my cure for chronic hives-it took me 6 months of going to doctors to figure it out

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Louise 67
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Date Joined Oct 2014
Total Posts : 1
   Posted 10/30/2014 12:19 AM (GMT -6)   
I also suffer from chronic hives and am currently battling an outbreak that always seems to reach its peak during the nighttime hours. This horrible condition started the last week of June and except for trips to the emergency room being treated with prednisone and antibiotics which gave me short term relief with no break-outs, have started to break out during the night despite the medication that my allergist has prescribed for me. She has me on 40 mg of Loratadine and 80 mg of Famotidine which seemed to help the month of September and a good part of this month (have been seeing her since the last week of August). For the last week and one half, have not looked forward to the night time as that is when I break out. Since our climate here gets cold starting in October, have had to have the heat on, which does not affect me during the day, only at night, believe this is due to my body build up of heat when I sleep. As I read thru the various posts, identified with the symptoms of Mast Cell Disease of which I have several, including severe headaches and joint pain. The posts have been very helpful as I have gained so much information and unfortunately, nice to know that I am not alone in this horrible condition. Even though I have had this disease for a relatively short time, at times, I felt so overwhelmed and alone, although my husband has given me so much emotional support. In just a few months, I have gone from an active 65+ senior to someone who takes the better part of the morning for the meds to kick in and the hives and rash to temporarily disappear. I wonder if this why I have had a false positive for Lupus, which was ruled out by a specialist well over a year ago and also have thyroid condition. As I have an appointment with my allergist in the morning, am going to request she test for Mast Cell Disease and also mention the meds that seem to be working for others on this post. All of you have given me a lot to think about and for that I am truly grateful.

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 7961
   Posted 10/30/2014 7:09 AM (GMT -6)   
i'm still not sure exactly what a hive is besides the one's that house massive, giant flying kamikaze killers, but my crazyitchydrivingmemad bumps went away and never returned once i gave up eating ALL grains -

77JACER
New Member


Date Joined Nov 2014
Total Posts : 1
   Posted 11/14/2014 1:16 PM (GMT -6)   
Hi everybody.

I registered on this site tonight, having read numerous threads about chronic urticaria. It's been really useful and comforting.

So here's my story so far with this frustrating and upsetting diagnosis...

1st August I came out of a Jacuzzi and my husband thought I had been bitten. During August I noticed when I had a hot shower I would get a few large welts but they quickly subsided and were not spontaneous in their nature at any other time.

I consulted my GP end August, who advised me to avoid hot showers and use Aveeno bar and nothing too scented. No luck with that, still developed itchy welts after showering but they always quickly subsided. Saw another GP at the practice on Sept 16th who prescribed Fexofenadine 180mg once per day. No change after showering. I started feeling worse around the 27th of Sept, with generalised itching and a few welts under my bra through the day, so no longer isolated to showering. GP upped dose of Fexofenadine to 180mg twice daily. My symptoms continued to slowly develop and I consulted a dermatologist on October 10th. Diagnosed cholinergic urticaria and he upped the dose to 2 x 120mg Fexofenadine morning and night. I avoided hot showers for two weeks (not fun having ice cold showers!) but continued to have spontaneous breakouts during the day and a real flare when wakening in the morning. So generally, it felt like the more I took the worse I got, but he says I can't be allergic to it so I'm confused.

I saw him again on the 24th October, he gave me a 10 day course of Pred, 30mg per day and told me to continue Fexofenadine 120mg twice per day. The pred worked well, but I still had the crawling itchy feeling with a couple of welts only mainly towards the last 3 days of the course. Went back again on the 10th November. He said my blood were normal, white cell count slightly elevated at 11 but that could just be a sign of a recent infection. Refused to prescribe more Steroids which I understand, so instead has switched me to Levicetrizine 5mg in the morning, and Singulair 10mg at night. That was Monday, and I can honestly say it's worse than ever, the hives are breaking out all day every day, even after I take the antihistamine, they have progressed to my neck from my torso only and are now underneath my hair. I'm demented, a feeling I know you will all share. Mid week I tried to take an extra Levicetrizine but it made no difference at all. Am I being too impatient or am I missing something here...who knows!

I don't know if any of you can relate, advise, help in any way, but it feels good to let off some steam to people who can empathise. Good luck to all those suffering xx

Alcie
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Date Joined Oct 2009
Total Posts : 4896
   Posted 11/14/2014 6:49 PM (GMT -6)   
Welcome to the forum 77JACER.

It would help you to get more replies if you would start your own thread. Use the "post new topic" button.

Meantime, have you seen an allergist?

Since it seems to be a skin problem starting when you shower, have you considered it could be the soap, shampoo or skin lotion you are using? Laundry detergents can cause this when you put on clean clothes too.

You could have a food problem, but sometimes people are sensitive to SULFATES in these products.

www.housemouse.com/sulfites.htm Housemouse has some good ideas.

dalita
New Member


Date Joined Jan 2015
Total Posts : 5
   Posted 1/5/2015 8:56 PM (GMT -6)   
I am too dealing with this horrible condition. At first I tought it was only me but now doing some research I see that is fairly common. I have been dealing with them for 4 months already, my life has changed rapidly. I also have been taking a lot of meds and drs dont seem to help me with this problem, I asked my dr about xolair but he says he doesnt recommend it as it can cause longterm side effects. Im starting doxepin today I hope that works, please help me out i want to know what has helped for you!

dalita
New Member


Date Joined Jan 2015
Total Posts : 5
   Posted 1/7/2015 10:59 PM (GMT -6)   
Hello i have too been dealing with hives for 4 months i have already tried a lot of combinations of medicine but my body doesnt respond to any. Mr dy says the next step is to try xolair injections.At first i was really excited dince i have seen a documentary about it, but not that i have read the side effects im not sure if i really want to try that. Has anyone tried it ? And if so what id your advise.

caveangel56
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 2/15/2015 8:49 AM (GMT -6)   
ive been reading all these post and more for the past 2 hours. i gotta say, MAN! have i learned a lot! ive been dealing with this since i was a little girl. my siblings and friends used to run their finger down my arm just to watch the welt develope! the condition would subside for awhile, maybe a year or years and always returned. while reading these posts, i saw where someone mentioned birth control pills helped and its then that i realized i didnt have any welt/itching outbreaks for years while i was having kids and on birth control. then after i had a tubaligation, it was a long while before they arrived again. a doctor said that i had psoriasis. well i think i did/do but i still have the welt thing going on again and its totally different from psoriasis. the latest of the welt thing has been going on for the past year and severely the past 6ish months. i deal with it with some itch creams which rarely help but mostly while at work i just get so busy that the itching subsides alone as i cant scratch! lol at night though, its really hard as it keeps me up. trying not to scratch, nothing stops it so i resort to a benedryl tablet just to sleep as i have to be to work at 6a.m. but that is hard and i dont like to take them on work nights as i might not wake, sleep through the alarm.
so reading on, there is something about the "mast cell" something or other. that makes sense too as i also have severe headaches. like a stabbing through my temple that last anywhere from 30 seconds to 2 minutes. and i also have ocular migraines (having one now.)
the heat thing..... well thats confusing cause we live in florida and ride (motorcycle) daily. the sun helps the psoriasis and tends to be hard on my legs where the welts are concerned.
the "leaky gut" not sure about that, havent read much on that yet but some of the symptoms are quite familiar.
so...... i plan on seeing a dr. about this and will take all these topics with me. hopefully something will give me a true diagnosis and more so i will find an all natural way to take care of this problem.
thanks for all the info!
fellow welters!!!!!!!! unite!!!

super20dan
Veteran Member


Date Joined Sep 2014
Total Posts : 808
   Posted 2/16/2015 6:13 PM (GMT -6)   
i am also glad i saw this thread. i too suffer from bouts of hives and will try this combo out. many thanks. i cant tolerate presidsone

May81
New Member


Date Joined Feb 2015
Total Posts : 1
   Posted 2/25/2015 3:29 AM (GMT -6)   
Wow I am so glad I've come across this forum and finally have people that can relate to this awful problem! My first episode was about 14 years ago and it's flared up again about 6 months ago. After months of begging to see a specialist my doctor finally referred me and I saw an immunologist yesterday; he's determined I have auto immune chronic urticaria. I've been taking prednisone for the last 6 months along with antihistamines but have found little relief. My doc yesterday prescribed Zantac along with Zyrtec and prednisone and it was so nice to wake up rash free for once! I've found though today after eating lunch that my hives cane back - but only on my face / neck areas...wondering if that's to do with the Zantac regulating acid in the trunk area? All my blood tests and biopsys have come back clear for common allergens and my immunologist feels my issues are not allergy related, but an auto immune response.
I tried doxepin for a week but hated the side effects and found although the rash wasn't as itchy it was still present.
My face is still a mess which is awful! Hoping it goes down again soon!
I'm wondering what everyone's experience has been with changing diet? I'm thinking of avoiding gluten, dairy and sugar and adopting more of a paleo type diet in hopes that avoiding foods that are considered to cause inflammation might help? I don't have any known intolerances for gluten or dairy but I guess like all of us, I just want to do whatever it takes to get relief!!

caveangel56
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 2/25/2015 6:11 AM (GMT -6)   
turn hey i want to add something to this post.. hopefully will help some or everyone. i read a small note somewhere in one of these post where she mentioned something about deoderant. well i was having a raging itch fit the other day after work. it was definately brought on mostly by nerves as the day at work just plain SUCKED! i took a shower and really scrubbed my feet and ankles as that was the worse of the itching. well i got out and it had not helped. i remembered the deoderant comment and so i tried it. it worked. the itching was stopped in less then 5 minutes!!! i used Secret so i dont know if other types work but hey,, give it a try!!

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 7961
   Posted 2/25/2015 8:53 AM (GMT -6)   
May81 said...
Wow I am so glad I've come across this forum and finally have people that can relate to this awful problem! My first episode was about 14 years ago and it's flared up again about 6 months ago. After months of begging to see a specialist my doctor finally referred me and I saw an immunologist yesterday; he's determined I have auto immune chronic urticaria. I've been taking prednisone for the last 6 months along with antihistamines but have found little relief. My doc yesterday prescribed Zantac along with Zyrtec and prednisone and it was so nice to wake up rash free for once! I've found though today after eating lunch that my hives cane back - but only on my face / neck areas...wondering if that's to do with the Zantac regulating acid in the trunk area? All my blood tests and biopsys have come back clear for common allergens and my immunologist feels my issues are not allergy related, but an auto immune response.
I tried doxepin for a week but hated the side effects and found although the rash wasn't as itchy it was still present.
My face is still a mess which is awful! Hoping it goes down again soon!
I'm wondering what everyone's experience has been with changing diet? I'm thinking of avoiding gluten, dairy and sugar and adopting more of a paleo type diet in hopes that avoiding foods that are considered to cause inflammation might help? I don't have any known intolerances for gluten or dairy but I guess like all of us, I just want to do whatever it takes to get relief!!



yes, yes, yes, please try making some diet changes - all my "itchies" disappeared when I gave up all grains - not saying it will help you, but it's worth it to find out -

and for cripes sake, GET OFF THE PRED - that stuff is just plain EVIL !

good luck 81 :-)
dx'd with pancolitis 12/21/03
in submission - 2 + years no meds
current supplements:probiotics, vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 2x/week- no gluten, rice, corn, or soy & limited sugar - just good, healthy food, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with :-)

mommyof479
New Member


Date Joined Feb 2015
Total Posts : 1
   Posted 2/26/2015 10:47 AM (GMT -6)   
I am glad to have found this thread just now. I have suffered with hives for 4 years now. I was diagnosed with 6 different things but all are pretty much saying we have no clue why your breaking out. The one thing I am not sure is related to my hives is my reaction to pressure (walking without shoes, using my hand to help me get up off the floor) things like this I just don't do because it makes that spot swell instantly along with much pain. I do not react with hives during the winter at all no matter what I eat. Even though I try and stay lowercarb because of weight issues this was something I tried this winter for my own knowledge. When spring & summer are here BOOM here come the hives. That is what is happening now. they have been minor compared to last season but still the size of tennis balls on my forearms. Coconut oil has helped with the itching a tun! last season I survived on steroid shots all throughout, along with 6 benedryl and 1 zertec per day. I really really want to be more natural this season to see if it makes a difference. I am ingesting coconut oil in my coffee because it is suppose to help with the immune system. Hopefully it will repair something. I also read Vitamin D3 helps so I will try this also. I was almost in tears reading all these comments because it brings back how depressed I was last season and I don't want to go through that again. When it gets bad my hives will cover my whole body and the large ones will be larger than my calf. I do have allergies to NSAID meds, cats, ragweed, dogs, and fruit. These are what I've been tested on with positives. All my blood testings have been negative. I had to stop my testing with the allergy clinic when my insurance stopped covering the tests saying they weren't necessary.

caveangel56
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 3/7/2015 4:14 PM (GMT -6)   
i wanted to to say to "mommyof479" im glad i read your post, i didnt mention in my post about the "pressure" welts. just last night i opened a two liter platic twist bottle and for over an hour i itched scratched and welted around the two fingers and my thumb and thumb pad. it was horrible! many times at work i have to get on my knees to retrieve stuff on the floor shelf and by the time i get home my knees are swollen and itch horribly!! i havent found any quick relief for that other then an hour or two of wrapping my knees with a cold wet towel.
and to "juststud", with everything you have cut out of your diet,,,, what DO you eat and drink??
i agree with you on the fact that prednisone is pure EVIL. but you also did bring up an idea.... well water. i have been using city water and its real bleachy! i think i need to keep track of how i feel during the heavy bleach days and not so heavy bleach days. i dont have access to well water so do you have any idea on how to "clean" up the city water???
love all these posts!!

Himain1
New Member


Date Joined Mar 2015
Total Posts : 1
   Posted 3/8/2015 12:00 PM (GMT -6)   
Try chlorhexidine glauconite 4% solution.
Over the counter, first aid antiseptic/anti microbial skin cleanser!

It's primarily prescribed prior to any major surgery and used once daily, for 7 days prior to surgery. I suffered for 3 years, went to 4 doctors without a proper diagnosis for rash/hives.

I recently had major surgery ( of course unrelated) in which I had to use the above antiseptic/anti microbial body wash. It dried my skin out but I have been RASH FREE for 7 weeks!

Please try it. I sympathize with all of you. It's worth a try and inexpensive.

jaminhealth
Regular Member


Date Joined Feb 2015
Total Posts : 250
   Posted 3/8/2015 6:30 PM (GMT -6)   
grapeseedextract.com

I've been taking these OPC's going on 20 yrs and in the list that Grape seed
addresses, hives are listed. I've never had hives...and never take anymore drugs for allergies/sinus issues since 1995, no drugs.
OA from age 18 to late 70's....complications from hip replacement in 2010...such a terrible outcome.
Fibro dx in 1999

All all the other "stuff" most deal with....I take 95% supplements for my health care...
Grape Seed Extract and or Pycnogenol have been lifechanging for me, 20 yrs on them soon.

Love the SOM and AA Principles....

Keep it Simple, Progress Not Perfection, One Day at a Time..

stargazer416
New Member


Date Joined Mar 2015
Total Posts : 1
   Posted 3/30/2015 1:21 PM (GMT -6)   
Hello,

I have been reading all the posts and I'm trying to find a common denominator with everyone here. I have been suffering with hives for the better part of 5 years now. I had a bout of it when I was 8 years old and was told it was from the acid from all the oranges I ate.I stayed away from anything with citric acid in it and they never came back until now. Now I'm 57 I have tried process of elimination on everything from detergent's to the food and what I drink all to no avail. BUT I did notice that when I go into a store that has florescent lights with no covers on them I will have a a very bad attack of hives.I also do jobs for people that have storage units and if I'm in there for to long without being covered up real good it seems like the dust mites attack and then I will break out. So far the only thing that has helped me is an antihistamine that I take at night because it makes me drowsy and I use Witch hazel on cotton to wipe the hives down and It seems to help with the itching. My question here is there an age group that this is happening to and where is it happening.Like I said I'm 57 female I'm on Long Island NY. Thanks for any replies.

Peepee
New Member


Date Joined Jan 2016
Total Posts : 3
   Posted 1/3/2016 7:45 PM (GMT -6)   
Ive been suffering now for the last two years the first year i took prednisone but cant stand the side effects like weight gain ect... Now ive bee off for a year and at times i am so miserable i dont know what to do. Ive been to a naturopath i spent 500 dollars in three months and no diffrence i can't afford it anymore ive tried everything nothing works. I know with a clean diet it helps. Today i went to the clinic and he prescribed me some zantac and reactine hope it helps because this is delibitating

Peepee
New Member


Date Joined Jan 2016
Total Posts : 3
   Posted 1/3/2016 7:52 PM (GMT -6)   
Im new at this so i would just like to add for me its not hives but bad rashes and it is also worse at night when im trying to sleep im happy i found this forum because i dont feel alone in my struggles

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 1/4/2016 11:07 AM (GMT -6)   
Hi PeePee,

Welcome to the forum! You certainly aren't alone in your struggles. I hope those new prescriptions give you some relief.
Allergies and Asthma Forum Moderator

oldstylin
New Member


Date Joined Jan 2016
Total Posts : 2
   Posted 1/4/2016 4:59 PM (GMT -6)   
I've had them off and on for almost 20 years now.
It seems like things work for a while and then stop working and I need to try something different.

Things that have worked for a while:
Claritin
Zyrtec
Zyrtec with Tagamet
Doxepin
Thyroid medication

The Doxepin actually never stopped working. The doxepin is effective but a pain as it made me extremely drowsy. Even taking it at night left me sluggish the next day. I also personally found it lead to weight gain without any change in eating habits.
After a few years of being on it, my doctor mentioned that there had been studies showing an abnormal thyroid level to be a contributor to hives as well. Up until recently I had been just using thyroid medication to control them for almost the past 10 years before they recently came back.

Soberchick
New Member


Date Joined Apr 2016
Total Posts : 1
   Posted 4/21/2016 8:58 PM (GMT -6)   
Hello everyone! I have had hives for 8 months now. Mine don't itch which I thank God for everyday. So far I have had 3 biospies from 2 dermatologists and an allergy test from GP dr. and blood work. My doctors are not even interested in figuring out why I have them! Uggh! Anyway I have done it all! External irritants are not the problem. Food is not the problem, (although other people's post where their hives are itchy I would say you have a wheat sensitivity). My hives are worse in morning and at night. They dissipate with movement during the day. They are worse with heat/sun/pressure. So now I am on to Chinese medicine and acupuncture. Damp-Heat, my Liver, stagnation etc. I took Xiao fen wan which helped me for awhile but is not working now. When I take Benadryl with Pepcid the hives go away almost for 24 hrs. I am so over it! I have had psoriasis for 35 years which is manageable now due to me changing my diet but these hives are baffling and I am getting discouraged with all the money I am spending and the pills I am trying/taking. Thank you all for listening!

Tired&itchy
New Member


Date Joined Jun 2016
Total Posts : 2
   Posted 6/30/2016 1:51 AM (GMT -6)   
I am new to this forum, I have registered, I cannot find my post on here??

Welcome to HealingWell. Your post is in another thread here in Allergies & Asthma, and someone commented on it after you wrote it. Read it here: www.healingwell.com/community/default.aspx?f=7&m=3601102&g=3659380#m3659380

Post Edited By Moderator (LanieG) : 6/30/2016 5:32:27 AM (GMT-6)


oldstylin
New Member


Date Joined Jan 2016
Total Posts : 2
   Posted 7/18/2016 7:08 PM (GMT -6)   
Just wanted to give everyone an update and what is working. As noted a few posts back that I've had hives off and on for 20 years and they had reappeared about 8 months ago.
I ran the gauntlet of going back and getting on combinations of claritin, zyrtec, singulair, doxepin, vitamin D, tagamet. They weren't really working.

Allergist wanted me to go on Xolair for which I got approval for. I wasn't that crazy about going on it. I'm also a Type 1 diabetic and I deal with the threat of passing out from too much insulin daily. And I did not want to also have to deal with the risk of anaphylaxis. As a last ditch effort I decided to try and go gluten free before starting the Xolair even though I'm negative for Celiac's. My hives are almost entirely gone. And while I have stayed on the medication i've been taking above, I've been weening myself off of that as well. I'm fully off the doxepin and will start trying to phase others out as well now also.

Good luck to everyone.

lniese
New Member


Date Joined Sep 2016
Total Posts : 1
   Posted 9/26/2016 9:13 PM (GMT -6)   
Hi,

I broke out in hives all over my entire body down to the soles of my feet three months ago. I got a steroid shot and was started on a steroid burst. I didn't get any hives for a week and then it came back with a vengeance. Since then, I have been taking 20 mg of zyrtec a day - I don't take Benadryl because it makes me drowsy. I break out in anywhere from 5-20 red, raised welts a day that last about 2 days. The zyrtec makes them not as itchy but it is still a nightmare. Sometimes I'll wake up with more spots, some days just a couple. When I couldn't take it any longer I went and got blood work done and got tested for allergys. my thyroid, liver, kidney labs came back normal and I was not allergic to anything. I hate not knowing what the cause was! I received another steroid shot and was put on a slower steroid taper - 20mg/day for 2 weeks, then 15 for 2 weeks, then 10 then 5 - it didn't help AT ALL!!!! The steroids did absolutely nothing. I got approved for xolair and I am not sure I want to spend the money if it doesn't work. Just curious - how much did people here spend on xolair and was it worth it? I may start taking zantac on top of the zyrtec and see if that helps! Thanks friends.

brent124
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/8/2017 1:24 PM (GMT -6)   
Thanks to those who suggested Zantac. I've had Hives for about a month now and was trying multiple anti-histomine's and double dosing these with moderate success, but the Zantac cleared them up pretty much immediately.

Hope it lasts!
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