How long after NF did your LPR symptoms disappear?

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Non
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Date Joined Dec 2011
Total Posts : 42
   Posted 1/26/2012 1:45 PM (GMT -6)   
Hi!
I am 3 months out of NF and still struggle with my LPR symptoms. Some mucus, phlegm, soreness in throat and somtimes a dry throat. It has sloooowly gotten better, but when will it be okey for good? I am still on my PPIs 45-60 mg/day. And why does it takes so long for LPR problems to subside, when heartburn stops right away? Where does it all come from if not from reflux?
 
Had a barium swallow two days ago and it showed everything was okey. Barium stayed down. They saw that I had a lot of air in my stomach, that beeing from trouble burping. My surgeon signed me up for a PH-test and endoscopy in april/may, just to be on the safe side of everything and to rule out any chance of reflux. He was positive thoug, said it was a matter of time and so on... but hey, I know that you guys are the ones to trust on recovery.
 
So, when will my LPR problems clear up? When did yours?

maximus808
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Date Joined Sep 2011
Total Posts : 620
   Posted 1/26/2012 2:13 PM (GMT -6)   
How bad was your lpr symtoms before surgery?

Is your wrap tight? Are you back to eating normally?

Can you burp?

I'm having NF for LPR....I don't have phelm or mucous too much but a soreness in the stomach, throat, and mouth that I hope to resolve through NF.

bowecho
Regular Member


Date Joined Nov 2011
Total Posts : 146
   Posted 1/26/2012 2:24 PM (GMT -6)   
My surgeon told me that the LPR symptoms would on average take 2-3 months to resolve after surgery. Some take less time, some more.

At a little over 2 months my symptoms have resolved it seems about 80%, and has been slowly getting better over time. I think LPR healing just takes a very long time compared to GERD symptoms.

sunbeam48
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Date Joined Jun 2011
Total Posts : 784
   Posted 1/26/2012 2:41 PM (GMT -6)   
I believe that the NF does nothing to control acid. My understanding is that Lpr symptoms may result from very small quantities of acid. It is more complex, and results are more varied.

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 1/26/2012 2:56 PM (GMT -6)   
Hi again
My LPR problems were bad before PPIs, took me over 6 months to get to the point of almost okey. Everything was kind of okey before surgery, but I was on 60-80 mg of PPI and I don´t want to depend on such a high dose of medicine and not get fully helped. Thats why I had the surgery.
My PH-test before surgery showed that I had reflux 15% of the time in a 24 hour period, so no doubt about reflux there. I had hundreds of episodes during this 24 hour period and the reflux stayed too long, easiest way to explain. So, I am not one of them who showed ""normal" on a PH-test, which I know is quite common in LPR sufferers. I did suffer alot from pressure and astma like symptoms in chest before my PPIs, that went away pretty fast with PPIs. But the throat took forever to heal.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12246
   Posted 1/26/2012 8:42 PM (GMT -6)   
My LPR symptoms slowly faded away over 4 months.
I noticed my coughing faded after two weeks. The rest took four months. I was on ppis for three of those months weaning off.
Joy

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4824
   Posted 1/26/2012 9:51 PM (GMT -6)   
Sunbeam-

May I ask why you don't think the nissen controls acid? Or do you mean acid vapor?

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/27/2012 6:48 AM (GMT -6)   
I mentioned to my surgeon about acid vapor and that acid reducing medicines were not helping me.

He mentioned that there are other digestive juices and vapors that may come up not acid like bile, enzymes, that are just as harmful to the upper GI tract....that made a lot of sense. I read that a while ago but it was reassuring to hear it from him.

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 1/27/2012 11:59 AM (GMT -6)   
Hi Joy!
Four months... Guess I´ll have to wait a bit longer, patience. Yes, I am also on my PPIs still, beeing 3 months in. Thinking a couple of months here and there dosen´t matter in the end if everything works out as it should. Think it´s good for my stomach too, poor one been through a lot lately. This throat thing really bothers me tough, just want it to clear up so I can go on with my life, everything has been put on hold for way too long. First before surgery, and now afterwards. Argh!

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 784
   Posted 1/27/2012 4:19 PM (GMT -6)   
Bruce, my understanding is that the Nissen keeps the acid in the stomach but does not reduce acid like a ppi does. Many people still need to take a ppi after surgery for this reason. My understanding of the mechanism for LPR isn't great, but surgical results clearly aren't as good as for people who experience heartburn.

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/27/2012 5:11 PM (GMT -6)   
Hi Non,
Great question I was just about to ask the same!
I had my operation 8th of November and I feel exactly the same as before (which was pretty bad) and I am still on PPI’s. I have tried to reduce the PPI’s a couple of times but I can feel it in my mouth as soon as I lover the doze.
Having said that I actually had two good days this week only to be followed up with a really rough Thursday.

Anyway I have recovered really well from the op, been eating everything since Christmas with very rare episodes of food getting stuck for a few minutes. I am fully back to running and I have just come back from a skiing holiday. But I just can’t help thinking: ”Maybe it wasn’t LPR that was my problem”!

maximus808
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Date Joined Sep 2011
Total Posts : 620
   Posted 1/27/2012 7:13 PM (GMT -6)   
Jesper,

What were you LPR symptoms

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/28/2012 9:54 AM (GMT -6)   
What are... :)

Well I have all the usual like:
Continual throat clearing
Chronic throat irritation
Hoarseness
Excessive phlegm

Also the phlegm gets so bad some times that it feels I am choking. I haven’t had one day the psat 1½ year where I did not feel irritated in my throat

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6919
   Posted 1/28/2012 10:22 AM (GMT -6)   
Hi Non,
At about 10 weeks my lungs seemed to make a dramatic recovery.  I no longer was needing my nebulizer treatments, and my breathing was much improved.  The amazing thing was that this was in May--one of my worst allergy seasons--and I could still notice a big difference.
Good luck with your quest!
Denise

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/28/2012 4:12 PM (GMT -6)   
Jesper A,

Did you have the symptoms you listed before surgery as well or developed those post surgery.

I hope you feel better.

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/28/2012 4:12 PM (GMT -6)   
Jesper A,

Did you have the symptoms you listed before surgery as well or developed those post surgery.

I hope you feel better.

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/28/2012 5:09 PM (GMT -6)   
Yes, the LPR symptoms was the reason for me to get the operation. I Have had this for 1½ year.
I still believe in this, even though I havent seen any change yet since. I definitely have fewer reflux episodes. Before I had more than 20 a day now I have between 0 and 5.

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/28/2012 6:13 PM (GMT -6)   
Jesper,

is the 20 a day and 0 and 5 a day based on a PH test or on how often you feel them?

Do PPIs help you?

I haven't been on PPIs for a while as I felt they never really helped...maybe slightly in the beginning when all these GERD/LPR symptoms started a year ago.

It's weird....it seems people with typical gerd can get it to a controllable point with medicines so surgery is don't many years down the road after medicines finally failed.

People with LPR/GERD or just LPR tend to go the surgical route quicker as medicines don't help as much.

I hope you feel better.

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/29/2012 5:07 AM (GMT -6)   
I had a PH test before the OP which came out at about 8% where 5% is normal and with a Demeester score at 25.

The episodes I am talking about is the ones I can feel. I don’t know how to describe it other than it is like a hiccup but in the stomach. Before I was taking PPI’s I felt those episodes as very acidy and they hurt and gave me heartburn. When I started taking PPI’s it no longer hurt but the amount of episodes were the same.

The PPI’s definitely helped on the heartburn part and when I began on PPI’s twice a day it gave some relief to the LPR symptoms. However they never went away completely which also is the reason for why I chose the op.

I agree with the last statement. It seems PPI’s are very good at controlling heartburn, I had full relief from that by taking PPI’s every other day. But I had to get to a doze of 30 mg Lansoprazole twice a day before it had any impact on the LPR and even then I was not fully relived.
I don’t know what the usual time from diagnosed to OP is but from the day where I upped the doze and until I got the op It was a year (which actually means, now that I am thinking about it, that I have had the symptoms for more than two years rather than 1½ years….. Yikes)

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/29/2012 5:10 AM (GMT -6)   
Jesper,

How long did it take you to recover from the op?

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/29/2012 5:10 AM (GMT -6)   
Jesper,

How long did it take you to recover from the op?

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/29/2012 2:16 PM (GMT -6)   
What do you mean recover?
I was back at work day 14. I had food getting stuck from day 11 until day 35. I had my first proper five course meal at day 54 :) Including steak for the first time.
All in all I have been quite good and not experienced anything alarming except for food getting stuck.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4824
   Posted 1/29/2012 6:00 PM (GMT -6)   
Jesper-

I second what Denise said. The LPR damage will probably take longer to heal. Have you tried something like zegrid or zantac, don't remember which one has the antacids and PPI type meds together? Wondering if the antacid combined would help a bit more while things heal. the LPR can be so tough to get healed since that area REALLY doesn't take well to any acid. I am praying things start to improve for you.
I realize it's a small thing, but the reduction in the ampunt of reflux you feel is a good thing and means the wrap is working. Hoping it will settle in better with some more healing.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 1/30/2012 2:43 PM (GMT -6)   
Thanks Bill,
I am confident it will get better in the long run and I feel lucky that my recovery has been easy. As I stated earlier I eat pretty much everything except the obvious triggers, I can run and havent felt bloated or had pain as so many others.

I will definitely post as soon as I see the first signs of the LPR disapearing :)

Rose47
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 8/9/2012 9:26 AM (GMT -6)   
maximus808 said...
How bad was your lpr symtoms before surgery?

Is your wrap tight? Are you back to eating normally?

Can you burp?

I'm having NF for LPR....I don't have phelm or mucous too much but a soreness in the stomach, throat, and mouth that I hope to resolve through NF.
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