Quiting Nexium cold turkey!!!!

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Lixxy
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Date Joined Jan 2006
Total Posts : 23
   Posted 1/18/2006 4:52 PM (GMT -6)   
Hi all!

First i'd like to say that i have been reading some posts here on the forum and i find that there is an amazing amount of encouragement and support here and i congradulate all of you who reach out for help and for those who embrace and take the time to help another human being.

I decided to quit Nexium cold turkey and i heard about the acid reflux rebound problem. I read in one of the posts that one member took Nexium for a few months and quit cold turkey. She mentions that she had rebound for a few weeks and felt much better after that (following the low carb diet).

My question is. I've been on Nexium for 4 years. Does anyone know if my acid reflux rebound will last much longer than the other member i mentioned up above. I meen she was only on it for a few months sad

Thank you for your time.
Lixxy eyes

Post Edited By Moderator (~Jennifer~) : 1/19/2006 8:16:42 AM (GMT-7)


hearty
Regular Member


Date Joined May 2005
Total Posts : 303
   Posted 1/22/2006 3:47 PM (GMT -6)   
I too want to quit it cold turkey. I just can't believe it is a good thing to cut off 90% of your stomach acid. Let me know if you find anything out. I tried switching my dose to a later time this weekend and I am in such pain. I still took the pill but just a few hours later. I have been throwing up in my mouth and it burns and belching all day. I can't believe it. I wonder what it would be like if I actually quit cold turkey. I have been on and off ppis for 2 years but always for just a short period. This time I have been on Nexium for 4 months. The heartburn goes away with the nexium but the other symptoms dont. My doctor keeps saying just give it time. My understanding from all the literature is that this is a short term treatment. That doesn't fit with giving it time. I will tell you I am on probiotics and have ordered something called glucamman fiber since I have heard acid reflux can be connected to stomach constipation caused by narcotic painkillers which is when mine started. I will gladly try some fiber if it will stop this problem. The idea is that your food is not digested and the vapors are what float up and cause the heartburn. I don't know what else to try. Please keep us posted. Let me know if you get off the nexium. Four years...like, every day of the four years? Wow....

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/22/2006 4:51 PM (GMT -6)   
How would you like a support buddy?  Im serious too.  I too am trying to come off of prilosec after being on it for 5 years!!  I was off it three days and had horrible nausea.  Its scarey what this stuff does to you!!
 
I too would like to know if the rebound would be worse since we have been on it for so much longer.  Like I said if you wold like a support pal in this, I can help there!  Just leave me a post I guess since i havent been able to figure out how to send a private message on here.  Wishing you all the best.
 
Nancy  (Nal)

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 1/22/2006 8:04 PM (GMT -6)   
Well i sure would love to have support buddies, i'm in!!!!! It's nice to meet you guys! I'll be back soon to talk some more

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/22/2006 9:01 PM (GMT -6)   
I think if you click on my name it will take you to my email address?  If so, drop me an email.  I gotta tell ya, its so hard to come off of!!
 
Nancy

Norm1
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Date Joined Jul 2005
Total Posts : 326
   Posted 1/23/2006 1:39 AM (GMT -6)   
Hello,
I hope you don't mind that I popped in to see how things are going on Healing Well. This is a great forum providing a wonderful exchange of ideas. I continue to learn a lot from people posting their personal experiences on GERD. I want to provide my support for those that want to try going off Nexium (with the consent of your Primary Care Doc, of course).
 
While going off PPIs, I recommend significantly limiting your carbs. What are considered the healthy (complex) carbs are actually the worst offenders for reflux. They are complex enough to  not be broken down and absorbed in our intestines efficiently and so the microorganisms that live in our intestines consume more of these carbs and make lots of gas. Thirty grams of carbs can produce 10 liters of hydrogen gas! Did you know that there have been explosions during intestinal surgery? Fiber is the least likely to offend followed by the simplest sugars (watch lactose and fructose is you have intollerance to those) and mid range glycemic index carbs being the worst. This disease requires we look at carbs in terms of how they affect our condition, not the general recommendations (like how great complex carbs are) for people who do not have GERD.
 
 

Post Edited By Moderator (~Jennifer~) : 1/23/2006 6:22:28 AM (GMT-7)


Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/23/2006 2:35 PM (GMT -6)   

My dr knows I am trying to come off of it.  I know that eating sugar for me really sets things off though!  I do know that in my own opinion, PPI's used long term just simply cant be healthy for us!  I even had a GI dr tell me once that being on them for too long is not good because we NEED the acid to fight off bacteria and such.  However, she didn't jump to helping me get off of them either.

 

Nancy


Norm1
Regular Member


Date Joined Jul 2005
Total Posts : 326
   Posted 1/25/2006 10:38 AM (GMT -6)   
Nancy,
I could not agree more..... I am happy to be off those drugs as well as antacids. I realize now GERD for most of us is not a disease but rather a condition caused by consuming more carbohydrates than our intestines can absorb. Our ancient ancestors did not have this problem.

Norm

lojma
New Member


Date Joined Jan 2006
Total Posts : 10
   Posted 1/25/2006 6:12 PM (GMT -6)   
I take prevacid daily and would like to come off it because of all of the reasons you talk about. My GI doctor says I have GERD and need to take it to prevent esophogeal cancer that reflux would cause. What about that?

LauraV
Regular Member


Date Joined Nov 2005
Total Posts : 84
   Posted 1/25/2006 7:53 PM (GMT -6)   

When docs prescribe PPI's, I think it's important to understand that most of the time they are thinking long tem drug therapy.  And by "long term" I mean the rest of our lives.  Physicians won't say this outright, however.  This is b/c there is no satisfactory way to cure GERD.  Studies show that over 3/4 of the people who go off the PPI's start taking them again.  Of course, there are exceptions (Dr. Norm, etc.).  This begs the question, "But Doctor, I am regurgitating my stomach contents into my mouth.  Are you just going to LEAVE me like this?"  Unfortunately, the answer is yes.  However, we run the risk of Barrett's or even esophageal cancer if we discontinue the medication.  I wish there was a better answer.  Even the surgery or endoscopic procedures are not a cure-all.  Studies also show that a majority of people who have had these done also go back to either H2 blockers or PPI's w/in a 6 to 10 year span.  The goal of these procedures is often to REDUCE the amount of medication taken, not to eliminate it.  I know, it sucks.  I hate to be so grim here, but I've spent so much of my time researching GERD . . . something that seems to shock the M.D.'s.  Yes, believe it or not, we patients do have the capacity to research what's going on in our own bodies.  For myself, I am pretty much set on having Endocinch (can't have the surgery due to motility issues). 

For any of you valiant enough to attempt to come off the PPI's, I wish you success.  Keep fighting and I will too. 

Laura

 


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1327
   Posted 1/26/2006 3:39 PM (GMT -6)   
The first time I came off Aciphex, I had been on it 3-4 years. The rebound lasted about 2 weeks. The second time I came off it, I'd only been on it about a year, and the rebound was only about 4 days. But.....I think there are alot of other variables, that influence how easy or hard it will be to come off. Like Dr. Norm says, you should really limit your carbs. I would stay away totally from caffeine, tomato products, chocoate, alcohol,etc. I probably wouldn't do much leaning over, or straining. And I wouldn't eat anything within several hours of laying down.
For me, being on hormone replacement I think made my acid squirting cells soooooo much worse.
I can't believe it, but since I've been off the hormones, I barely get reflux any more....without meds.
Also....keep in mind that alot of other meds you might be on can cause reflux. I was on wellbutrin for awhile, and it made it worse. I'm sure there's lots of other meds that can worsen it too.

Even though my GI doc kept saying there were no side-effects or long-term effects, I just didn't like being on that all the time. And sometimes, when you're on a drug a long time, you forget that it might be good for you to get off it!

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 1/29/2006 3:11 PM (GMT -6)   
Ok guys i've been off the nexium for 2 days now. the first day was great no rebound. Today i had lite reflux after lunch but i took a tums and all was ok. one trick i use for digestion is that i put a hot water bottle on my stomach. I don't know if the heat really helps for the digestion but for me it sooths me when i feel an ach comming on, try it you got nothing to lose.

Just a short story of my heartburn begings i'm sure you will find this interesting. Please read on. I first got the symptoms about 7 years ago. I am a singer and i started to lose my voice when i was on stage only after one song. Two weeks to a month befor that i had my fillings put in. 8 in all. I had never had a cavity in my life. Well that same summer befor having them put in i was watching a tv show. The guy was talking about how mercury in your teeth causes acide reflux. Not cause we have too much acid in our stomach but that the mercury causes us to have low acid and that it is the acid vapors that are giving us this reflux. So i just pushed it aside and didn't believe it but ever since it has been in the back of my mind. I joind a forum about this about a few weeks ago and saw many others that talk about how your heath changes when you replace your fillings. Right now i do not have my computer, it's getting fixed as we speak and i do not have the address to the site i will find it and get you the link as soon as i can. Look, we all have different reasons for our reflux, some of us are worse off than others. I'm not saying that getting rid of yor filligs will totally cure you, maybe it will totally cure you !!!!! but i've read enough that i have decided that i have nothing to lose. By the way, when i asked my dentist about the relation between acid reflux and mercury he laughed in my face. I took 4 appointements with another dentist and told him that i wanted al filigs reoved and replaced in white! He said that he didn't see the need to remove the upper back ones and i said just remove them!!!! Till then, try to do as doctor Norm mentions "low carbs." See it all makes sense, if their is not enough acid in your stomach you will not be able to digest the carbs! But remain concious that maybe you do have too much acid in your stomach. Hmmm i wonder if their is a test out there to see how much acid is in our stomachs. I suggest that you type in google "silver fillings and acid reflux" you will see so many stories on this.

I truley believe that if there was a way we got tis problem that there's a true way out we individually just have different doors to to exit!
LOts of love
Jarah.
XxX

Post Edited (Lixxy) : 1/29/2006 1:27:20 PM (GMT-7)


Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 1/31/2006 10:46 AM (GMT -6)   
Hi everyone. I just dropped in to tell you how i'm doing. Well this is day 4 off the Nexium cold turkey and i am feeling great. I had reflux only a little, nothing much. All i do is take a few tums and i'm ok. I'm being extreemely carefull on what i eat. I am low carbing, no sugar at all, and no drinking while i eat. (Never drink when you eat.) Other things to stay away from that i am more than sure that you already know are onions, coffee, spices, chocolate, sodas, sugars, fatty foods, and prossessed food, anything that is prepared by man like forzen dinners and packaged sauces ect.... even certain veggies are not so easy to digest like turnup (if that's how you spell that lol) Well for me anyway. Oh i do not eat garlic either. I don't know if it really is bad but i just stay away. I have been told by my docter to try to stop taking the Nexium and if it comes back that she would put me back on it. But i am determined to get rid of this forever. So it is best that you see your doctor first. I deeply hope all of this is helping you out. If i can do it i'm sure so can you! Like i said, we certainely do not have the same problem, but with proper diagnossis you certainly will be on your way to freedom and health.

Lixxy
XxX :-)

Kpasa96
New Member


Date Joined Jan 2006
Total Posts : 5
   Posted 1/31/2006 12:56 PM (GMT -6)   
good for you!

Today is day 1 of me trying to get off PPI's, so far not going so well, I feel sick...
But this has happened anytime I have ever tried to get off them.
I feel like my life is worse because of them and want to rid them from my body for good!
I've just never been able to do it for fear of feeling sick for even a day...

Danielle

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 1/31/2006 3:01 PM (GMT -6)   
Oh Danielle my heart goes out to you. I wish you all the luck in the world. I understand what you mean. Taking this medication just doesn't feel natural. Sometimes we need them but if there is another more natural way, than to my oppinion it is the best way to go. I to have tried many times to quit but only for a day and i'd feel the reflux come back. Make sure you do not eat too much. It's better to have small meals. I know exactly how you feel, Did you see a doctor? Did he or she tell you to quit or is this something you decided for yourself?

Plz come back and tell us how you are doing
Hugs
Jarah
XxX

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 1/31/2006 6:15 PM (GMT -6)   

Hey there.  I tapered off the prilosec.  Kill me now!!!  The rebound has been bad.  I am taking zantac when necessary.  Im determined too.  I won't let these PPI's ruin my system for good!!

How are you doing today Lixxy??

 

Nancy yeah


Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 2/1/2006 2:25 PM (GMT -6)   
Ah Nancy, i know what you mean! Last night was soo bad, i think it's cause i had some meat or something. Today so far i'm great, i had some seafood and all is well, i also had noodles and nothing happend. I'm sorry to hear that you had some pain sad. I just can't wait to be my old self again. Did you read up on the post about the silver fillings and heartburn i put up? Well anyhow, i thaught that it might be helpfull for some. I am going to get some silver fillings removed and replaced with white on the 13th of this month, i can't wait. i will have to see the dentist 4 different times to get all the fillings replaced. boy this will cost a small fortune but i'm ready and willing to try anything at this point!!! They will all be out by mid march i guess eyes Well, hope to hear from you soon keep your chin up!!!

Jarah
XxX

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 2/4/2006 10:10 AM (GMT -6)   
:-) Hello to all!! It's Saturday morning and i'm feeling great1!! I'm on day 8 Nexium free and doing great! I have not had any heart burn since the last time i posted. I hope everyone is doing well and i hope to hear from you soon!!!

Till then, take care
Jarah
XxX :-)

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 2/4/2006 10:47 AM (GMT -6)   
Im not doing well at all. eyes
 
Nancy

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 2/4/2006 5:26 PM (GMT -6)   
Hi Nancy. I too agree with Jennifer. One of the major reasons i am getting off Nexium is that my doctor told me to try it out. If you have a more serriouse condition you should make sure you get a good diagnossis. Do you know what is causing your heartburn, Is it an ulcer, Low acidity, hernia any other cause? You definately need to know where all this is comming from. I hope you will be ok.

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 409
   Posted 2/4/2006 9:23 PM (GMT -6)   
Considering I was on PPI's for over 5 years, I think its low acidity.  I had an endoscope last year and he found gastritis.  Now how did i get gastritis when the only meds I was on was prevacid at a double dose a day!!  That tells me, the PPI's are damaging my system.  Coming off them, is torture for me.  I did fine the first few days (yes, it can take over a week before you get any type of bad rebound).
 
I have another endoscope scheduled in march.  I posted all this on another post here, but I got no responses.  Anyway, he is going to do a ph bravo test.  I assume thats how they can tell the amount of acid in the stomach.  I have no hernias or anything.  I had to go back on the prilosec and will have to taper off much slower.  Yes, my dr is aware of all this.
 
Nancy

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 2/8/2006 11:59 AM (GMT -6)   
Well you guys it has now been 12 days off the Nexium. It's not so bad. I don't get reflux in the day, i get some at night. I don't know why though eyes All is going well. As i also mentionned i'm getting rid of my silver fillings and that i am more than sure that it will make a huge difference in my digestion. My first appointement is on the 13th of this month (feb) and two more appointements followiing that, the 23rd and 28th. I still havn't gone to see for natural products yet, i just want to see what happens after a few weeks after being off the meds :-). It'ds not easy, i still get some rebound but i take a few tums to settle it down and it works instantly. I'm carefull on what i eat, drink and don't lay down at least 3 hours after eating. I tell you that i am on a stricked diet. No sugar at all, no coffee, no pop no fun stuff at all but i am more than determined!!!!! My prayers are with you all. I'll be back in a few days or so :-)

Nikib5
Regular Member


Date Joined Feb 2006
Total Posts : 88
   Posted 2/8/2006 2:56 PM (GMT -6)   
This is fantastic, Lixxy! I'm a newbie here and because of what I've read here and in other places, I've decided to get off the meds too. I've been taking Protonix for close to 2 years and Prilosec the last month or so. I tried weaning myself off of them by only taking them every other day, but it's time to just stop. I feel like I have some options now though. This low-carb thing looks interesting and I'm giving it a try. I'm also taking papaya enzymes after each meal. I'm feeling very well (knock on wood). I'm hoping it doesn't come back with a vengeance. I'm scared it will.

Good luck to everyone!

~Niki

Lixxy
Regular Member


Date Joined Jan 2006
Total Posts : 23
   Posted 2/9/2006 1:33 PM (GMT -6)   
Hi Niki! Nice to see that you are taking a step foward. I know that weening off the meds dont usually work because taking the meds and stopping right after actually gives you heartburn rebound, so i figure if taking the meds every other day actually causes one to start over every single time. eyes You mention papaya enzimes, do you think that the fruit itself would act the same. Well all the luck to you!!!!!!! I'm here anytime you need to talk :-)

Nikib5
Regular Member


Date Joined Feb 2006
Total Posts : 88
   Posted 2/10/2006 8:14 AM (GMT -6)   
Hi Lixxy!
I haven't tried eating the actual papaya. It might work. I think the tablets might have more enzymes in them though.
 
Take care!
(Still doing okay with no PPIs!!)
 
~Niki
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