Thank you VERY much for your responses. This is really just a small part of my trying to get a better handle on what is going on with my body.
I have had allergies (dust/mold/pollen) that have been getting progressively worst over the years. They do respond well to Claratin though and they are not really a problem. So, I don't really care about "testing positive" because I know a lot of what my allergy triggers are. It is just really madening that I test negative, and not understanding why this is.
I got tested again because the allergist wanted to test me because of the other issues I am having. I went to the allergist because I have I have also had problems with reactions to chemicals and that has been getting much worst. This is the problem. I have had this problem for a very long time, to different degrees depending on my environment. My reactions are getting worst though and it is interfearing with my breathing. It always made me feel like garbage, but I could deal with that. I have done all I can to avoid things that are triggers and that makes a huge differnce in my life. It is also all I have ever felt like I can do. But now I feel like someone is sitting on my chest and it is freaking me out which does not make the situation better at all...
So, I claim to have a bad reaction to chemicals (according to my allergist) and allergies even though I am negative (which is REALLY unusual). Oh, and when I react I get tingling in my lips and tongue. Online I finally found a few places where this is listed as a symptom of perfume allergy, but everyone I have ever seen has said it doen't make any sence. One said I was hyperventalating. I often get this feeling way before I can smell anything though so that does not explain it. It makes me sound like a hypocondriac and I am not. I am just trying to figure out what is going on with my body and try to live a normal life which is really hard when you can't be around any normal household cleaners, fabric softeners, perfume... etc.
I have never really looked into this online until the last few days and it has been awsome to just read some of what is going on with me is happening to others also. To talk to my doctors I am the only one ever. It really has made me wonder on some of my lower days. I now know that I have multiple chemical sensitivity-just a name, but something that other people deal with also. My main concern is why do I feel like I can't breath. I don't have asthma according to the allergist. So, how can I get help if it gets bad if I & the doctors don't understand what is wrong. This is why I came online to see if there was someone "out there" who also was dealing with these problems and could help to understand why this is happening.
Thank you all for listening-it is just such a relief to find someone who can understand.
Thanks for the great info Razzle. I have another medical issue that could be causing my liver to not function well, although I do keep up with bloodwork for liver function. I will look into this. I also just recently found out that my Mom (has) and grandmother (had) B12 deficiencies. I will do some research on these things and talk to my Dr. My primary Dr. is actually pretty good and has been willing to work with me on my unusual problems.
I have had Lyme disease several times, however I seem to be fine after the antibiotics. I never tested positive. My husband doesn't test positive either but there is no doubt that he has it because we have a picture of an actual spirokete from his blood. He has not recovered completely from the disease.
Post Edited (fluffyorganogirl) : 10/18/2009 6:12:18 PM (GMT-6)