Different symptoms, no wheezing, no coughing, constant daily not being able to take a deep breath

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puddycat
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Date Joined Jan 2010
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   Posted 1/12/2010 8:34 PM (GMT -6)   
Does anyone else have my symptoms??

I have been diagnosed with possible asthma or a component of asthma. I have no coughing, no wheezing, no phlem, no nothing most asthma sufferers have. I have daily difficulty taking a deep breath. Normally you don't need to take a deep breath but my body tells me I need to then I can't, then 15 seconds later I can! This goes on all day. I sometimes have to yawn to catch my breath . I don't feel panicked or like I can't breathe. Some days are better and some are worse, none are normal. I sleep well and don't wake up. I also go for periods of time, hours maybe , and no problem, but no day goes w/o some trouble. This started over a year ago and I have just lived with it till recently when I got tested by pulmonologist at Mayo Clinic. Took the methacholine test and flunked it tho I passed the other breathing tests. I am frustrated by not being able to control this (so I am sure stress is playing some part). The dr. wants to start me on Advair. All I read about these drugs scare me and I really don't want to take it, but also don't want to live with this forever.

Thanks to anyone who might have the same symptoms.....

Red_34
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   Posted 1/13/2010 8:27 AM (GMT -6)   
I know exactly how you feel. I was having the same issues then slowly came some other symptoms. But it wasn't asthma but acid reflux or GERD. Once I started on Prilosec that feeling went away. I sometimes still get that but it's usually when I have high acidic foods/drink. Have you ever been tested for acid reflux or do you have symptoms of it?
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bikerchic
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   Posted 1/13/2010 2:14 PM (GMT -6)   

I too started with difficulty breathing and an occasional burning sensation in my throat back in my early 20's (now 42).  I have GERD, exercise-induced asthma, allergies (mold, pollen, dust), hiatal hernia.  A couple doctors have told me that they are all linked together.  Once you start with one, one generally develops the rest over time. 

I took Advair for several years and didn't have any difficulty with side effects, but it didn't help my EIA.  I recently took Singulair but that gives me swollen glands and an upper respiratory illness, so I had to stop that.  Currently, there is nothing else for me to try for exercise induced asthma.  I have pretty much taken everything over the years.  I just carry my albuterol and do the best I can when spinning, kickboxing, etc.  Don't hesitate to give medications a try.  I certainly have had success with meds for other issues, but sometimes it takes trial and error before you find the one that works for you.


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"The past does not define you, the present does."
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puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/13/2010 3:32 PM (GMT -6)   
Thanks Bikerchik and Red_24. I have never had acid reflux that I know of. What is GERD? I have really never been sick much. What are the symptoms of acid reflux besides breathing? Thanks

Red_34
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Date Joined Apr 2004
Total Posts : 23353
   Posted 1/13/2010 3:35 PM (GMT -6)   
It started out as the difficulty in breathing then came difficulty in swallowing and then when it progressed I started getting a painful lump like feeling in my chest and abdominal pain.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
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puddycat
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   Posted 1/13/2010 3:41 PM (GMT -6)   
Are those symptoms what is diagnosed as GERD? What is GERD? Do you have difficulty sleeping or do you sleep all night? Does stress make your symptoms worse? Does the Prilosec control the breathing symptoms? THanks

bikerchic
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Date Joined Jan 2010
Total Posts : 21
   Posted 1/13/2010 5:06 PM (GMT -6)   
Chronic acid reflux leads to uncomplicated GERD, but not everyone with GERD has heartburn. The primary symptoms of GERD are heartburn, regurgitation, and nausea. Other symptoms of GERD include:
Frequent heartburn. Heartburn usually is described as a burning pain in the middle of the chest. It may start high in the abdomen or may extend up into the neck. Sometimes the pain may be sharp or pressure-like, rather than burning. Such pain can mimic heart pain (angina). In other patients, the pain may extend to the back. Typically heartburn related to GERD is seen more commonly after a meal.
Hoarseness .If acid reflux gets past the upper esophageal sphincter, it can enter the throat (pharynx) and even the voice box (larynx), causing hoarseness or a sore throat.
Laryngitis
Nausea
Sore throat
Chronic dry cough, especially at night. GERD is a common cause of unexplained coughing. It is not clear how cough is caused or aggravated by GERD.
Asthma. Some of these nerves that are stimulated by the refluxed acid stimulate the nerves to the lungs, which then can cause the smaller breathing tubes to narrow, resulting in an attack of asthma.
Feeling as if there is a lump in your throat
Bad breath
Earaches
Chest pain/discomfort

Acid refulex symptoms: Heartburn, regurgitation, and dyspepsia are a few of the most common

Asthma early symptoms:

Frequent cough, especially at night
Losing your breath easily or shortness of breath
Feeling very tired or weak when exercising
Wheezing or coughing after exercise
Feeling tired, easily upset, grouchy, or moody
Decreases or changes in lung function as measured on a peak flow meter
Signs of a cold or allergies (sneezing, runny nose, cough, nasal congestion, sore throat, and headache)
Trouble sleeping
__________________________________________________________________
"The past does not define you, the present does."
— Jillian Michaels
 


puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/13/2010 6:20 PM (GMT -6)   
Thanks, Bikerchic for all the info. I am just new to this and trying to find anything I can do but take a strong RX although it might come to that. Guess I will just try to eliminate things one at a time with the proper medication. I hope you are doing well.

bikerchic
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Date Joined Jan 2010
Total Posts : 21
   Posted 1/13/2010 6:26 PM (GMT -6)   
Puddcat, I hope I didn't overwhelm you with information. Good luck to you. Patience is key. Please keep us informed as to how you are doing. We're here for support.
__________________________________________________________________
Diseases:  Acne, allergies, asthma, GERD, hiatal hernia, depression, anxiety


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14322
   Posted 1/13/2010 6:44 PM (GMT -6)   
Puddcat,
I have asthma and GERD. My GERD was sending acid up into my lungs causing asthma troubles.
I had no real symptoms except a cough and loss of voice.
Ask your lung doctor to refer you to an GI (gastroendrologist?) for testing.
If you'd like more info on GERD come over to the GERD forum and read our posts there and ask away. :)

Joy

puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/13/2010 9:02 PM (GMT -6)   
Thanks Joy

My symptoms seem so far to be unlike anyone else I have talkd to. I have no symptoms of GERD unless my ability to take a deep breath is one. I eat everything (matter of fact lots of grapefruit off my tree lately) and can lie down immediately, no burning or bitter taste so I am thinking that is not it. I have a PFM and am going to monitor that for a while, am in process of acupuncture for two weeks If nothing I am doing helps then I will try the Advair. just really don't want to. I really appreciate everyone trying to help. Have a blessed and symptom free day!

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/14/2010 8:08 PM (GMT -6)   
hi puddycat

i have your exact symptoms, this started for me after a bad cold. This was a long time ago, and still I experience exactly what you describe. My doctor I went thru 3 of them, took me off all meds except albuterol, that I hardly ever use.

I was thinking of trying accupuncture (spelling?). Is that working for you. I can go into detail, but it's allot to type out.

Did you have a cold or something that you feel started it. I would be interested in knowing. I don't have Gerd. You are the only one I have seen describe the same symptoms.

puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/14/2010 10:53 PM (GMT -6)   
No I did not have a cold that I remember but am not prone to colds anyway . I have always been healthy. Mine started a year and a half ago for no reason that I can fathom. I have just lived with it as my doctors thought it might be stress. I did have a lot of life changes about that time but for the better!! Go figure. My Primary dr. put me on Valium 2.5 mg. 3x day for two weeks. He did this twice and my symptoms almost went away but then returned when I went off the Valium. He did not want to treat me long term with Valium so told me to see a shrink. I have just been avoiding that as a last resort. I recently saw a pulmonologist at Mayo in Jax and he said I passed the breathing test except when they used the methacholine and I did not pass that part. But unless an irritant is put into my lungs I breathed fine on the test. I travel all over the US so do not believe this is environmental either.

I have had two acupuncture procedures and am going to continue them for two weeks as the dr. said I should see some difference. It can be expensive if your ins. does not pay as mine does not but at least there are no side effects. If this does not work I guess I will try the Advair just to rule out asthma. I just am afraid of all the side effects. Have you ever taken Advair? If that does not work I will give in and go to the shrink. Sometimes your body can be under stress and you do not realize it.

I would love to hear your story if you have time. Are your symptoms daily? Do you sleep at night ok? When do you notice it getting worse or better. For me it seems to just be better some days and worse some days for no apparent reason. Do you ever have problems swallowing? I have a little right now as I have post nasal drip combined with the breathing makes me almost choke at times!

Thanks so much for responding. It is comforting to know someone else has the same problem and I am not crazy... although I am sorry that you do.

Puddycat

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/15/2010 8:29 AM (GMT -6)   
good morning,
My husband came home with a BAD cold, like I have never seen before, I actually said to myself, boy I hope I don't get that. Well I did, I can remember as it was August 19, 2005. I was dealing with the cold, and after a few days I could not breathe. I went to the emergency room and this is when it all started.

It took about 3 Months until I could breathe a bit better, and only a bit. I could not laugh, eat very well, without being out of breath. It was terrible. I was in bed for a couple months. Yes, a couple Months. it was that bad. I have never in my life done drugs or smoked. I am not 48 but was 43 years old at the time.

My lungs Improved but have not returned to good breathing as of yet. They had improved some, so we finally wanted to get out of the house, took a drive out to east county, we stopped to eat at a casino, the next day I could not breathe again, it was BAD again, well, there was cigarette smoke in the casino. Never before was I sensitive to smoke. It pretty much re aggravated the inflammation.

That is pretty much the beginning of this for me. I now have Your exact symptoms. Everyday, all day, I generally can not breath correctly. The cold caused inflammation that has apparently not cleared up. Yes I have tried Advair, for me it gave me a horrible, horrible headache, but it is so individual for everyone. I was on Asmanex, Singuliar, and still have albuterol. The doctor has now, taken me off all the meds. Except I have albuterol in my purse. I hardly ever use, it, I told him I could use it every day, but is that a good idea, he said I should use it only when really frustrated.

I have tried, a GREAT healthy diet, I eat very well, I drink tons of water, I have tried different breathing techniques. There is no rhyme or reason, at this time, why I am having these problems breathing.

I can sleep well, I don't have any coughing. It seems to generally have no rhyme or reason, for being there or Yes, some days it gets worse. In the humid summer, it seems to get worse. I now avoid smoke. I don't have a stressful life. Its there all the time. The breathing problem. My doctors describe it as not being able to get a "satisfied breath" the break over, I call it that you inhale, and then it gets stuck, you can't get that satisfied breath. It is so annoying as so many here know.

However, I have been on this forum, reading, and signed in yesterday, because when i saw that you have the exact symptoms, others writings each one was different with symptoms. I am hoping that there is maybe something we can figure out to help each other with something some bit of helpful information to be of help with this. Hopefully the Advair will clear it up for you. That would be great.

I know what you are living with. The good sign, for me is that is does get somewhat better, not all the way, but of course, I am hoping that it will get better and not return. I have a good doctor a specialist. I do trust his judgement. He was correct about taking me off the meds, as they did not eliminate the symptoms. So there was no reason to be on them. His feeling is time will hopefully heal this, as I have made improvements from where I started as you can see, but not there yet.

We have clear air here. I actually know what started this for me. It is interesting that we both are experiencing the same thing.

Thank you for replying. It is a frustrating thing. I can tell you for me, you have already helped, by reading your symptoms, meaning, now I feel that this exists so there must be someway to help us, as we are not the only ones. I am sorry you are dealing with this also, but there must be some additional explanation for us, and to find help.

Again, hopefully the advair will clear it up, please keep me posted. I have a doctor appot. on the 19th of next week, a follow up I go every 6 months unless I would like to come in sooner.

Try this is you like, sometimes it works for me. If you can't take a deep breath, to get the satisfied breath, try sitting up straight and taking the breath, or walk around the room or do some twists, to push air into your lungs. I know what a thing to do just to try to get a breath, but this is actually a clue for me. It sometimes seems that I need to push air to fill my lungs. Its almost like I need more air to fill my lungs to get that deep breath. Believe me I have tried so many different things.

Another thing I just thought of is I did have blood taken to do a full allergy test. I am not allergic to anything. You may want to try having an allergy test.

have a wonderful fresh air day to you all here in this forum

Post Edited (sunnyside3) : 1/15/2010 5:06:50 PM (GMT-7)


couchtater
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Date Joined Jul 2009
Total Posts : 14322
   Posted 1/15/2010 8:14 PM (GMT -6)   
Have you considered VCD? It's called Vocal Cord Dysfunction. The vocal cords go into spasms from acid overflow. Ask you ENT to scope your vocal cords.

Joy

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/18/2010 3:26 PM (GMT -6)   
Good Morning,
do you mean me? just hoping to find more info. Thanks again. If you do, I have not had any symptoms with VCD. No symptons other than the not being able to get a "satisfied" breath all the time when needed. Lings are always clear, no coughing ever.......

kinda feels like being stuck.

thank you again

puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/18/2010 6:37 PM (GMT -6)   
Hey sunnyside... how are you doing? I have been medicating myself for the past few days with not much luck. This post nasal drip is driving me crazy... taking Zyrtec, then benadryl and so far no relief. Have also had some mild tightness in my chest which I have had in the past but usually goes away. Have you ever had tightness in your chest or an ache between your shoulder blades? The 3 acupuncture treatments did not help I am sorry to say. I would do more if I felt any relief at all but it is an expensive treatment ongoing. Guess I will bite the bullet and start the Advair soon. Do you mind telling me what part of the country you live in? Just wondering if we are in the same area. I travel between TN and FL mostly.

Hope you are having a good week.

Puddycat

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/19/2010 7:17 PM (GMT -6)   
hello,
I hope you are feeling better by today. I went to my specialist today, no real changes to report. We are still thinking, most importantly he thinks this will go away. As you know for me its been a SUPER long time.

I don't have any tightness in my chest. I had even gotten a cold last December and it did not change my breathing either way, for the good or bad. Which I considered a Victory.

Then, I don't think I will try the acupuncture, here my guy is or was, the last time I went, not for this though, he is 75.00 per session. I bet that is the going rate.

I am in California. Southern California. We are having rain storms all week. Has your breathing Improved. I really hope so. Let me know how the Advair helps. I know you are concerned about taking it. I can tell you to help possibly, it gave me a headache, yes it is a bit scary but as soon as I stopped and the drug wore off it stopped. So maybe it will lessen any worry about having a side effect. Talk with your doctor. I have read here allot of people use it just fine with no problems.

Thanks again, for answering I was looking forward to hearing from you. As said, I would like to hopefully get some insight from people here, hopefully. The writings do offer some help reading about how others are coping. You just seem to have the similiar issue as I do, no one is exact, but it was like reading what I live with daily.

Take care

puddycat
New Member


Date Joined Jan 2010
Total Posts : 16
   Posted 1/19/2010 7:32 PM (GMT -6)   
Have you ever been on a site call breathing.com? I found it thru another book I was reading. It makes a lot of sense to me. It is all about breathing and there are many testimonials of persons with alll kinds of breathing problems who have healed themselves by learning to breathe properly. Anyway, I took their free test and basically flunked it big time!

The past few days have been not so good and I cannot link it with anything going on... it just remains a mystery. I may try some of the breathing techniques . Still resisting the Advair at this time.

Hope you have good days ahead. It is interesting that your dr. says he thinks it will go away and my dr. says that you can form a habit if it continues a long time?? I hope your dr. is right!

Take care

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14322
   Posted 1/19/2010 7:42 PM (GMT -6)   
I take Advair and I've had no troubles with it.

Joy

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/19/2010 8:14 PM (GMT -6)   
hi couchtater & puddycat

nice to hear from you both. how nice to have advair work for you. Also it then must make a positive difference with your breathing too. how nice is that!

i will go there after I write here to you both. I told him that I went out to the first snow here in California, and it was also a higher elevation. I had not problems at all, we even climbed thru heavy snow, having fun.

are your lungs clear? mine are all the time. It seems to be a clue, meaning, he does not define it as asthma, at least typical asthma. So if you get a moment, are your lungs clear, with no weezing. I know you can have asthma with no weezing, but I also don't have the "typical" asthma symptoms.

I understand about the Advair.

I am going to check out the site. its kinda weird writing here whereas everyone reads it!.......

puddycat
New Member


Date Joined Jan 2010
Total Posts : 16
   Posted 1/19/2010 8:17 PM (GMT -6)   
Glad to hear of the no symptoms. does it control your problem? Do you have problems getting a "satisfied" breath like me and Sunnyside? Have had some chest tightness which I know is associated with GERD but I have no other symptoms of GERD. I eat healthy and eating does not bother me. I can lie down immediately and that does not bother me either. My breathing DOES bother me. I don't feel like it is life threatening like an asthma attack but is is ALWAYS there!

Hope you have a symptom free night and thanks. Everything everyone says has value is trying to figure out what to do.

Puddycat

puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/19/2010 8:23 PM (GMT -6)   
Sunnyside,

Yes I feel as tho my lungs are clear all the time... no coughing, wheezing phlem or anything to indicate a lung problem except the lack of breathing. So glad you had a good time in the snow. I also was at the 13000 elevation in the Rockies last fall and had no problem with breathing other than "my" normal (which as we know is not normal). If you want to correspond by email from time to time just let me know.
Puddycat

sunnyside3
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Date Joined Jan 2010
Total Posts : 10
   Posted 1/19/2010 8:25 PM (GMT -6)   
.......that is just what I went over with my dr. today, about I don't feel like it is life threatening but, yes it is always there. I actually called him for this appoit. 2 weeks ago, the frustration builds up.

Can you walk, without getting short of breath? do you use albuterol and it does work for you. these are some of the things he again went over and asked from me. He said it was a good sign the albuterol will help, i said yes, but it does not get rid of it for me

his way of thinking in regard to the meds for me, is he took me off the asmanex and singuliar as he said people with bad asthma are on that type of program. So for me I don't have "attacks" so he felt they were not needed for my case.

Post Edited (sunnyside3) : 1/19/2010 6:30:16 PM (GMT-7)


puddycat
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Date Joined Jan 2010
Total Posts : 16
   Posted 1/19/2010 8:40 PM (GMT -6)   
Sunnyside,

I do walk and exercise (weights) with no more problem than I have "normally"! I do not have "attacks". If I over exert on the treadmill or something like that I do get short of breath but I don't think it is any worse than anyone else who "overdoes it".

Seems like this is something that has just decided to make itself at home with us! I truly hope we find a way to "evict" it!

Have a great night.

Puddycat
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