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mkaye06w
New Member


Date Joined Feb 2008
Total Posts : 1
   Posted 2/20/2008 1:13 AM (GMT -6)   
I am a 19-year-old girl.  All my life I have had difficulties with asthma, but it wasn't until the past 5 years that it has begun to get really bad.  My doctor recently told me that my asthma is what qualifies as severe persistent.  In the past two years alone I have had to go to the ER at least 50 times, at least 30 of which were by ambulance in severe distress(lights and sirens on and all that fun stuff) and I was admitted to the hospital at least 15 of those times usually staying at least 3 days.  I am on Advair 500/5 two times a day, singulair, allegra, veramyst two times a day, protonix two times a day, prednisone 20mg, and duo nebs (albuterol sulfate 3mg and ipratropium bromide o.5mg) every 6 hours increased to every 4 or every 2 hours as needed.  I also have an MDI and epipen that I use as needed.  The epipen is for anaphylactic shock due to bee stings, campfire smoke, and unknown food allergies.  I am so sick of feeling like my chest is going to cave in because I can't breathe or having the jitters and ridiculously bad leg cramps because of the albuterol.  A friend I know recently suggested that I try grape seed extract because it helped her son get completely off all of his asthma medications.  I started the grapeseed extract about a month ago, and so far I have seen no change.  If there is ANY other suggestions that you have I would greatly appreciate it.  I have recently had to withdraw from my college because of the severity of my asthma.  I am so over this  I am so tired of not being able to do the things I love to do.  two years ago I was either rollerblading 15 miles every day or riding my bike 50 miles every day, and now I can't do either.  PLEASE HELP!!!!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4389
   Posted 2/20/2008 2:31 AM (GMT -6)   
Hi,

If you want to find alternatives to regular prescription medications for your allergies, you may find better help from a Naturopathic Physician. They are trained to view you as a whole person, and won't just focus on only one part of you (such as your airway or your skin or your bones). They also may be able to help pinpoint the aggravating factors for your Asthma that may or may not be as easily seen on traditional allergy tests. And they are usually trained in the use of herbs such as grapeseed extract.

I hope this helps - take care,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, Very Low Lymphocyte Counts (T-Cells & B-Cells), malabsorption/malnutrition, possible Lyme Disease (Igenex Lab IgM WesternBlot positive), etc.
Meds:  Pulmicort, MaxAir, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 2/20/2008 9:51 PM (GMT -6)   
mkaye, Welcome to HealingWell.  You are really having a tough time with your asthma.  Are you treated by an allergist?  I would suggest that you talk to your physician about Xolair.  It is a monthly injection for severe asthmatics.  I have been taking it for about five years.  It costs around $10,000 per year, but insurance companies will gladly pay for it instead of all those ER visits.
 
I am almost 57 years old and have had asthma for six years, it came on with a vengeance.  I have had only one ER visit.  I will say, when I was still working, most of my asthma attacks that got out of my control were during the day and my allergist was willing to spend hours working with me in her office to keep me from having to go to the ER.  She's the best.
 
I always make sure I take my controller medications.  I don't leave home without taking my portable nebulizer, a bottle of water and an epi pen with me.  It is very cold here now, so I don't go out without covering my mouth and nose.  If it is below 20 degrees, I don't go out at all, per my doctor's orders.
 
I hope you will talk to your physician about Xolair and consider getting a second opinion. That is my unprofessional opinion.
 
Keep us posted.
 
Take care!
 
Carla
 
 

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


Kate171
New Member


Date Joined Feb 2008
Total Posts : 6
   Posted 2/27/2008 5:50 PM (GMT -6)   
Natruapaths relly do help. (sorry if I spelled that wrong). Also if you don't have a portable nebulizer I would suggest it. Between my naturapath and allergist I can get by on advair/ 250 and albuteral and an epie pen if needed( and a bunch of non prescription stuff). Best of luck.

Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 2/27/2008 6:43 PM (GMT -6)   
Kate, I would like to welcome you to HealingWell.  I noticed on another post that you are only 13.  You have really learned to manage your asthma well, that's what it takes.  You must be like me and don't like ER's or being in the hospital.  No fun at all.  Please keep posting as I think we can learn a lot from you.
 
Hugs!
 
Carla

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


groovey
Regular Member


Date Joined Nov 2007
Total Posts : 127
   Posted 2/28/2008 10:59 AM (GMT -6)   
mkaye...hi there super star...I have been a chronic asthmatic for a long time and I THINK YOU ARE ONE FABULOUS YOUNG LADY to cope with what you have and you are doing so...so..well..Congratulations.One quick bit of advise...try dissolving one EFFERVESENT vitamin C TABLET IN 1/2PT OF WATER.Sip slowly until it is all gone....it has worked well for me... or squeeze out the juices of 4 oranges..dilute with 1/4 pint of water and do the same.It boost the immune system.BEST TO TAKE IT AT NIGHT WHEN THE BODY IS AT REST AND CAN ABSORBE IT EASIER.
Until I was 40+ I was a session swimmer swimming...1 mile a day, running, horse riding skiing doing everything I WANTED AND THEN I had a very bad reaction to a hornet sting and the asthma started realy bad....slowly over the yers I have got better and I CAN SWIM AGAIN AND WALK 2-3 MILES WITHOUT ANY PROBLEM.I have changed my diet COMPLETELY and have a pretty boring but effective exercise regime that I live by...interested just sign in..hugs grooveyxx

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1938
   Posted 2/28/2008 8:11 PM (GMT -6)   
Hi mkaye...I am wondering if you received any allergy shots. Those worked wonders for me though it did take a very long time...about 15 years. Also I try to live in a dust free environment since I am very allergic to dust. Use hot water for clothing washes and hot drying cycle.

I know it is hard to accept this problem but you are doing the best you can. Maybe you should be seeing more specialists to fine tune your medications...sounds like an awful lot of stuff.

Best of luck to you.
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