GERD,BARRETTS ESOPHAGUS & HIATAL HERNIA

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davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/8/2012 3:23 PM (GMT -6)   
I WAS DIAGNOSED IN OCTOBER WITH GERD,BARRETTS & HIATAL HERNIA. I WAS PUT ON OMEPRAZOLE,WHICH HELPS WITH THE ACID REFLUX BUT I STILL HAVE QUITE A BIT IF DISCOMFORT AND I AM CONSTANTLY REGURGITATING EVERYTHING I EAT. I FIND THAT AS LONG AS I REMAIN SEATED AFTER EATING THAT I DON'T HAVE THAT MUCH REFLUX OR REGURGITATION, BUT AS SOON AS I STAND UP IT'S LIKE SOMEONE openED UP THE FLOOD GATES.I'M WONDERING WHAT OTHER STEPS I NEED TO TAKE, I WATCH MY DIET, HAVE LOST about 60 LBS IN THE LAST 6 MONTHS BUT I'M CONSTANTLY FRUSTRATED BY THE REFLUX. I REALLY THINK SURGERY IS MY ONLY CHOICE. ANY THOUGHTS?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 1/8/2012 5:13 PM (GMT -6)   
Hi Davidk,
Welcome to Healing Well!  It definitely sounds like you're in the right place.  There are many here who suffer or have suffered as you are.  Glad you've joined us.
 
First, when you type, don't use all caps...in internet lingo capital letters=SHOUTING.  I know you weren't shouting, but in any rate all caps are not allowed here at the forum.
 
Next, I agree that if you're suffering it sounds as if you might be a perfect candidate for surgery.  I spent four years with very unhealthy lungs before I finally decided to try surgery.  There comes a point where we've run out of other options, and that's when surgery makes sense.
 
I'm sure others will be by to add their thoughts and support.
Best wishes,
Denise

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/8/2012 6:14 PM (GMT -6)   
Thank you for the response. Very sorry about the caps.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 1/8/2012 6:37 PM (GMT -6)   
No problem at all! turn

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 655
   Posted 1/8/2012 6:51 PM (GMT -6)   
David,

You sound exactly like me. Is there any pain when you regurgitate? I do it quite often also but with no pain or burning. I also notice that it can sometimes happen WAY after I eat - sometimes by about 2 hours or so, but after I burp up some food I find that I can lay down comfortably.

I'm still on the PPI Merry-Go-Round (trying different ones to see if another works) but I'm working my way through the testing and it is a Nissen that I'm after.

What other symptoms do you have? Have you had any testing done?

Take care,
Ashley

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/8/2012 8:51 PM (GMT -6)   
Ashley,

Thank you for your response. I have very little pain and still have slight burning, my doctor has me on omeprazole which takes care of most of the acid burning but not the regurgitation. Mine happens within 10-15 minutes after i eat and usually lasts for about 30-45 minutes, depending on what i eat. I will usually regurgitate about 60% of what I've eaten. The other symptoms i have are chest pain,when i do a lot of lifting with my hands above my head. I think that comes from the hiatal hernia. Sometimes i get so nausea's that i try and force myself to vomit but my problem is that when i'm bent over it's like i'm pinching something closed because as soon as i stand up straight i vomit. The only testing i have had done is an upper endoscopy that revealed the large hiatal hernia and the Barretts Esophagus. I to am hoping for surgery. I don't want to live the rest of my life hearing, " let's try this or this "
If the surgery has the best chance of taking care of my problem then i want to do it. Let me know if you have any other info. I have a doctors appointment tomorrow if i find out anything new i'll pass it along.


Thanks,
Dave

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 1/8/2012 11:11 PM (GMT -6)   
Hi Dave,
The symptoms you are describing are a definite reason for surgery.  I would be very surprised if your doctor doesn't recommend surgery for you.  There are lots of people on the forum who've had a Nissen, and some who have had the TIF procedure. 
 
I had a Nissen in February 2009.  The main symptom that brought me to surgery was severely unhealthy lungs.  I had asthma already, and the reflux just put me over the edge.
 
The surgery works great for people with symptoms like yours.  Your the ideal Nissen candidate.  Let us know how your doctor appointment goes!
Denise

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/9/2012 4:13 PM (GMT -6)   
Just got back from the doctor, Surgery it is. I have a consult on the 26th.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 1/9/2012 4:16 PM (GMT -6)   
Hi David,
I'm not a bit surprised.  Be sure to choose a fine, fine surgeon who has had a great deal of experience doing the Nissen procedure.  It's important to get someone who has done over 300 or 1000+ procedures.  The more the better. There's a definite learning curve.  The more experienced the surgeon, the more likely you'll have great results.
Best wishes!
Denise

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/27/2012 3:01 PM (GMT -6)   
Well, had my consult yesterday. Doc wants a couple more test, upper GI and a manometry. Says if i have the surgery to repair the hernia and reflux that it wouldn't do much good if i have Achalasia, which is what he thinks is another of my digestive problems. Also,after going over my endoscopy and biopsy test from another physician, tells me i have low grade displasia. Didn't know that. Surgery will happen, just a couple more test.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4820
   Posted 1/27/2012 3:26 PM (GMT -6)   
Dave-

It is good he wants to get the manometry. That will let them know which wrap to do. Didn't they said you only had Barretts originally? Did they have another biopsy come back different than the first?

So to ask so much, but there is a big difference between barretts and dysplasia. Have you thought of having the dysplasia ablated before the surgery?

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/27/2012 3:47 PM (GMT -6)   
Bill,

The doctor who performed the endoscopy told me that i had a large hiatal hernia and Barretts esophagus, nothing about displasia.
The surgeon that i went to looked over the endoscopy and blood work and told me that low grade displasia was listed as one of the diagnosis. He said it's nothing to be alarmed about but concerned,yes.I'll have to have endoscopy done bout every 6 months for 2-3 yrs. then if everythings ok, bout every 3 yrs after. So, evidently, the displasia was just MISSED. Nothing was discussed about having the displasia ablated, he did say that when i have the surgery he will take another biopsy.

Thanks for the response,

Dave

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/27/2012 3:56 PM (GMT -6)   
What is displasia?

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/27/2012 4:15 PM (GMT -6)   
I wanted to give you an accurate description, copied this from Sharecare web:

Esophageal dysplasia is a precancerous condition that doctors can only diagnose by examining tissue samples under a microscope. When dysplasia is seen in the tissue sample, it is usually described as being "high-grade," "low-grade" or "indefinite (or indeterminate) for dysplasia." In high-grade dysplasia, abnormal changes are seen in many of the cells and there is an abnormal growth pattern of the cells. Low-grade dysplasia means that there are some abnormal changes seen in the tissue sample but the changes do not involve most of the cells, and the growth pattern of the cells is still normal.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4820
   Posted 1/27/2012 5:13 PM (GMT -6)   
Max-
dysplasia is the next step after barretts.

Dave-
I had o do the 6 month EGD for a year and since there wasn't any advancement I was switch to every year for a couple years. Since I had an esophageal tear last Feb. I won't get an EGD until the 3 year mark. They are worried about another tear. My GI told me since I have a functioning nissen that the barretts shouldn't advance any farther.


Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/27/2012 5:18 PM (GMT -6)   
Thanks Bill. This site is awesome. So many helpful people.

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 1/29/2012 2:03 PM (GMT -6)   
I'm waiting on the GI office and Ohio Health to call and schedule my tests. In the mean time i'm looking for a little advice. If i'm diagnosed with Achalasia and already knowing that i have Barretts,GERD and a Hiatal Hernia, How hard should i push for surgery or is surgery really my only option. I'v been doing quite a lot of searching my options and it seems that surgery to take care of all but the Barretts is the best way to go. Give me your thoughts

Thanks,
Dave

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4820
   Posted 1/29/2012 6:21 PM (GMT -6)   
Dave-

If it was me I would definitely go with the surgery. They can do a modified wrap or there is a procedure to cut the muscle ring to let things get past it easier. Your surgeon will know better what course of action to take.
I have barretts and it hasn't advanced in 5 or 6 years since I got the surgery. You can also have the area of dysplasia ablated if it worries you later on. But right now I would focus on stopping the reflux and any additional damage. My new GI told me some of the research he has been reading lately is showing some people actually get some healing of the barretts and such after stopping the reflux. Whether it actually heals or just has normal cells grow over the area I am not sure.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

davidk
Regular Member


Date Joined Jan 2012
Total Posts : 29
   Posted 2/7/2012 2:21 PM (GMT -6)   
This is becoming a nightmare. I'm still waiting for a phone call from the GI physician to set up my manometry test. I've already had the upper gi. I've called their office twice and have not had a single call returned. Called my Physicians nurse and she has called twice and they have told her that they have received the request but have not scheduled it yet. It's bee almost 2 weeks. Last night was one of the worst in a while, sever reflux burn, very bad pain in lower abdomen and around to the lower back. Should have gone to the ER but thought i'd wait till the next day and check with my Dr. Unfortunately he wasn't available. Waiting on his nurse to call me back with instructions on what to do. Wondering if i should consider changing physicians.Any suggestions?
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