Surgery for LPR

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Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/6/2012 1:25 PM (GMT -7)   
Hello:
I'm considering a Fundo for LPR. Is it worth it? Will it relieve my symptoms? I suffer from GERD and LPR. Any feedback would be appreciated. Thank you!

CurbYourEnthusiasm
Regular Member


Date Joined May 2012
Total Posts : 31
   Posted 6/6/2012 1:43 PM (GMT -7)   
Hey Sassy,

I had it two weeks ago for symptoms from both LPR and GERD. I have to say it's only been two weeks, but I already feel 75% better. I have some normal aches and pains from the incisions, and I feel full after eating a meal, but these are both normal symptoms according to my doctor.

If you are strongly considering the surgery make sure you go through the entire battery of tests to make sure you are a good candidate. This can't be stressed enough.

For me, my esophageal manometry test showed that my LES wasn't functioning properly, and the barium swallow showed my reflux coming all the way up to my upper esophagus.

What LPR symptoms do you suffer from? If the main one is that 'lump in the throat' sensation, that went away for me the day after surgery, which was incredibly liberating to me.

Let me know if you have any other questions.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/6/2012 1:53 PM (GMT -7)   
Thanks for your response. This is so encouraging. I have been dealing with this since January 2012. I'm on double doses of PPI's and 300 mg of Zantac nightly. This along with 4-5 Gaviscon tablets after i eat anything. My main symptoms are constant burning in my chest all the way up to my throat, excessive saliva, a cough that seems to have gotten a little better. I saw my GI on Monday again and he finally said maybe surgery is our next step. I have already had barium swallow, endoscopy, bravo study. On June 20, I have the 24 hour PH phone done. I am miserable and don't want to continue suffering. I'm so glad your recovery is going well!! tongue

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/6/2012 1:56 PM (GMT -7)   
What scares me is my GI doc said my throat symptoms will only get about 1/3 better from this surgery. I guess its better than I feel now. Has anyone had all LPR symptoms cured from Nissen wrap? Thanks for your feedback.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/6/2012 2:02 PM (GMT -7)   
I also have an extremely hoarse throat that comes and goes. mad   This illness is the pits! Deep Sigh~

CurbYourEnthusiasm
Regular Member


Date Joined May 2012
Total Posts : 31
   Posted 6/6/2012 2:10 PM (GMT -7)   
Sassy,

You sound exactly like me to the tee. The cough, the excess saliva, the burning in throat sensation, are all symptoms I had. I was even on the same dosage you were on. I was taking 2 Nexium a day, a zantac at bedtime, and about 8-10 tums throughout the day after I ate. NOTHING helped me. I felt like I was going insane.

Did you fail your tests? And by that I mean, did the tests prove you were refluxing as bad as you are experiencing?

I'm not sure why your doc gave you those numbers with the surgery. They seem pretty low. My surgeon told me the surgery is 95% effective with regular GERD symptoms and about 75% effective with atypical symptoms or LPR symptoms. However, he assured me he thought I would be in that 95% bracket because of how poorly my LES was functioning.

I truly believe that 75% effective rate is a tad bit lower because people will have the surgery to fix their problem without getting the entire testing. There are plenty of things out there that cause throat irriration like post nasal drip, zenkers diverticulum, etc. These all need to be ruled out before proceeding with the surgery.

It's beating a dead horse, but there's a reason why surgery should always be the 'final option' in the process.

I'm still early in the recovery process, and I can't say with 100% that my symptoms won't come back, but I already feel a ton better and my doctor told me I would only continue to get better. My stomach is still swollen and I already feel good, so I'm looking forward to getting even better as time goes on.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/6/2012 2:27 PM (GMT -7)   
Hi CrubYourEnthusiam:
 Yes, all the tests showed reflux. I have also been to an ENT who confirmed reflux to larnyx. I have the 24 hour PH phobe on the 20th of June. I'm not sure what other tests my GI Doc would want to do after that before referring me to Surgeon. I have tried all PPI's and none are working. On Monday, he changed me from Dexilant to Aciphex. Its still now working. I'm hoping the Surgeon will be able to give me much better statistics about the surgery. I know I saw a posting from a member on here who used Dr. John Sweeney head of GI and Surgery at Emory. This is who I will press my GI doc to refer me too. He seems like the best in Atlanta, GA. Thanks again! Best of luck in your recovery!! yeah

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12553
   Posted 6/6/2012 2:50 PM (GMT -7)   
I had John Vito Bagnato in Albany, GA do my surgery. He has a special 270 degree wrap that is a great success for his patients.
I had my surgery 2 1/2 years ago and have not regretted having it one day. I wish I had had mine sooner. I waited too late to prevent damage to my epitglottis. If I don't concentrate on my swallowing I'll choke on my own saliva.

Recovery is hard, but if you follow the rules you'll do great.

PS. don't forget to have the stomach emptying test done.
Joy

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/7/2012 7:17 AM (GMT -7)   
Thanks so much for the info. So sorry you are dealing with this new problem. Hope you feel much better soon!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 6965
   Posted 6/7/2012 8:55 PM (GMT -7)   
Hi Sassy,
I had the Nissen surgery 3 years ago for atypical symptoms.  My lungs reacted very badly to my reflux, even though it was minimal (my DeMeester score was just a little over the high range for "normal").  It took me 5 years of very sick lungs before my GI doc finally believed my PCP, who was certain that my reflux was making my asthma much worse.  My lungs were in a "life-threatening" condition, and my PCP pushed long and hard to get me in to a surgeon, while my GI doc dragged his feet because he didn't think I needed surery.
 
Anyway, long story short, after 2 and a half months of healing, my lungs recovered and were healthy again for the first time in years.  Because my lungs are highly sensitive to any reflux, my PCP and asthma docs want me to take 40mg Protonix before dinner and continue to sleep with the head of my bed elevated.  These are just proactive measures...it is very possible to get a little reflux after surgery.  The surgeon only goes for "normal reflux" (less than 14.7 DeMeester score) because to achieve zero reflux we wouldn't be able to swallow.
(Prior to surgery I was taking 40mg Protonix AM and PM as well as 300mg Ranitidine at bedtime, and still my lungs were horrible.) 
 
Since my surgery my inhaled steroid dose is a fraction of what it was.  I don't have to use my nebulizer daily (actually I haven't used it since my surgical recovery--before surgery I used it several times daily)  Also, I haven't had to take oral steroids since my surgery.
 
GI docs aren't quick to send LPR patients for surgery.  One reason is that those of us with LPR may not have the high levels of reflux, but are extra-sensitive to the reflux that does make it into our esophagus.  I think GI docs are fearful that if the surgeon can't get the reflux low enough, a LPR sufferer may not get relief. 
 
My surgery was very successful.  Some might wonder if the fact that I still take a PPI before dinner it means my surgery was a failure.   This could not be further from the truth.  My lungs became healthy after surgery. If I need to take a PPI to ensure that they continue to remain that way, I'm happy to do so.  I threw lots of medications at my lungs before my surgery and my they were very sick. 
 
The 75% effective for atypical symptoms is what I remember seeing as well.  Hey, those odds aren't all that bad.  If you can get feeling better, even if you're not perfect, will be a big improvement.
 
Good luck with your appointment with the surgeon!
Denise
 
 

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 7:19 AM (GMT -7)   
Thank you so much for this info! This is so encouraging. I really don't want to go through surgery and not have improvement. It's so discouraging to even drink water and feel it reflux back into your throat. I'm ready to feel better and have my life back.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 8:14 AM (GMT -7)   
I have heard many people on this site talk about the Dr Kaufman Diet. I will take a look at it. Thanks again for all the great info.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 8:24 AM (GMT -7)   
Hi JPT:
I'm still not able to get to the link for Dr Kaufman Diet. Darn. Is there a way you an cut and paste it in this thread? Thank you so much.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 9:11 AM (GMT -7)   
Thanks for all the great info! Did you have the Linx surgery for your Gerd/LPR? If so, do you feel any better? Is the surgery successful?

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 1:32 PM (GMT -7)   
I just finished reading your tread on the Linx. I'm real busy at work today. LOL! This is very interesting and I will definitely talk to the Surgeon about this option when I see him. I'm glad your recovery is going well. I know I just want to feel better. Its awful feeling awful all the time.

Sassy101
New Member


Date Joined Apr 2012
Total Posts : 16
   Posted 6/8/2012 1:41 PM (GMT -7)   
And why can't you buy Gaviscon Advance in the States!!! UGH!

dany1982
Regular Member


Date Joined Jan 2012
Total Posts : 158
   Posted 10/9/2012 2:38 PM (GMT -7)   
sassy101
how are you feeling? did you do the surgery? are you feeling better?

kevinla
Regular Member


Date Joined Dec 2005
Total Posts : 151
   Posted 10/9/2012 4:28 PM (GMT -7)   
Sassy101 said...
And why can't you buy Gaviscon Advance in the States!!! UGH!


It can be.

Historyman
New Member


Date Joined Jul 2012
Total Posts : 14
   Posted 10/9/2012 5:13 PM (GMT -7)   
Sassy101, I hope your recovery is going well. We're pulling for you! :)

RechargE
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/15/2013 10:01 AM (GMT -7)   
kevinla said...
Sassy101 said...
And why can't you buy Gaviscon Advance in the States!!! UGH!


It can be.
You can buy the advance but only thru Amazon.com.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4869
   Posted 9/15/2013 4:00 PM (GMT -7)   
Historyman

Sassy101 hasn't posted in over a year.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn, Kidney disease

Nissen 6/06 and 5/09
#3 8/24/11
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