 PM (GMT -6)   
Good evening Denise - My eyes nearly teared up when I saw your email. It so comforting to hear back from others that have experienced this pain like you and most of all you sound like a wealth of information. I am so sorry you've been through so much with your Esophagus. I hope you are feeling much better now and that you are eating normal. Did it really only take you two weeks to return to normal foods? Oh my, it's now been a month since my injury and I'm still on creamy, is that bad? I'm glad to report that I am on Carafate Suspension, liquid form. I have a high deductible policy with no prescription coverage so we had to pay $400.00 for 3 large bottles from the Apothecary. I find this Caraate (pinkish white liquid) my miracle medicine. The Doctor knew I could not swallow any pills, so we had no choice. This medicine immediately allowed me to drink water and eat liquid foods. I use it as recommended. So, it's okay that I'm on baby food and creamy foods, even since this injury occurred mid February? Like you said, I must be patient and understand that my healing will likely take several months. How about the tightness or thickness I feel, is that part of the esophagus healing? I read about narrowing and scarring that scares me. Do you think it is unlikely I'll develop narrowing? Did you have these feelings too? My husband and I both teach traffic school and work phones a lot. I've had no choice but to abandon my husband on the phones because even a low voice or whisper all day makes me swell at the mouth of my esophagus - did you get this symptom? I likely won't be able to teach for maybe 2 more months. It cost us money when I don't answer phones but what else can I do? So, I am 100% silent right now and will be like this for another 3 days to see if all my swelling sensations go away.

I am swallowing a little pill each morning now called Aciphex to control acid even though I never had GERD or heartburn, this is to control the healing.

Yes, I am glad I'm not vegan, otherwise I wouldn't be able to each poached egg and blend them with my oatmeal. I do eat dairy just all organic and never eat anything that died; that's my only rule. I am an excellent vegetarian cook and will miss my Moroccan Stew. I won't miss chips too much, it's the salsa that that I love. I hope other readers here learn that Amazing Meal Shakes have been good for me and bananas help make everything smooth and glossy. Coconut pudding is also great.

Thank you for the encouraging words that I will heal in time. I'll keep you and others updated here just in case someone else does something foolish like me and needs direction. That You Tube Video and swallowing lemon juice and others like it should be pulled and made illegal. What I did sounds crazy and unreal but it is what happened and can happen to anyone else. I Hope others learn from my experience.

Goodnight and Thank you so much!

Debra

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/24/2011 4:57 AM (GMT -6)   
Hi Debra,
It sounds like you have an EXCELLENT and realistic attitude. It is not unusual at all for you to still be on a special diet for your burned esophagus. As I said, this type of thing can take months to heal. I have spent a long time on gentle foods...actually often at the beginning I often could eat very, very little...maybe a tablespoonful at a time. I gradually improved and could eat more as time went on.
Homemade egg custard was a big favorite for me. At times, that was all I could eat.

As far as developing a stricture...I'm no expert, but I doubt that something like what you're experiencing would cause a long-term problem like that. I believe that they come from repeated dousing of acid from the stomach, not a one time burn accident. People who get that problem can have their esophagus stretched back into shape. Sometimes they have to do it more than once. As I said, though, it's highly unlikely that your problem would be permanent.

I'm sure you burned your vocal chords, so they will take time to heal as well. Don't beat yourself up about what happened. You thought you were helping yourself! It's good that you are warning others, though. Did you go back on the YouTube site and leave a review? That might help someone else to avoid the same thing.

I agree with you regarding Carafate Suspension. It has definitely been my miracle drug! It can offer immediate relief and protection, and really doesn't have side effects to speak of. It's an old drug but works great. Too bad that a generic suspension isn't available. That's the only downside. It is super expensive.

I hope you have a better day, and things improve quickly. Your patient attitude of acceptance, and careful eating is the key.

Take care!
Denise

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/24/2011 7:08 AM (GMT -6)   
Hi Denise - I'm up early like you, it is now almost 6:00 AM, except I think you were up earlier than me. Thank you so much for your reply and most assuring words. Believe me, you are making a huge difference with these posts. You really are helping people, like me! Thank you again!!! My plan today is to try lumps in my food. This time, my oatmeal won't be made into pure cream - I'll leave some lumps in it. I want to train my esophagus to accept some soft lumpy food so that my esophagus doesn't get lazy and I don't know how much truth there is to this but I think some lumpy food might break up any webbing that might be going on from the healing and you know "webbing" is a bad word because that means narrowing and I don't want any part of that. So, today I have a plan and I'm going to act on that and expect to get good results!

I did put two warning posts on the YouTube Video blog and I contacted the owner, same man that swallowed the juice. He did get back to me via email and apologized, said it works for most people but not for some. However, he then removed by warning comments. I wasn't rude in my comments, just factually stated that this remedy burned the lining of my esophagus and warned that no living creature should follow this remedy. I can't believe he removed by comments, what does he have to gain by advertising this dangerous remedy?

On the liquid Carafate, at this point, I don't care how much it costs, I will buy and use it until I am healed. My future as a public speaker and traffic school owner depends on it.

I'll keep you updated my friend. Have a wonderful and productive day!

Debra

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/24/2011 7:15 AM (GMT -6)   
By the way Denise, thank you thank you for the assuring words that I will likely NOT develop a stricture. Actually, I was at 4:00 this morning and couldn't back to sleep thinking about the possibility of narrowing and how much I did to harm myself (all self-inflicted). Last thing I want to do is cause narrowing by limiting myself to creamy foods - but you said this will likely not happen from a one time burn. So, back to my plan, action and results for the day. I'll let you know how I do.

I hope you are taking a little nap.

Debra

erinwyso
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/24/2011 8:41 AM (GMT -6)   
I have had a similar problem, ongoing since early February. However, my symptoms are "silent." To recap:

I had dental surgery in late January (Jan. 26) and was given antibiotic clindamycin as a precaution to avoid infection. about 5 days into taking the clindamycin, I was having horrible chest pain, so I went to my chiropractor for an adjustment, but it didnt help. I was also taking Vicodin for the surgery pain and so I could make the chest pain go away too. I still made no connection to chest pain with the clindamycin.

On February 3rd, I took clindamycin in the morning and, upon swallowing the pill, felt like someone had put a blow torch down my throat. The pain was excruciating. I immediately linked it to the clindamycin, called my dentist and he told me to stop taking it immediately.

For the next week and a half, I could not eat. I felt like there were boulders rolling around in my chest. My chest would spasm uncontrollably about every 15 minutes. I did not go to a dr. because I thought that I would just tough it out and I did not want to take more medication because taking medication is what got me into this!

about midway through February, I noticed a white coating on my tongue. I suspected oral thrush. I tried probiotics, oil of oregano, no sugar, no carbs, no beer. After 3 weeks of no improvement, I went to my dr. and she gave me nystatin. I took that for two weeks with no improvement.

She sent me to an ENT who did an endoscopy. He confirmed that I had silent reflux (LPR) -- I have ulcers all over the back of my tongue. The white coating that I thought was thrush was ACID being spewed up from my throat. He was extremely dismissive (and kind of a jerk) and sent me home with no advice.

I called my dr. who recommended Prilosec and a bland diet, which I am following. I am a strict vegan and contrary to what is being said above, its pretty easy. (We vegans are more resourceful than you think!)

I too am concerned about the length of healing time. I basically am sitting up straight in bed (NOT comfortable), and am just miserable with all of the ulcers in the back of my throat.

The drs. I all saw are just like "well, this happens from time to time, its common." My biggest point, though is that -- THE CLINDAMYCIN ANNIHILATED MY THROAT - this is why I'm in such pain! I'm not just having an episode of acid reflux (I've NEVER even had heartburn) -- this drug did something to my esophagus and I wish I never took it.

KindHeart, best wishes to you -- I totally feel your pain -- I think that your esophagus burn happened around the same time mine did -- it just took me much, much longer to figure out what was going on, so steps to treat it have been dramatically delayed.

I am on day 2 of prilosec (am also taking a zantac 150 in the evenings). Please keep me posted on your healing. I have been very, very alone in this and I have been googling non-stop trying to figure out why this is hapening -- now I'm trying to figure out how much longer I have to live like this.

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/24/2011 1:46 PM (GMT -6)   
Hello Erinwyso ~ I'm glad you wrote in and thank you for kind words. You are not alone and neither am I. Sometimes our googling leads us down the wrong path like when I found the Lemon juice remedy on You Tube but this time, we found other people in our similar position that need some feedback, opinion, guidance and words of encouragement. So, you are not alone. You have me, a new member and so many other kind people in this forum. Wow, an antibiotic did this to your throat! I also had horrible pain in my chest from my esophagus and my esophagus was also pinging like, they said they were spasms from the trauma. The ENT you saw can only see the base of the throat and vocal chords. I also saw an ENT who said my larnyx and hypopharynx had pachydermia which means swelling and thickness caused by injury. Of course this ENT could not see the lining of my Esophagus, that's what a Gastroenterologist can see. Of course, I was too traumatized for the doctor to send a camera down my esophagus. Instead he sent me home with liquid Carafate, a true life saving medicine that allowed me to drink water with ease. I suspect you likely have inflammation in your esophagus and I know this hurts like heck! I hope you get to a GI Doctor and get some Carafate suspension liquid form to help coat your lining and speed up the healing. Here's some vegan shakes I've been living off: Amazing Meal, totally balanced, raw, organic and vegan, Vanilla Almondilla which is also Vegan shake & go. There's also a Vegan Complete Whole Food packet by Sequel. Additionally, I do lots of oatmeal, cream of wheat and of course, I've now graduated to creamy baby food. I'm sure you read that I'm now at the stage where I feel thickness along with a tight feeling and it gets worse when I speak. My GI Doctor just got back to me and said this thick-tight feeling is part of the healing process and new tissue is weak when stressed, so he suggested I stay as quiet as possible to assist the healing. I suggest you also stay quiet, stay on your bland foods like me. Avoid anything too cold or too hot, no spices whatsover, no citrus, no tomatoes, no peppers nothing that will irritate. I'm no expert but I think that white coating on your tongue was all antibiotic related, so you are dealing with antibiotic side affects and a burned throat and esophagus. Like the other kind person who contacted me on this forum, we will heal, it will just take time. I'm repeating to you what she told me. Let's just be patient, have a relaxed attitude. In fact, I'm going to try and see a funny movie and take my mind off my troubles. As you know, laughter even if we can only laugh inside is also very healing to us.

Please do report back on your progress. I sure hope you are staying comfortable. Oh by the way, the oregano oil you used......I know from my current injury that inhaling steam with oregano oil contributed to my injury. I have developed a new higher respect from Oregano Oil and Lemons! Be very careful with Oregano oil - this oil is very strong and can damage the lining of your throat and esophagus. When I thought I was getting congestion, I inhaled the steam with the oil and damaged myself further. Also, don't google too much.....you don't want to get the wrong advice and harm yourself further. Be careful, you can't afford one mistake right now.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/24/2011 4:08 PM (GMT -6)   
Hi erinwyso,

Welcome to Healing Well! So sorry to hear that you're having such problems. I was actually hospitalized after a bad bout with an antibiotic I took. Because I have asthma, the reflux that was caused by the stomach acid that the antibiotic stirred up, caused tremendous lung issues that were uncontrollable.

I've had what you're describing after taking Augmentin. That's a drug I can never take. In fact, my family doc jokes about it and threatens to put me on it from time to time. I have tried other antibiotics that I know after one pill I can't take it. Just one pill and my esophagus/stomach feels terrible. You may actually have reflux and not know it. I found out I had it after my first bout with Augmentin. My family doc seems to think that I wouldn't have had the problems with the med if it stayed in my stomach--that the reflux was what caused the problem--bringing it into the esophagus, where it burned the tissue.

Believe me, I know exactly what you're going through. So glad that a vegan diet has great options for soothing foods.

I can only take two antibiotics without the problem (as far as I know) Amoxicillin and Z-Pac. All others I have tried kill my stomach.

You are in the very early stages of healing. This is a very long term project. I agree with Debra, that you should try to get a script for Carafate Suspension. It would definitely help your healing process. The only tricky thing about taking it is that you have to take it an hour before or two hours after eating, and you need to take it two hours away from medications. That is a challenge sometimes.

I can't believe an ENT would see the burning that he/she saw and not refer you immediately to a GI specialist. I would think they could prescribe PPI's, but I don't know.

Really, my experience (many, many episodes of what you two are going through), it's just something that takes time. The PPI's and Carafate Suspension help a lot, but it takes time, patience, and extremely careful eating. You're right...no alcohol for sure. Nothing rough that can irritate things further. That type of tissue takes a long time to heal, and it is very delicate.

Over the years my reflux had gotten worse, and finally in February 2009 I had a Nissen Fundoplication surgery to create a flap that will keep the acid where it belongs--in my stomach. Knock on wood, since the surgery I haven't had another bout like the one you both are dealing with. The main reason I had it done was because I had horrible, uncontrollable asthma caused by the acid.

Hang in there, erinyso! It takes time, but things will get better.

Hi Debra,
If you're a member of YouTube, can you complain about a video that is posted? I went online and found what I think is the video that messed you up. What he described would be brutal on your esophagus and stomach. Everybody is different. Maybe some people could handle it. You know I couldn't!

It sounds like you've got the right idea, and are being patient and vigilant. Just stick with the gentle foods, and you will improve.

Good luck!
Denise

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/24/2011 4:46 PM (GMT -6)   
Hi Denise - RE: HARMFUL YOU TUBE VIDEO about SWALLOWING UNDILUTED LEMON JUICE FOR KIDNEY STONES - I just went on that YouTube site which I'm sure you found. It even has eerie music that now sends chills up my spine knowing that others can be fooled and harmed like I was. Below is the link to the site and just below that is part of the Terms and Conditions Agreement everyone accepts, so they are completely off the hook. I think I still contact their Developer just for the hell of it and let them. This owner of this video removed both of my comments. I'll let you know if I reach the Developer and what they say.

Thanks!

Debra



You understand that when using the Service, you will be exposed to Content from a variety of sources, and that YouTube is not responsible for the accuracy, usefulness, safety, or intellectual property rights of or relating to such Content. You further understand and acknowledge that you may be exposed to Content that is inaccurate, offensive, indecent, or objectionable, and you agree to waive, and hereby do waive, any legal or equitable rights or remedies you have or may have against YouTube with respect thereto, and, to the extent permitted by applicable law, agree to indemnify and hold harmless YouTube, its owners, operators, affiliates, licensors, and licensees to the fullest extent allowed by law regarding all matters related to your use of the Service.

Post Edited By Moderator (stkitt) : 4/4/2011 7:43:47 AM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/24/2011 7:04 PM (GMT -6)   
Hi Debra,
That's the one I saw. I thought it must be the one. Obviously the guy in the video wasn't bothered by drinking lemon juice. He seemed oblivious as to any possible problems it might cause. I'm just sorry you are having so many problems. Glad you've found our forum! It's the perfect place for you to find information and support. Good luck getting through to YouTube!
Take care,
Denise

erinwyso
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/25/2011 8:07 AM (GMT -6)   
KindHeart, dencha,

Thank you so much for your thoughtful and thorough responses! Just knowing that someone else is going through this is a weight off my shoulders (esophagus?!) (although I am sorry you are going through/have been through this!)

Thanks for the Carafate suspension suggestion. Question: I purchased some Slippery Elm Bark tea and after googling the Carafate, it sounds like SEB is very similar. It is a thick "demulcant" and full of vitamins and minerals: http://www.mountainroseherbs.com/learn/slippery_elmbark.php. Like the Carafate, it can't be taken with medication, as it can inhibit your body's ability to absorb the medication. I took it a few days before I started prilosec and my plan is to start it up again after I am off of this 2-week round of prilosec. I HATE, HATE, HATE drugs!

dencha: it is good to know that I am in the early stages of healing. I keep feeling like this shouldnt take so long to heal, but I guess that's the way this works. After 1.5 weeks of extreme pain and 6 weeks of latent symptoms, I am now going through the "tightness" Kindhearted has mentioned above. I thought it was getting worse, but perhaps this has to feel worse to get better?

Kindhearted: I watched the video -- that person should definitely be reported to YouTube and taken down. This isnt about freedom of speech: this person's "cure" is harming people!

Thanks again for your kind words and stories. I am going to continue to monitor this thread for your progress KindHearted and I'll keep updating as well. Google is your best friend and worst enemy when you have a medical problem -- knowing there are live caring people out there who are either going thorugh this or have gone through this to communicate with is very comforting.

Best Regards,
Erin

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/25/2011 10:59 AM (GMT -6)   
Hi Erin and Denise - Just a few things I learned from Gastroenterologist about Slippery Elm and super high Alkaline Water. The Slipper Elm like you said should NOT be used with Carafate since it interferes with the absorption of the JCarafate. A friend of mine wanted to bring me some extra high Alkaline Water, somewhere higher than 9.5 or 10.0 - It's a new trend right now and I'm sure you've seen the 10.0 water in some of the stores. My GI Doctor said this very high Alkaline water increases the absorption of medicines and did not want me to drink it while I'm on medication. My GI Doctor recommends PH levels around 7.0 little higher than our Blood PH. He also said not to use DGL Licorice until I'm off my Carafate. Believe me, after the experience I went through, every time I get an itch to try a natural remedy, I contact my GI Doctor and clear it with him first. I used up all my 3 strikes and don't have another chance to screw up my body.

Erin - that tightness is just the healing process, so don't worry. You'll start feeling different sensations as you go through new phases of your healing. Try not to lift things or move fast - you don't want to tear newly healed tissue. Treat yourself like a baby!!

I'm now eating thicker creamy foods and I'm going to try soaking some bread in milk and try to swallow soggy lumpy bread. I did manage to eat creamy mashed potatoes last night, still on baby food. I made some yummy juice this morning. I blended up a pear with 1/2 a mango and water. The juice is delicious and these two fruits are easy on the esophagus and provide needed fiber while on this creamy diet and medication. I'll try this with a papaya as well. I dropped the powder of a probiotic pill into my juice as well to help keep me regular. I'm also grinding brazilian nuts in my coffee grinder and adding the nut powder to my oatmeal so I can put weight back on. I was a scary 111 pounds this morning - that is not good considering I was 123 before all this happened. So, I plan to eat something every 2-3 hours today.

My voice is still super weak - I'll have to stay very quiet today again. Hopefully, the new tissue will strengthen and soon be able support vibrations to produce quality sound.

I hate drugs too and never take them unless it is absolutely necessary. Right now, I owe my life to the Carafate Suspension liquid. I also take Zomig when I get a migraine with my hormone cycle - thankfully the migraines are reducing with my age. I know these drugs have likely been tested on animals and just thought of how animals suffered during animal experiments involving esophagus injury almost gives me nightmares but I can't be without this medication. Everything else I use like cosmetics, household cleaners, etc are cruelty free and always try to go organic.

I found the contact address for YouTube. I will mail them a letter about my experience and this video. I realize I signed a waiver by accepting their User's Terms and Conditions, but nevertheless, I will let them know and they can do what they want with my letter.

Have a good day ladies!


Debra

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/28/2011 9:07 PM (GMT -6)   
Well I thought I'd update you on how I'm doing over here. I'm so glad to say that I have advanced to scrambled eggs made with cottage cheese and can swallow mashed potatoes, so my eating has improved as long as it is soft. Problem however is still no voice. Even whispering hurts. So, I am 100% silent. If I whisper, I get swollen at the base of where perhaps my larynx is. I sure hope this is all part of the healing process and that I won't end up a Mute. I'll listen to my body and cooperate and just stay silent.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/29/2011 8:52 AM (GMT -6)   
Hi Debra,
I'm a teacher, and learned long ago from someone who had a teaching-related voice issue, that whispering is actually harder on your vocal chords than talking! Go figure! You have no need to worry...you're not headed for a life of sign language yet! But wouldn't it be great to know it, so you could use it now? Hang in there. I've actually had a less severe voice issue for quite a while now, and am considering voice rest. Another member here said the doctor told her that it would take a week of voice rest to allow her chords to heal. In your case, there is healing that has to occur first, I expect.

Glad to hear you're doing better! Thanks for checking in. Your excellent attitude is your biggest asset for dealing with this and getting better!
Take care and have a great (but quiet) day!
Denise

erinwyso
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/30/2011 8:24 AM (GMT -6)   
KindHeart,
Glad to hear that you've graduated up to some better foods, it is frustrating when you have to eat a boring bland diet! I had a mad craving the other day for some chickpeas, so I pressure cooked a batch to mush, cooled it, mixed it with a dab of vegan mayonaise (veganaise), a bit of salt and celery seed and it was fantastic. A little cross between what I remember egg and chicken salad used to taste like. Full of plant-based protein and super-filling. It gave me no "lump in the throat" afterwards. I am also drinking fresh fennel tea (i steep the fronds and some ofthe base in hot water -- once it cools, it feels nice on my throat.) Keep the updates coming!
erinwyso

erinwyso
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/30/2011 8:28 AM (GMT -6)   
I am on day 7 of Prilosec. I still have a raspy little cough here and there, but I am feeling better. I still have the nasty white stuff on my tongue from the acid that I am brushing off a few times a day. I still have the ulcer-like bumps on the back of my tongue, which seem like they should just go away. Regardless of whether I feel better after this next week, I do want to see another ENT or GI doctor so they can really look in my throat for anything odd. I am also periodically tasting something weird in my mouth (kind of gross, sorry) When I close my mouth and exhale through my nose, I get a weird "wet dishrag" smell -- kind of moldy and yuck. I am brushing my teeth several times a day, though. I think it happens every other day or so.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/30/2011 11:31 AM (GMT -6)   
I think you are wise. Those symptoms aren't typical of GERD.
Good luck!
Denise

erinwyso
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/30/2011 12:41 PM (GMT -6)   
Denise,
Oh, I don't have GERD. I was diagnosed with LPR or "silent reflux." I don't think its a product of increased stomach acid. I do think that the clindamycin which burned my esophagus has created a problem with the muscles down there, hence the spewing of acid. Sounds so gross written out!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 3/30/2011 5:15 PM (GMT -6)   
Hi erinwyso,
You're talking to someone who has all kinds of trouble with taking antibiotics. I've had lots of similar issues to what you're experiencing.
LPR is not heartburn based, but I still consider it reflux. I also have had trouble with LPR symptoms...which is why only a little reflux can cause me lots of trouble.
I have asthma, and a tiny spray of acid can create all kinds of problem. My problem is considered atypical as well. It took me a very long time (for me and my other doctors)to convince my GI doc that I was a good candidate for a Nissen Fundoplication. As it turns out, I was. My lungs improved dramatically post surgery. Still, I don't need very much reflux to cause all kinds of problems, and post surgery I occasionally get some.

Overall, though, I'm doing very well post-surgery--especially considering how bad I was before it!
I hope you're feeling better today.
Take care,
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 11605
   Posted 3/30/2011 8:09 PM (GMT -6)   
I had LPR or "silent Reflux" as some call it.
The doctor kept telling me surgery won't help you. My surgeon told me it will. So I went and had a partial wrap done. It did help me a great deal.
Joy

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 3/31/2011 11:10 PM (GMT -6)   
Thank you Denise and Erin for your replies. It is encouraging to hear Denise tell me that I'm not going to need to learn sign language just yet and that I'm going to heal! Denise, you said your voice is getting sore. My husband was a Teacher for years and now is teaching all the traffic school classes while I'm down. His voice is now getting sore. We might as well close down shop if he gets sick. I sure hope you can find some down time to heal your throat. My Doctor agrees with what you said about whispering. He said whispering is very hard on injured vocal chords and silence is the best form of rest.

Erin - I don't like this bad taste you're getting in your mouth....I think you need to be checked further. You said you have little bumps on the back of your tongue - I think everyone has some bumps back there...in fact, I think I've always had some bumps - I won't try to check all the way back there in fear of making myself vomit. When seeing the ENT Doctor, please be careful! If they touch your injury with the scope it can set you back milestones. I had a horrible ENT do an examination on me which landed me in the Emergency Room the next day. He touched my fresh injuries from all the lemon acid with his scope. He palpated my injuries and caused me more harm, so be very careful. Ask the Doctor to just view and not touch if at all possible. Don't let the Doctor say, "does it hurt here and does it hurt there". Do stay on your bland diet, try grinding up some brazilian nuts and put in some warm soymilk with honey - very delicious. You need to get good nutrition so you can heal. I recommend you eat often and don't eat right before bed.

I had my appointment with my Gastroenterologist today. He is very nice and I highly recommend Dr. Joseph David to anyone here in Phoenix. He is kind and compassionate and did not traumatize me with any kind of scope. He understands that I just need time to heal. I told him I was able to eat a very soft and moist pancake this morning along with my creamy oatmeal. I now eat mashed potatoes too, so I am making progress. He thinks my esophagus is healing faster than my larynx and is hoping I will be able to speak without swelling by two weeks. He gave me a referral to a kind ENT Doctor and suggested I see him if my speaking and swelling hasn't improved within 2 weeks. I told him I swell in my larynx area if I whisper or speak. The swelling makes it difficult for me to swallow so I just don't speak. I brought my laptop in to see him so he can read my questions and responses and had my hubby there with me to speak for me. He can't be 100% positive that I have not developed scarring in my larynx area and the throat is not his specialty, so let's hope I can speak in two weeks without swelling. I think he's just being careful and doesn't want to be responsible for not giving me a referral if I truly have some problems developing. He did say that he believes it is all part of the healing process and that eventually I will start speaking with ease. For now, I won't even try to speak until I can no longer detect swelling.

I want to share this website with you which my Doctor read and as a result, gave me green light to try DGL Licorice Root - Chewable Tablets. I'm sure you know all about these. My GI Doctor just doesn't want me taking the DGL Licorice at the same time I take Carafate. He wants me to separate these by at least 2 hours so that the Licorice doesn't interfere with absorption of my Carafate. In fact he prefers that I take the DGL 2 hours after my meal and take Carafate at least 30 minutes to 1 hour before my meal. I found this website from University of Maryland very informative and interesting. I had most of the symptoms described. This website is mainly about the Esophagus and recommends DGL Licorice, Slippery Elm and makes other suggestions. Okay, let's keep getting better everyone! Good night! Debra

http://www.umm.edu/altmed/articles/dysphagia-000053.htm

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 4/3/2011 9:52 AM (GMT -6)   
Hi Erin and Debra,
Hope you're both feeling better today! Erin, I wanted to speak to your concern over medications. I certainly share them, but as Debra has said, Carafate Suspension is an amazing help when you're having irritation to your upper GI tract. It has been around for a very long time, and according to my doctor, very little is absorbed into your system. It's as he put it, "a very safe drug".

The hardest part about taking Carafate is that you need to take it an hour before or two hours after eating, and two hours before and after taking medications.

Still, when you're hurting, it's a wonderful relief, and it helps heal things much more quickly. It was developed to coat the stomach and heal ulcers. The suspension is perfect for coating and protecting the esophagus, and that's why it's good for this situation.

Hope all is well, and you're both having a good day!
Denise

KindHeart
Regular Member


Date Joined Mar 2011
Total Posts : 89
   Posted 4/3/2011 12:38 PM (GMT -6)   
Hello Denise (Erin too!) Yesterday was a big set back for me and I'm hoping my day will continue to be better. I had very uncomfortable swelling in my larynx area which made it difficult for me to swallow, as a result, I didn't eat anything for dinner and of course weighed only 110 this morning. Here's what may have caused it. Yesterday morning, I wanted to hear my voice, so said "good morning" to my husband. It was a little low and fragile. Then we went to teach traffic school. Of course, I worked the back table and didn't say a word, not even a whisper. Working the table is stressful because we have to move the line through quickly so that my husband can begin the class. I have to quickly handle the money and review the tickets for accuracy. I think maybe the stress and saying good morning might have caused the swelling, I'm not sure. We don't have much of a choice in our little business. Bob is teaching all the classes and I'm not taking any phone calls. I have to work the back table and do computer work or we'd have to shut down entirely. I can't get better becoming homeless. Now I'm afraid to utter a word. I did go to bed early and slept well. I felt better this morning and was able to eat creamy oatmeal, pancake and an egg. I'm doing okay right now. Oh, I did take 2 Ibuprofens to prevent swelling and also took my DGL Licorice after my meal, of course at separate times. I never take two medicines at the same time. Denise, you don't see any reason against me taking the Iburprofen? I can swallow the little pill with no problem.

I do have an appointment on 4-25 with a Throat specialists. I'm hoping I'll be better by then so I can cancel the appointment. So, I am worried, even borderline paranoid. Why do you think I got swollen. Swelling has been a chronic problem for me. Now I'm afraid to utter a word. Do you think I've developed some scar tissue or some hideous Granuloma or something awful like that? Do you think stress and saying two words is just too much for me right now and that I need a lot of little breaks. Today, I'm organizing my tax papers at home in between taking little breaks. I've decided to stay home and do everything I can to prevent swelling. I have some soup I made to eat for lunch. I'll put the soup in the blender and puree it.

I realize you are not a DR or an expert but you sure know a lot of things. What comes initially to your mind?

Thank you so much!

Debra

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6719
   Posted 4/3/2011 5:43 PM (GMT -6)   
Hi Debra,

Unfortunately the burn that occurred will take a long time to heal, and I'm sure there will be ups and downs as you heal. Voice rest is voice rest, and I'm sure just a little talking might be irritating. I don't think ibuprofen would be harmful to your throat as long as it didn't get stuck in it. I can't take any NSAIDS because my stomach is very reactive. Tylenol is my only option, and I try not to take that unless I absolutely have to.
I guess it's possible that speaking AT ALL could cause irritation.

I have mild hoarseness a lot of the time...I think I've had it so long it has become chronic, and I need to go on voice rest. I'm a retired teacher, and up until last June I was using my already hoarse voice a lot...even loudly, as I directed our class play with another teacher. Just teaching is killer if you have any voice issues, as you know. I took a hike today and the tree pollens are pretty high. By the time we got back into the car, my voice was hoarse again.

If I were you I would definitely go to the throat specialist (an ENT?). You've gone through a lot with this, and he/she can take a look at your vocal chords and see what's going on. It'll relieve you to have a specialist check them out so you know just what's happening with them. I went to a highly regarded specialist in our area. He ended up doing a scope and was able to thoroughly examine them and take pictures. It's uncomfortable, but not that bad. It's worth it to know what is happening.

Of course if you're cured by then, there will be no need, but if any hoarseness persists it would be good to have your chords evaluated.

I'm definitely not a doctor! I did go online to look for some resources regarding how to heal hoarseness. I'll share the links with you.

Ironically, I even found a link for an article entitled…”How to Lose Your Voice Using Lemon Juice”…Seriously.
www.mademan.com/mm/how-lose-your-voice-using-lemon.html

Here's some general information about laryngitis:
www.ehow.com/how_5027492_heal-protect-voice.html

Here are some with treatment ideas...one thing they all have in common--stay hydrated and drink a lot of water...

www.howtohealstuff.com/how-to-heal-vocal-cords/

www.ehow.com/how_5027492_heal-protect-voice.html

www.steadyhealth.com/about/about_hoarse_voice.html

And here's a PDF with general information regarding causes and treatments
sorethroatcare.com/Throat%20Care.pdf

I can't speak to the credibility of any of these sources, but I found the suggestions interesting and they seems sensible.
Good luck! Hope you get better very soon.
Denise
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