Expert Advice?? Please? lol.

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Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 5:23 PM (GMT -6)   
Hi everyone,
 
I am usually in the Crohn's forum.  But I have lots of allergies.  The environmental ones that reacted during the skin test include grass, dust mites, mold, dog dander, cat dander, rodent, ragweed.  I also had food allergy testing for banana, avocado, and others, and also for latex.  These came back negative.  The thing that puzzles me is that whenever I eat a banana I can't breathe, and I always break out into a rash when I come into contact with latex.  I was also tested for morphine, PCN, and bactrim allergy which all have caused me breathing difficulties and hives, itching.  These were negative also.
 
I was on prednisone when I got the test done.  Do you think this could have caused a false negative?  I was also on trazodone, which apparently was on the no no list and I totally missed it!  They considered them valid results since I reacted to all the environmental allergies in the same testing day.  But, I am thinking that maybe I am just SUPER allergic to those, so they showed up anyway, and the food and medication ones are more mild so they didn't show up.  Also the technician said that my control was kind of weak.
 
ARGH.
 
What to you all think?
 
Thanks!
 
Krysta
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23353
   Posted 11/16/2007 5:28 PM (GMT -6)   
Hi Krysta, welcome to Allergies/Asthma :) I'm sort of in the same boat as you. I had an allergy test done (RAST) to see what my allergies are but everything they tested me for came out negative. I even had them test me for Hazelnuts which I know for a fact that I am allergic to. So then I had a light bulb idea......most allergy tests rely on the immune response. I am on 6mp so I asked the doc if she thought the 6mp could cause a negative reading and she had no clue. So then I asked my GI doc and he said no that it wouldn't affect the testing. But then I told him about my hazelnut allergy and he sort did a hhmm but said no more. Could it be that your Remi is throwing off the tests too? Maybe also in combination with the pred it is leaving you with false negatives. But you know your body and if your body is saying to avoid these things, please do so! Allergy testing is not 100% accurate but more or less a guideline.
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Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 6:52 PM (GMT -6)   
I wasn't on the remicade yet when I had the skin tests... But I WAS on prednisone and trazodone.  I dunno...  Now I obviously can't get another skin test until I am off of the remicade.  My allergist/immunologist definitely said that.  He also said it will probably help with the allergies.  So OBVIOUSLY it affects the reaction! :-)

Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4389
   Posted 11/16/2007 9:24 PM (GMT -6)   
Prednisone is used to treat allergies of all kinds, and I think it is a bit nuts that MD's don't think it will affect skin test results. Allergy testing is prone to false negatives and false positives, also, so if I were you, I'd go on symptoms rather than the test results. Also, there is something called Anergy (lack of ability to respond to skin tests) that can affect people with autoimmune disorders, so this may be partly why you didn't respond to the tests also. And finally, sometimes the test serums used are either too old or not in the right concentration (dilution factor) to provoke a reaction. Since there is no standardization on concentration or how long a particular test serum is valid for, the variation from one Allergist's clinic to another will likely result in different test results for the same person at each different Allergy clinic. I've seen this myself - I've been allergy tested at several clinics over the years and have seen different results from each and every clinic. Unfortunately, I get symptoms from many more foods than what show up on the tests, so I consider all the positive readings to be truthful and any that are negative that I get symptoms from are false negatives. I don't have any false positives, since I react to everything that has ever shown up positive. Interestingly, I've been RAST-tested for environmental and food allergies, and the only thing that has ever shown up on a RAST test is birch pollen. Everything else (all the trees, grasses, etc.) has shown negatives in RAST tests despite obvious allergy reactions to those things. My current Allergist tells me the RAST test is less accurate than the skin tests, but in someone on medications that can interfere with the skin tests, the RAST test is the next most accurate as far as allergy tests go. You can also do elimination/challenge testing, but it takes time and the chance of error is high because of the uncontrolled nature of the challenge testing if one does it on one's own at home.

Also, skin and RAST tests won't detect delayed reactivity (type 4 immune reactions) becasue both skin and RAST tests look only for IgE antibodies to the substance being tested. Type 4 tests are IgG mediated and can be every bit as severe as type 1 reactions, but won't show up on the tests.

Bottom line though is if the food causes symptoms, then avoidance is really the best approach. Periodic challenge (maybe once every few years) may reveal the decreasing of symptoms after a while, especially if the allergy is delayed ractivity (type 4 sensitivity, vs. type 1 immediate reactivity).

Take care,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant & Medication Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, Very Low Lymphocyte Counts (T-Cells & B-Cells), malabsorption/malnutrition, etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/17/2007 12:24 AM (GMT -6)   
yeah I have had skin and RAST tests with mixed results. We actually just learned about all of the hypersensitivities, antibodies, etc in school. (I'll have my RN in one month!)

I just wanted to hear what people who have actually gone through it have to say about it. You know?

Thanks for all of your input! I wonder if I will ever have an actul reaction that is true since I will be on remicade for at least another year, and then probably some other TNF blocker or immunosuppressant after that!

I guess I will just go with my experience. My PCP told me that I make my body produce histamine because I THINK that I have the allergy. LOL. ummmm... She says that the mind is a powerful thing. Obviously that is true, but I don't know if I would go THAT far. I dunno. Either way, if my body is making histamine, we should treat the allergy!
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 

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