Off PPIs... How do I control my reflux without them

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Incognito
Regular Member


Date Joined Jun 2012
Total Posts : 45
   Posted 8/14/2012 4:02 PM (GMT -7)   
I've been suffering from LPR for several years now. This year I used PPIs for the first time and while they helped with reflux symptoms, I developed a very severe tinnitus. Coincidence? I don't know, don't think so. I quit PPIs and got a rebound that made my condition even worse! I started getting regular reflux which was uncommon before. I decided not to use PPIs nor H2 antagonists ever again so here's what I do to control reflux:

1) gaviscon. The only GERD medicine that doesn't have tinnitus listed as a side effect.

2) things that are known to all of you - small meals, avoid spicy foods, caffeine, black tea, sleep with upper body elevated etc.

3) a LOT of chamomile tea. Everyone should try chamomile, it really helps a lot whenever you feel bloated, nauseous or generally unwell with your stomach.

4) something I don't see other people using - flax seed brew. A real life saver, it's very thick and tastes weird but is absolutely invaluable. What does it do? It shields your stomach and esophagus from acid. I had a stomach ulcer as a child and I've been given flax seed brew in hospital!

5) Now, my secret weapon :) It's probably something unavailable anywhere but Poland though. We have this Christian order known for making herbal medicine, one of these meds is called "PopioĊ‚ek". It is a white powder, salty in taste. You take one teaspoon of it and then drink a half glass of water. A minute later you need to burp big time :-) and this makes reflux to go away completely for 2-3 hours. Cannot be used to often though, can cause constipation.

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6) You probably know this already but stress can really make your reflux worse. With stress, I rely on herbs again - I drink few cups of melissa every day. It has a calming effect and can also make you a bit drowsy.

Hope this helps anyone. I think PPIs are a really dangerous drug. If I had known what is it going to cause, I would have never used it in the first place.

Post Edited (Incognito) : 8/14/2012 4:08:14 PM (GMT-6)


Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 8/14/2012 9:55 PM (GMT -7)   
Incognito

Just in-case you don't see it, I wrote you a message under my post (the one where I said I was feeling better) about your ear ringing.

Carrie
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 788
   Posted 8/15/2012 5:49 AM (GMT -7)   
I'm not aware of any long term side effects of h2 blockers, so I take Zantec twice daily. I feel generally better than when I was on ppis, though not perfect. I supplement this with tums occasionally as needed, pepto bismol tab at night, and I generally follow the Koufman diet.

I'm not sure if you are satisfied with your current program, or if you are looking for new ideas.

steppingstone
Regular Member


Date Joined Apr 2010
Total Posts : 366
   Posted 8/16/2012 12:46 AM (GMT -7)   
Incognito: I agree that PPI"s are dangerous drugs. I have been on them, sometimes at high doses, for most of the last 13 years, and now have Osteopenia as a result. I have also started having LPR during the past few months, although I Have never had it before. I made an unsuccessful attempt to go off of them about 2 years ago. The rebound was terrible! I finally decided to try again, and started taking Pepcid AC and went off the Nexium. If I break through, supplement it with tums. I also drink plenty of water, and eat small meals. I avoid trigger foods. I eat plenty of fruits and vegetables. I have been drinking aloe vera juice. If my stomach feels upset, I have been using rice cakes. So far, I have been doing pretty well, with only a few breakthroughs early on.

If I continue to do well, I may try to wean myself off the pepcid in a few months, although I really don't know of any long term side effects of this drug. I woud really prefer to not take any medications for this at all, and would like to try to manage it naturally, if possible. However, with my history, I don't know if this will be possible. I do know that I never want to go back to using the PPI's again. There are far too many side effects to these drugs. I honestly believe that they create many more problems than they resolve.

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 266
   Posted 8/16/2012 6:59 AM (GMT -7)   
Hi incognito, do you mean flax seed oil? How do you make a flax seed brew? Does your chamomile contain other ingredients, or just pure chamomile? Thanks for sharing.

Incognito
Regular Member


Date Joined Jun 2012
Total Posts : 45
   Posted 8/16/2012 10:05 AM (GMT -7)   
Hi WJF - I'm sorry for my english. You take two teaspoons of brown flax seed

VIEW IMAGE

put it in ~8.5 oz water and boil it on small heat and stir constantly until the seeds release their oil. Remove seeds using a sieve.

It should become thick and golden in colour. Not very tasty but I promise it's good for your tummy yeah

I use normal chamomile tea without any additional ingeredients and drink it very often - I basically replaced the normal tea with chamomile.

Post Edited (Incognito) : 8/16/2012 10:29:51 AM (GMT-6)


mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1554
   Posted 8/16/2012 1:19 PM (GMT -7)   
I find every tea, even camomile causes me a lot of pain and burning. I am interested to try flaxseed brew though!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1554
   Posted 8/16/2012 1:20 PM (GMT -7)   
Question though - would the flaxseed be of any benefit to people on PPIs, as there is in theory no acid to be shielded from??

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Incognito
Regular Member


Date Joined Jun 2012
Total Posts : 45
   Posted 8/16/2012 3:05 PM (GMT -7)   
Hi mudmagnetmum

It will help if you have stomach pains or heartburn. During childhood I had to drink it twice a day for my ulcer to heal. We rely much on herbal medicine in Poland. There is very little information about flax seed on the english websites. This article is one of the few I found:

http://www.peoplespharmacy.com/2011/11/06/flaxseed-tea-to-ease-heartburn/

The recipe on this website is easier to understand than mine :-)

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 266
   Posted 8/16/2012 6:06 PM (GMT -7)   
Very interesting. I will try flax seed brew.

My GERD has recovered to a stage where I only need antacid to cope reasonably well. I still have good weeks and bad weeks. I want GERD to go completely.

As for "popiolek", I think it is some kind of alkaline mineral salt, somewhat same as the compound found in common antacid. It dilutes the acid, too much will cause diarrhea or constipation.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1554
   Posted 8/26/2012 9:30 AM (GMT -7)   
Thanks Incognito,

I have found differing instructions for the tea, some just say put the seeds in water, stand for 15 mins, then drink the water and don't eat the seeds. Others say eat the seeds if suffering from constipation. Do you think the tea water method would work or does it need to be viscous?

MMM
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