When Nexium doesn't work...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/23/2006 12:49 PM (GMT -7)   
I'm going out of my mind here, I've been on two 40mg pills a day and been trying my best to eat the blandest diest known to mankind, sleep elevated, pn my left side. take antacid... the whole deal...

I've been on that DOUBLE dose of nexium since MARCH and my symptoms are WORSE. Thi9s is driving me crazy, I feel like I'm doing something wrong but i cant think of anything.

I'm really at my wits end here so if anyone has any advice...

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 10/24/2006 4:57 PM (GMT -7)   
Bland diet is not the key - LOW ACID DIET IS THE KEY. See all my postings about ALKALINE DIET!!!!!!!!!!!!!!

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/24/2006 5:41 PM (GMT -7)   
Ya, but even with that, the Nexium should be helping shouldn't it? That's what my ENT doc said. I'm seeing my GI doc tomorrow but he never said anything about all these other foods, so I'm kind of flying blind here.

Toodles
Regular Member


Date Joined Oct 2006
Total Posts : 405
   Posted 10/24/2006 8:46 PM (GMT -7)   
My GI gave me Protonix, and it works sooo well. I love it!
Well, there are certain things that will trigger your acid reflux, so you have to watch for them.
I get really bad acid reflux no matter what, so I talked to my doctor about it.
It was so bad that I felt like I was throwing up in my mouth----eeww!
He prescribed protonix, it seems to work for me :-)
 

Precious
Regular Member


Date Joined Mar 2006
Total Posts : 151
   Posted 10/25/2006 2:32 PM (GMT -7)   
Closetfire,
Those PPIs work for some time and then the symptoms get worse. It's acid-rebound.

Maybe you could try a different prescription now. Maybe Nexium quit working for you.

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/25/2006 2:48 PM (GMT -7)   
I talked to my doc and he said what my problem is was acid hypersensitivity, and that I need to take a PPI in conjunction with a med like Zelnorm

DANIE
Regular Member


Date Joined Aug 2006
Total Posts : 321
   Posted 10/26/2006 2:42 AM (GMT -7)   
There is such a COMMON THREAD in all these postings - everyone is going from one drug to another!
Can't you all see that it's an ongoing problem......unless you change everything that you do!!!!!!!!!!!!!!!!
Have any of you that are taking all these drugs for so much time looked at what the drugs can do to you in the longrun!! Do a search on WEBMD to see what your drug is potentially doing to your body.
Even my gastroenterologist said to me " you want to get off these drugs" and I was on PRILOSEC ONLY ONE MONTH!!!!!!!!!!!!
I would encourage you, and many of you are in alot of pain and discomfort so that should be a great incentive to change, to make changes that I've talked about on this board. It's really the only way to heal and go eventually back to a more normal way of eating.

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/26/2006 2:50 AM (GMT -7)   
Ok, which threads should I be on the lookout for then Danie?

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/27/2006 11:03 AM (GMT -7)   
Geez it's gotten to the point where it's almost 24/7 no matter what I eat, even after I wake up despite elevating and sleeping on the left, and antacids don't even seem to help anymore, and I'm belching ALL the time. =p

Precious
Regular Member


Date Joined Mar 2006
Total Posts : 151
   Posted 10/28/2006 10:33 PM (GMT -7)   
Closetfire,
What kinds of food are you eating? Are you staying away from foods that cause heartburn? Try to watch what u eat and drink. My doc said not to drink too much liquid during meals. I also don't drink cold water, I read that warm liquids are better. I'm always drinking chamomile tea, nothing with caffeine, not even decaf.
You know if you've been taking these drugs you just can't quit cold-turkey(if you're thinking of it). You will feel miserable for a few weeks. You should taper off until your body adjusts. It's easy for someone taking prilosec to quit after 1 month. Not so if you've been on it for years(or any other PPI for that matter). I still think it's better to talk to a doctor especially if you have other health concersn.

Hope you feel better.

Closetfire
Regular Member


Date Joined Oct 2006
Total Posts : 69
   Posted 10/28/2006 10:49 PM (GMT -7)   
Ya, I had to go to the ER this morning it was so bad. I'm trying to control my diet better and that looks promising as I've fouond some good GERD-friendly recipes online. I've started taking zantac and that seems to help too. They also gave me Karafate and some type of cocktail with lidocane in it...

As for the tea, isn't anything without caffine decaf? I'm a bit fuzzy on that.

sillylilly
Regular Member


Date Joined Oct 2006
Total Posts : 317
   Posted 11/2/2006 10:27 AM (GMT -7)   
Here's my two cents....I think there's a difference in plain heartburn and GERD. I think heartburn (burning sensation in stomach and lower esophagus) can be controlled with diet changes but when you have persistent reflux (acid liquid rising into your throat) even at night when not eating anything, then I think your LES muscle has been weakened to the point that it opens and closes like a door flapping in the wind. When this happens. diet changes won't completely solve the problem. Has your doctor mentioned anything about your LES being weak.?

Also, your body does get used to these drugs requiring more and more drug to reach the same effect.

Good luck...I really feel for you...and no what your going through.

mysamba
New Member


Date Joined Nov 2015
Total Posts : 1
   Posted 11/30/2015 11:18 PM (GMT -7)   
Here I am suffering again. Honestly, when I did the Atkins diet (Low Carbohydrate eating) years ago, it was the only thing that got rid of it. It is so darn hard to give up flour and sugar. We truly are addicted to the stuff. I have had 2-40 mg. Nexium and on caraphate and and it's not working. I tried milk...no help. I even tried a little cider vinegar and water. Sounds strange but sometimes it works. Sometimes you think it's to much acid in your stomach when in reality you don't have enough. Anyway that didn't work either. So here I am sitting up with tons of pillows behind me. I think it's time to try low carb eating again. Acid reflux scares the heck out of me. My Dad suffered from it for years and ended up dying of cancer of the esophagus. Back then they didn't have medication for it. I don't want to go out that way. It was horrible.

Buster1
Regular Member


Date Joined Apr 2015
Total Posts : 33
   Posted 12/2/2015 8:03 AM (GMT -7)   
Closet,

What EXACTLY are you eating? If it's anything processed, or sugary carbs (reg noodles, reg bread, rice, etc) you are doin it wrong. Are you eating 100% whole wheat bread? Keep in mind a lot of packaging says its 100% whole wheat, but you have to read the package.

Seriously, plain chicken breasts, salads, steamed veggies, fruit, Zero soda, beer, spirits and TIME will help dramatically.

c3honey84
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/14/2016 11:44 AM (GMT -7)   
I am so sick of people saying "get off the drugs." What about those of us who end up in the emergency room from acid indigestion so bad that you cannot even stand up when we are NOT on these medications?? I am one of those people. I was taking an extremely low dose of zantac every day (only 75mg) to maintain normal acid levels. Then all of a sudden I started getting pains in my stomach so bad that it felt like someone was trying to rip it in half. Had an upper GI a year ago and all they saw was minor inflammation. The Dr. put me on nexium twice per day, plus 600mg of zantac, plus mylanta as needed and I STILL FEEL SICK. What the heck am I supposed to do? I don't drink alcohol or any soda, I barely ever eat bread. I was drinking only one cup of coffee per day (organic) but stopped three weeks ago when all of this started. I am at a loss of what to do. I don't feel that I have any stress other than these pains that are stressing me out! It only starts later in the day and keeps me up all night. :( :( :(

Sharonlb
New Member


Date Joined Mar 2016
Total Posts : 16
   Posted 3/15/2016 11:27 PM (GMT -7)   
Hi c3honey84
I've been drinking hot tea (camomile and ginger) and it helps. Try also bland diet. Try to meditate or relaxation techniques to ease ho stress as per this has contribute a big part of our stomach issue.

Martin215
Regular Member


Date Joined Nov 2015
Total Posts : 56
   Posted 3/18/2016 7:38 AM (GMT -7)   
I also suffer from heartburn which is resistant to PPI due to acid hypersensitivity. I had fundoplication but surgery only did things worse. Now I am on Nexiumn 40 mg twice daily and Trazodone (antidepressant) and I am much better (but ocasionaly I have burning in epigastrium). I think most important is to get rid of stress and not to think about reflux and heartburn. When I feel down, my symptoms get worse...

Peabs
Regular Member


Date Joined Jun 2015
Total Posts : 284
   Posted 3/23/2016 5:51 PM (GMT -7)   
If there's anything I've learned over the years of dealing with GERD, gastritis, and esophagitis is that digestive issues can be complex and VERY unique to each individual.

I've been experimenting with different PPIs and different foods and learned that what works for one person might not work for another. In my specific case, when Nexium did not work for me my next gastroenterologist put me on Dexilant and that seemed to help.

But it only dealt with some of my symptoms and did not address the underlying cause, which in my case was diet and lifestyle. Though I do not necessarily recommend this for everyone, for me it was the right decision to get off Dexilant. A bland diet wasn't enough either, it had to be a low-acid and low-inflammation diet.

The first 4-6 weeks were the toughest because I was in agony and a lot of discomfort. I lost a lot of weight because I was only eating homemade baby food, applesauce, and banana and peeled apple slices during that time period.

I stayed away from all processed foods and after a few weeks I added sushi and miso soup and small amounts of steamed rice to my diet. I then added chicken vegetable soup. After two months I added vegetable and protein smoothies. I still have a ways to go but after four years of dealing with trios to the ER, different specialists, and trying lots of different kinds of foods, I'm finally starting to feel better.

My new gastroenterologist was skeptical at first but now she seems to be a believer that what I figured out was working for me.
Paul - Diagnosed gastritis and erosive esophagitis in 2011. Conquered it once and am going to conquer it again because this time I've taken total ownership of my health. Gluten, dairy, MSG, sulfite, caffeine, alcohol free. Said goodbye to canned and processed foods, my gut deserves it.....

Shorty
New Member


Date Joined Feb 2016
Total Posts : 4
   Posted 3/23/2016 6:24 PM (GMT -7)   
I had gerd for a year. No typical signs of reflux. I had constant lump in my throat,sore throat, regurgitation,i couldnt even bend over without stomach contents coming up, loss of my voice and constant pain n pressure in my throat. After trying every otc medicine i finally went to a gi. We tried complete diet change,protonix, dexalin then aciphex. Nothing helped. I also slept on a wedge. I did a scope, ph test and a mamometry exam. Turns out it was a hernia, the muscles in my esophagus werent working together and the les was not closing. Im now 8wks post fundalplication. i have seen a huge improvement. In the past 8 weeks Ive had throat pressure n lump maybe 5 times. Ill take it, it had been 24/7 prior to surgery. I hope you find the answer to help you. Dont give up. Im still not myself since im still on a soft diet and I can only eat very small amounts. But Im hopeful in the long run its worth it.

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1099
   Posted 3/24/2016 5:34 AM (GMT -7)   
Closetfire

You sound exactly like me. Honestly, the Nexium isn't going to help, and no PPI is going to take away the pain. You would be better off cutting down to 20mg twice a day so you don't strain your liver on such high doses. That will block virtually all acid.

I am in the same boat, I am in pain all day, varying intensity and eating certain things or drinking too much fluid is just excruciating. We need help but I think you will be wasting your time with gastroenterologists to be honest. They are usually out of their depth with people like us.

I know this is going to be difficult to hear, but I think this is a psychological issue. Now Im NOT saying this is in your head, or caused by stress. Your pain is very real, I know, I am in the same boat. For 4 years I have resisted accepting this, I have seen all sorts of Drs and gastroenterlogists and tried every supplement imaginable. Nothing worked, or it worked temporarily but the pain just blew through it again. You know when I felt best? When I stopped seeing Drs for a year and just got on with life. I still had pain but over that year it did reduce. But I didn't get fixed because I wasn't having proper treatment for psychological issues.

This is an illness, just like a virus or any other, many people will act or tell you that you just need to relax and de-stress. Well I can tell you that it is no where near as simple as that. I have been doing relaxation therapies for years, and whilst they are tremendously helpful with coping, they wont necessarily cure a psychological disease. Because it is an organic disease, your brain cannot interpret things properly, and the nerves in your esophagus are sending signals to the brain which it reads as PAIN, even when there is no real damage being done.

Many people dont even realise they are suffering major depression or anxiety because the pain comes before a lot of psychological effects. But they need to be treated in the right way, which is by a psychiatrist, with anti-depressents and therapy. Many anti-depressents also have the added bonus of reducing pain. I am on one which does this and it has helped take the edge off it.

It has taken me a very very long time to really believe that my pain is a manifestation of psychological issues, 4 years of suffering, and I am still in bad shape. I only started therapy a few months ago and still dont know whether I've found the right medication for me. I am still very depressed and anxious, but I hold out the hope that because there is nothing physically wrong with me, one day my brain may start functioning correctly and stop thinking everything is painful.

There are a couple of things that make me think I have a psychological issue. The first is that I get pain straight after eating. This is not typical of GERD, which is usually painful 30-180 mins after once the stomach has secreted acid etc. The second is that I have never been woken up from pain in the night. Yet I have woken up with reflux and a few seconds after waking the pain appears and then becomes excruciating. These aren't typical GERD symptoms.

Finally I will say this, even though it may be a psychological issue, you NEED to treat it also as real GERD, in that you should figure out what foods work best for you and what to drink etc. Some supplements can help, and following the usual GERD advice can keep the pain manageable.
GERD, Anxiety, Depression, Chronic Nausea, Chest Pain & IBS
Current medication: Nortriptyline 50mg & Esomeprazole 40mg
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 2:02 AM (GMT -7)
There are a total of 2,735,780 posts in 301,335 threads.
View Active Threads


Who's Online
This forum has 151435 registered members. Please welcome our newest member, Manny222.
170 Guest(s), 3 Registered Member(s) are currently online.  Details
Heatheranne87, Lymiemomster, Hibee


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer