Rheumatologist Tomorrow..Hive Issue...

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christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/26/2009 7:59 PM (GMT -7)   
Well, going to see the rheumatologist tomorrow, for those of you with hive problems. I was recently diagnosed with urticarial vasculitis (sp?), and they've (my gastroenterolgist (sp)) determined it to be an allergic reaction to my husband's medication. However, we haven't had unprotected intercourse since April 15th, and I'm still getting hives. They are no where near as bed as they were, but they're bad enough that you know they're still there! nono   Nasty little boogers, so who knows! I'm not sure how long my husband's medication (Humira) stays in my system as I'm not the patient taking it myself, and no one really knows because apparently I'm the first case ever, but if I find out anything interesting at all, I will keep you all informed!!! Thank you to everyone for your support and care, I've truly appreciated all of it!! I've been referred to the Mayo Clinic as well, so we'll see. 
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 5/27/2009 4:40 AM (GMT -7)   
What is the rheumy doc going to do to help? I'm confused lol But I know you've been having a heck of time with this and don't you hate it when you are the first person ever to have something that noone else doesn't???!!! Please keep us updated and thanks for coming back.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/28/2009 4:17 AM (GMT -7)   
I have something for you to try and figure out. I have what is called goosebumps just about every day. They hurt and make me so cold I have to go lay down in bed just to get warm and make them go away. I don't like to do that because I hate anything touching my skin. It does eventually go away, but it does come back. Go figure. I don't have any hives to speak of.
 
HARA

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/28/2009 9:48 PM (GMT -7)   
I'm curious what the rheumy said. Urticarial Vasculitis is also seen in lupus alot. I suspect that is why you were sent to the rheumy.

BTW, the half life of Humira after injecting it is 21 days. In theory, Humira should be out of the system 42 days following injection.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/29/2009 6:39 PM (GMT -7)   
Thank you all for posting this. I did go to the rheumy, and as many of you know, he couldn't really do anything for me. We did have a nice long chat for about an hour or more, but all of my tests results came back normal for every auto-immune disease known to mankind, so that was great to hear. I guess my lupus test, like Ides, mentioned, was a little abnormal, but he said it wasn't high enough like regular lupus patients. So, he said, most definitely, it was the Humira causing all of this. I broke out today really badly, not sure why, but just on my legs. They weren't the painful kind though, so that is good I guess. Just trying to cope until these things finally do disappear. I guess the Humira people were coming in the office yesterday, so he was going to discuss my case with them. Try and find out anything possible that might help the situation. I'm also being sent to the Mayo Clinic with my husband for some further testing, so we'll see. But I'll keep everyone informed, thank you all!!!
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis..or whatever it is... (my newest endeavor)
 
 
Current Meds:
Levothyroxine (.50 mg), Xyzal (5 mg every 12 hours), Pepcid (every 12 hours).  I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/30/2009 4:21 AM (GMT -7)   
I heard the Mayo Clinic is a good place. I'm sure they will find something if no one else can.
 
HARA

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 5/30/2009 4:32 AM (GMT -7)   
Yes, the Mayo clinic is one of the best in the nation. So I'm sure or at least hoping that they can help you. My MIL suffered from hives (stress induced) for nearly 2 years and I watched her suffer from it. I know they are no fun at all!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 5/31/2009 12:52 AM (GMT -7)   
If you are getting exposed to Humira from kissing, touching husband's sweat, etc., then you could still react. I'm glad they are going to talk with the drug co. reps about this. I hope Mayo is helpful for you...take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Pancytopenia, chronic malabsorption/malnutrition, etc.; G-Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line), Claritin, Colloidal Silver (used topically), IV Milk Thistle, probiotics.


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 6/3/2009 9:44 PM (GMT -7)   
YOu can devolope an allergic reaction any time to any medication. THere is also an rare disease called Chronic hives. I'll give you 3 guesses to guess those symptoms...haha
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

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