any advice for chronic hives

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33dolphin
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Date Joined Jun 2006
Total Posts : 5
   Posted 6/21/2006 6:25 PM (GMT -7)   
I have had chronic hives for 9 months now.  I work at a medical clinic and have been working with a PA that has a background in dermatology and an md that specializes in allergies.  I have been taking 400mg tagament 4 times a day and an allegra once a day.  I have tried zyrtec, but it makes me too tired at work.  I have tried singular, claratin and doxepin as well.  They keep telling me that they will probably never be able to find out what is causing my hives.  This morning I started prednisone, which I am supposed to take for 10 days.  I am very weary about taking prednisone b/c off all of the s/e.  I have been walking outside in the evenings and after walking 40 mins, my legs get covered with hives and they slowly spread to my arms and sometimes my face.  By morning, they are pretty much gone.  I went to a tanning bed and got burnt on the back of my legs and that night, the hives were the worst they had been---I have been going to tanning beds on and off for 10 yrs.  I need help!!!!

Red_34
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   Posted 6/26/2006 2:25 PM (GMT -7)   
Hi and welcome to Healingwell. 10 days of Prednisone shouldn't cause too many side effects and if nothing else works I would definately give it a go. It's the long term use of Pred that can cause more severe side effects. What dosage did they give you? The main thing that concerns me is that if they will never find the cause of your hives, taking pred would be same as just "postponing" your hives? What happens when you go outside and wear sunblock, do you still get hives?
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dannylee
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Date Joined Jun 2006
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   Posted 6/27/2006 9:37 AM (GMT -7)   
I was supposed to take 60 mg a day, but when I went to get the script filled, the Pharmacist said that was a high does, so I have only been taking 40 mg.  It makes me feel real groggy and out of it and am feeling very swollen, especially my tongue.  I have tried using sun block in the sun and it does not help.  The prednisone had helped a lot with being out in the sun and walking outside, but am afraid the hives will come back as soon as I am done with the script.  I started getting break through hives yesterday with being on the prednisone, so I am about to give up eyes

sami-jo
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Date Joined Apr 2006
Total Posts : 326
   Posted 6/27/2006 11:44 AM (GMT -7)   
Hi, I usually post on IBS or anxiety forums but saw your post and just wanted to tell you I have been there with the hives and I feel for you. The only thing that helped me after trying all of the meds you have plus some more including atarax and cyproheptadine was zyrtec. It did not make them go away but did make them less itchy. But yes, as you said, it made me sleepy, too. The prednisone did work for me, I could take about 15mg a day to hold them at bay, but didn't want to live on prednisone. I had mine for over 6 months- they never went away- were the same night or day all the time and all over my body including my face and scalp. I was pretty disfigured and did not like to go out because of them. I had all sorts of biopsies and saw many specialists including dermatologist, allergist and rheumatologist. Finally, a new dermatologist made the suggestion that possibly it was yeast related. I took an anti-fungal and changed my diet to exclude all sugars and they gradually went away. Maybe the were just ready to go away or maybe it was a yeast overgrowth in my intestines that was causing them- I don't know but just thought I'd share that. The only other thing I could offer is to make sure your thyroid is okay- in my quest for a hive cure I read of several cases caused by thyroid problems. This all happened to me 8 years ago; they have come back 3 times since but have only stayed for a few days- I take zyrtec and watch what I eat and they go away. Good luck, I hope you find something that helps you.
Sami

dannylee
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Date Joined Jun 2006
Total Posts : 2
   Posted 6/27/2006 4:53 PM (GMT -7)   
Thanks for your response and suggestions.  I have had my thyroid checked, probably about a year ago before all of this started happening.  I actually found out I am lactose intolerant and cut back my dairy while using lactaid pills.  For awhile, I actually thought maybe I had grown to be allergic to milk, but then started getting them without milk too.  I am not liking the prednisone at all, and like you said, it is not a good long term plan.  I guess I need to just wait it out and hope they go away, but it gets so frusterating, especially when they go away for a couple of days and you think you are in the clear!  I am going to see if the PA I work with will do a complete blood work-up, and if everything comes back normal, just go witht he flow.  Thanks again!

33dolphin
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Date Joined Jun 2006
Total Posts : 5
   Posted 6/28/2006 6:28 PM (GMT -7)   
sorry------dannylee and 33dolphin are both me :)

Red_34
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   Posted 6/28/2006 6:43 PM (GMT -7)   
Please remember that that multiple user names are against forum rules. Pick one and go with it to avoid confusion :)
@--->--Sherry--<---@
Uc(Left-sided) since 1992 - Meds - Colazal, Canasa, Biotin,Calcium...flaring since December 2005 but seeing the rainbow after the storm!
Secondary Raynauds Syndrome since 2004
Fibromyalgia since 2006
Co-mod for Ulcerative Colitis
Moderator for Allergies/Asthma
Continue helping others such as yourself by donating to Healingwell, every penny counts!
 

 
 


boybluega
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Date Joined Jun 2006
Total Posts : 1
   Posted 6/30/2006 12:13 PM (GMT -7)   
Hey,

I'm new to the forum looking for advice on what I'm hearing called "new allergies". Anyways, in my research of allergy relief I've visited a few sites. When I came across your hives post it reminds me that there is a video about a woman who had hives and began a sublingual immunotherapy drop treatment which supposedly stopped her from having hives. I have nver personally had hives, but her description of it and your post make me thankful for that.

I'm not sure whether you're interested or not - but if you're interested in finding out about the drops, there are two articles on the Allerdrops site (and the video is there too).

You can find it at the Allerdrops website. The video is on the front page, but the articles are interesting to find out more about sublingual immunotherapy.

I'm hoping that my own allergies get better after an adjustment period? (been here a month), but if they don't..then i'd like to not think that shots is the way I have to go.

Maelstrom
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 6/30/2006 12:55 PM (GMT -7)   
I had chronic hives for about 10 months. At first, I tried calamine lotion which did nothing. I started taking a few benadryl tablets/capsules every day and generally just kept my skin from irritation. They finally went away during my freshman year of college. I'm not sure if it was the benadryl or getting out of high school that helped me, I never knew the cause of my hives. I'm probably not much help, but just hang in there and eventually they'll probably go away.

33dolphin
New Member


Date Joined Jun 2006
Total Posts : 5
   Posted 6/30/2006 5:14 PM (GMT -7)   
boybluega: thanks for the info-----at this point, i am willing to try anything. It is very frustrating not knowing the cause of my hives........and having them nearly every day now is very depressing. I look forward to learning more about allerdrops. Thanks again :)

Peterk100
New Member


Date Joined Jul 2006
Total Posts : 1
   Posted 7/7/2006 9:03 PM (GMT -7)   
Hi, I had hives about a year ago for about 1 and a half years after using a topical medicated acne solution. Hives limited me on doing many daily things and also things like cleaning up a fish tank or sweating while playing sports can be really hard and itchy. I know bad hives are so I wish this solution will help. When I had hives my doctor prescribed Hydroxyzine and I took it for about 10 months and increase in dosage. It went away everytime the MG of the medicine was increased but later came back so I decided to take allegra and claritin-D but later it still came back. After that I thought there was no hope in relieving hives so I decided to do a little research on what hives does and what scratching will do. Finishing my research, I found out that hives target your blood causing inflations on your skin caused by histamines so I decided to buy vitamins that help blood, immune, and skin and this is what helped me and im hive free for a year now but just sometimes with itchy skin in a couple of months but almost back to normal. The vitamins I bought was vitamin A, D,and E, which helps the skin, C which helped the immune fight bacteria, Iron to produce more red blood cells, Alfalfa tablets to help clean the blood, B to keep me motivated and energized, and Zinc to help fight skin problems and immune. I took these for about 6 months everyday and it helped me until now so I continued to keep taking vitamins. Taking high consumptions of water will also help. I hope this will help because it helped me.

lexi_84
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/9/2006 9:37 PM (GMT -7)   
Hi , I have also had Hives for about 6months now and just yesterday had to go to the emergency because my face and throat became severly swollen, I also get the red bumps all ove my body and are extremly itchy. When I was at the hospital they never said anything to me about my thyroid disorder havin anything to do with it and I also have vitiligo which is another type of autoimmune disease, I was wondering would it be better to see an allergist or a doctor about this?

Brookee Boo
New Member


Date Joined Jul 2006
Total Posts : 1
   Posted 7/21/2006 7:10 PM (GMT -7)   
Hello, I'm a new member....I've been suffering from chronic urticaria for 8months....can dust mites cause or aggrivate it?

LexusZoe
New Member


Date Joined Jul 2006
Total Posts : 3
   Posted 7/26/2006 3:49 PM (GMT -7)   
I have had chronic hives since I was 6, I am currently 36 and in the middle of an outbreak. I been to several different doctors through my life and I finally got answers from my current doctor that is just hives nothing I do causes it. I have tried predisone but my experience is that it just postpones the hives for a couple of days and they come back stronger than before. My outbreaks usually last about six weeks and then they go away until the next year. I just take lots and lots of antihistimines, I have found I build up a tolerance to them after a couple of days and they no longer make me sleepy. I am currently on zyrtec, clarinex, singular, allegra, palgic and doxepin at night. I wonder if anyone else on this forum have had hives for as long as I have?

tosaman
New Member


Date Joined Jul 2006
Total Posts : 1
   Posted 7/26/2006 8:16 PM (GMT -7)   
Hello Everyone,

The postings on this site seem very similar to the problem I experienced during the past year. I am now making every effort to share my story with the hope that I can help others. Here it goes:

I lost the ability to sweat during the summer of 2005.  It all started after I had a sinus infection. I was given a Z-Pack and Zyrtec-D, which got rid of the sinus infection. However, my feet began to itch shortly thereafter. I visited several doctors,  all of whom prescribed different antihistamines (Allegra, Hydroxizine, and Zyrtec) to treat the itching.

After a while, the itching spread, and I eventually stopped sweating. Instead of sweating, my entire body was covered with a painful “prickly” sensation, as if my skin were being pierced with thousands of pins.  The pain was most intense whenever I tried to exercise, and I frequently broke out in hives. 

Giving up all hope, I stopped taking all antihistamines in October of 2005, but the pain continued for several months thereafter.  At one point, I was investigating the use of steroids to improve my condition.  After considering my options, I decided to wait it out.  I am very pleased to report the wait has paid off.  With every passing month, my body has slowly been healing itself.  I can now exercise and sweat profusely with only the slightest “prickly” sensation, which quickly disappears after my workout begins.  I am confident that this, too, will disappear in time.  I am even more confident that an allergic reaction to Zyrtec was the cause of my problem.  I am now taking steps to share this information with the FDA.

I have done some research and discovered that in October 2005, a medical journal published an article called "Adverse Cutaneous Reactions of Systemic Antihistamines" (Current Medicinal Chemistry - Anti-Inflammatory & Anti-Allergy Agents, Volume 4, Number 5, October 2005, pp. 521-529(9).  I would love to read this article. It seems the medical community is just beginning to realize that their prized antihistamines may be causing much of the trouble they are supposed to be curing.

During the course of my affliction I consulted with three allergists, and they all refused to consider that I was having an allergic reaction to a drug they so frequently prescribe (even when I suggested the possibility). I only wish one of them had advised me to stop taking everything, rather than prescribing the alternative antihistamines which worsened my condition. It is my hope that my experience will assist those who have similar symptoms.

I wish everyone a healthy recovery!

-- B

Post Edited By Moderator (Red_34) : 7/27/2006 8:49:33 AM (GMT-6)


Callen100470
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Date Joined Jul 2006
Total Posts : 2
   Posted 7/27/2006 7:28 AM (GMT -7)   
You do not even know how interesting I am finding all of these stories! I feel as though I can empathize with almost everyone of you. I too have been experiencing chronic hives on and off for 14 months now, but daily for 4 months now. ( all since the birth of my son) I have been driving myself crazy trying to figure out what it is that I am allergic to. I was to the point that I was afraid to eat anything because I thought that it was giving me the hives. I to experience an itchy, burning sesation when I sweat and then get hives as well. My eyes have even swelled after exercise. I used to exercise daily and I have not been doing it anymore because it makes me so uncomfortable. The whole situation has made me miserable and depressed. I recently began taking zoloft because my depression was really effecting my quality of life. My allergest has me taking zantac twice a day and originally prescribed zyrtec, which I too felt as though I had a reaction to because after I took it, I was covered in huge welts from my neck down. I went to the ER because I felt as though my tongue was swelling. They called my allergest and he gave me a cycle of prednisone, which also made me nervouse. I was ok when I was on it, but once I stopped, The hives have come back even though I now take clariton and zantac. I am going to see an immunoligest in a few weeks and I am hoping that he can help me. Maybe we can help eachother out if we keep sharing our stories. If anything else , I know that I am not alone.

LexusZoe
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Date Joined Jul 2006
Total Posts : 3
   Posted 7/27/2006 11:21 AM (GMT -7)   
My doctor, an allergist, told me the hardest thing to accept about Chronic Hives is that nothing I do causes it. I am not allergic to anything, I am not stressed out at all. I have finally come to accept that hives are just part of my life and there is nothing I can do to stop them and that has helped me most of all. Everyone always asks what are you allergic to or you must be really stressed out. I just laugh and say I wish it was true because then I could control it somewhat! Like I said in the previous post I have suffered with this for 30 years. I take comfort in knowing they will disapear eventually and I always sleep really well because of all the Doxepin I take at night! I realize that many of the people who post here are having hives because of something going on with medicine or stress, but I thought I would share my thoughts about just having an illness I can't control.

Callen100470
New Member


Date Joined Jul 2006
Total Posts : 2
   Posted 7/27/2006 6:20 PM (GMT -7)   
Hello everyone,
I just had a few questions:
When you get hives or wheels, about how long do they last?
Do you have them all day ?
Do you notice them more at different times of the day or after certain activities?

With mine, I get them everyday, but somedays are worse than others. When I get them, they usually last for a few hours, but once they disappear I get them somewhere else. They mostly appear in the am or early afternoon they usually disappear late afternoon and evening and I can't connect them to any certain activity. I'm just curious about everyone else. Thanks

LexusZoe
New Member


Date Joined Jul 2006
Total Posts : 3
   Posted 7/27/2006 6:38 PM (GMT -7)   
Mine usually get worse in the evening and through the night. I usually just have have red splotches in the morning and then they disapear and get worse in the evening. My episodes usually last about 6-8 weeks. Sometimes the hives leave bruises too.

Slate1
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/13/2007 6:07 PM (GMT -7)   
I have had Hives now for 5 days....tomorrow is my last day of Prednisone and I am scared that the hives will come back stronger then before.   I seem to be better in the evenings then wake up covered in hives in the morning.    How do you cope with this at work?  I have not been back since this started...I have to go in tomorrow! 

Red_34
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Date Joined Apr 2004
Total Posts : 23427
   Posted 12/1/2007 2:55 PM (GMT -7)   
Hi Taylor, welcome to Healingwell :) Care to share the name of this liquid supplement? It wasn't Goji Juice or Monavie was it?
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autoimmune dysfunc
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Date Joined Dec 2007
Total Posts : 14
   Posted 12/7/2007 3:42 PM (GMT -7)   
Forum Moderator Red_34,
Who are you speaking with about the liquid supplement... are you on the right thread? I didn't see anything about Gogi or Monavie and was wanting more info. for the negative or positive. The only thing I can think of regarding hives is that berries are one of the allergens that can provoke either hives or angioedema.

autoimmune dysfunc
New Member


Date Joined Dec 2007
Total Posts : 14
   Posted 12/7/2007 4:03 PM (GMT -7)   
Hi Slate1,
I have hives very similar to last years post LexusZoe- mine started this all with hives waking up in the morning.. (so I went thinking it was fleas.. or allergies to my cat - since I am allergic and also to dustmites- but never to this degree)... well no one else in my family ever got any and more so I started getting them at night and woke up sometimes at 6 am itching for an hr. trying to go back to sleep.
I would scratch all morning they would start to disappear and then finally come back in the evening to restart the round. I would get bruises too. I thought it was from the pressure of itching them but maybe it could be the blood vessels leaking slightly on their own, maybe. Thats how the histamine leaks out so.. I am not sure. Funny thing is I really don't get that anymore but it constantly changes in its own way and travels also.
I am not working and actually it is keeping me from getting a job so I don't have tips for you there. I was going to take a job in construction with my hub just to be able to not show up if it is horrible or not care what people think about the looks. I get angioedema where your face, lip.... swells up so it is a little more disfiguring then just my hives. I actually do better when I am out and about. Keep your skin from being dry.. less wanting to itch. But when I am at home I itch alot more and it makes it worse.. just because I can itch. Being at work maybe good for you because it'll force you not to itch which like I said makes it worse by making you itch even more. So how was work?
I don't understand though, you've only had hives for the last 5 days and have been on steroids for those 5 days??? Most doctors won't treat you with those until some time has gone by. Have you had these before? When I took the steroids (prednisolone) it didn't get worse after, in fact mine have been slightly better. Although, I am on Claritin, Zantac, and Doxepin also. But still annoying as heck. And I did have one big flare up where it added 1/4' at least to my back/neck area.

shellmel85
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Date Joined Oct 2007
Total Posts : 4
   Posted 12/15/2007 11:47 AM (GMT -7)   
Hi y'all.  I suffered from Hives for 4.5 months.  I tried all kinds of antihistamines and I was on prednisone for 5 weeks.
 
Knowing I couldn't stay on the prednisone forever (I felt my face was starting to puff up), I looked into Traditional Chinese Medicine.
 
After about 1 month of drinking herbal teas, taking herbal supplements, and receiving acupuncture once a week, my hives are 98% gone, and, now, I can take a claritin to elimnate the last 2% of the hives that are remaining.
 
Hopefully soon, I will no longer have to take antihistamines.
 
For all hives sufferers: Please look into Traditional Chinese Medicine!!!  Especially if a doctor wants to put you on predisone.  Prednisone only makes your hives worse and more complicated to heal once the user stops taking it; its only a temporary relief.
 
I know it sounds like a stretch for some people, especially if they have never looked into eastern medicine, but this is by far the best treatment.  There are no side effects but I the downside is that insurance will not cover it.  However, I believe the benefits far outweigh the cost.

steversmom
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/5/2008 5:05 AM (GMT -7)   
Does anyone know how monavie will affect hives?  I have had hives and angioedema now for 6 years.  I am at a point of complete frustration and feel like the docs could care less that I
swell and itch on a daily basis.  I've even asked for a referral from my dr to be told I should research and see who I might want to go to. 
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