My psoriasis is worse then ever

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Mews2much
Regular Member


Date Joined Aug 2016
Total Posts : 63
   Posted 11/26/2016 12:26 PM (GMT -6)   
Hi Everyone,
I am new to the group.
I had psoriasis years ago but now it has flared up worse then ever.
It started as one small spot and now covers the back of my scalp.
I can not remember the name of the med I used years ago for the psoriasis.
Jacky

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15006
   Posted 12/7/2016 10:44 AM (GMT -6)   
Hi Jacky, I was reading this morning & saw your post. I too have psoriasis problems. Once in a while I will get a couple of small spots on my head. I bought OTC shampoo & used it which helped somewhat. I had it for years on my feet & hands really bad & ended up in the hospital because of infections. I found stress to be one of my major triggers. Having no real success with a dermatologist who was suppose to be the guru in my large city I gave up on him. All he did was give me scripts for high dollar ointments that did nothing. I am going to give you a website to visit called Neostrata.com. This was given to me by a very dear friend & he really saved me from this mess. They carry skin products & one specifically for psoriasis. Check them out & see if you can find something for your head. I have several different forms of psoriasis.

If you have any trouble finding this website let me know. I will watch your thread. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Mews2much
Regular Member


Date Joined Aug 2016
Total Posts : 63
   Posted 12/9/2016 1:40 AM (GMT -6)   
Susie,
Thanks so much for the info.
I have alot of stress right now my husband has stage IV PC so we have were at Kaiser almost every week.
He has surgery again on Tues.
The psoriasis started coming back a year ago but it has spread alot since June.
My mom had it all over her arms and hands so I guess it came from her.
Jacky

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15006
   Posted 12/9/2016 11:13 AM (GMT -6)   
Jacky, psoriasis is an auto-immune disease which was passed on to you by your mom. I have 4 different ones & my daughter has her own AI problems thanks to me. Mine were passed to me from my dad.

At my worst break outs besides the feet, legs & hands, it was on my face, ears & in my hairline. My face & hands looked like I needed to shower because of the brown spots & peeling especially on my face, lol.


I get emails from Neostrata once a month. They offer so many different things for skin care & I keep telling myself I should take the time to look at some of their other skin products. Like anything else some of their products can be pricey but the products I have used no higher than what I would get at the drugstore & certainly works much better.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Mews2much
Regular Member


Date Joined Aug 2016
Total Posts : 63
   Posted 12/9/2016 11:00 PM (GMT -6)   
Hi Susie,
How is you and your daughters psoriasis now?
My Mom was adopted so we do not know what AI are on her side of the family.
She had psoriasis all over her hands and arms.
Jacky

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15006
   Posted 12/10/2016 1:47 PM (GMT -6)   
Hi Jacky, now that cold weather has filtered down my way my elbows & lower arms are getting the thick scales & plaques. A friend's husband has this & she said try olive oil. The olive oil really helps a lot on the thick plaques. Actually, better than any script I have used. It moisturizes & softens them quite well. I also have one ear with it, but this is all mild compared to the problems I use to have with it. The steroid creams can cause the skin to thin which I already have & would much rather use the olive oil, lol.

I have crohns disease & was doing infusions every 4 weeks with a drug used for it. After nearly 4 years of this I developed antibodies to it & drug induced Lupus. I was then switched to Humira an injection & the psoriasis went full bloom. Thats when I had nothing but raw skin on the bottoms of my feet & hands. I ended up with cellulitis infections on my legs & in & out of the hospital. So, I stopped the Humira because it too kept the Lupus situation active & made the psoriasis much worse. I have managed much better on my own that what the dermatologist ever did. Supposedly, according to the original dermatologist this guy is the guru on it, lol, not for me. However, not to discredit him, I have very unusual reactions with most medications so much of this is my weird makeup, lol.

My daughter has hemachromotosis(?) I usually spell it wrong. This is an AI disease & usually found in men more so than females. Also, its called Iron Man's Disease because it is caused by iron overload. She is not able to get rid of the iron because she rarely has a monthly. She has been this way all of her life. Left untreated it can damage the vital organs & some have died from it. She goes every other month to have a unit of blood out taken to help lower the iron. Her gi would prefer she do it monthly & she tried but she just couldn't handle how bad it made her feel for a few days & her hair started falling out. So they have agreed to every other month as long as her numbers stay decent. She is now diabetic & has a lot of arthritis from this. She got pretty sick before getting diagnosed. For years her labs showed an extremely high iron numbers & the drs would all ask her, what do you do eat nails for breakfast. This started when she was 19, I believe. She finally found a pcp who immediately picked up on it & sent her to a specialist.

She had to change her diet completely, avoids anything that has iron in it including any vitamins & supplements. She has a yearly ultrasound of the liver because it can cause problems with it. Knock on wood & a specialist that knows about the disease she is as stable as she can be considering she went untreated for many years.

I hope that Neostrata may have a shampoo that will help you out. Keep me posted.
Susie
Moderator in Chronic Pain & Psoriasis Forums

mariegonz995
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted Yesterday 8:51 AM (GMT -6)   
hello! I also suffer from psoriasis and I know sometimes it can be hard to control, remember that this is a chronic disease so it's important to take daily care of our skin. For two years I've been using Dermalmd treatment for psoriasis and it has worked for me!
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