Hi- My name is Tina, I have a "tentative" diagnosis of Churg Strauss Syndrome--reason is that doctors here say they cannot give definite dx without a Lung Biopsy. I am having a really hard time controlling my asthma--well it is not controlled at all. I am on Advair 2xdaily, Proventil every 6 hrs, turbutaline 5mg 3xdaily, and also use nebulizer several times per day. I sometimes feel my heart is going to explode, and I am shaky all the time. My oxygen level is measuring around 92-93 and I am blowing 250 at best with a Peak Flow Meter.
I am to see a specialist at Emory University, per my reg Pulmonary Dr, but I am curious if anyone else is taking this much medication.
"Tentative" CSS diagnosis-total disability since June 2008
Read my day to day story living with Chronic Illness and pain-to include: Asthma, Neuropathy, Erythromelalgia, Severe Sinus involvement, Intractable Migraines, IBS---no kidding!! And the list keeps adding up.
God Bless!!(¯`v´¯) ` .¸. ´¸.• ´¸.•*¨) ¸.•*¨)(¸.•´ (¸.•´ (¸.•´`•¸¸.•¨¯`•Tina
Post Edited (Tina Brown) : 6/22/2009 4:18:25 PM (GMT-6)