Need some advice diagnosis and undiagnosis of Psoriatic Arthritis

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afbrown
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Date Joined Oct 2011
Total Posts : 1
   Posted 10/4/2011 1:10 PM (GMT -6)   
I am a 31 year old female.  I had a baby 1 year ago, and I'm suffering with some kind of inflammatory disease.  In 2003 I was diagnosed with a severe case of scalp psoriasis.  I still use a medicated shampoo to this day to keep symtoms at bay, but it is working.  I starting having joint pain in 2006 that only affected my hips.  My primary Doctor at the time sent me to an endometriosis Dr.  who spoke to me and basically had me in for laparoscopic sugery within a week.  After the surgery he diagnosed me as having Endometriosis.   
 
In 2007 I started having joint pain in my extremeties, elbows, wrists, fingers(all joints),spine and pain in my achilles tendon.  The joint pain went away completely with the pregnancy, but some new symptoms arose.  My mouth was so dry it turned white I literally had no saliva.  My eyes were red, itchy and dry.  After the 1st trimester I could barely sleep.  Mind you I wasn't that big because I was also diagnosed with Oligohydramnios (low amniotic fluid) which resulted in Intrauterine growth restriction.  I had to be induced prematurely, although my daughter was small she was in perfect health 5lbs 1oz.   
 
I take Zantac everyday because I have horrible indigestion even from drinking water.  After the birth of my daughter I have been suffering with cytolytic vaginosis.  The Dr. says my Ph is too acidic and that is what causes it.  I've been treating myself with baking soda washes once a week to balance my Ph but it only slightly relieves the symptoms and has not gone away.  This has been going on for a year now.  I had some blood work done that showed I have high levels of uric acid, positive ANA pattern speckled, Titer 1:60, ESR is 47 and as far as I know everything else came back normal. 
 
 My Rheumatologist says I don't have Lupus because my Titer isn't high enough, although I do have an Aunt that has a severe case of SLE.  Rheumy told me she thinks I have Psoriatic Arthritis.  None of my xrays show bone damage.  I went to see her last week.  She had me on Meloxicam which wasn't relieving my pain at all.  When I was talking to her I mentioned the Psoriatic Arthritis and she says, "but you don't have psoriasis."  I said yes I do have scalp psoriasis and I actually told you this 4 visits ago.  She said, "Oh, well scalp psoriasis doesn't cause psoriatic arthritis."  I was dumbfounded.  She was the one who initially told me that I probably had Psoriatic Arthritis and now she is completely contradicting herself.  She started me on 500mg of Naproxen 2x a day and Ultram 50mg up to 4 times a day.  It has relieved the joint pain in my wrists, fingers and elbows pretty significantly.  I am still having horrific hip pain to the point of difficulty walking and back pain mostly in my lower back and neck.  My spine is the only thing she hasn't xrayed.  It's worth mentioning that a Dr. took an xray of my neck years ago and said, "I had lost the natural curve and a few discs were slightly out of place."  I had told my Rheumy this but I'm sure she completely ignored me like she always does.  I'm hoping someone out there can relate to what I'm writing and offer some advice for what my next move should be.  I'm miserable, have limited Dr. choices due to insurance and I just don't know what to do at this point. cry              

Post Edited (afbrown) : 10/4/2011 11:21:53 PM (GMT-6)


vvon66
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Date Joined Feb 2012
Total Posts : 11
   Posted 2/27/2012 1:08 PM (GMT -6)   
It sounds like you need a new doctor but I understand you may be limited. I have PA, Fibro, Reflux, IBS to name a few. I only have scalp psoriasis so it is possible to have PA and only have scalp psoriasis. It may help you to write down all of your symptoms and have a list when you visit this doctor to remind her of what's going on.

If she insists that you can not have PA because you only have scalp psoriasis, I would question her knowledge as a physician. It may be worth a drive to find someone else.

Good Luck!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7116
   Posted 3/3/2012 1:58 PM (GMT -6)   
I agree with vvon66! You need to get a 2nd opinion if this rheumy says you can't have PA with scalp psoriasis. Also, xrays are not going to show bone damage at an early onset. Does your hip pain affect your buttocks? Do you have increased pain when you sit down? If so, you might have sacroiilitis. The SI joints can become inflamed in any of the spondylitis associated diseases [PA, SpA, AS, ReA, EA, etc.] MRI is the most effective tool for discovering SI joint inflammation.

With your hip pain, I am surprised that they have not ordered images of the hips. I wish you the best in the frustrating search for a diagnosis and treatment. I traveled that small long road myself.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

reevsie
New Member


Date Joined Jul 2015
Total Posts : 2
   Posted 7/30/2015 5:47 AM (GMT -6)   
Hi there I read your article after googling my own symptoms which exactly fit yours endometriosis for 15 years after birth of 2nd child 1st child was prem I have now had a hysterectomy dry eyes very unconfortable for 15 years after birth of 2nd child hyitus hernia and lots of heart burn on omeprazole for that now back ache for 7 years eventually found it was my sacrioloric joint buttock pain groin pain very painful at mo waiting my 3rd steroid injection which helps and las 3 years feet hands knees back aching a lot after 3 years of moaning they have found after hand and foot scan that I have psoratic arthritus and am now on methotrexate and folic acid only been on it 4 weeks so hasnt worked but he gave me a steroid injection for interim period which helped everything even my eyes which he said can be affected by psoratic arthritus he said the methotrexate should help same as steroud but takes longer to work and is safer sarah ps sorry for my spelling mistakes!! 

reevsie
New Member


Date Joined Jul 2015
Total Posts : 2
   Posted 7/30/2015 5:50 AM (GMT -6)   
forgot to mention i dont have psoriosis but my dad has it on his scalp hence how they diagnosed sarah

Macmom
New Member


Date Joined Jan 2016
Total Posts : 1
   Posted 1/31/2016 1:21 AM (GMT -6)   
I was just diagnosed with PsA but I was told 15% of people can have PsA with no skin symptoms. Does that sound right to everyone here? I'm on prednisone, methotrexate, folic acid?

ozmadman
New Member


Date Joined Oct 2016
Total Posts : 5
   Posted 10/29/2016 8:02 AM (GMT -6)   
Macmom said...
I was just diagnosed with PsA but I was told 15% of people can have PsA with no skin symptoms. Does that sound right to everyone here? I'm on prednisone, methotrexate, folic acid?


Yes that is correct, I have read that many times before, unusual but it does occur. I have just been diagnosed with PSA after nearly 30 years of on and off foot/toes/finger/knee and elbow pain which was never linked to my Psoriasis and which has been virtually non existent for over 7 years now. I also had a spell of about 4years where I suffered with eye ulcers/dry,sensitive eyes and red and sore eyelids. I was diagnosed with Psoriasis at 18 years old and am now 63.

Tell me, has methotrexate helped with your PSA? I started a new thread on this subject but haven't had any real replies. My Rheumatologist wants me on the stuff but so far I have declined due to the mountain of possible and very serious side effects. I need some feedback from members on here as to their experiences with this drug as I need to make a decision within a couple of months otherwise I will be discharged from her care as i would be refusing the treatment offered.. thanks Paul

Post Edited (ozmadman) : 10/29/2016 8:05:43 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14994
   Posted 10/31/2016 7:11 PM (GMT -6)   
Paul just to let you know this thread is an old one & none of the above members are active here at Healing Well. I do suggest that you type in Methotrexate for PA in the search feature at the top & see what you can find from members that has been on this medication. Keep in mind they are probably no longer active here so there will be no point in asking them questions. You can click on a members name & it will show you when they last posted here.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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