Anyone with steroid allergies?

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snail
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Date Joined Jan 2012
Total Posts : 4
   Posted 1/3/2012 7:47 AM (GMT -6)   
I was recently diagnosed with asthma, but it turns out I'm allergic to Budesonide (Pulmicort), which the doctor said is quite unusual. He was afraid to prescribe other steroid inhalers but it seems like it would be worth trying in case my allergy is specific to Budesonide. Thankfully vetolin works but I'd like to have something to treat the underlying problem better as I have constant symptoms and daily attacks. I'm wondering if anyone has suggestions or similar experience with allergies to medication.

Red_34
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Date Joined Apr 2004
Total Posts : 21766
   Posted 1/3/2012 8:48 AM (GMT -6)   
What kind of allergic reaction were you having?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

snail
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/3/2012 10:04 AM (GMT -6)   
Basically as soon as I take it I wheeze and cough and have trouble breathing for about 20 mins, it eases off a bit then, but I continue to have trouble breathing and have a feeling of irritation in my chest for the rest of the day. During that time my chest is tight and sore (I feel a bit like I was kicked in the chest and winded) and I'm very sensitive to other triggers which set me off wheezing violently and coughing again. Taking the Salbutamol inhaler relieves the symptoms a lot but they come back as soon as it starts to wear off. During the four days I was taking it all my symptoms got worse and worse until I was even having trouble controlling it with the Salbutamol. I decided to stop taking it (the Budesonide) and go back to the doctor, it took about three days to get back to how I had been before taking it.

Post Edited (snail) : 1/3/2012 9:10:34 AM (GMT-7)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21766
   Posted 1/3/2012 11:33 AM (GMT -6)   
That doesn't sound pleasant at all! I'm sorry that you are having such issues. I am not allergic to steroids but I am sensitive to them. Have you ever been on oral steroids such as Prednisone?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

The CA Kid
Regular Member


Date Joined May 2011
Total Posts : 25
   Posted 1/3/2012 12:40 PM (GMT -6)   
Hi snail, ..i'm not a poster to this thread, but your question jumped out at me..My dear now departed mom had a cough, all her life. in my childhood, old fashioned cough med quelled it (w/codeine). yes, she was a smoker,,,,she quit, in the later 60s, took it back up when her weight shot out and stress levels too....but she stopped for good in the late 70s..but the cough was with her all her life, preceeded smoking. It was a debilitating cough. Worse around a cold, she would have fits of coughing. She was finally put on inhalers, in the 90s, all kinds!! she had them all, I think..they ALL made her cough WORSE...doctors would switch them around but also look at her, like she was crazy. NOT one MD or specialist she saw ever suggested she see an allergist, or asked about her environment. She lived in heavily treed areas, ALL her life, from infancy. Tree pollen and leaf mold is absolutely wicked for some people. In the 90s she was finally put on a round of oral corticosteroid, prednisone 60 mg to 0 in two weeks. She was high as a kite for the first week, cleaned all her kitchen cupboards...as she tapered off , but mostly after ending, she began to deteriorate, physically ......She suffered a complete bodily collapse about 4 weeks later...the slow decline was accompanied by 4 weeks of truly migraine level head pain-laying on the couch, increasing weakness-then the near collapse--we had to carry her to the car --I had gone to the doctor with her, the DAY before she did---he rolled his eyes, as tho my sweet mom was just complaining over small issues..he shrugged his shoulders--was clueless. I watched her literally brought back from this comatose state, intravenous Steroids given in the hospital, --I stayed right with her . TWICE this happened. None of the hospital staff knew this can happen in SOME people.........It led to tests and more tests, scans, all inconclusive, but expensive!.....The release from hospital meant she had to ingest another 6 week oral round of the SAME predisone, with another rapid 2 week withdrawal that resulted in ANOTHER complete collapse, trip to ER 2 night stay. By this time i had found reference to symptoms of renal failure in some corticosteroid users........and was able to communicate that to her doctors........She finally had an attending doc via the hospital that said NO---this drug requires a YEAR LONG withdrawal, a very long withdrawal...he knew about this reaction she had! here is my take, and I'm NOT a doctor, I'm a just reader, observer ....In personally researching Lyme disease, ...and our personal life histories,....I fully believe my mom could have had tick borne Lyme disease all her life and that was the cause of the cough (other things too) ....people fighting off an underlying bacterial infection/invader/occupier naturally have weakened immune systems. My mom was a health nut....mostly vegetarian (fishatarian--they ate salmon) , raw juices, homemade nut butters, whole grains, etc.. excellent at following good health. My self study came far too late to help her. I only learned about tree pollens very late, too. after suffering severe rounds of bronchitis each year...my sons and I lived in a home with 6 major offending pollinators, mature trees, all about 10-20 feet from the home itself! Lyme can be generational, hers very well may have been, if so,...she may have passed to me at birth! ...her mom family were farmers, in Dakotas and Wisconsin in the 1850s before migrating west...my mom grew up in CA Lumber camps!--her dad a lumber salesman, in CA. I think it is why I have troubles too....I've not been tested, but have had known tick bites. I just wanted to relate her history, because of the MANY expensive little inhalers she had to start and stop using...they made her cough WORSE, YES, and none helped her stop coughing.....had I known about TREES as pollinators, I would have told my folks to SELL their house, and MOVE. It is what indigenous peoples did if they found an area made them sick, they MOVED CAMP. :-) My Dad's Dad had terrible asthma, and he as well as my Pa (90!) also had a "tick exposure" history. I'm talking WHERE did/do you live, work?my entire family both sides were outdoor enthusiasts and farmers,,,my heritage. The ONLY time my G'pa was relieved of his asthma, was 2 weeks each year, --he took his family to the Oregon coast. healing salt air. I'm very fortunate to have oral histories and photos, diaries to back up the learning. I've asked my Pa LOT"S of questions, while I still can. I recommend pollen dot com. you can research plants/trees, even get a pollen counts, when they spike...last year my whole family suffered TERRIBLE...we are surround by red cedar, oaks, many variety, junipers,..to make matters worse...I read that city planners and landscapers choose male trees and plants as they are less "dirty" but THEY, are the pollinators! so the pollen count is hugely aided by the very hand of man. They reported our area of CA has tripled the number of asthma cases,...we had a real estate boom of 20 years...there is so much more PLANTED in trees, shrubs, grasses now than EVER was, naturally! oh, and pools!! Not only heightened pollen counts....but leaf molds can incite terrible reactions in many people....I hope you get you relief, somehow. I know the suffering, first hand. Her oxygen flow was pretty good...her airways were not constricted badly as they can be for asthma patients...and why the COPD was arrived at ...an umbrella diagnosis. I hope my story helps --it is why I occasionally tell it. After my mom passed away in 2010 (pancreatic cancer, they MISSED that, in all those tests) , I read that steroids should NOT be given to Lyme patients, can result in death. Her reaction to it? to me, says so much. She never fully recovered from her "experience" with oral prednisone, and often said HERSELF, had I known this would happen, I would have kept the cough, refused the drug. (and the cough was miserable) not a single doc suggested she see an allergist....

snail
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/3/2012 5:41 PM (GMT -6)   
Red_34 - No, I've never taken oral steroids, now I'm afraid to try because if I had that reaction to inhaled steroids swallowing a large dose could have serious side effects, on the other hand maybe it would do nothing. When you say you are sensitive to steroids, what kind of reaction do you have?

Now the doctor has given me Atrovent (ipratropium bromide) which helps me feel a lot better but from what I understand rather like salbutamol it just treats the symptoms not the underlying cause. I think the doctor is hoping that if he can get my lungs to open up a bit they will do some of the healing on their own.

The CA Kid- Thank you for sharing your experience, I'm sorry you and your mother had to go through such an ordeal. It sounds like the prednisone had a very exagerated effect on your mothers body. It is hard when you can't get a doctor to take you seriously. Thankfully the doctor did take me seriously this time. He said it's very unusual to have an allergy to the medication that is supposed to treat allergies but it seemed like that is what was happening.

Post Edited (snail) : 1/3/2012 4:46:09 PM (GMT-7)


Wheezy1978
New Member


Date Joined Sep 2012
Total Posts : 3
   Posted 9/18/2012 11:28 AM (GMT -6)   
ive have just joined this forum after a long and frustrating time with doctors and specialists ( whom have not really been that much better than than the GP. ) I was an asthmatic and a smoker, after 12yrs ive quit smoking and i was taking Seritide 125 inhaler for about 6mths after quitting, it gave me dry itchy eyes and made them puffy, that settled after time. After numerous complications with my breathing i ended up on the 500 dose of Seritide along with Singulair. after about 5 mths on singulair my face became really puffy and my eyelids swollen... so i stopped taking singulair, this reduced the swelling but it still remained, blurred vision also began to occur... after a few months more i reduced the dose to 250 and still really puffy face and heavy eyelids. my breathing was good, so i reduced further to back to the 125 dose. Still, the puffy face had to stop taking seritide. i was taking seritide for a total of 2yrs. i left it for a month trying to get by without a steriod inhaler and went back to Seritide 125 hoping to start fresh... very bad allergic reaction puffy cheeks, blurred vision, swollen eyelids and a general 'sedated' feeling in my head. since this i have tried

Asmanex - mometasone
Qvar - beclometasone
Clenil, beclometasone
sybicort - busonide and formeterol
Pulmicort - busonide
alvesco - ciclesonide
flixtide - seritide without salmeterol

i have a bad reaction to all of them .. swollen face, puffy eyes and heavy eyelids, feeling of sedation, extreme weight loss NOT weight gain! And importantly blurred vision, problems refocusing.
They are each as evil as each other, annoyingly Beclemetasone is the only one that makes my breathing worse.. the rest make my asthma feel great. the side effects are just not tolerable. this ahs been going on for about a year.

i have also tried spiriva ... eye problems and scary weight loss.

ive been to a specialist and they are terrible, and are not coming up with a solution and worse of all not giving me an explaination. they tell me i cant be allergic to the steriod, must be the propellant??? pulmicort is only steriod with no lactose or propellant.... cheeks really puff up like ive been to the dentist and makes me feel like i have the flu...

can anyone help with sugestions on alternatives? and has this happened to any of you?
singulair on its own isnt sufficent.
i am really concerned that the medication i desperately need im allergic to!!!

any input is appreciated, thankyou

Wheezy1978
New Member


Date Joined Sep 2012
Total Posts : 3
   Posted 9/18/2012 11:38 AM (GMT -6)   
i would like to add that im currently taking a short course of prednisone and my face dosent go anywhere near as puffy and my vision returns to 20/20..... and this is a strong steriod. Yet the inhalers give me really bad eye problems...??

Opergirl
New Member


Date Joined Jan 2014
Total Posts : 2
   Posted 1/5/2014 8:11 PM (GMT -6)   
Hi Wheezy1978, I just found your post desperately looking for something or some way to understand my very good friend's steroid allergy and extreme weight loss. Have you had any luck with finding solutions?
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