I just found this forum and was reading all the letters posted about chronic hives. I would like to share my story.
I have had chronic Hives now for almost 3 years. I also have fibromyalgia and degenerative knee disorder. I also have asthma and allergies. I have many many food allergies. I am now considered disabled at 53 from being a special education teacher for severly disabled children. Because of the combination of all my problems, I have found it impossible to continue to work. It has been very frustrating.
I, like lots of you, have found having chronic hives very debilitating at times. I am now having a very bad time with the hives. I had to go to the emergency room again for a shot and put back on prednisone. Sometimes, like today I get very frustrated when I wake up with my face, hands, bottom of my feet and lips all swollen. I also have silent migraines and lots of stomach problems when I flare up this bad. I feel blessed that I have not had my throat completly close on me. I have come very close on many occasions, but luckily gotten help before it got that bad.
My hives tend to get worse with the heat, and I am finding that I am unable to wear synthetic clothing. I also am unable to use any scented products. And of course foods are a big part of it.
I have had so many tests to try to find out what is causing it, that I have lost track. The doctors have said that more then likely I would never find out what is causing it, and that it may go away as quickly as it came. In doing lots of research on hives, I thought I might be one of the blessed ones that may have to deal with them for up to 7 years, but after reading the postings, I realize that I may just have to live with it.
Sometimes, I feel that people just don't understand what I am going through. I have always been very active and have had a hardy appetite. Now I am developing my own cookbook because of all the substitutes I have to make when cooking.
After 15 years I am starting to find substiutes for foods that I can't have. It's really nice to be able to eat a few more foods. It takes lots of work though and I spend lots of time on the internet looking for them.
I just needed to sound off. It has been a difficult day and it's good to be able to talk to other people with the same problems.
Thanks for listening.
Post Edited (Sugarx2) : 6/16/2007 4:45:19 PM (GMT-6)