Coconut milk - apparently like Sucralfate/Carafate !

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mudmagnetmum
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Date Joined Apr 2011
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   Posted 7/17/2011 2:44 PM (GMT -6)   
http://onlinelibrary.wiley.com/doi/10.1002/ptr.2318/abstract

I just came across this study - it's on rats not humans, but still interesting! The rats were given a drug which caused them to develop ulcers and coconut milk was found to be protective against the development of ulcers. Coconut milk was apparently better than coconut water and its properties are likened to the efficacy of Sucralfate (or Carafate).

Just wondering if anyone has tried it?

Noone will prescribe me Sucralfate so maybe I'll go and find some coconut milk!!
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

couchtater
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Date Joined Jul 2009
Total Posts : 12252
   Posted 7/17/2011 5:18 PM (GMT -6)   
Be careful too much coconut milk can cause upset stomach.
Joy

mudmagnetmum
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Date Joined Apr 2011
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   Posted 7/18/2011 5:50 AM (GMT -6)   
Well if it causes indigestion, pain, reflux, burping or nausea, I have to say I'm unlikely to notice seeing as I have all that most days anyway!

If you mean lower GI upset, then I'll watch out for it!

Not tried anything new yet. I've increased my ppi and feel worse, reflux definitely worse and more pain on the higher dose. Maybe just coincidence as nothing really works, drugs, food or anything else.
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

theacidrefluxman
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Date Joined Oct 2009
Total Posts : 714
   Posted 7/18/2011 1:29 PM (GMT -6)   
@ mudmagnetmum

I am curious about your case, have you been diagnosed? I get no relief from pills or diet changes either...and have periods of weeks where I have no symptoms and boom, get symptoms non-stop for months again. In a given year I'll still have bad reflux 10 months or so, so it is a chronic problem. Just curious if we are in a similar boat.

mudmagnetmum
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Date Joined Apr 2011
Total Posts : 1523
   Posted 7/18/2011 3:55 PM (GMT -6)   
Hi, I've replied on the Barrett's thread too. I was diagnosed on gastroscopy this year as having mild oesophagitis and mild gastritis with the small area of Barretts. I was on Omeprazole at the time.

This "episode" started 12 months ago. I had earlier problems in 2007 which cleared up when I came off drugs and used DGL! That method hasn't worked this time!! In 2007 my scope was normal. I don't have Helicobacter they say, though in 2007 the tests was "borderline" which has left me unconvinced that I don't have it. I asked to have a trial of treatment for it, but they refused.

Off drugs I have lots of typical heartburn, waking nausea and some pain, and lots of burping. On ppis I have occasional nausea, more sensation of reflux and a constant hunger sensation. It's a rock and a hard place; the gastritis has made me anaemic and previously this corrected itself on ppis, so I have no choice but to take them. That does not stop, however, my constant quest to find an alternative solution.

My symptoms are fairly constant but I do get flare ups. Bizarrely, I feel best after the main meal of the day, and worst when hungry. The type of food seems to make little difference but a few things like coffee do aggravate. Despite being back on 30 mg Lansoprazole, I'm not feeling any improvement, as yet.
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 7/18/2011 4:57 PM (GMT -6)   
mudmagnetmum

its just crazy that the doctors wont let you have a try of sucralfate and that its so expensive some places.

and amazingly...online it appears a person can buy it for their dog, cat or horse etc and the cost is around a half dollar per 1 gram pill

btw do you have a pet around the house? nono

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 7/18/2011 7:50 PM (GMT -6)   
Hi MMM,

I agree...I don't understand why the UK docs say that Sucralfate is "from the dark ages" and won't prescribe it. It was prescribed by both my primary care doctor, and my GI doc here in the US. It's actually very expensive (the Carafate Suspension, at least), but not in the least looked upon as worthless. It is admittedly an old medication, but it still can work wonders, and is a very safe option.

Good luck with your coconut milk remedy.
Take care,
Denise

mudmagnetmum
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Date Joined Apr 2011
Total Posts : 1523
   Posted 7/19/2011 3:22 AM (GMT -6)   
Thanks Denise and Mock T. Yes it is irritating; it's still in the BNF so they could prescribe it in theory. I should have asked the consultant about it when I had the chance. I don't know if it's partly a budget thing or an inability to do anything a bit "creative"!
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

mudmagnetmum
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Date Joined Apr 2011
Total Posts : 1523
   Posted 7/19/2011 3:32 AM (GMT -6)   
http://paleohacks.com/questions/1806/coconut-oil-gastritis-gerd#axzz1SXQP9hPB

Anyone come across these folk? Seems there are others out there who went "paleo" for their GERD. Coconut oil isn't good going off what they say. I may still try the milk though . . .
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1523
   Posted 7/20/2011 1:38 PM (GMT -6)   
I've now got some coconut milk to try. It's in a carton next to the soya milk in the supermarket here (Waitrose) - actually tastes just as nice as soya milk, and not particularly strongly tasting of coconut. So far it hasn't aggravated anything. I'm having small drinks of it between meals but I fancy trying it for breakfast one day!

I'll update if anything interesting occurs!!
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 2962
   Posted 7/20/2011 2:20 PM (GMT -6)   
I take carafate and it works wonders for me. I take it only when I have a flare up because of the expense.

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 714
   Posted 7/20/2011 2:49 PM (GMT -6)   
I'll be attentive to your coconut milk experiment

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1523
   Posted 7/20/2011 3:26 PM (GMT -6)   
Thank you Acidrefluxman ....... I hope it's not like my licorice tea experiment, which I shan't be repeating any time soon smhair

Ak Angel - I'd love to try Carafate, but it (or Sucralfate) doesn't seem to get prescribed here in the UK. I fear the drug reps have trained the GPs to treat all breakthrough symptoms with higher and higher doses of ppis ! nono
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

PeggiD
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 10/3/2013 11:24 PM (GMT -6)   
I accidentally found out that unsweetened coconut milk (So Delicious brand) would soothe my heartburn from acid reflux. I am trying to get off of PPIs - cut dosage in half for a few weeks and have been off for a few days. Good bit of burning still but the coconut milk really does seem to do the trick. Also I'm starting to cook more with coconut oil.

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 784
   Posted 10/4/2013 6:44 AM (GMT -6)   
Hi MMM, Microbiologist Dr. Norm Robillard supports Paleo eating in general, and also consumption of coconut oil and butter instead of all the vegetable oils that break down under heat and are no longer considered healthy for us in many conversational circles. There are many reports of people who have controlled or eliminated heartburn via low carb eating, and his Fast Tract diet takes it a step further. By placing a numeric value he calls fermentation potential on lots of foods, you can avoid the most troublesome ones. I know your family life precludes restrictive diets, but his system would enable you to just make some adjustments. I'm not strict on this diet at all, but I have something to turn to when I have a bad day.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1523
   Posted 10/4/2013 1:04 PM (GMT -6)   
Hi Sunbeam,

Thanks for that. Things have changed since I posted on this thread in 2011. I've recently had pH manometry which was normal - despite the Barretts. I'm told I have visceral hypersensitivity. So my body perceives it has heartburn but there's no evidence of reflux. I'm currently trying Iberogast and have swapped Lansoprazole for Zantac.... Only 1 week in..... Watch this space!

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 121
   Posted 10/4/2013 5:06 PM (GMT -6)   
Hi mmm where in uk can you buy iberogast? I am interested in trying it as I believe I am also suffering the same as you all the symptoms but no proof as tests come back negative. At the moment I am on antepsin otherwise called sucralfate here in uk. Thanks Rita

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1523
   Posted 10/5/2013 4:16 PM (GMT -6)   
Hi Rita,

I sent off for 1 bottle from amazon but it took over a week to arrive, so I ordered more from an eBay supplier, then both lots turned up on the same day! I think the Amazon came from abroad but the eBay supplier obviously had stock here in the uk as it came pretty quick.

It comes with instructions on dosage but very little guidance other than that. I felt the dose was too strong for me at first and took just 15 drops instead of 20 and then built it up. The bottles are quite small also, wouldn't last very long at full adult dosage. I would have been grateful for more information, like tolerance of dosage, what to do if feel worse etc, but I've found my way with it now.

It does not taste nice and I personally wouldn't recommend taking it in water, though I do at work or if in a hurry! I put mine into a very small amount of soya milk and drink it straight down!

I still have some symptoms but pain has not been an issue so far, 1 week into withdrawal from PPI (on Zantac only).

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 121
   Posted 10/6/2013 3:58 AM (GMT -6)   
Hi mmm thank you for your info on iberogast I will look into trying it in the near future. Best wishes hope it helps you.
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