Anyone else with a sulfite intolerance? I would love to hear from you!

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hazyshades
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Date Joined Mar 2012
Total Posts : 1
   Posted 3/16/2012 9:11 PM (GMT -6)   
Hi I'd just like to introduce myself, I've never participated in an online forum before as prefer to come to spots like these for information and ideas.
 
My name is Hazel, I live in Melbourne Australia.
 
I've joined because in my own community of friends and family (and medical practitioners etc) seem to have a very limited understanding of anything to do with sulphites, and I'm looking for a place to ask questions.
 
Alcie you seem to be particularly well informed on all things sulphite related!
 
My own journey started 10 years ago when I was on a trip to Thailand. Prior to this trip I was able to eat anything with impunity, I wonder if I picked up some kind of bacteria over there which started things.
 
My sensitivity has increased over the time, with increasing responses to foods. My responses are at this stage all entirely gastrointestinal (foul hydrogen sulphide burping, bloating, vomiting and diaorrhea). I count myself very fortunate that my reaction is so mild compared to many of you on this forum - for those of you with serious allergies, I can only convey my sympathy, and join you in the necessary lobbying to have food, medications and cosmetic type products labelled appropriately.
 
A question I have is, if any of you are local to Melbourne, are there any gastrointestinal specialists around which are particularly good at understanding food intolerances? I have a referral to see a guy in Frankston, but with a toddler and a baby due in a week I don't have time (or money!) to mess around with specialists who really don't understand this issue.
 
Many thanks to all the members who have contributed to this forum so far, I have enjoyed reading your posts and coming to grips with my own issues using your experiences.
Hope you all have a lovely weekend
Hazel

wisewymn
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Date Joined Mar 2012
Total Posts : 1
   Posted 3/17/2012 5:41 PM (GMT -6)   
I am allergic to sulfates, mostly in wine so my intake of wine is minimal,but if I do indulge it gives me a migraine so I stay away. I usually look at the ingredients of food, but do not eat processed food if I can help it. I try to eat a healthy diet as much as possible, organic when I can afford it. I have done several Detox sessions which helps a lot when I am feeling sluggish. I take meds for breathing problems, Asthma and when I am on steroids I do a detox after a taking them since I get thrush and yeast infections. Listening to my body and taking supplements and homeopathic remedies helps me quite a bit. I have depression with anxiety and panic attacks and so a new regime puts my body in a stressful status. I'm allergic to cats, and had to give back my 1 yr. old back to the Humane Society, I've had cats before but I suppose these allergic reactions can get worse over time and age. I read as much as possible about side affects of medications and I am on and make sure that I am in control over my health care with the help of my Health Care Provider. I think the more we are aware and are being proactive about our bodies and not allow the Medical people to decide what we need. Of course in emergency situations I am compliant, (to a point). Don't know if what I have written is of any help. Ria

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/18/2012 1:26 AM (GMT -6)   
Hi yash888:
 
I have just read your post although an old date, but thought I would try to comment to you.
I have all the symptoms you have,  weired though they are:  The most weired is the left arm numbness and the collapse, palpitations,  - but everything you have.... so do I.
You are not alone,  I also belong to the Salicylate Sensitivity link. which does help a bit.
But none of them have had the same symptoms as you and I share.  The left arm thing is really scary.  Yes I end up in hospital,  NO they find nothing wrong..........  this has been going on years.
I have switched to organic foods,  this does help a lot,  but the amount of foods that contain sulphites is now amazing,  mainly "processed" supermarket stuff.
If I even eat anything with sulphite in.... say a pork pie from a local butchers.... I will lie awake all night and not be able to sleep.   Of course these will also contain preservatives aka... sulphites.
Supermarkets love these,    it keeps their food "fresh" for a very, very long time.  I use the term "fresh" very loosely here  tongue       WHAT it really means is it dosn't encourage bacteria (which won't go near sulphites)  but the nutritional content of that food will deteriorate just the same.
Hope you read this......... only just found this site.   Good luck.

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/18/2012 1:39 AM (GMT -6)   
To: yash888.
Just wanted to add my other probs.
Allergic to
doctors medications &
anti-biotics,
perfumes,
petrol,
any food that is red/orange (weird)
Allergic to:
YEAST, WHEY.
cheese,
vinegar,
wine,
potatoes,
wheat, yoghourt
*Moulds in any form.
Anything not fresh. i.e. biscuits that have gone soft.

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/18/2012 3:26 AM (GMT -6)   
To yash888. And everyone.
Google: The Sulphite Connection link. and scroll down to the 10 news video.
You will learn all there is to learn from that in my opinion.
GO ORGANIC. normal natural sulphites will not harm you long term, added ones are the overload. Thus depleting magnesium etc.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 3414
   Posted 3/18/2012 7:49 PM (GMT -6)   
Janey - I do drink a tiny glass of my own wine once or twice a week.  I have to be careful still, because grape juice is naturally sulfited.  It's a treat for avoiding processed foods.  But I don't have the "allergy," only the "sensitivity."  Your reaction strongly suggests an allergy. 
 
When you get through a week of a very limited diet with no problem, then start adding new, safe foods.  Yes, pick them from Rick's list.  The object is to get rid of your reactions, then figure out what you can eat or use without bringing them back.  First thing is to confirm that all your trigger foods contain sulfites.  You may come up with other things also.  That's where the internet comes in handy.  When you have a list of foods you type a few of them in with the term "food allergy," and links will probably pop up.
 
sals. - Welcome to the forum.  Sorry about the salicylate sensitivity.
Sorry also about your palpitations.  Does your heart beat very fast also?  That's one of my reactions.  It's called "linked angina" or "cardio-esophageal reflex."  I sometimes get left arm pain when I have a particularly bad reaction.  I've had to cardioversion once, came close some other times.  I hope you will continue to have your heart checked.  These cardiac symptoms can trigger a heart attack. 
 
I agree that walking past the deli is a good idea.  Actually there are plenty of "natural" foods that are loaded with sulfite (sulphite).  The onion family, pork and beef for a start.  I get sick from eating any of them.  As for colors, I have to avoid artificailly colored foods, but ripe red tomatoes are fine.  Carrot juice may even be good for sulfite intolerance, but I haven't tried it.  See the link to housemouse above.  Potatoes that are processed are sulfited to prevent browning, but fresh potatoes are clean.  Is there a connection between salicilates and colored foods?  Double sensitivity must be hard to deal with.
 
I looked into the sulphite connection, but was disappointed at the sales pitch. For free you can read Rick's book http://www.learningtarget.com/nosulfites/index.htm.
 
Ria - welcome to the forum.  I hope you will find lots of information from reading all the posts on this subject.  Sorry about the cat.  I miss my pets, but now just feed birds and deer in the winter.  We have towhees now that will probably nest in our forest.  See the links above for natural ways of lowering your sensitivity.  I tried the egg whites, but didn't stick with it long enough to notice any difference.  I do find if I avoid sulfites I get more tolerant.
 
Hazel - Welcome to the forum to you too.  I haven't found a gastroenterologist yet who believes in sulfite (sulphite) srnsitivity.  I did find an older, experienced allergist who said she sees it all the time.  She had me keep a food journal (see the search box above for details).   Then when I had my food list, she had me break the foods down into ingredients and  do a "challenge test" for each of them.  To test for wheat I had to find a pita that didn't have a bunch of additives which was hard to do.  I cut it into 16 pieces.  I ate 1/2 of one piece, waited 20 minutes, no reaction, then a whole piece, waited 20 min, no reaction, then 2 pieces, then 4, then 8.  I knew then that the reaction I had to bagels with all the yummy stuff like onion and seeds was not due to the wheat.  With gelatin I had to use the unflavored kind with apple juice.  I used tablespoon as the measure.  I got sick after the 4 Tbsp level. I'd had no reaction with plain apple juice.  Rick's book tells about the processing of gelatin from pig skins.
 
Best wishes to all, and please post your progress!

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/19/2012 7:46 AM (GMT -6)   
Hi Alcie: yes my heart reaches 120 p.m. although the hospital says this is impossible, but they have recorded that , so there !
Yes I also get a gastro reflux issue often at the same time. It is as if my stomache is pressing on my heart and making it beat faster, but I don't really know if it is doing that.  I have had my left arm feel dreadful and go all limp also. Strange feeling....
I do know that if I keep away from supermarket stuff, then it hardly happens at all !............ if I don't then I am in big trouble, the hospital wanted me to take all sorts of cardiac medication - even though my heart was fine. I did take it on one occassion,,, guess what the palpitations were worse. Sulphites in the medication ???????????????
I know that meta-bisulphite is in a lot of medication.
But havn't checked this out with cardiac stuff.
All I know is that when I am even on thyroid medication, up goes the trouble.
Any bets on??........   it's the additives that our bodies are rebelling against.

Post Edited (sals.) : 3/19/2012 6:50:10 AM (GMT-6)


Alcie
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Date Joined Oct 2009
Total Posts : 3414
   Posted 3/19/2012 8:48 AM (GMT -6)   
sals. - Yes, just as I guessed, you fit the picture for gastroesophageal reflex. That's reflex with an E not the U as in gastric reflux. Read the papers. There has been quite a bit of scientific research into this, and your doctors probably don't know about it. Mine still don't really believe me. This is dangerous.

I had a heart attack once from eating a bowl of cereal with dried fruit in it. The stomach started refluxing. Then the heart started racing, and bingo, I had pain down the left arm and crushing pain in the center of my chest. I ran into the house, chewed up 2 aspirin and dialed 911. I had very little elevation of heart attack markers. On angiography there was a tiny pinch in the LAD artery, which was stented, and all was good. Only a tiny amount of damage. I fit the pattern of the research I later looked up, of coronary arteries going into spasm.

I was overweight but not obese, had high cholesterol, and this builds up in the heart arteries. When the arteries spasm, a cholesterol plaque can rupture and block the artery further - bingo heart attack.

I have since lost all my overweight, stopped eating white carbs (which are turned into cholesterol by the liver) and avoid sulfites. I still have the tachy events when I am not careful enough. These were increasing in frequency, so family doc put me on a half dose of beta blocker (atenolol) to help with keeping the rhythm constant. Yes, some heart meds are perfectly safe. I've tried them all and only reacted with the known reactions, not the tachy sulfite reaction.

I keep a list of all meds I have taken to which I have had bad reactions. This included all heart meds - but I have since figured out it is mainly because the doses are too strong, not because of sulfites, which they don't have. In fact, most meds don't have sulfites unless they are liquid (hence preservatives), except the sulfa drugs. I don't have a problem with sulfa drugs, probably because I don't break off the sulfite during digestion.

I urge you to try at least a beta blocker, since your doc is recommending it. BUT - ask the doc if he will agree for you to try the smallest dose, in tablet form, then cut it in half, maybe quarters to start. Atenolol, inderal, and propranolol were the best for me. I take half the smallese atenolol daily after taking my blood pressure. If my pressure is low I can't take it or I will be on the couch with tach from the low blood pressure. I take a second half in the afternoon or evening - again if my BP is high enough. I like my little battery operated wrist BP cuff.

Don't be afraid of all medicines. Look them up before taking them (or better, before filling the prescription). Most pills do not have any appreciable sulfite. Do get medical care before your tach becomes a heart attack like mine.

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/20/2012 4:00 AM (GMT -6)   
Thanks Alcie:
Can you give me more info: on reflux and reflex ? it's the first time I have heard of the different spelling.
My specialists says there is nothing wrong with my heart, and that it can deal with "palpitations".... but not sure if I should now take a low dose of "something".

Alcie
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Date Joined Oct 2009
Total Posts : 3414
   Posted 3/20/2012 10:04 AM (GMT -6)   
sals. -
Has your doc ever seen you when you were having the tachycardia? He's right, of course, about the palps, but he probably has never seen a patient who is having a reaction like this. After all, it's rare, and most times it stops before you can get to the ER.

Treatment you can do at home is chew up an aspirin (which you can't do since you are allergic to salicilates), and do Valsalva maneuvers and cough. Look up Valsalva on the net. It's easy and works at least sometimes. In fact, I find my lower gut gets irritated too and I end up in the bathroom. My PCP Rx'd some atenolol, and I take 1/2 daily when my blood pressure is high enough, but also take a whole one when I am getting an attack. It helps me.

Ask your family doctor or your cardiologist what you can take instead of aspirin to "thin" your blood when you are getting an attack, so you don't end up with a big clot. My cardiologist still doesn't quite believe me, even though I have had to go to the ER a few times when I couldn't get the heart slowed after a couple of hours. Maybe your salicilate group can come up with ideas for an anti-clot medication - but of course, talk to your doctor!

Do you have high blood pressure? That's an indication for taking at least a beta blocker. They lower blood pressure and help regulate rhythm. High cholesterol? Overweight even if not obese? These need to be taken care of, lest you have a heart attack like me.

Reflux is a term you will read on the GERD forum. It's when the stomach pushes its contents into the esophagus - heartburn.
Reflex happens because the esophagus, stomach, heart and intestines are all conected by the vagus nerve. When one is triggered the others react due to this connection.

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 3/22/2012 6:47 AM (GMT -6)   
Hi Alcie: Funny you should say that about "Reflex" as opposed to reflux. I used to contribute to that Gerd forum where the Vagus nerve was blamed for heart palps. Quite ligitimately and sensibily. And I have always believed the link. My old doc. that I had years ago, (the old fashioned kind) ! told me that there is a nerve going right down your left arm - and that a lot of people didn't know that. He said it affects your digestion etc.
So when the reflex happens that is obviously the link.
No I can't take asprin, but I do take vit. E. a good blood thinner, without the side effects. I have normal bp. Yes overweight, who isn't !
No-one can see you when you have the palps. cos you are probably at home, and you call the ambulance, they find nothing wrong, they may take you to ER. but that takes about 1 hours, heart slowing down by then so no-one takes much notice and sends you home.
I have tried the coughing action and also pushing my stomache down (as if having a bowel movement) seemed to help when I did it.
So was is "Valsalva" then. ??
Once when in hospital with high heart rate (cos I had probably eaten one of their sulphite meals) a nurse sprayed "something" into my mouth. My head was just about ready to explode of my shoulders with the bad reaction I had. I went loopy, saying that she had sprayed something into my mouth I was alergic to. That's the trouble so many chemicals are used "to help" - without any investigation into whether the body can stand them.
My friends mother, went into hospital for a minor knee operation, and was in some discomfort after the op. so they gave her some morphine for the pain. Result - Heart Attack then and there in front of them  confused !!! they later found out she was allergic to morphine. She had absolutely no former heart problems.
I know my body would probably react the same, (see the reaction I had to the mouth spray)..... bye for now.

Post Edited (sals.) : 3/22/2012 5:55:13 AM (GMT-6)


Traveller66
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Date Joined Apr 2012
Total Posts : 1
   Posted 4/15/2012 6:37 PM (GMT -6)   
I just registered on here after reading a few different threads. I was diagnosed in my youth with an allergic reactions to drugs containing sulphur, but some years later showed no reaction to a fluid tablet containing sulphur. I have drunk wine, eaten foods containing sulphites etc.
But a couple of months ago, I was given the same fluid tablet after swollen legs after a long overseas flight. I broke out in a rash after the third day. That was over 2 months ago. I'm wondering if it can become like a cumulative poisoning affect? I went on a detox and limited diet to try to clear the rash quicker, and after only 2 glasses of wine last week at dinner I broke out in fresh rash (although the other one still has not completely gone). The rash sites are lumpy and red, mainly on my arms and face, although some also appear on my torso and legs. Does this mean I now have to steer clear of anything containing sulphurs?
I also have arthritis, gord, sjogrens' syndrome, scleroderma, a fatty liver and digestive tract problems. It has taken a few years to balance the medications to this point, and now I feel like I'm back to square one with diet issues. The itching and dryness of my skin is driving me crazy. Even clothes rubbing can make some of the more raw areas bleed.
I have to read this and other threads when I have more time, but it is nice to know I am not alone with this.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 3414
   Posted 4/15/2012 8:24 PM (GMT -6)   
Sals, Sorry I missed your post.
Yes, what you did was vlasalva maneuver. Get a copy of your medical record from the hospital and find out what the "spray" was. I keep a yellow card in my wallet with credit cards with my worst allergies on it.



Traveller, welcome to the forum.
None of us here are doctors. This rash might be serious. Definitely go to an allergist for a real diagnosis. Start keeping a good journal of what you eat, drink and your medicines, with the times and your reactions. This will help the allergist! Your rash sounds like a "true allergy," not just the sensitivity" that I have.

Do you know what the "fluid tablet" was? I'll make a guess at hydrochlorthiazide, which has 1000 to 2000 or so micrograms sulfite per pill depending on type. That would set me off.

"Detox" won't help sulfite allergy or sensitivity, if that is what you have going on. Neither will going vegetarian, all natural, or whatever. Sulfites are natural in pork, beef (to some extent), grapes, onions, etc. The only proven remedy is avoidance, although there are anecdotal stories of egg whites and other supplements helping somewhat.

It's possible to get new allergies and sensitivities at any time. I used to take Avelox for sinus infections, but now get hives, so can take nothing from the "Cipro group." Sulfa antibiotics, are different from sulfites in food, but a lot of people who are allergic to sulfa also have trouble with sulfites. Sulfites are common preservatives in medications. If sulfites turn out to be your allergen you'll want to look up all medications, reading especially the "inactive" ingredients.

No, it's not cumulative over time, but you can get a reaction if you go over your individual daily reaction-triggering limit. I got a lot of relief from my GERD (GORD) when I started avoiding sulfites. It was triggering my stomach to reflux, among my other reactions (notably tachycardia).

Avoiding sulfites in detergents might help your skin. I use only "free and clear" types and double rinse everything. Not a cure, but hopefully it will help. My allergist has me putting on a non-colored or perfumed bath oil, only patting dry. This helps keep moisture in my skin and stops a lot of my itching.

jsamms
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/16/2012 12:47 AM (GMT -6)   
I have cut out my diet:
 
WINE!  It has sulfites in it and sulfites have been doing it!!!
EGGS YOLKS! 
Eating more and more healthy and trying to keep away from processed foods.
 
I have went a year with this diet and I have been a year free of symptoms.  It used to come about EVERY month or more and ALL the doctors I talked with didn't know what to do AND I had one nurse that even laughed at me and thought I was crazy.  I could hear her talking to other nurses about in in a joking way (probably should have sued but nahhh, too much of that going around). 
 
Hope it helps!

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 4/17/2012 3:11 AM (GMT -6)   
Hello Janey P. I am also in the UK and so are a lot of us.

I am sulphite allergic big times, hives, sleeps, pain. etc. etc.

If you go organic you will find a lot of the issues are more manageable, or even much better.
Anything with sulphite (i.e. almost anything from a supermarket) there is no other way than this lst step.
Sulphite is the best friend of the supermarket. And your enemy, so start from that and learn what you can from others on this forum. Good luck.
P.S. I cannot take "medication" from docs either. Most contain sulphite, be extra careful of meta-bisulphite. Best wishes.

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 4/17/2012 3:23 AM (GMT -6)   
Hi Alcie:

Can I just say this: you can wash your veg. as much as you want under the tap, it won't make the slightest difference at all.

Those chemicals sprayed on and in the soil is "fixed". Designed not to wash away in rainstorms, wind and gales. Otherwise farmers wouln't be able to use it to "protect" or "enhance" their crops. So they are totally "IN" the veg.
A matter of science.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 3414
   Posted 4/17/2012 7:22 AM (GMT -6)   
Sals,
You are right.  Washing does not get rid of sulfite within fruits and vegetables.  Some, as in grapes, is natural, but there can be some from chemicals in the soil.
As for your medicines, you can avoid most sulfites by looking them up.  Sites like drugs.com have the chemical picture of the drug and also a list of "inactive ingredients."  If you see a sulfur with a couple of oxygens attached, be leery of taking it.  I get reactions to additives like gelatin and sulfite-containing preservatives, especially in injections.  Rick has a good list with amounts of sulfites in medicines in his paper book.  The free online book is available at http://www.learningtarget.com/nosulfites/index.htm.  There is a charge for the paper book.  I wouldn't recommend buying it to most people, but you have a severe reaction, and this is the only relatively complete reference available.  I receive nothing for telling you about it!  I am not advertizing it!  Read the online book free first and decide if you NEED the paper one.  My reaction, while not a so-called true allergy, is life threatening (heart arrhythmias, tachycardia), so I do need it.
Some cardioesophageal reflex references:

http://www.ncbi.nlm.nih.gov/pubmed/11258574

http://www.ncbi.nlm.nih.gov/pubmed/10372301

http://www.ncbi.nlm.nih.gov/pubmed/8737215.1

http://www.medscape.com/viewarticle/407980_5  You can't read this one, but your doctors can.

snippet:

Noncardiac chest pain (NCCP) is defined as recurring angina-like substernal chest pain of noncardiac origin. ….  of the ambulatory population presenting with chest pain, only 11% to 34% are found to have a cardiac cause.Of those patients who undergo coronary angiography annually, about 30% have a normal test.

NCCP is common in the general population, and in many patients it is caused by GERD. The PPI test  …. should be considered as the first diagnostic test when evaluating these patients. Patients with suspected GERD-related NCCP require long-term treatment with a PPI.

In patients with a negative evaluation for GERD, esophageal manometry may reveal a variety of motility abnormalities in the minority of patients.  …. pain modulators, such as tricyclic agents, trazodone, and possibly SSRIs, may provide symptom relief regardless of the type (or even presence) of esophageal dysmotility.

 

 

momisj
New Member


Date Joined Apr 2012
Total Posts : 3
   Posted 4/21/2012 8:45 PM (GMT -6)   
Is Great Lakes Gelatin a no-no for sulfites?

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 3414
   Posted 4/22/2012 7:23 AM (GMT -6)   
Momi, welcome to the forum.
 
From their website, Great Lakes comes in porcine or bovine - pig or cow, plus a collagen product.
 
Pig and cow gelatins are made from skins, etc, soaked in a sulfite bath to soften the material.  They will both contain significant amounts of sulfite.
 

cinains
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/22/2012 12:17 PM (GMT -6)   
Hello all I'm new to this forum. In late Jan I broke out in hives and my allergist doesn't know why. My egg serum level was 1390, the highest on the range was 114. Since then my life has changed. Soon after I developed asthma symptoms such as shortness of breath. Then I caught conjunctivitis in Feb from my daughter. She was diagnosed with herpes simplex on. Her Dr didn't send anything to the lab though. My Dr sent an eye culture to the lab and it was negative cor herpes so I was diagnosed with conjunctivitis. Then in march I started hyperventilating. It got so bad I couldn't walk two blocks without suffocating. At the same time I got chronic diahrea. So I went to the ER and they treated my asthma. They only found many yeasts in my stool. I saw my regular Dr and she said my ige was high, my white blood cells were high, my platelets were high, b12 and d were low and phosphorus was low. So I started taking supplements. But a week ago the pollen shot up in nyc and it all starts then...Sunday we went out to eat, I had white tics grilled chicken and black beans, my husband had shrimps and sweet potatoes fries, I had one of his fries. 30 min later I felt tired, dizzy and had a foggy brain. I rushed to the restroom and thought I had a bowel movement but didn't. Soon had a rash on my chest and face, heart palpitations and shortness of breath. I took two benadryls and used my inhaled. 20 min later felt better. I limited my food intake afraid of what caused this. The allergist said maybe the shrimps...Thursday I felt off all day as if an asthma attack was approaching. I skkipped dinner since I wasn't hungry. I used albuterol in the nebulizer. A few mins layer ate salgine crackers. Soon felt shaky and had a foggy brain and again heart palps, itchiness and short of breath. Took benadryl but that didn't help, went fo the er. They only treated me cor asthma. With of without eating I now get the symptoms which are scary. A few weeks ago I would wake up with scratches on my body so I changed my soap and lotion. Two weeks ago my lips throat and tongue burned with anything I ate. Am I allergic fo sulfites? I know I'm allergic to eggplants since my mouth itches when when I have it. I've lost a lot of weight due fo diahrea and being afraid of eating.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 3414
   Posted 4/22/2012 2:23 PM (GMT -6)   
Welcome, cinains, to the forum.

It's hard to know if you have a sensitivity to sulfites. First, we're not doctors, just patients. We can tell you of our experiences, but we can't diagnose.

I found help by going to an allergist with a similar question. She had me keep a good diary of everything I ate, drank, medicines, the times, and any reactions, especially within 2 hours. When I had a list of foods I suspected, I broke them down into ingredients and did "challenge testing." You can look up my old posts on how to do this by putting the words in the search box at the top of the page. That said, since you have severe reactions, need to go to the ER, I hope you will consult your allergist first!

Since you get a rash, difficulty breathing, and it's helped by Benadryl, you might have a true allergy, not just a food sensitivity. Even the sweet potato fries could have been sulfited to keep their color. I don't know what's in white tic chicken. Shrimp are often sulfited right on the boat to keep them from getting moldy. If they are not washed well they could have sulfite remaining, but you could have an allergy just to the shrimp. An allergist might be able to skin test for it. The blood tests are not too accurate, from what I've been told.

You mentioned a reaction after albuterol. Albuterol can strongly affect the heart. I had a bad reaction to it 6 hours after one puff, went to ER for tachycardia that wouldn't quit. I had previously been tolerant to it, no reaction at all.

Best wishes.

cinains
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/22/2012 3:36 PM (GMT -6)   
Thanks for the reply Alcie. I'm going through a serious of food allergies testing through blood and results should be in this week. I will ask if he can do the skin testing too. I have read online jams have a high amount of sulfites and I don't react to those so I'm confused. Right now I'm drained from poor eating and diahrea. Oh I meant white rice and chicken not tic chicken. This is all too scary. My regular doctor thinks I have a parasitic infection. But I've been to the GI and he found nothing.

momisj
New Member


Date Joined Apr 2012
Total Posts : 3
   Posted 4/22/2012 7:02 PM (GMT -6)   
A few days ago I realized I have a more serious sulfite sensitivity than I suspected. I have asthma but no inhalers since I took 90 days of zithromax for chlamydia pneumoniae in 2004. 3 years ago I had a very bad chest cold, the worst I had since I got over the episodes of acute asthma and pneumonia in 2004. A friend brought over some very hot peppers [2009] and told me that would clear up my congestion. It had sulfites on the label. The next day I so bad I thought I had pneumonia again. A couple days later I was doing better so I had some more peppers and the same thing happened so I was sure it was the sulfites.
A week ago I started on the Specific Carbohydrate Diet [SCD]as I have gained so much weight from taking supplements and what little processed food I was exposed to three weeks ago when I was out of state having oral surgery [up to 154]. My gut was damaged in 2004 after the prednisone and I took 2 ibuprofen 3 months later during an episode of pneumonia without any acute asthma and it gave me an ulcer and bad reflux. I have not been the same since. I was sensitive to citric acid and natural flavor if I ate it but at that point I could not touch it without breaking out. I am an RN and I have been trying to figure out why my health got worse when I had gotten over the acute respiratory problems. I went from 109 to 139 lbs after I started eating the way Ray Peat PhD recommends for low thyroid www.raypeat.com. I started eating eggs daily, drinking fruit juice, lots of milk, meat and Great Lakes gelatin to balance the amino acids. I kept gaining weight.
To try to heal my gut I started on the intro diet for SCD. Besides chicken soup with pureed carrots I was to eat homemade jello made with Great Lakes Gelatin and Knudson organic grape juice. I had burning with a BM. My next batch by mistake was made with half the juice and that was ok. When I made the third batch the burning again. I then ate a really big bowl and then had real loose stools. It was cautioned that the grape juice has sulfites so I figured right away that is the issue.
When I was pregnant 18 years ago [before I ever had a diagnosis of any asthma] my membranes ruptured 2 months early. I was given repeated injections of dexamethasone to help my son's lungs develop since a premature birth was expected. After the 3rd day I couldn't breathe and had bad blood gases requiring oxygen and my lungs were filled up. Now I know it was from the sulfites in the dexamethasone. I never knew until this past week that sulfites were in unpreserved foods. The gelatin, eggs and juice must have been causing all the fluid retention I have been experiencing all these years.
When I was 16 I took a sulfa drug and my only reaction was severe edema in my hands and legs. I had to go to the ER to have my class ring cut off.

ntl
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/22/2012 7:47 PM (GMT -6)   
I am allergic to sulfa and sulfites. I am having a hard time finding a lotion that won't break me out into a rash and it hurts pretty bad. Does anyone have any suggesjtions?

sals
New Member


Date Joined Mar 2012
Total Posts : 15
   Posted 4/23/2012 1:42 AM (GMT -6)   
Hi to Phlox: Just wanted to say hello, from another sulfite sufferer from the U.K. All information posted on here is very valuable. Especially when relating to brands of any kind, and whether they are a vailable in different countries. What some people can use in UK is not always the same as in USA for instance. Also in the UK we may be reacting to different sulfites put into foods over here. But perhaps that are not in foods in other countries.

I have ALL YOUR SYMPTOMS..... the worst is the heart Palps. But I must say they are much better keeping away from sulphites.

Good Luck.
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