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journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 9/28/2006 1:35 AM (GMT -7)   
hi, i have had chronic hives and HAE for 10 years now, i have been to mayo and colombia and lots of doctors, and no-one has been able to help me.. when i turned fourty i had my teeth pulled and 3 days later BOOM hives, and they have never went away.. i have them bad 24/7 and the swellings on top of everything,,, my airway closes on a regular basis.  i am getting ready to go into a clinical trial..but it is only for the HAE, not hives,, sometimes meds would work but after awhile they stop,,, i suppose it is finding the right formula, they run me insane, but i have learned to live with them, now they are a part of me, and my life i guess forever. there is nothing i can do about it, i try to live my life the best i can, i think the most thing that bothers me the worst is the some of my family just doesn't belive me that i am sick, because i stay home when i am real bad, and the others are scared of me, like i have AIDS or something,,, but i have even learned not to deal with them anymore either.  i came to the point of giving up, then my 7 year old grandson started having troubled with the same thing,, so now i am inspired again, i don't want him to suffer like i,,, he can't handle it, i am almost 50 and i can't hardly do it,,i am adopted so i wouldn't of known if this ran in the family or not. all the doctors i have been to and i still do not know what to really call what i have or why i have it?? i had a doctor once wanted me to try a med that wasn't legal here, only in france, but comeon,,i have no money to go there, and get meds,,,its crazy... probably wouldn't work anyways.  i don't mean to sound hopless, but isn't it? i mean after so many years, u just have to go with it, right? i try to think ooo it could b worse,,whatever it takes to get me thro another day of it... waking up in the mornings is like a new world,, where will i b inflicked today?  what is hurting this day... i can't even make plans.. my mother will ask me,, will u take me to the mall, thursday,,?  haha i say well if i feel up to it on thursday, cause u never know,, and she doesn't really get it,,i am just frustrated,,,frustrated to the max,,, i am at the point that i just want people to leave me along and let me sick, and stop acting like i am normal, cause i am not,... well, felt good to vent, i wish u all luck,,,   JO

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23413
   Posted 9/28/2006 5:42 AM (GMT -7)   
Hi and welcome to Healingwell. I am so sorry you had been dealing with this for a long time. I have never had chronic hives but I have had hives.....something I hope to never repeat! I can't even imagine what it is like to have to deal with it on a daily basis, my heart goes out to you. I do however know what it's like to live with a chronic illness and you whole life revolving around it. There is no escaping to what you have nor a cure, to wake up every morning hoping that this day is going to be better than yesterday.....that is the feeling I know only too well. Even though I can't relate to having chronic hives, just know you are not alone in suffering. We are here for you anytime and vent anytime you wish! And btw, what is HAE?
@--->--Sherry--<---@
Uc(Left-sided) since 1992 - Meds - Colazal, Hydrocortisone enemas, Norvasc, Biotin, Forvia...flaring since December 2005
Secondary Raynauds Syndrome since 2004...Fibromyalgia since 2006
Co-mod for Ulcerative Colitis.....Moderator for Allergies/Asthma
Continue helping others such as yourself by donating to Healingwell, every penny counts!
 

 
 


Phoelona
Regular Member


Date Joined Jul 2006
Total Posts : 122
   Posted 9/28/2006 7:41 AM (GMT -7)   
Hello. May I share a story with you at this time. I had the same symptoms, tempporarily. It was called Urticaria, and because I have had a stroke, and arthritis and an immune disruption due to hormonal imbalance, it was a lot easier to get, but once most of the problems were addressed, and I got the hormonal imbalance under control, and started on immune boosters, the problem is not really that existent any longer. I was not aware that Urticaria involved so many things, I just thought it was a reaction, to changes that I had made in my diet, but no how little I knew of this reaction would include hairspray, soap,sodium benzoate(in pop), colorings in clothes, and food, progesterone increase, and drug reactions,diabetes, overactive thyroid, and pregnancy. Can you imagine my surprise that all of this or just 1 thing can cause this much problems (hives, itching, burning under the skin). I had never heard the word Urticaria, but I had heard the Word HIVES. I thought it was just the chicken that I was eating
but that would have been too simple. So after the diagnosis I went to Web MD under emedicine and found out the above are just a few causes of Urticaria(HIVES). Unfortunately I do have to breathe at least once a day, so I just try to stay away from the triggers. There are many treatments for Urticaria though ACE inhibitors,sulfas, cephalosporins, penicillina nsaids, antiepilectic agents (which is good since I have seizures)(why take more meds than necessary after all a seizure may stop the continual itching that mostly occurs at Anytime). Any how I thought I would share this experience with someone that understands the TRAUMA of having HIVES (URTICARIA). My new word for the SEASON(I may use it often). Take care and hope you feel better soon. Good Day Phoelona.

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 9/30/2006 7:58 PM (GMT -7)   
HAE... IS Hereditary Angioedema IT IS KINDA RARE AND HAS A LOT OF PROBLEMS WITH IT,,, AS I HAVE, ALONG WITH THE CHRONIC URTICARIA, THANK YOU FOR YOUR EMPATHY!  IT REALLY GETS ME DOWN IN THE DUMPS SOMETIMES.  IT HAS BEEN A HARDSHIP FINANCIALY AND EMOTIONALY.  YES, THERE IS SO MANY REASONS FOR HIVES... I SEEM TO B PRODUCING A PROTIEN THAT I A ALLERGIC TO,, SO I GUESS ONE MIGHT SAY THAT I AM ALLERGIC TO MYSELF...HUMMM IT COULDN'T OF BEEN MY HUSBAND..;)  THANKS AGAIN FOR THE KIND WORDS... I ENJOY THIS FORUM....

laurence2709
New Member


Date Joined Nov 2006
Total Posts : 1
   Posted 11/7/2006 3:20 PM (GMT -7)   
Hi,
I have just joined this forum. I have been suffering from chronic urticaria (hives) since I was 12 years old (I am now 36). For me, it started with an allergy to aspirin. It actually gave me anaphylactic shock, which is swelling of the throat, and I was put on various medications, including mild anti-depressants. At 12... My parents then decided that they were not happy about this and got me to use homeopathy. I had a very lengthy treatment which did help a lot. Since then, I have discovered that I do get urticaria and anaphylactic shocks without the allergen (aspirin) and in periods of intense stress and exhaustion.

I gave birth to my daughter two and a half years ago and you should have seen the state I was in in the labour ward!!! My urticaria is now purely based on emotional stress. Try to get doctors to believe in that!!! I absolutely do not believe in allopathic treatments as I believe that they mask the symptoms of urticaria without dealing with the psychology and emotional side of it.

Chronic urticaria is a bore. It ruins your self-esteem, your confidence and your sleep... it is absolutely debilitating and the more you get frustrated, the worse it gets. So, what to do?? Well, for a start it's nice to realise that I am not the only one. And reading these posts, I've also realised that my case is very, very bearable and livable.

I just wish that the medical world was a bit more sympathetic to the fact that your state of mind can really affect your body in a huge way.

So long!!

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 12/29/2006 12:06 AM (GMT -7)   
the herbal way might work,,, i haven't really tried it,, it is so expensive, my insurance won't cover it, and i am on a strick budget, since i have been sick, i haven't be able to work,,, i have hives and swellings every single day, minute, constant!  i want to fight one day and the other i want to give up..i love u guys, thanks so much for ur support, it is nice to talk to people who understand.. JJ

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 12/29/2006 2:54 AM (GMT -7)   
Hello Jo.
Never give up Jo. Even if you can only enjoy an hour one day and ten minutes the next,enjoy those times. When I want to give up, I think of my family and it keeps me going strong. I know I am blessed with the people around me. I have been in so much pain at times that I get through minute by minute for days but I enjoy those days too. Always remember, you are not alone as many of us can understand what you are going through as we have traveled the same path. Keep hoping for a brighter tomorrow. Hope keeps us all going. Take care and vent here anytime:)

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 12/30/2006 12:10 PM (GMT -7)   
thanks ceebee,,,my family is the only thing that keeps me going, i know i have it better than most and worse than some,,and thats what i have to think about. i have been having a bad bout of hives over this holiday, got em on the inside and out,, it is so frustrating when u r laying there in pain and itching thats unreal, and wanting/needing to get things done,,, i thank god my kids are grown, there is noway i could do this if i have lttle ones. i know that it has to b hard on my husband too,,we don't get to have a normal,,but i guess not many of us do? ;-) i hope that sometimes i can be an insperation for some of you, instead of the one that needs it.. ;-) thanks again,,, love u guys,,,,, ceebee,,, you have hives too? i haven't read about you on here, probably not looking in the right spot,,have a great 2007...I WISH ALL OF YOU A HIVELESS 2007!!!!!! lol

Swoop
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 1/9/2007 1:23 PM (GMT -7)   
Hi,
 
I am new to this forum and have been dealing with chronic uticaria for 1 year now.  I have been trying to understand why I have been dealt this card and trying to find a link to why it began in the first place.  I can control them with medication but it effects my job performance.  So far, I have been able to manage through it but eventually it will come to a head if I can't figure this out or have the hives stop on there own.  Does anyone have any suggestions? 
 
Question: The hives began about a month after returning from Jamaica.  I have had a number of tests done and any links to Jamaica have been ruled out.  However, has anybody else experienced this after returning from a vacation? 
 

renthefinn
New Member


Date Joined Sep 2005
Total Posts : 9
   Posted 1/10/2007 12:36 AM (GMT -7)   
I see the original thread I was posting in has been locked http://www.healingwell.com/community/default.aspx?f=7&m=309072 but I thought I'd give an update. My Urticaria left for about 11 months since I last had them. They've just started again and haven't been great to control. I am now living in a bigger city with more responsibilities and financial obligations. I'm not looking forward to the future at work, it's either I do everything I can to get rid of the hives, (heavily medicate with Benadryl, and get drunk every night, and take a high dosage of vitimins every morning), or I show up very embarased and swollen, and so itchy that I can't concentrate on work. I'm definately gonna try some new things this time, and I'll look into that gallblader thing, but last time, I think they just left on their own. My last update on the site seemed to mention they were starting to go (last year), so I dought it had anything to do with the most recent things I had tried.

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 1/10/2007 9:30 AM (GMT -7)   
i have hives, because my immune system is over active, and honestly, i can't take anything that boost it up more like vitamins, or antibiotics, that seems to make it worse. everyone immunes system releases histamine, and when it raises to fight something.  it releases more, and some people are sensative to the histamine, maybe try not taking ur vitamines..just a suggestion, and it won't hurt u in anyway NOT taking them, i also produce a  protein that i am allergic too, so basically u become allergic to one self, but no one can figure out how to deal with it,,, a doctor told me that it is like a needle in a hay stack, and i have been to the best, plus the MAYO clinic.  and colombia,  ...I have had my hives now for 11 years none stop, every single day, my face is swollen now, there are clinical trials that u can get involved in. honestly u just can't give up, and sit around cring and getting drunk, thats probably only makes u worse.  i feel like giving up too, all the time, but my grandchild has hive problems, and i want to help him, so i try harder.  a lot of times this is a inhereitive thing, mine didn't show up until i was 40.. and i was adopted, so family history in null. jut don't give up.  keep looking for answers, try new things, i know it is hard, but my doctor, altho is always looking for something new, he mostly just says he can only make me comfortable, well as comfortable as he can.  i couldn't work anymore, i ended up getting my disability over this, and i got it fast, i took pictures to document my hives on a daily basis. i have a bad case of hives every single day, its hard. i have empathy for each one of you.  i wish i could give u some working answer, but i can't.  you have to find the right mixture of meds, and what works the best for you, if i can help with anythng, i will try.

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 1/10/2007 9:33 AM (GMT -7)   
SWOOP. i am sure the doctors has ruled out parasites? and or yeast????? thats what i thought of first when u said u have been to jamacia???? have u been eating a lot of sea food???? what about iodine??

a lot of people have had some luck with herbs, but that can get expensive, i haven't even tried that route yet, but it something that i want to look into,..

Swoop
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 1/10/2007 4:23 PM (GMT -7)   
Journeyc, parasites have been ruled out. Seafood has also been ruled out. What I have noticed though is that they tend to increase or become bothersome when work becomes stressfull. I also have major reactions when I try and cutback on the meds.

Another observation: For years I used to get cold sores during either stressfull times or change of seasons (3 - 4 times per year). After the hives began (1 yr ago this month), I haven't had 1 cold sore. Interesting!

journeyc
New Member


Date Joined Sep 2006
Total Posts : 11
   Posted 1/11/2007 12:57 PM (GMT -7)   
SWOOP, mine became active when i had some teeth pulled, and, now that i have hives everyday,,, i never get a cold, flu or anything except hives. sorry i don't know whether u r male or female, but hormones could b involved,and menapuse... stress aggrevates mine too, make sense tho, that they would, some people just have hives, because of stress,,i have had mine for 11 years now, and still can't get them under control. i have gotten use to the meds..except steroids, i had to go off of those, they eventually do u harm rather than good,.. swoop, have u looked into yeast? yeast effect male or female, and can travell thro ur whole body, i know a man that had yeast in his heart and it made him very sick.. i am sure the doctors have tested u for everything tho. i was told that one day they will go away like they appeared, but i am still waiting. i even eaten rice and water for several day, and introduce certain foods one at a time, nothing came from it. it has always been a balltle to fix this. i know i sound gloom, but it is a needle in a haystack.. and immuologist, is probably the best Dr. to go to, and there is a lot of info on line, i have heard of a dr, in north carolina that will work with ur home dr, he is dedicated only to hives.. i am checking into it now. i wish u luck and if i can help in anyway, just ask. (i have to take valium sometimes, when i feel the stress, and it help some. but between the anit-histamine, and the valium, u can get a little loopy, until u get use to it.) maybe stress is the only reason u have hives??? wishing u luck, sorry i can't b more help.

Fat Lip
New Member


Date Joined Apr 2007
Total Posts : 1
   Posted 4/20/2007 9:59 AM (GMT -7)   

Hi,

I just found this forum and was reading all the letters posted about chronic hives.  I would like to share my story.

I have had chronic Hives now for almost 3 years.  I also have fibromyalgia and degenerative knee disorder.  I also have asthma and allergies.  I have many many food allergies. I am now considered disabled at 53 from being a special education teacher for severly disabled children.  Because of the combination of all my problems, I have found it impossible to continue to work.  It has been very frustrating. 

I, like lots of you, have found having chronic hives very debilitating at times.  I am now having a very bad time with the hives.  I had to go to the emergency room again for a shot and put back on prednisone.  Sometimes, like today I get very frustrated when I wake up with my face, hands, bottom of my feet and lips all swollen.  I also have silent migraines and lots of stomach problems when I flare up this bad.  I feel blessed that I have not had my throat completly close on me.  I have come very close on many occasions, but luckily gotten help before it got that bad. 

My hives tend to get worse with the heat, and I am finding that I am unable to wear synthetic clothing.  I also am unable to use any scented products.  And of course foods are a big part of it. 

I have had so many tests to try to find out what is causing it, that I have lost track.  The doctors have said that more then likely I would never find out what is causing it, and that it may go away as quickly as it came.  In doing lots of research on hives, I thought I might be one of the blessed ones that may have to deal with them for up to 7 years, but after reading the postings, I realize that I may just have to live with it.

Sometimes, I feel that people just don't understand what I am going through.  I have always been very active and have had a hardy appetite. Now I am developing my own cookbook because of all the substitutes I have to make when cooking. 

After 15 years I am starting to find substiutes for foods that I can't have.  It's really nice to be able to eat a few more foods.  It takes lots of work though and I spend lots of time on the internet looking for them.

I just needed to sound off.  It has been a difficult day and it's good to be able to talk to other people with the same problems.

Thanks for listening. tongue

God Bless,

Fat Lip 

 


mongatu
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 4/21/2007 12:16 PM (GMT -7)   
I get hives every once in a while. I have found that the antihistamine Zyrtec usually makes the symptoms go away in a hour or less. I believe it is one of the only antihistamines that has been found to be effective for treating hives.

itchy00
New Member


Date Joined Apr 2007
Total Posts : 1
   Posted 4/21/2007 6:02 PM (GMT -7)   
Hello fellow hivers..
 I joined this to vent on how I can relate to almost everyone in this forum. I am 22 years old and have been dealing with my "idiopathic urticaria" for about 8 years now. I have been to every doctor that I felt was needed and yet they still seem to all tell me the same thing.. Their answer for me was "Its something that your going to have to deal with for the rest of your life, so suck it up!" Yeah suck it up I think to myself. Have any of these doctors ever gone threw what we do? Do they wake up some days in such pain that it hurts to even get out of bed? Do they ever want to scratch their skin off? I didnt think so.
 It cracks me up that they are paid so much money and give us answers like that. I have been on a bunch of different medicines such as, Zyrtec, Allegra, Ranitidine, Singular, Clarinex, Claratine, Cyclosporine and the all mighty great Prednisone. None of these seem to help with any of my symptoms.
 I know I may seem bitter, but I feel just like some of you. People stare at me like I am some kind of alien with weird skin. Its so bad to the point that it bruises my skin after they disappear. I havent really gone out much because I am embarassed by the way that I look. It makes me feel like everyone is talking about my hives and they do treat you different, like they are scared they are going to get something from you. My family is used to me looking this way so they dont really say too much. My mom on the other hand feels like there is nothing she can do and she sometimes cries with me because she just wants it to end. I WANT TO PULL MY HAIR OUT!
 I have been thinking about talking to my allergist about that anti-depressant that I have read some of you take and hoping maybe that would help. If anyone has any other suggestions please let me know.
 Im sorry if I bored some of you, but I also hope to talk with people who go through the same thing I do.. Thanks for your ears!
 
   Itchy me!
 

lunarlady
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/3/2007 10:05 PM (GMT -7)   
Hello All...
New to the forum!  I was diagnosed with Chronic Urticaria 9 months ago.  The common antihitamines do not work at all...Benedryl, Zyrtec, Allegra, Claratin, etc.  even when coupled with Tagament.  Prednisone does, however, stop my hives in their tracks.  When I stop taking the Prednisone I break out in hives again, though, and the side effects are ghastly!!!  The allergist cannot find any allergies, cancer, or any other abnormalities in my bloodwork.  (Knock on wood;)  It is maddening!  Is there something else he should be testing for?  I have tried Doxepin, but seem to wake up with even more hives when I take it!  I take about 20mg per night.  Is that not enough?  Any other suggestions on what works other than Prednisone?  I have changed laundry soap, perfumes, soaps, and have been told by my doctor it is most likely not food allergies!  I know he will not give me Prednisone forever, and when I dont take it the hives are so bad my eyes and lips swell...I look like an ogre!  HELP!!!  Any advice you might have or experiences that will aid in this dilemna?  I have never had hives in my life until 9 months ago.  Why did I get them?  They occur all over my body and ESPECIALLY my scalp!  Pressure hives are a guarantee from wearing a belt or shoes that slip and slide on my feet.  I feel like I am getting nowhere with my doctor and am just hoping something useful might come out of this forum!  Please...if you have any words of wisdom send them my way!  There must be something I am missing or do not know about that will help!!!! (I will keep my fingers crossed!)
Thank you to those who answer!

lunarlady
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/8/2007 10:49 PM (GMT -7)   
Well, went to the HIVE Dr. on Wed. He said I was taking too much medication...4 Zyrtec daily and 2 Allegra (triples) , and 2~3 tagament. I was doing this to try to stay off the Prednisone...but still getting hives. Now he has me on Cyproheptadine 4mg tabs 2x daily and Singulair at night 10mg, and Allegra during the day. He said there are anti cancer medications that COULD be used to treat hives, but that is a last resort and he does NOT want me to use them at this point. Anyone used the Cyproheptadine or Singulair? Did they work for you? Just curious. Meanwhile, this time around I am experimenting with changing shampoos, deoderant, hairspray, and body wash. It is worth a try right? AHHHH...to be hive~free one day!

Sugarx2
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/16/2007 2:32 PM (GMT -7)   
Hello.

I have Chronic Fatigue Syndrome. I am improving, finally after 15 years. That occurred in 1984 when I got the Asian Flu, and later had Mono three times. I have always had bad allergies. As a baby, I was given Antibiotics often.

I suffer with SINUSITUS and different types of hives.
The regular ones occur and itch.
The bad ones turn to blisters.

I have found the culprits. (MY CULPRITS!) The sinusitis starts with my diet. I eat YEAST. I love Vinegar which is the base of Ketchup, Mustard, Mayo, Terriyaki, BBQ and other sauces. I eat them, I get stuffed up, in minutes, I get itchy nose and face, and later sometimes I get itchy hives.

I love bread, which is bakers Yeast, and that causes the same effect, but the next day. Then I eat sugary stuff, and that feeds the yeasts that are alive in my system and the problem already started increases.

If there is pollen, and I am already flaring from the allergy to yeast, I get full hay-fever.

Now to address the blistery painful hives, that if left untreated become giant wheals that go over 3 inches in diameter! They are red and ugly and painful. I have discovered they are caused by any form, and any tiny amount of HYDROGENATED OIL. Whether they process natural oil or not, if they add HYDROGEN, and I eat it..... HIVES!

I can no longer eat in any restaurant without talking to the manager, to find out what I can eat. If they lie..... HIVES! It happens within an hour, and continues to get worse. HYDROCORTISONE CREAM must be put on each hive immediately, if I want it to go away within a day or so. If I let it fester, I will suffer for weeks with it. These hives or blistery things hurt. Even tiny.

Now, Denny's, IHOP, BRENT's and most restaurants are still using HYDROGENATED or PARTIALLY HYDROGENATED OIL on the grill, and in the deep fryers! ASK THE MANAGERS! TELL THEM YOU ARE ALLERGIC! That word strikes fear in them. They don't want you dying in their restaurant!!!

It is also in all NON-DAIRY CREAMERS, MARGARINES, SOME CANDY'S, MANY CHOCOLATES, many bread and pastries, and CRISCO!!!! YOU MUST READ LABELS!!!!! PLUS if it says "Zero TransFat", that means NOTHING! IT IS A LIE!! The government is allowing less than .5 per gram to be labelled as ZERO! That means you eat 10grams and get FIVE GRAMS of HYDROGENATED OIL! (If my math is correct!) If your hives are caused by HYDROGENATED OIL you have to check for the content of everything you eat!

MacDonald's, Burger King, and the rest all use this oil in the fryers. MacDonald's say they don't use it on the grill for the burgers, so you can test that one yourself! I have been able to eat the burgers and salads. Watch for fried foods. If they are using plain Canola oil-- no problem! Plain "any" oil, Lard, Butter... no problem!....As far as allergy to Hydrogenated oil anyhow.

"Smart Balance" makes a pastry-worthy shortening from FRAGMENTED OIL, which is the same process without adding the HYDROGEN. I do not get hives from this product. Good for pie crust. I use half butter, half Smart Balance.

I take a homeopathic product for "CANDIDA", but it seems to work with ALL YEAST for me, it is called AQUA FLORA. That reverses the sinusitus fairly quickly. I use it a few days and stop. It costs! I also use Colloidal Silver. It works as well, also costly.

I tried the YEAST FREE DIET. They say it is really easy to follow,
"IF IT TASTES GOOD---SPIT IT OUT!"
It worked. I lost 20 pounds, I looked immaciated! I was always tired! ...And was always depressed! Not my idea of a solution! You can cut back on the bad foods, but you still need grains and meat and vegies!

So, I now know what causes MY allergic reactions. I can be cautious, and eat less of what I enjoy, and feel better, or live with the runny, stuffed nose, the weepy eye (just one?), the sinus headaches, and the rest. But not the blistery painful hives! That I had to cut out those processed and junk foods. But plenty of Junk food remains without Hydrogenated Oil!!!! Plus Trader Joe's and Whole foods are carrying more and more items.

READ ALL LABELS EVEN AT HEALTH STORES!!!!

I take a few over the counter products when needed, but try to stay HOLISTIC whenever possible.

I hope I have helped some of you. For the rest, I hope and pray you find your culprits! For every hive, there is a cause. Drugs only treat symptoms... not the cause. You can try to log everything you eat, every day, and see if there is something or things.... that seems to coincide with your flare ups. Some red flag. Then cut that out for a while and see if there is a change. Yeasts are in a lot of foods. Vinegar, fermented alcohol and bakers yeasts are the most concentrated. Many soups have YEAST EXTRACT! If you boil the soups over 10 minutes (add extra water) it will kill off the yeast. Most people are not allergic to dead yeast, just the live. One of the byproduct is ethanol, which forms in your body. So you may have sensitivity to any alcohols too. (If you are like me I get drunk on one glass of wine!)

We can't always control our environment, but filtered water, and air filters knock out some culprits. Natural foods, no artificial sweeteners help also. I even changed out all my fillings to get rid of metals. So you can't control everything, but you can control what you put in your mouth.
I work on building up my immune system, and alleviating some of the causes of the allergy. Most drugs mask the symptoms and cause side effects that actually weaken the immune system, so beware. Doctors are quick to seek a "FIX" that doesn't solve the problem, but prolong it. If you can find a holistic practitioner, or MD who also works with alternative methods, you will have the best of doctors.

If anyone is interested in a larger list of my HOLISTIC expenses and products, Email me.

To quote Al Gore..... It is a "Question of BALANCE!" ;-)

SugarSugar723(at)yahoo.com

Candy

Post Edited (Sugarx2) : 6/16/2007 4:45:19 PM (GMT-6)


sarc
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/16/2007 4:17 PM (GMT -7)   
Hi. I am also new to this site. I have chronic hives. Started a year ago. I was put on steroids three times. Each time I came off of them, I got twice as badas I was before I started them. I was diagnosed with erythema nodosum and sarcoidosis in January. The doctor said the hives aren't related but I've been on sarcoidosis sites and many, many people have chronic hives that have sarcoidosis. I have been tested for allergies. Nothing there. I just saw a new doctor who put me on zyrtec and allegra 2xa day and clariton 1x a day. I had no hives for 3 days and I was releived. On the 4th day, I have the worst case ever, every inch of my body and face full of hives.My throat started to swell. This was the first time that this problem has terrified me. I've beeen taking my daughter to college visits and I tell them up front that I might have an outbreak. I look disgusting, people stare.

I am seeing a nutritionist and I'm going to change my diet, go through some kind of internal cleansing program, and started supplements, probiotics, and probably more stuff down the road.

Has anyone tried acupuncture or massage therapy for this? How about Tapping, chelation? I am about ready to try anything.

Thanks for listening.

Lillysmom
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/19/2007 3:39 PM (GMT -7)   
I found out that my chronic hives is an autoimmune disease does anyone else have this? I am being put on acyclovir. I have already tried cyclosporine and steroids for a short time and they didn't help. When i went off of them i had a huge flare up of hives and now my hives are very mild. But i am going to have this for the rest of my life. That is hard to digest.

annadurfee
New Member


Date Joined Jun 2007
Total Posts : 14
   Posted 6/20/2007 10:04 AM (GMT -7)   
Hives can be related to an autoimmune disease, but not always.  Get the doc to check you out though.  After reading all of the replies to this post, I'm surprised at what your doctors are doing to you people.  They're destroying your body!  I just posted (Maybe I can help with hives..) and I posted it because I've been researching forever on this and I found a lot of stuff that doctors never bring up as being a possibility. Doctors are great for some things, but in my experience, they all suck at treating hives.  Sorry if that is harsh, but I'm sure some of you could agree.  Anyway, check out my post and see if it helps any of you. 
 
-Anna

Lillysmom
New Member


Date Joined Jun 2007
Total Posts : 3
   Posted 6/20/2007 12:03 PM (GMT -7)   
Mine is actually called Chronic Uticaria Autoimmune


I got to see the proof that i am allergic to myself. They took my blood and seperated the plasma from the blood and injected it under my skin and i reacted with a hive.

woz29
New Member


Date Joined Jun 2007
Total Posts : 1
   Posted 6/23/2007 4:23 AM (GMT -7)   
I am a 36 year male from the UK.
It would also seem that my chronic hives are also auto-immune. I have them every day no matter what. I can just about cope with the hives but I get face swellings about 2/3 times a week which can sometimes look terrible and totally change the shape of my face (cheek, lips eyelids) working with the public does not help matters. Anti-histamines work partially for a while but I seem to become immune to them and have to keep changing them every couple of months.
 
The hives first appeared 1 year ago when on a camping holiday in France and I have had them every day since - apart from one week when I took a course of mild steriods prednisone that worked the first time but not the second time a couple of months later.
 
The skin specialist, apart from prescribing drugs said I am stuck with hives and hopefully they would burn themselves out one day. My latest medication is 1 x Levocetirizine 5mg in the morning and 1 x Hydroxyzine hydrochloride 25mg before bed. They worked well for the first few weeks and still provide partial relief. I have tried not taking them and the symptons do get worse.
 
I put my hives down to being on anti-biotics for nearly 3 years on/off but more on. The only other explanation would be the day before I got the hives I was swimming in a small lake/pond - so were the rest of my family and they're ok. I believe it's either down to the long-term use of the anti-biotics Fluxloxicillin, or a parasite I have ingested in the pond water. I have had the general tests done to rule out the the nasty illnesses and I am ok. The doctor says it would be too timeconsuming and expensive to try and find the cause that triggered the hives.
 
I am now due to see a dietrician to help get me orgainised onto a histamine restricted diet. I have tried to keep a diary but with 3 young children and a full time job working shifts it was found it too difficult. I have desperately tried my best to avoid all food and drink that aggravates my hives, particularly the face swellings.
   
I quit smoking nearly two years ago and food and drink became real pleasures, not any more
I now have to avoid all my favourites: Curry, chilli, pizza, cheese, fish, most fruits and cereals, anything with tomatoes or labelled spices, chocolate, tea, beer, and red wine. (Not necessarily in that order.
 
I strictly avoid takeaway food in fear of the dreaded 'msg' monosodium glutamate and stay away from processed, tinned or reheated food. I try and eat food containing no artificial colours, additives and preservatives. As you can imagine the diet is not really practicable. As a rule if it's not got any E numbers and has very few long complex ingredients, and does not contain any of the above natural histamine releasing foods, it gets eaten. This way I hope to manage the hives/swelling and try to hold down a job to support my family.
 
I am silently suffering with this miserable condition with only close family members aware. Fingers crossed that it goes by itself and I wake up one morning and its gone for ever. Until that day I live in hope and remine myself there are a lot of people much worse off than myself.
Thanks for listening
 
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