Chronic Idiopathic Urticaria

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thatgirlmarie
Regular Member


Date Joined Oct 2015
Total Posts : 89
   Posted 8/3/2016 1:21 PM (GMT -6)   
Hey all! I mostly post in the Crohn's forum but since I've had CIU for 16 years I figured I'd come over here and see if anyone else does. I was diagnosed at 11 years old after being chronically itchy (burning and hives of course). I was put on Doxepin daily and the side effects were awful. At 21 I was living in NYC and saw a new allergist who put me on 5mg Levocetrizine/Xyzal and I've had excellent results with that. I was tested for mastocytosis (i think?) when I was diagnosed with Crohn's but apparently it was negative.

Anyone else with CIU and what treatments worked for you? My allergist has never been very adventurous in other treatments because this works well and it has no side effects but I was just curious.

thatgirlmarie
Regular Member


Date Joined Oct 2015
Total Posts : 89
   Posted 8/3/2016 1:28 PM (GMT -6)   
Just wanted to add, I also have rosacia around my nose (just around the nostrils), a patch of eczema on two knuckles on my right hand, and also dermagraphia. My symptoms are gone when I'm on the Xyzal but if I forget it for a day they come back and are about 20-30 minutes every few hours. Everything makes me itch then and the hives and itching come on completely unprovoked. I also have weather/exercise induced asthma but I haven't used my inhaler in ages.
Diagnosed Crohns (in October '15 after 6 years of GI symptoms and family history of Crohns and ulcerative colitis.

Currently: Apriso - double dose 1x daily.

Next scope Aug 9.
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