Bringing this back up for you to read!
Hello, I too have asthma, adult onset at age 30, am now 49. I started out with shortness of breath. which they did the lung function test. Went through a male chauvenist doc and made me try antidepressants. He thought my shortness of breath was depression. Yeah. so I went to another doctor. Had allergy testing and more new inhalers. Then I started with sinus problems. But i had allergy problems for years. Had four sinus surgeries and still no luck with infections. I was to the point of having to have a IV port put in, I was already taking antibiotics monthly. So I had it. Went to herbs and helped. But then I started having other problems, gained weight and even though I was using my inhalers like I needed to, I started with shortness of breath. Then my muscles started getting tired with any kind of exurtion. After another ENT and gastro doc and rheumy doc. along with a pulmonary doc, they ended up telling me I had an elevated ANA which in short they think I have an autoimmune disease. I didn't want to take the malaria meds because of side effects I heard. One night I was flipping through the channels and heard a young woman say she has asthma along with sinus infections. I stopped to listen to it. She said she has Churg's Strauss Syndrome. I immediately went to the internet to look it up. Boy did that sound like me. I could not believe the symptoms I read were exactly like mine.
Some of you may want to look this up. I also have a high allergy blood level. which is part of this too. I also have nodules growing under my skin which do not hurt, well a couple of them do. Which the family doc always tells me they are just cysts. When I read nodules under the skin are one of the symptoms, I almost cried because of how all these symptoms were what I am experiencing. So I wrote a letter to my allergy/asthma doc today and sent it. I am hoping he checks my blood reports against the things to check. My family doctor thinks I have lupus or scleroderma which I could have, but I think the churgs strauss is the one.
Please some of you who have asthma and sinus and fatigue that does not go away and muscle weakness, look this up. I am a 49 yr. old woman who after 19 years of struggling with not being believed I am going through physical problems may finally get a doctor to listen and help. It's a rare disease, but the one article I read it's more common now then it had been. What was so frustrating was that I was using my inhalers and taking singular and I still had shortness of breath. Then my family doc said it's muscle. well yes it is. The pulmonary doc only wanted to do a sleep apnea test, he would not check into anything else. Then my cousin suggested I see the allergy doc, and he found some things that the others would not even check for. So that's why I sent him this letter about the churgs strauss disease. If it helps any of you, I will be glad. Good luck.