humira and psorisis!!please help

New Topic Post Reply Printable Version
38 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

wombles
Regular Member


Date Joined Aug 2006
Total Posts : 21
   Posted 6/16/2011 10:34 PM (GMT -6)   
My husband has been on Humira for nearly 2 years now for PA. The Humira made an awesome difference to his psoriasis which covered 95% of his body. It did start to return when he stopped taking Leflunamide last year but quickly went away again when he resumed the Leflunamide - only 10mg per day which so far hasn't affected his liver as the 20mg was. He is now waiting for 2 hip replacements. Can't win with this disease. If it's not one thing it's another. He is still working as a plumber and drainlayer and will hopefully get his ops soon so that he doesn't have to stop work. I will have to change the locks if that happens!!

bxrmomlksc
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/27/2011 8:44 PM (GMT -6)   
WOW im shocked to hear about ppl getting worse psoriasis on humira - ive been on humira pens 1 every 2 weeks for about 2 years. And the past month or so my scalp psoriasis has come back worse than ever before. I had psoriasis all over my body for years, about 8-10 and humira was a miracle for me, cleared me up within 6 months, i was so happy, i didnt have to wear sweaters in the summer anymore. But now it seems other ppl are talking about symptoms coming back being on humira! this is scary for me, i dont know what i would do if my psoriasis got bad on my body again.

susanb3636
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/1/2011 6:48 PM (GMT -6)   
I had the same thing. I decided to completely detox my system. I was eating poorly and was not going to the bathroom as often as I should. Most people don't like to talk about their bowel movements but it is very important. I decided to do a colon cleanse. I did lots of research online and decided on Synergy Colon Cleanser. It is by far the best colon cleanser out there in the market. I immediately felt the results. As I continued to use Synergy Colon Cleanser my dry, rough itchy skin got much smoother and I stopped itching. I did change my diet. The website is very helpful and if you email them they will respond right away and offer you advice on diet and nutrition. It is really a great product and I highly recommend Synergy Colon Cleanser.

Susan

wildcat75
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/3/2011 10:54 AM (GMT -6)   
I have been on Humira since Jan 2008 for Psoriasis and Psoriatic arthritis. It has worked wonders on both issues.
However in April of 2011 I broke out in a rash all over my arms and torso that looked sort of like an allergic reaction...
I went to my primary care physician and she looked at me and said "it looks like you have scabies" I was completely freaked out!
She told me sarcastically that I could have gotten it off a shopping cart with my immune system ... so she prescribed a permethrin lotion to use
- coat yourself with it and leave on for 12-14 hrs and then shower off... I did this and my fiance did it to because we lived together... The lotion seemed to calm the rash down at first but it did not completely go away... It was insanely itchy at night and around my belly button. I see a dermatologist every three months because she is the one who has me on the Humira.... so on my next visit I showed her and she did a skin scraping to chec under a microscope and did not see any scabies... she scolded me for using the permethrin cream as many times as I had (i was trying to kill the mites) told me this med was an insecticide that is very hard on the liver. She did liver bloodwork to make sure it was okay... then gave me a script for 15mg of oral Ivermectin (for scabies- even though she did not find any) I took this med in late Aug. 2011 - I had no affect on the rash at all... I looked to the inet for help.. I bought Neem oil, Neem Lotion, Neem Soap, Sulpher Soap, Sulpher Cream, Witch Hazel, Hydrocortisone Cream, used Alcohol wipes, Tee Tree Oil, Shea Butter Cremes, Neosporin, Polysporin, nothing makes this rash go away ....I even took showers with Dog Shampoo containing Pyrethrin.... all because they had me convinced there were mites in my skin...
Last weekend it got really bad. The rash started spreading down my legs, and appearing on the tops of my hands, it rally looks like something has been biting me... So I went to Urgent Care thinking maybe a different doctor would have a solution... He was baffled. He said the was almost positive it was not scabies because I have tried the "MAC DADDY" of all drugs... Ivermectin and that if it was a parasite of some sort it should be dead!
And the fact that no one else in the household has this - it has to be something else - SCABIES - is highly contagious...
He did nothing for me. He said if was not on Humira - he would give me a steriod shot, but that due to that medicine already lowering my immune system, he was afraid to give it to me - cause it could lower my system so that the smallest little thing could kill me.... not very reassuring!

I am miserable, after 2 days of pleading with Dr & nurses I finally have an appt to see my derm tomorrow...

I talked to the Humira nurseline - a nurse told me that this could in fact be a side effect of the Humira and there may be no treatment...
I saw on the Humira website - there was a warning issued this Sept by the FDA that it can cause life threatening fungal and parasite infections....

I am looking for any advice or information that may help me ...

I am 36 years old - have had Psoriasis and Psoriatic Arthtritis since I was 17... been on Humira since Jan 2008.

Alicat
Regular Member


Date Joined Aug 2008
Total Posts : 229
   Posted 11/3/2011 1:17 PM (GMT -6)   
After awhile these medications don't work and we  have to try new ones.   Do you see  rheumtologist?   If not, it might not hurt to get an opinion from one.   My cousin was on remicade for quite awhile to treat her sarcoidosis andwhenshe had to stop the infusions she broke out in the worst case of psoriasis I have ever seen - coverd from head to toe.
I have psoriatic arthritis but never had a skin problem till I had a remicade infususion.  broke out in what looked like psoriasis so didn't stay on it.   Monday I am going for a lung biopsy as a recent CT scan showed nodules in both lungs as well as my lymph nodes.   I am scared to death.   All of my doctors think it is sarcoid disease but can't be sure until they rule out cancer, etc.  I had started on Cimzia but had to stop because of the upcoming surgery, so I've been on prednisone for the last month or so.   My biggest fear is getting an infection.  These drugs that lower our immune systems are so scary but we don't really have a lot of choice if we want any quality of life.  Some day, not in my life time, they will figure a way to change the entire immune system.
best of luck
Alicat

DebAnn
New Member


Date Joined Jul 2015
Total Posts : 1
   Posted 7/20/2015 5:18 PM (GMT -6)   
Hi All wanted to say make sure your vitamin D is checked the OH25 test not the regular D test. Especially for those with aching hips and pelvis. I can actually measure my vitamin D levels by how my bones feel. For some reason mine was almost bottomed out. I have been on supplements for over two years and bones feel better and no cavities now but just over the bottom range. Have several auto immune including Ankylosing Spondylitis, Hashimoto, Raynaud's, Meniere's and a form of vasculitis not yet identified but testing now for scleroderma. Had flares all my life but became chronic joint pain three years ago and curvature of spine worsening. Do what I can each day. I sympathize with all of you and the pain. Had to stop Humira after six injections (helped spine stiffness) but gave me psoriasis and swollen gums and loose teeth. Enbrel did this after one injection took six with Humira I thought I was home free with it. Too bad. Take care all......

Jenifer8
New Member


Date Joined Sep 2015
Total Posts : 2
   Posted 9/5/2015 3:40 PM (GMT -6)   
Anyone getting rid of their humira meds?

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 2/12/2016 11:13 PM (GMT -6)   
I have been taking Humira for my Crohn's for a few years now and developed psoriasis last year - the dermatologist said it was "drug-induced psoriasis from the Humira". I guess even though Humira treats psoriasis as well, if you don't have it to begin with it can induce it.

So it was manageable for a while, anything the dermatologist gave me (steroid creams, ointments and scalp oils) didn't help but it started to go away...and now it's back, and getting worse! I don't know what to do, it's mainly all over my calves but is starting to spread to everywhere else on my body. I really try not to complain and am thankful that I have medicine I can take to help with my Crohn's but some days it's like, isn't having Crohn's bad enough without all the other stuff going on as well?! *sigh*

If anyone has any ideas on how to help treat this psoriasis without changing meds I am all ears. I am going to have to do something soon, it's starting to become too much. :/
Crohn's Colitis
38 year old female
DX 2006
Currently on Humira, Xanax for anxiety, weaning off Klonopin, multivitamins, Tylenol w Codeine for pain, extra Vit D and calcium, magnesium, B12 shot once a month
In the past have taken 6mp, Prednisone and Remicaide

celebrate life
Veteran Member


Date Joined Dec 2014
Total Posts : 2040
   Posted 2/13/2016 1:21 AM (GMT -6)   
Wildcat,
I have been on Humira and Enbril for RA. I've also had many cortisone shots and no Dr ever was worried about giving it to me along with biologic. While your considering changing biological s (they do quit working) also reconsider getting that corticosteroid to calm down that rash before it drives you insane :)
Beth

altos
New Member


Date Joined Aug 2016
Total Posts : 1
   Posted 8/21/2016 5:19 PM (GMT -6)   
A quick note on Humira. I took it for 2 years and it worked great on psoriasis. That's the good news. I now have a highly elevated white blood cell count. Yes, leukemia. On my first trip to my oncologist he asked about meds. I told him Humira. He said to get off it suddenly, now, today. So I ended up trading psoriasis for leukemia. Listen to the Humira ads on TV, including "possible side affects include...."

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14640
   Posted 8/23/2016 10:04 PM (GMT -6)   
Altos so sorry to read what you have going on. I have crohns disease & was on Remicade infusions for 3 1/2 yrs. I later developed antibodies to it & I also developed Lupus. So, we then switched to Humira & had to go off of it because it caused my psoriasis to go full bloom & I was having too many infections & it kept the Lupus going. I no longer use the TNF blockers for crohns.

Please keep us posted on how you are doing.
Susie
Moderator in Chronic Pain & Psoriasis Forums

PattyL
New Member


Date Joined Oct 2016
Total Posts : 2
   Posted 10/26/2016 9:51 AM (GMT -6)   
I had a small case of psoriasis on the bottom of my left foot and have psoriatic arthritis. I took Humira for 3+ months and saw no improvement. The arthritis in my knees became extremely worse so I stopped the Humira. I still have terrible pain in my knees which I didn't have before. Still taking methotrexate and am looking at another biological. I have to say I'm scared of side effects after the reaction I had with Humira. My rheumatologist said he'd never heard this before.

ozmadman
New Member


Date Joined Oct 2016
Total Posts : 5
   Posted 10/27/2016 2:28 AM (GMT -6)   
Hi Pattyl Can I take from your above comment that Methotrexate is not helping your Psoriatic Arthritis? I have just been prescribed this drug but have not taken it yet due to worries about the side effects. Thanks
New Topic Post Reply Printable Version
38 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, August 16, 2017 7:21 AM (GMT -6)
There are a total of 2,855,987 posts in 313,368 threads.
View Active Threads


Who's Online
This forum has 155018 registered members. Please welcome our newest member, Horseguy.
443 Guest(s), 15 Registered Member(s) are currently online.  Details
Kev9412, albear99, Notam, clocknut, vakan01, momrox, JNF, Teamchris, Doire, Dogdays, Lynnwood, Old Mike, An38, KelBear, Lanie G


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer