My 9 year old is having acid reflux issues, can anyone steer me in the right direction?

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paniccu
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Date Joined Apr 2005
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   Posted 4/14/2011 7:57 AM (GMT -7)   
Hi there,
I am new to the gerd forum. My daughter was on medication for acid reflux when she was an infant, but she seemed to grow out of it at around 12 months. Over the last 4 or 5 months she's started having issues again. She gets heartburn a lot, stomach aches and worst of all these violent uncontrollable hiccups that make her lose her breath. At her last well check, about two months ago, the doctor suggested she go on Prilosec for up to a month and that hopefully this would take care of the problem. She stayed on it for about 3 weeks, she hated the taste of it (it was dissolved in sodium bicarbonate) and it only helped a little. After further researching the drug I am not comfortable with putting her back on it. I would like to try a homeopathic route, instead of medicating. Unfortunately homeopathic doctors are hard to come by in my area and the ones that are here don't accept insurance. I'm in NY state and they can't be legally licensed here. I am getting so frustrated. Why is it easier for me to put my 9 year old on drugs than to get homeopathic help?!  Anyways, I just bought some probiotics for her yesterday and I'll try that for a month. I've heard that slippery elm can also help. Has anyone had success with these treatments? I have cut out acidic foods, what other foods should I try to eliminate? Have any of you found success with those wedge pillows that keep your head upright at night? We can't raise the whole mattress because my daughter would just end up curling up lower on her bed and she shares a bunkbed with her sister so I'm also afraid that whatever I put under the mattress could come lose and fall on my other daughter.  I would appreciate any advise you can give me, thanks!
Liz

kazbern
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Date Joined May 2010
Total Posts : 7795
   Posted 4/14/2011 10:38 AM (GMT -7)   
My daughter's been treated for GERD for the past year or so. We haven't tried any homeopathic remedies, but we have done other things like giving her smaller meals, not feeding her right before bedtime, eliminating lactose. The only thing that gave her real relief was dexilant, a pretty powerful ppi. She's been on it for about 5 months. We go for our follow-up visit next week.

I think my daughter's reflux issues got really bad when she started puberty. I think the hormonal changes make the reflux worse. She's 11.5 and isn't menstruating yet, but I can still track her good days/bad days on a monthly calendar.

We eventually had an upper endoscopy done. The DR didn't see any erosive changes in her esophagus or any gastritis, but he did find microscopic inflammation in the duodenum. I have an inflammatory bowel disease, so it's possible this is what's causing my daughter's pain, too. We'll see.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

paniccu
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Date Joined Apr 2005
Total Posts : 996
   Posted 4/15/2011 11:41 AM (GMT -7)   
Thanks for responding and sorry about your daughter! I'm glad she's getting some relief from the dexilant.

couchtater
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Date Joined Jul 2009
Total Posts : 12648
   Posted 4/15/2011 2:25 PM (GMT -7)   
Is she seeing a gastroenterologist?
Joy

paniccu
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Date Joined Apr 2005
Total Posts : 996
   Posted 4/15/2011 2:47 PM (GMT -7)   
Not yet. my primary doctor has said in the past that the testing is a lot to put a kid through. If I can't help her through eliminating things in her diet and suppliments I may have to take her to one. Can anyone tell me what they typically will do the first visit? I've never been to one myself.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12648
   Posted 4/15/2011 2:58 PM (GMT -7)   
They ask a lot of questions and set up testing.
The barium swallow test is not hard to endure. She drinks some flavored barium and they position her in different ways and take xrays. The barium can consipate her later so she'll need a laxative afterwards.
The EGD is done under sedation and they can place a BRAVO in her for monitioring of her pH levels while she's asleep. She'll wear a monitor for two days around her waist and the capsule is passed on out.
I admit the manometry test is difficult. She can't be sedated, but her nose and throat will be numbed. They feed a small tube down to her stomach via her nose and make her swallow water as the measure her swallowing reflexes. It lasts about 20-30 minutes.
Joy

paniccu
Veteran Member


Date Joined Apr 2005
Total Posts : 996
   Posted 4/15/2011 3:59 PM (GMT -7)   
Thanks for explaining it Joy. I hope it doesn't come to that.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7795
   Posted 4/15/2011 8:38 PM (GMT -7)   
We went to a pediatric GI and he only did the endoscopy plus BRAVO. My daughter is somewhat hypersensitive, so she was clicking that darn Bravo like there was no tomorrow. When the data was analyzed, the GI said there was no indication of unusual acid in the esophagus. Plus, of course, on scope there was no erosion. He hasn't recommended any swallow study for us. I suspect that based on her positive response to the ppi he will tell us next week to wean off the dexilant and move onto something "lighter." Paniccu, it's good to be informed about what may happen, but not every DR will follow the same path for every patient.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12648
   Posted 4/16/2011 10:00 AM (GMT -7)   
If they suspect a swallowing problem or need to do the nissen fundoplication surgery she will need to have the manometry. The surgery will be the last ditch move. Most likely all she'll need is some anti-acids (medicine or naturals).
Joy
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