Laryngo pharyngeal reflux or HPV squamous cell carcinoma

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

baseball1
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/16/2011 7:04 PM (GMT -6)   
Hello all, I am writing because I am a health professional, with great physicians living in a large city with teaching medical hospitals and  three major medical schools within 60 miles yet I was treated for LPR for over six months before asking for a second look at my raspy throat by my ENT. The second look revealed a 2 centimeter squamous cell carcinoma. This was undoubtedly present fo some time yet was NOT visible on the first ENT exam (ENT is a cancer specialist).
I am posting this especially for the younger LPR patients who are not responding to conventional treatment, there is a tremendous increase in base of tongue, lingual tonsil squamous cell carcinoma which appears to be related to Human Papilloma Virus exposure ( much more common now). If you are not responding to treatment, DEMAND a thorough ENT exam with a scope and even if negative it may be necessary to do imaging studies to find these lesions early. Early is the key, mine has already spread to a lymph node, the cure rate is much better if found early.
I am starting treatment in a week, being in a great hospital I am getting the best, most up-to-date treatment possible but now it it is not sure what my future will be.
Be pro-active, true, the statistics are in favor that you have LPR but pain and hoarseness, dysphagia, etc lasting  longer than three months needs to be carefully and completely looked at as possible canver, if this saves one person from what I am experiencing it will be worth  a lot to me. As a physician I heard horses when zebras were stampeding through  my throat, my physicians were lulled in the same way, but I believe now that the protocol for evaluating patients with LPR symptoms needs to be re-evaluated.
 
Thank you for your attention to this long post By the way I am a non-smoker non-drinker and not all that young, but in excellent physical condition, this can find anyone
 
Good luck to all  
(as an aside l suggest reading the book "A Taste of My Own Medicine" by Joseph Rosenbaum, made into a movie in 1991, "The Doctor"

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 8/16/2011 8:28 PM (GMT -6)   
baseball1

thanks for the heads up

i have driven my doc crazy over the issue of just what they can.... or can not... see when doing a flexible trans nasal scoping of the voice box

i actually used food coloring to put a dot on the back, way back of my tongue and asked the PA who was using the flexible scope if he could see that mark

then after getting esophageal endoscopy i asked the doc if they look carefully at the area above the epiglottis?... as i suspect their focus is "down stream", below the larynx and down to the z line. the doc said they pay attention from the tongue all the way down... but i do have my doubts

one day i brought a dentists mirror to an appointment and asked my pcp to just use the mirror to see over the top of my tongue an down the throat for the first few inches

i posted a comment here a few weeks ago asking our senior members if they thought there was an area in the throat that might "hide" from esophagoscopy and flexible trans nasal scoping of the upper air way,

and at least one forum moderator said indeed it was possible that an un inspected grey zone potentially exists between where one procedure picks up an the other lets off

thank you for warning us and sharing with us your situation..im sure you have saved some people

please be well...we will all hope for your recovery

Post Edited (mock turtle) : 8/16/2011 8:33:07 PM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6730
   Posted 8/17/2011 4:28 PM (GMT -6)   
mockturtle,

Have you ever had a rigid stroboscopy? It can provide a much clearer view and pictures of your larnyx. You've probably already been through all this and more, but here's a resource I found online.
www.voicemedicine.com/evaluation3.htm

I had a rigid stroboscopy in the fall. It's not bad after having had an endoscopy.
While the through-the-nose camera gets good information, the rigid scope provides an even better view, if the patient can tolerate it. They numbed up my nose just in case, then were able to get good pics through the rigid scope.

The rigid scope might be the answer to your quest. Not all ENTS are equipped to do that procedure. Mine was a member of a head-neck surgery team.

Good luck in your quest!
Denise

roc49
New Member


Date Joined Jul 2012
Total Posts : 2
   Posted 7/16/2012 4:53 PM (GMT -6)   
Was diagnosed with GERD after march 2011 had on/off issues with medications recently all Gerd symptoms have gone for the most part. Found out recently I might have been exposed to oral HPV. Are there any tests that can be done other then visually screening I had endoscopy march of 2011 Gerd was diagnosed via upper GI series they could see acid flare up. Any suggestions thoughts how to proceed with care would be appreciated.

Thanks,

Roc

Chuck T
Regular Member


Date Joined May 2011
Total Posts : 142
   Posted 7/16/2012 5:08 PM (GMT -6)   
I am so sorry to hear this. I will keep you in my prayers. Is there a blood test for the HPV you are talking about? I'm assuming you have HPV?

roc49
New Member


Date Joined Jul 2012
Total Posts : 2
   Posted 7/16/2012 7:02 PM (GMT -6)   
Yeah for the most part going to visit an ent on Monday and going to let him know. No HPV diagnosis just wondering other then looking at it visually is there a test that can be taking for proper diagnosis.

Thanks,
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 24, 2014 6:02 PM (GMT -6)
There are a total of 2,110,350 posts in 234,555 threads.
View Active Threads


Who's Online
This forum has 149199 registered members. Please welcome our newest member, Penryk.
430 Guest(s), 28 Registered Member(s) are currently online.  Details
ramman, hld4good, mustang229, spottydog10, 1 day at a time, Chotti, Jerry L., Freebird74, robertC, brt4545, gedman, Guardian9, I got uc, titlewave, Mercy&Grace, Redwing57, jse, UCHater, Dizzydub1, DYank, JJ-3, CarlG, Chantrelle99, colitis32, khaiz1202, khatia, Roseym10, gingeranne8


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer