I want to be free of PAIN

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Eyecantdeal
New Member


Date Joined Apr 2011
Total Posts : 7
   Posted 5/8/2011 7:46 AM (GMT -6)   
Hi ,
 
 I am at my wit's end . I am in pain all day evertday . I have OA in both knees . I blame myself because had I known that obesity could have caused his horrific disease . I could have done what was needed to be done . As, a result og my OA I am very depressed . I'm 47 I am married to a very unsupportive man . Grocery shopping is a huge struggle etc,
 
 
Knee replacement is not in my future .  I am going for Synisc injections  . On Tues. I am working on losing weight . I have lost a few but, not enough . To decrease the pain . Im tired of waking up and the first thing I do is pop pain meds ........I can even do small cleaning jobs !!! Im tired of feeling this way  !!!!!!
 
 
Can anyone relate . It would be comforting to know Im not alone .
 
I live in North New Jersey . My name is Donna !! Thanks for hearing me vent !! :(

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12406
   Posted 5/8/2011 6:55 PM (GMT -6)   
Yes, weight issues can make OA pain worse. Losing weight through diet alone is tough. I know you can't do weight bearing exercise because of your knees, but you can exercise your upper body. Try dancing in your chair or see if you can have water therapy for exercise. It takes the stress off the knees.

I'm overweight with knee issues and I understand your frustrations. I have days where it takes all I can to drag myself out of bed and go to work.
Joy

Judy2
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Date Joined Mar 2003
Total Posts : 9483
   Posted 5/9/2011 9:38 AM (GMT -6)   
I'm sorry to tell you that being pain-free may not be possible. I have pain all the time, but it's tolerable and over the years I've learned to ignore it and go on with my life. Only when the level rises above my baseline do I notice it. For years I thought everyone lived this way!

I've found it's really important for me to move around. If I don't get up and walk or change positions several times an hour, things start getting stiff. When my knees were really bad, I used to ice them when the pain was really bad. For me, the worst was when I went to bed at night because there was nothing to distract me. I slept with a pillow under my knees. I also took Naproxen and Tylenol both and that helped somewhat.

Not sure why a knee replacement isn't one of your options, as that can be a life-changing procedure. I hope the Synisc injections work for you to relieve the pain.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. In remission since 2006 with Remicade.
Inflammatory osteoarthritis
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
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k9lov3r
Regular Member


Date Joined Nov 2008
Total Posts : 230
   Posted 5/9/2011 4:12 PM (GMT -6)   
I totally understand how you feel. I am going on 57 and my doctor tells me I am too young for a knee replacement. I also need to lose weight. I wake up in pain, work in paion and go to sleep i pain. My doctor told me to just suck it up and take the pain I told him if we don't get it fixed I will have to quit my job and he said OK. I have an appointment tomorrow and am requesting to talk to another doctor. So I do understand how you feel because I feel the same way. Will find out tomorrow what my future holds.

Eyecantdeal
New Member


Date Joined Apr 2011
Total Posts : 7
   Posted 5/9/2011 5:24 PM (GMT -6)   
Thank god ~ I have people who understand !!! I wish I could excersie But, I can't !!! I miss a lot of work . I dont have the nicest co workers !! lol .  I just took another Vicodin eventually that going to catch up with me !!!!!!!!!! I asked my dear husband to come in room when I get injections he said " no " Im embaressed at work !!! ughhhhhhhhhhhhhhh
 
Im afraid of surjery  I gotta get this weight off !! I'm 5'2 and weigh 271  !!
 
 
 
Scared !! Thanks everyone !! lets chate again ..........Donna : )

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1623
   Posted 5/10/2011 8:06 AM (GMT -6)   
I am not even that overweight and was born with both dislocation of the hip and hammer toes. I WILL NOT TAKE OPIATES!

The doctors don't give a flying flip about my pain. I do swim. My ankle was busted by a physical therapist in Schenectady after my total knee replacement. This is the only hospital that would take me because I had a drug reaction to morphine (had to take oxygen).

The more these medical people screw up, the more money they make. By the way, Schenectady, New York is the corporate headquarters of Generous Electric.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/10/2011 12:58 PM (GMT -6)   
Joan,
 
I had to grin re your comment on GE .  My son (Electric Engineer) trained there so we visited there once. Nice area.
 
I am sorry for your pain and I understand why you feel the way you do. 
 
Be Well,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic, Osteoarthritis, GERD/Heartburn and Heart/Cardiovascular Disease.
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JNO2
Regular Member


Date Joined Jun 2010
Total Posts : 57
   Posted 5/10/2011 1:53 PM (GMT -6)   
Donna, Vent Away!
 
 I feel your pain. I know how it feels to need pain meds just to get up in the morning. I am not really overweight, (I could lose maybe 10lbs) I am 43yrs old, and I have had severe knee pain for 2yrs now. (both knees)
I went through all of the shots, therapy, and had them both scoped, but I still have regular sharp pains. It doesn't seem to ache as much after the surgery, but I will still get the shooting pains if I move the wrong way or have to stand for too long. (Not so much of the "all day ache" that I used to have)
 
I can't say if your OA pain is caused by being overweight, but I can tell you it does happen to people that reasonably fit.

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1623
   Posted 5/11/2011 6:31 AM (GMT -6)   
please be a venter...i want to vent too. every moron in the world thinks they can help me. a friend (with friends like her who needs enemies) told me not to bother to change my sheets.

well...i am a highly allergic person and must be super clean. most people have never heard of an auto-immune disease. this bird was a clerk in a hospital and acts like she knows something.

patience i am out of it ... i did get to a local park yesterday and met an 18 month old girl called gabby. what a beauty. also the prettiest spring ever...i just am loving it.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 5/12/2011 2:53 PM (GMT -6)   
May I ask why you are so afraid of the knee replacement? Yes, it will be painful, but it would allow you to get your life back and be relieved of some of your pain.

I was also thinking for excercise some water exercises might be a good idea to help you also lose some weight and help work on those sore knees in a gentle way.

If you can lose some of the weight I think you would be a great candidate for surgery. Some weight loss might help to relieve some of your pain, but the surgery would help you get back your life.

Hope things quiet down for you soon. By the way, I need two knee replacements, but I am putting mine off for a bit because I had another surgery last summer and had some bumps in the road, so am a bit surgery weary at the moment. Luckily the cortisone shots are keeping me somewhat more comfortable. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1623
   Posted 5/12/2011 3:49 PM (GMT -6)   
wish i could swim around the world. i love the freedom i have in the water but that's just me

Borimer
New Member


Date Joined May 2011
Total Posts : 4
   Posted 5/21/2011 7:21 PM (GMT -6)   
I can understand your frustration. I am 49 a big guy who played sports and did physical construction for a living. The Docs say I have the hips of a 90 year old, so I too am in pain all the time.
My wife is not very supportive either, she is a runner and very active and just doesn't get it. At times I feel her motto is " Life goes on and those who can't keep up get left behind"
I just suffered a pulmonary embolysm a month and a half ago which has me taking blood thinners. I was on the road toward having both hips replaced but the blood thinning has set me back 6 months.
You can overcome your weight issues despite your pain and mobility issues. In preparing for my hip surgery I was seeing a Chiropractor/Physical Therapist/Nutritionist he helped me a lot, even with two bad hips I was able to lose 80 lbs. in a year and a half. This was with proper nutrition and gentle movement exercises 3 x a week for 2 hours. It was painful but effective.
I'm taking Tramadol 4 x a day to take the edge off and hope to endure the next 6 months of pain until I get in for the hip replacements.
From everyone I have talked to joint replacement is the way to go if possibe. Try to set personal goals because unfortunately sometimes you will not have anyone in your corner and along with pain and lack of mobility seems to come some level of loneliness and depression.

Hang in there.

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1623
   Posted 5/22/2011 9:00 PM (GMT -6)   
hi borimer

unfortunately tramadol is not an option for me. i take mobic.

sorry your wife is not supportive. think people are just PLAIN DUMB. it was only when my foot was put in a unna boot that people starting taking me seriously. thought i was just complaining for the heck of it.

of course the medical people...........well the more grief they cause the more money they make.

kudos to you for losing 80 lbs. i am hoping to shed another 15 lbs this year.

i swim as often as possible even in the winter (indoor, of course) but missed a few weeks because of respiratory/gastrointestinal virus.

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 5/28/2011 4:32 PM (GMT -6)   
I am so sorry that you are having such a rough time.  I had Synvisc injections for 5 years before having a knee replacement 3 1/2 weeks ago.  The Synvisc really helped for the first several years and then finally didn't help for more than a couple of months.
 
Don't be afraid of the injections.  The worst part is when the tech had to touch my knees to draw the line for the site.  I am very ticklish and had to hold my breath and clench my hands.  I found if I put my hands on top of his, I could just barely let him touch my knee.  First they spray a freezing spray (ask for extra spray - it is just cold but does a great job of numbing).  Then they inject an injection to numb your whole knee.  Then they wait about 10 - 12 minutes and inject the needle and withdraw fluid.  It was always very interesting to watch how much fluid comes out (you definitely cannot feel this injection).  Then without removing the needle he attaches the Synvisc vial and injects that (you cannot feel this).  He puts a little bandaid over and that is it.
 
My knee always felt great until the freezing wears off.  Take some Tylenol or Tramadol when you get home and a few hours later.  The next day you will be sore so keep the meds nearby.  Put ice on your knee when it is painful - it really helps!
 
I found the Synvisc kicks in around week 3 or so.
 
Good Luck
Presently on: 600 mg. Remicade every 5 weeks
Venofer infusion every 5 weeks

B12 every 5 weeks

12 Asacol daily

Zofran as needed

Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS, GERD and Gluten and Dairy Intolerance and last but certainly not least - Arthritis. Am officially a senior citizen - how lovely :P
"Food is in my dreams and in my nightmares!"

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 5/29/2011 11:15 AM (GMT -6)   
Wow Nor-TX I was told that they cannot use the numbing shot with Synovisc because it messes with the medication. I told my doc I would do them, but without the numbing first, heck no! Luckily the cortisone shots are working well for me. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 5/30/2011 9:59 PM (GMT -6)   
I've had seven rounds of Synvisc and they always used the cold, numbing "stuff". Hmmmmmmmmmm. My ortho is going to try something other than Synvisc in a few weeks. It is something new...a series of three shots, once a week, in each knee. I have RA and OA. They told me the OA is a result of the inflammation from the RA. I have a lot of OA behind my knee caps. Hope these new shots help!

Peace,
V
Fibromyalgia, Seronegative RA, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 5/31/2011 12:47 PM (GMT -6)   
Vannie, Do you know the name of the new shots? I still have one knee that will need some attention around December. For the last several years I have had Synvisc, but if there is something newer and better. I would like to try that.
Presently on: 600 mg. Remicade every 5 weeks
Venofer infusion every 5 weeks

B12 every 5 weeks

12 Asacol daily

Zofran as needed

Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS, GERD and Gluten and Dairy Intolerance and last but certainly not least - Arthritis. Am officially a senior citizen - how lovely :P
"Food is in my dreams and in my nightmares!"

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 5/31/2011 8:09 PM (GMT -6)   
I don't know the name yet, but I will post it after I get my first shot. It is something new, and my doc seems to like it better than Synvisc.

V
Fibromyalgia, Seronegative RA, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1623
   Posted 6/1/2011 9:14 AM (GMT -6)   
welllllllllllllll, might try another cortisone shot in the foot. first one was useless. find the heat makes me out of sorts. do better in the winter when nobody except the very young can walk (lol). O I LIVE IN THE GREAT NORTHEAST, we are still wondering why it is great.

wilkinson
New Member


Date Joined May 2011
Total Posts : 4
   Posted 6/1/2011 11:50 AM (GMT -6)   
Eyecantdeal- Have you looked into alternative treatments like accupuncture, herbs, etc?? I had a horse with RA that greatly benefited from them.
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