Chronic Urticaria..my first post

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Logman
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/16/2008 3:54 AM (GMT -6)   
Hi

I have suffered from Chronic Urticaria, on and off, for 30 yrs and until very recently was unaware that it was so common, or from what I was suffering.

It is some comfort to know that many others suffer from this and the opportunity to let off steam to others that may understand is too much to resist, so please bear with me. Any comments/advice will be most welcome.

I have had this for 30 years. It comes and goes, seemingly, at random. I have been diagnosed with all manor of intolerances and allergies (none of which have ever been confirmed), given more anti histamines than I can recall, yet always it returns.

It has been back since Xmas last year with the normal symptoms. Gradually manifesting from initial itching at the hair line and wrists, to the total body coverage. With varying degrees of appearance in between. There appears to be no catalyst.
I suffer from delayed pressure at feet, wrists, waist, etc. A reaction after sunbathing, perhaps 24 hrs later. A reaction after manual work and an ordinary form.

When it appears, my life revolves around it, the itching and chronic fatigue are intolerable, I become almost reclusive. Combined with the stress of not knowing how bad it will be from day to day, life becomes very difficult.

I have recently, since my self diagnosis of this complaint, that Aqueous Cream, can give some temporary relief from the itching and (i'm afraid) Alcohol takes away the itching completely, albeit temporarily.

I have been advised by the Doctor not to bother joining the queue for the one, apparent, Dermatologist in the SW of England as the wait is insane, so what am I to do?

The only relief, I have now found is that I am not alone in suffering this awful condition.

If anyone wants to post any kind of comment, please do. I am just glad to finally be able to talk about it.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10374
   Posted 5/16/2008 5:12 PM (GMT -6)   
Welcome to HealingWell, Logman. I'm not a frequent allergy poster, so hopefully some of those "in the know" will respond also. I'm sorry to hear you're having such a difficult time; that sounds absolutely horrible!

I'm a little confused as to why your doctor would advise you not to get on the list for the Dermatologist. If the wait today is two years, and you get on the list, a week from now the wait will be 2 years, 358 days. You could still go on trying everything you're trying in the meantime, but you'd slowly be inching closer to the top of the list. What do you have to lose? I'd go back and revisit that with the doctor if I were you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/16/2008 6:42 PM (GMT -6)   

Hello and Welcome to HealingWell.  I am Kitt.  I have pulled up an old thread  with a lot of info on chronic urticaria for you.  Take a look and you may see something that can help you.

http://www.healingwell.com/community/default.aspx?f=7&m=412160

Take care and keep posting.
Kitt



 
Kitt, Moderator: Anxiety ~ Panic 
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 

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