LPR - Burning throat, mouth, tongue, dental problems....cancer?

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JAM1986
Regular Member


Date Joined Feb 2012
Total Posts : 46
   Posted 3/4/2012 4:06 PM (GMT -6)   
Maximus,

During prior to my first nissen I had regurgitation, acid burn, aspiration, but no LPR. The endoscopy was positive for acid reflux but my GI doc did not recommend I get a nissen. I found a surgeon myself and had my first nissen done 3 years ago. My second nissen was done recently because I herniated my stomach through the diaphragm. The folded portion was above the diaphragm and I had intense pain in the chest and developed LPR and could not lay down because of acid pooling in my throat. I feel the same way as you after 1 month out. My mouth burns still and I don't understand.

maximus808
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 3/4/2012 4:14 PM (GMT -6)   
JAM and Joe,

Ok, so there's three of us with these similar odd symptoms. We also all had the Nissen. Jam you're like me, my GI didn't recommend NF but I pursed a surgeon on my own. The surgeon was confident he could help me. I guess the surgery is as good as your symptoms. Even if it reinforces your LES or reduces the amount of reflux episodes we are just more sensitive to it cause of all the damage we took. I believe is we could instantly heal ourselves, have the Nissen in tact, we would feel a lot less discomfort and pain.

Before a year ago when this all started, I had signs of odd dental erosion that I had two dentists confused. They didn't know what was causing it. Since it cause no pain, I wasn't worried about it. I thought at worst I needed to repair my teeth in the future. But I believe that was early signs of LPR. If I could get myself to that point where I would not feel any pain I would take that any day....I mean any day. I have redness in my mouth, tongue, and even the edges of my lips which I can't stop looking at cause it we all look in the mirror everyday. It discourages me if say I see a part of my mouth getting more red. The pain honestly isn't unbearable. I've been through worse with this LPR/GERD thing. about several months ago, I had the most horrible stomach pains that trumped the throat pains. Of course we can't see the damage in the stomach, esophogus, but only the mouth.

We are in this together and let's hope one day we will all feel better.....

birdieslc
Regular Member


Date Joined Dec 2011
Total Posts : 31
   Posted 3/28/2012 9:04 PM (GMT -6)   
Hi Guys, thought I'd chime in here. I had strange stomach pain prior to my surgery....like my stomach lining always seemed inflamed. It just developed out of nowhere and didn't stop. PPIs had close to zero effect. I started regurgitating almost everything I ate and drank. During this time, I started to develop burning on my tongue. No problems in the throat....just the tongue. All the tests I had confirmed acid reflux. I had one GI say not to have the surgery, another who said I should have it. Post surgery, I have had zero regurgitation. It has been almost 4 months for me. However, about a month after my surgery, my stomach started hurting again and my tongue started burning, as well. I started taking probiotics/enzymes and I believe they help, but definitely do not cure anything. Based on what others have told me on this forum, I have been holding off on having further examinations of my stomach, as I'm trying to give myself the proper healing time. However, if I'm still having these issues and the pain is as strong as it is now, I will be seeing my GI by the 6 month mark. I know, for me, my tongue burning is directly related to my stomach pain. When the stomach pain increases, the tongue pain increases. After seeing an ENT, she said my tongue issue was more of a nerve signal problem and is probably related to anxiety....that reflux effects the back of your throat, not your tongue. As of today, I have started to keep a food/medicine journal, as I cannot seem to figure out why my stomach flares up inside some days more than others. Now that I've had the surgery, it causes even more pain in my surgical sites, especially the upper stomach, which is where I had all of my pain previously. If any of you figure out anything, please let me know, as I suffer every day. Thanks!
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