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can'tstandthiscough
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/25/2009 10:55 AM (GMT -6)   
I have had a chronic cough for over 20 years. For the last 3 years, my doctor has had me on hydrocodone cough syrup. It has worked to get rid of my cough, but now I am dependent on it. I have to take it at least 4-5 times a day. Without it I am very anxious, but with it I am starting to notice some paranoia (after using it for so long). I am considering taking myself off of it. I have had several allergy tests that have come up negative, I have also been ruled out as having asthma, bronchitis, and many other ailments. When the cough is present, it starts with a tickle in the back of my throat and results in a terrible cough with loads of mucus, tearing eyes,and a feeling like asthma when the mucus seems to clog my airways. It will come on several times a day and is very scary. If there is any one with similar situation, please help. I am at my wits end.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 10/25/2009 7:38 PM (GMT -6)   
You may have GERD. I've had a chronic cough for three years the doctors ran many tests and scratched there heads. Finally one sent me to a GI doctor. He ran some more tests and found out acid (even though I had no heartburn) was rising up and flowing over into my lungs. This was causing a mucus build up in my throat. It was causing a hacking cough with phelm.

Ask your doctor to evaluate you for GERD.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/25/2009 7:44 PM (GMT -6)   
I've posted my troubles (about my 7 year cough) in the GERD thread. Wasn't sure where else to go on about it. I know how you feel! I am completely at my wit's end and have JUST told yet another doctor that very thing. I have been to so many specialists that I am convinced that nobody can help me at this point. For me, I don't think it's asthma/allergy related.

The only med that has helped me throughout all these years was Deconamine. But, while effective (about 55% so) the effectiveness waned. I have been on so many different meds at diff. points in time with none eradicating the cough. I too cannot stand it any more.

The next new ENT I will see, I am going to investigate the GERD again in addition to something new; irritable larynx syndrome (see here)
http://homepage.mac.com/changcy/cough.htm

I don't know if it's what I have but I am going to check this out. I took this idea to the cough clinic I was going to in the Bronx, but it was met with great discouragement. The professional actually said, "I wish people didn't have computers." I countered that with, "that's how I found you." So, needless to say, this didn't help my quest in findind a cure for the suffering. And, it is suffering indeed. I didn't think anyone could ever understand the daily suffering I endure. I cannot read to my kids, or carry on a conversation at times. The cough is so violent and sporadic too but, I know when it's just about to occur. Oh, and then there's the incontinence associated with this too which makes the problem infintely worse.

I've had all the same symptoms ruled out that you've had can'tstandthiscough and that is how I feel too. I have the mucus, I clear my throat alot and it is all very tiring, frustrating, infuriating and even depressing at times. Now that I am into these forums, hopefully with the ideas and support here, we can help one another. I have appt's next week and will post my results. Until then, may our coughs be fewer than normal.


Orange E

Post Edited (Orange E) : 10/25/2009 6:47:55 PM (GMT-6)


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/25/2009 7:47 PM (GMT -6)   
If you smoke STOP!!
SnowyLynne


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/25/2009 7:55 PM (GMT -6)   
I am not a smoker. The only cigarettes I've ever smoked was 4, in a row, when I was 17; 25 years ago. Hate to even be near a smoker.I wish there was a quick fix as I've been able to stump every specialist going.
Orange E


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/25/2009 9:50 PM (GMT -6)   
Have you seen an Allergist?
SnowyLynne


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4389
   Posted 10/26/2009 7:43 AM (GMT -6)   
Perhaps an NAET practitioner (see www.naet.com for more info; I have no financial connection with this website) could identify and desensitize you to the cause of this tickle cough...

Or could be a chiropractic adjustment to the part of the spine/neck that corresponds to the area where you feel the tickle would help - misaligned vertebrae can irritate nerves and a chronic cough could be one manifestation of this.
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/26/2009 9:16 AM (GMT -6)   

For me, I've been through the littany of Allergy testing and tired Chiropractic for months. There was one minor help with the Chiro but it wasn't in the adjustments. She gave me pills called Allerplex. I think they were 3 pills 3x/day (it's been a while so I am not 100% sure). But in the beginning, they seemed to provide some relief probably because they had some decongestion powers? But, in the end, both were not able to fully help.

From Allergist to Gastro to ENT to Chiro to Pulm. to cough clinic...no dice yet. Going to check out the NAET info and see what that's all about. At least there is support here to bounce ideas and have a sharing of like problems...and that means alot right now!

 

 

 

 


Orange E


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 10/26/2009 5:12 PM (GMT -6)   
Did your GI do any tests? Baruim swallow, BRAVO, manometry, EDG?
All of these tests need to be ran to totally rule out GERD.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/26/2009 8:04 PM (GMT -6)   

Yes to BRAVO only, and boy was that uncomfortable. It showed no reflux (at the time). But I am thinking things have changed even though my cough has been persistent and intolerable. This was inserted during 1 of 3 EDG's which again showed no errosion.

Barium swallow or manometry have not been done, nor offered as a test to do. I am going to a new ENT and am bringing my "rap sheet" of doctors and procedures done thus far. I have to say I am going into this one not as hopeful as the others. While I am only coughing 7 years versus can'tstandthiscough having endured 20, I am almost convinced nobody can help me at this point. But, while disocuraged, I really am finding some good avenues to persue here.


Orange E


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4389
   Posted 10/26/2009 10:57 PM (GMT -6)   
A chronic cough may be caused by nerve irritation.

Herbs that support proper function of the nervous system: Lady's Slipper, Oat Straw, Valerian, St. John's Wort, and other herbs. An imbalance/deficiency of Vitamin B12, B-Complex vitamins, Magnesium, Calcium, and/or Essential Fatty Acids (Omega 3, 6, 9) may also cause problems with nerves.

Gluten has been known to irritate the nervous system in those who are sensitive (Celiac Disease, non-Celiac gluten sensitivity). Gluten is a protein found in wheat, rye and barley (also often in oats due to cross-contamination with wheat).

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, Ailanthus, homeopathy.


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 10/27/2009 5:43 PM (GMT -6)   
ENT are not as well versed in GERD as a Gastroenteologist.
Why did your BRAVO hurt? I could barely feel mine (only when I turned my head).

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 10/28/2009 7:57 PM (GMT -6)   

---Interesting you should post this.

For the past....25 years--I get (on occasion)- a strange...very dry....unproductive cough-!

It comes & goes--but when I have it--it drives me nuts!   No mucous--just a strange.."feeling"...in my upper bronchial area---that I gotta "cough".....to alleviate that..."feeling"...-

Was tested--no asthma...or anything---

Last yr my Dr. gave me something that really helps!  You should ask about it--

TESSALON PERLES!  (come  in ...100 and 200 mg..I take..the 100 mg...3 times a day-

It is basically an "anasthetic"...it "numbs"...the striated muscle that "triggers"...the cough reflex!

It ....really works!  I mean...when I'm in one of my "bad coughing cycles"...(like NOW...late October--i think it may be allergies....w leaves etc)---BUT---this Tessalon is great!

Ask your Dr---to try it--!  You may be pleasantly surprised!  Anyone else ever take Tessalon....with success?  Get back...!  I KNOW how frustrating the poster must feel!  My cough "spells"...when they come...can last...weeks...or sometimes a month or so--They come & go--!

Hoping to hear Hope my post & recommendation helps---Regards- Robert

 


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 10/29/2009 4:58 PM (GMT -6)   
Tried it, didn't work. :(
I've even done codine syrup and still coughed, because mine was acid reflux.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/30/2009 8:16 PM (GMT -6)   
@ couchtater...My BRAVO was more uncomfortable when food passed by it that anything. I recall that was the worst part of it and it almost made me not want to eat or at least change to softer foods during that time. But, it didn't show that I had GERD or AR.
 
Today, I went to a new ENT and asked to finally get a catscan of my sinuses. So, waiting on that date. Also, he's going to do a more extensive allergy testing. But, I am still focusing on PND and a possible GERD combo. He gave me a Rx for Hycodan (never took this before) as he thinks it will relieve the cough when about 15 other meds haven't.
 
I asked him about Irritable Larynx Syndrome but he too kinda dismissed it (as a previous Doc I saw did). I also mentioned, what about a bacteria from water spray? Again, looked at me like I was grasping...and I am. I need to stop coughing.
 
I cannot laugh or read to my kids without going into coughing fit hell.


Orange E

Post Edited (Orange E) : 10/30/2009 7:27:19 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 10/31/2009 10:24 PM (GMT -6)   
How annoying for you, OrangeE.

I wish you find a solution.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Orange E
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 11/12/2009 9:14 PM (GMT -6)   
Ugh...that is just about the only thing I can muster after my last round of Dr. visits. I finally had a catscan of my sinuses (and why that hasn't been done until now, who knows). I will find out on Tues. how a more detailed allergy test pans out in addition to what the sinus shows.
 
I know I have PND and I know I suffer every single day with this cough. Having also just gone to a cardiologist for scary chest pains, just leaves me more frustrated. I am not confident that I am believe and I am not confident they (any of the Dr.'s) can help me; relieve my cough.
 
I will keep trying though as being able to read a book to my kids without coughing is my goal. Heck, even being able to get a sentence out without coughing words would be a bonus.
Orange E


Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 11/12/2009 10:19 PM (GMT -6)   

---I just had an incredible resolution to my coughing problem. smilewinkgrin --My pulmonary Dr--prescribed cough syrup with codeine!  MAN...did that work...quickly & effectively!

--Also- Just started on "Medrol" dose...(Prednisone)-  to alleviate the inflamation-!

--This past Tues...I was coughing terribly!  sad   Tonite....Thurs......the cough is gone! :-) Anyone else here used cough syrup with codeine...with success?

What about the prednisone?         Hope this helps-   Robert

 

 

 

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 11/13/2009 10:32 AM (GMT -6)   
What about Post Nasel Drip??
SnowyLynne


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 11/13/2009 4:45 PM (GMT -6)   
When my allergies are terrible I'm always put on metrol and codiene syrup.

It helps that cough, but not my GERD cough.

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 


Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 11/13/2009 5:53 PM (GMT -6)   
   Does anyone ever feel kinda "nervous"...or hyper when on the Medrol?  It really helped my cough,
but as a first time user---I'm feeling a bit "juiced"- smhair late at nite--still not sleepy-
 
Any feedback would be helpful--I'm finishing my SECOND day....(of the 6 day dose---4mg each pill)--If so--how long AFTER I finish will it take to wear off?    Thanks again- :-) Robert

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14319
   Posted 11/13/2009 7:23 PM (GMT -6)   
First days, I'm always wired. The feelings will diminish as your dosage goes down and it leaves your system.
My doctor made me take the codiene syrup to knock me out when it hypes me too much to sleep.
I just got finished with a six day pack myself. Today is day seven and I'm still wired some, but not like the first day was. I've gotten used to it. I've had to take it at least three to four times a year, sometimes one after another. Thanks to my GERD related asthma that turns to bronchitis quickly. This year it turned to pnuemonia. >:((

Joy
Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 

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