Gastritis flare ups

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Digestgirl
New Member


Date Joined Feb 2011
Total Posts : 10
   Posted 1/5/2012 2:42 PM (GMT -6)   
Hi all, Ive read some of the posts on gastritis.  Ive been suffering from it for two years since my gallbladder was removed.  Ive been trying to cope with it with little success.  I take Pantoprazole as my PPI and its no better.  I was on Omeprazole and have also tried Lansoprazole.  I take Gaviscon as I once had a bad reaction to Carafate tablets,they made me sick with stomach cramps.  I also have a hiatus hernia and get reflux.  The pain has been bad all the way along but recently,about two months its gone where I had a day that it calmed down and a day when it flared up.  This week started off ok then one day I got up and started to eat, I got some bloating and the past two days have had very severe pain.  Ive also had some reflux.  I didn't get any sleep at all last night.  It still hurts really bad and I had to go to a funeral.  Has anyone else had experience of it flaring up like this?  Im in agony and don't know what Ive eaten to upset it.  Will it ever go?  I am fed up of keep suffering and I can't even eat my food properly when it flares up. I don't know why the meds don't work,should I double the PPI? Should I try Carafate again? I really can't get rid of it. Its always burning away inside and has only ever eased off very occasionally.  I don't even know the cause.  A ph monitoring test didn't show excess reflux though I have it. Im so depressed. Please offer help if you can.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6889
   Posted 1/5/2012 8:54 PM (GMT -6)   
Hi Digestgirl,
Welcome to Healing Well!  I'm someone who suffers from gastritis quite often, so I understand how you're suffering.  If you're not responding to PPIs and anti-reflux medication, I suspect you've got an overabundance of bile leaking into your stomach. Have you discussed this with your surgeon or GI doc?
 
I know for a fact that Carafate is the drug of choice for bile-related issues.  The very best option for you would be Carafate Suspension, rather than the pill type.  It will coat your esophagus so that refluxed biled won't burn it, and coats your stomach to help it feel better.
 
If you have good prescription insurance, be sure to get your doc to prescribe the suspension form, because it's far superior.  However, since it's super expensive, if you need to use the pill form, you can dissolve it in a little medicine cup to create a slurry...stir it with a toothpick.  Then throw it back like a shot, and you'll get some coating action in your esophagus on the way to the stomach.
 
I don't know much about bile, as my problem has been more with acid.  I think if bile reflux is an issue then the Nissen fundoplication surgery is the only real more permanent fix, but the Carafate will go a long way in helping your stomach lining heal and stay protected.
 
If you're having big problems like the ones you're describing, be sure to talk to your GI doc about it.  I think excess bile is a common side effect of the gallbladder surgery.
 
I hope things settle down for you very soon.
Best wishes!
Denise

lanab
Regular Member


Date Joined Nov 2011
Total Posts : 136
   Posted 1/6/2012 6:47 PM (GMT -6)   
Gastritis is terrible, i feel for your pain as it can be living hell having it for long periods.

Check with your doc if you might have Bile reflux, no PPIs will help that problem, you need other meds for that.

Digestgirl
New Member


Date Joined Feb 2011
Total Posts : 10
   Posted 1/6/2012 7:31 PM (GMT -6)   
Thanks Ive thought about it being that many times. When I had an endoscopy and they took biopsies they didn't show the cause. Ive had ph monitoring and have to wait to see my gastro. Ive never been told that I have bile reflux so I don't know. Im fed up of taking medicines. I was on Carafate a long while ago when I had oesophaghitis. I don't think I had the gastritis then. I stopped taking Carafate for some reason,I can't remember. A while later I was put on the tablet form of it and I only took one,imediately I was sick and my stomach was cramping. I don't know now if the Carafate liquid would help. Ive just been put on two Pantoprazole a day. I will ask my gastro anyway about Carafate. Its called Sucralfate here in the UK and not easy to get it in liquid form. I managed to get my local supermarket to order it last time though so I will see.

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 1/6/2012 9:18 PM (GMT -6)   
Digestgirl

similar...or at least related discussion going on in another thread titled, bile reflux, by AshleyRose

you may find the links there interesting

sorry about all the pain

i have the nausea and gut ache but not the bloating...dont know whats up with that

hang in there
mock turtle

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6889
   Posted 1/7/2012 4:25 PM (GMT -6)   
Digestgirl,
I think you would find Carafate suspension is far superior to the tablet form.  When I discussed the possibility of bile reflux with my GI doc, I told him I was taking Carafate suspension, and he said that is what he would put me on should I have it. 
 
I take Carafate suspension because I tend to get gastritis easily, and since my wrap is created out of my very reactive stomach, it gets irritated easily if I eat something challenging.  I find it very helpful.  At one point I was having a lot of trouble with my stomach and wrap due to gastritis and was taking liquid antacids to try to coat my stomach.  Suddenly I remembered the Carafate, and took it with immediate relief.  I wouldn't be without it.
 
You do need to take note of the fact that you need to take it two hours before or after taking medication, and an hour before or two hours after eating.  That's the tough part.
 
The thing is that it coats your stomach and esophagus and that coating lasts up to 6 hours.  It provides protection from either acid or bile, and helps healing.  It was actually developed for healing ulcers.
 
Check with your GI doc and see what he/she says.
Good luck!
Denise

Digestgirl
New Member


Date Joined Feb 2011
Total Posts : 10
   Posted 1/7/2012 8:00 PM (GMT -6)   
Thanks Denise I will ask the gastro doc. It would be difficult to take as I have my Pantoprazole 1 hour before my breakfast. I would have to then wait for two hours to take it. I have the second tablet later on if I go out such as about half past eight. I find it difficult fitting in the Gaviscon but always take that before I go to bed. I wonder how Carafate is different from Gaviscon. I know Im meant to have Gaviscon 4 times a day. I really need to find out if bile is coming up. Its scary that. Does it ever go away and get better? How long have you had it? So you had the Nissen op? I hope everything is ok now. I have the inflammation mostly at the top of my stomach and it hurts bad most days so its difficult to eat things. I really need it to settle down but even after two years it doesn't seem to want to. I already don't eat tomatoes or drink alcohol or have spicy stuff. Someone suggested drinking green tea with honey in it. I really don't know if its any good. Its worth a try.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6889
   Posted 1/7/2012 8:16 PM (GMT -6)   
Hi Digestgirl,
I know what you mean about the Carafate/meds schedule.  A way I've been able to get in some extra doses is that I take my night meds before dinner, the in 2 hours I can take Carafate.  If I wake up in the middle of the night I take it then, too.  I just take note of the time, so I can space it from breakfast and any morning meds I might take.
 
If you get ANY Carafate suspension doses in it will do some good.  If you have to take the tablet form for the time being, you can put it in a shot glass or medicine cup, add a little water, stir with a toothpick, and throw it back like a shot.
 
If most of the pain is at the top of your stomach, the Carafate suspension would really help.
 
I haven't been diagnosed with bile reflux, but discussed the possibility with my GI doc.  I had the Nissen for acid reflux that was very badly affecting my lungs/asthma.  It has made a big difference.
 
Gavascon is an antacid with coating ability.  Carafate is not an antacid, but the benefit is that the coating lasts MUCH longer--for up to six hours.
 
I know the suspension form is more expensive, but it works much better for me.  I agree that it's worth a try.
 
Best wishes!  Hope things get feeling better soon.
Denise
PS--I understand your frustration.  Reactive stomachs and gastritis take a long time to calm down.  It's a rough road, I know.  Hang in there!

Digestgirl
New Member


Date Joined Feb 2011
Total Posts : 10
   Posted 1/7/2012 8:43 PM (GMT -6)   
Thanks Denise, I have asthma too but fortunately its not affected by acid reflux and is controlled. That must have been horrible for you having the acid affect the asthma then the op. My aunts asthma is really bad and shes on tablets for acid reflux,she doesn't think its that affecting her asthma but it may be. She should ask her doctor. Shes on a nebuliser and 3 inhalers but it still flares up. The pain from gastritis is horrible isn't it. I pay a prepayment for my prescriptions in the Uk for each year so if I need a med its not too bad. I could get Carafate again. It sounds good that it works for 6 hours. It is a really rough road as I was having oesophagheal spasms over and again after I first had my gallbladder out. It was agony and the paramedics used to come to me. The gastritis came after that,I was vomiting a lot which is also a risk factor for gastritis. I didn't know what gastritis was until I got it. I hope you get well too.

lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 1/8/2012 1:23 PM (GMT -6)   
Hi Denise and everyone else,
Once again you are telling me what I need to hear. I have been adhering to all my meds except the Carafate which I usually only get in once a day. I am definitely going to try to get it in at least three times each day...The nausea I experienced for months is better and I believe that is due to the Erythromycin for slow stomach motility. However, I still have pain in my upper left abdomen on many days and in my left ribs under shoulder blade and arm almost all the time but to varying degrees...Does this sound like gastritis pain? I am always a bit confused...My new gastro doctor thinks I have bile reflux because of the gastroparesis which makes the stomach empty slowly causing the pyloric valve to let bile flow back into the abdomen causing the inflammation. He has me on 40 mg. of Protonix, the Carafate, 150 mg. of zantac and the liquid EES(erythromycin...I am better and have gained 8 pounds because I am able to eat more...he did alot of new blood work to test for different conditions such as diabetes, lupus, other autoimmune diseases, myeloma, etc. but all were negative...Then he did another CT scan because the last one was five months ago and he said he just wanted to make sure nothing had developed---all negative---I am just frustrated because he doesn't really say what he thinks is causing all this and doesn't want to see me again for three months... I haven't written in awhile because I was trying to just use positive affirmations...I am definitely better and have much less nausea and normal bowel movements for a month, but know something is wrong because of the pain----could the chronic gastritis caused by bile be the reason for the pain?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6889
   Posted 1/8/2012 3:59 PM (GMT -6)   
Hi Lillye,
Good to hear from you!  Yes, I do think it would be worth getting some more Carafate into your poor stomach to coat it and help it heal, or protect it from the negative effects of bile.  Remember that the coating it puts on your stomach lasts 6 hours, and that it was developed to heal ulcers.  It's got to be good for gastritis if it helps with ulcers!
 
I'm glad to hear that overall you're feeling better.  Sorry that you're still having that nagging pain.  Since you've been thoroughly tested and even had an additional CT scan, I think you can relax that it's anything serious.  That doesn't negate the fact that you have it and that it's uncomfortable and disconcerting.  As I read your post, referred pain came to mind.  If you're having a consistently irritated stomach, there could be pain referring to other places.  I don't know if my hypothesis is true, but it makes sense to me.  I found a website that discusses referred pain has a diagram of where referred pain tends occur.
Maybe it'll have some helpful information for you.
 
I once had severe and sharp pain in my lower left groin area that sure seemed like it could be coming from an ovary.  My PCP sent me for a sonogram, and ruled out any problem.  He said I should go to my chiropractor and see if she could help me.  Sure enough, that did the trick!  Anyone having a Nissen surgery is most likely in for some very severe shoulder pain.  Go figure!  Whenever I get back trouble it refers to my hip.  Referred pain can be very confusing.
 
Great to hear from you!
Happy New Year!
Denise
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