Tongue Swelling

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Deb2
New Member


Date Joined Aug 2016
Total Posts : 1
   Posted 8/23/2016 10:17 PM (GMT -6)   
I started having tongue swelling about a year ago. My allergist said that it is not an allergic reaction to medication or food but rather idiopathic angioedema I am taking Zyrtec, Zantac, allegra, hydroxizine and am now on a course of steroids. It usually starts in the early morning hours with a hive on the back of my tongue which eventually leads to my entire tongue swelling. It seems to be happening every two weeks now and my allergist is considering a daily dosage of steroids. I am just not accepting that they cannot determine what is causing this. Has anyone had this experience and what have you done to stop the madness.....

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 8/28/2016 3:07 PM (GMT -6)   
Okay, Start keeping a journal, and start by eliminating one medication every two weeks to see if a medication is causing this, if not then you can restart the medications and then start eliminating one thing you eat for a few weeks and see if you can pinpoint a food cause.
First sounds like a reaction, second keep benadryl on hand then eliminate a medication cause if it's not a reaction to a medication then you might need to be food allergy tested and get a second opinion from another allergists.
This allergists is not helping you when your having some sort of reaction. you can also google all those medications on www.drugs.com and see if any of your reactions are common on any of those medications your currently taking...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 8/28/2016 3:09 PM (GMT -6)   
oh, and yes you can have an allergic reaction to steroids, I have an allergy to the medrol dose packs of steroids...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Jayb14
New Member


Date Joined Aug 2017
Total Posts : 2
   Posted 8/12/2017 11:25 AM (GMT -6)   
Deb2 - I have been diagnosed with idiopathic angioedema and unfortunately Prednisone helps it. Also, Xolair injections have helped me a lot. If you want to talk further, I have had a long journey with this.
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