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lyonheart
New Member


Date Joined Oct 2006
Total Posts : 15
   Posted 12/2/2006 5:01 PM (GMT -7)   
I've been asthmatic all my life and am classed as Type 1 Brittle Asthma, though I think it is called refractory asthma in the US.  This year has been particularly bad with hospital admissions and rescue therapy.  My IgE levels are high and specifically with reference to mixed grasses, housedust, cats and dogs.  There is a drug called Xolair that my consultant would like to use, however it has not been recommended by the Scottish Medicines Committee due to cost, so she won't prescribe it.  Has anyone had good experiences with this medication?  I can't afford to cover the cost myself, (£256 per dose) but I am hoping to persuade her to make a clinical case for me.
 
Thanks for any comments.


current asthma meds:
  • salbutamol 5mg by nebuliser when needed
  • bricanyl inhaler as needed
  • atrovent, two puffs three times daily
  • symbicort 200/6, three puffs twice daily
  • uniphyllin 300mg twice daily
  • singulair 10mg once daily
  • visclair two tabs three times daily

other meds:

  • cocodamol 30/500 for pain (alternating with co-dydramol)
  • citalopram 20mg for depression


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 12/3/2006 9:02 AM (GMT -7)   
Hello Lyonheart:
Nice to meet you!
So sorry your having a hard time with the asthma. Keep on top of the doctors about the Xolair it could help you. i don't use Xolair but from what I read it might help you. I've had asthma all my life too so your not alone there. I've had about 5 asthma flairs this year with one time at the Emergency room. I had an Asthmatic Attack to the Medrol Dose Pack. I'm okay with prednisone but any other type of steroids triggers an asthma flair. They can't test anyone for steroid allergies. like you I'm allergic to Dust and Dogs and now also plant molds and I really like plants.
I use the following meds and they help me:
Asmanex
Singulair
Clarinex
A saline nasal spray
Xopenex as needed this is better than albuterol
Zantac - stomach med
I cannot use the advair disk as it makes me cough so I can't recommend it and I did use it correctly. might be another med allergy for me.
Good luck to you and you have my prayers too
(((HUGZ))) (((Hugz))) (((HUGZ)))
oops sorry I also use Astelin

Post Edited (Chartreux) : 12/3/2006 4:22:07 PM (GMT-7)


zoegirl
Regular Member


Date Joined Nov 2006
Total Posts : 27
   Posted 12/4/2006 1:02 AM (GMT -7)   
I new to all the meds. I have had mild athma that turned on me this yr. 2 er trips and one delight ful hospital stay and a nice 3 monthvacation from work. Which part of the world are u from? Hang in there. Things do get better. Kris
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