Hashimoto's Encephalopathy

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goldilocks57
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/22/2008 6:11 PM (GMT -7)   
Hi everyone.  I'm sorry to bust in on the Alzheimers message board, but I don't see any other boards that this fits into.  Does anyone out there have any first hand knowledge of "Hashimoto's Encephalopathy"?  From what I read on the internet, it is believed that many people who have Hashimoto's Encephalopathy have actually been misdiagnosed with early onset Alzheimers.  If this is true, I'm thinking that some of you might want to learn about H.E.  If anyone does know first hand about this disease, I'd really love to hear from you.  My husband has recently been diagnosed.  We're told that there are very few confirmed cases of this in the U.S, and we'd really like to get as much information as we can.  Thanks for any help that you can give!

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/23/2008 3:11 PM (GMT -7)   
Hi again...I have heard a few things about this and I am sorry I have been AWOL for a couple of days BUT I do promise to look into this for you within the next couple of days

I have been having family issues with my siblings over my dad so again I will get to this asap

be well and I look forward to getting to know you and about your hubby as well

God Bless

LYN
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Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/24/2008 11:39 AM (GMT -7)   
Hey Lynn . . . sorry you are still having so much trouble in that area. ARGH! Like you need the additional stress. Prayers, hugs and Blessings to you dear sis!!


Hello Goldie!!

Welcome to the forum. I do know a member who has HE. She visits the Lupus forum. Her member name is Emmi and she has several overlap diseases including HE.

I believe this disease is auto-immune . . .meaning that the body attacks itself (like it attacks disease). So is Lupus, so you might make a post on the lupus forum much like the one you've made here and Emmi might see it. If I see your post, I'll bump it up if its falls too far down the list of topics until Emmi gets a chance to respond to you. She is a real sweetie and I'm sure she'd be happy to share info.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


goldilocks57
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/24/2008 3:56 PM (GMT -7)   

Thanks, Rosie!  I appreciate your help.  I'm also trying to get the word out to people who have been diagnosed with early onset Alzheimer's that H.E. is believed to be frequently misdiagnosed as Alzheimer's.  Most people (including doctors) have never even heard of H.E., so someone with a diagnosis of early Alzheimer's would never even know to ask about H.E.

Sheryl


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/24/2008 6:20 PM (GMT -7)   
Sheryl

I am glad Rosie was able to he;lp you out
You will find she is great in support and has alot of Knowledge in the many faces of Alzheimers

Let us know how you make out


I will be checking into some things for you tomorrow

God Bless
LYN

*** Thanks my sweet sis..........NO i did nbot need these at this time BUT I will get thru it ....I have basically conquered the Wolves at the door for now at least
My dad was and has been very aggitated thru all this
I ty to tell them he is NOT STUPID at all he has a DD ...They do not get that at all ..PITY

You take care and be well ..Keeping you in my heart thoughts and Prayers sis
God Bless
LYN
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/24/2008 8:34 PM (GMT -7)   
Sheryl . . . Yes, it is a little known disease . . . I hope you and Emmi get a chance to chat.


Lyn . . . ARGH!!!! "The Wolves" LOL good one!! I can always picture your posts . . . I see the "wolves at the door" and you protecting your dad!! LOL what a scene . . . as if it wasn't hard enough w/o having to deal with ignorance. Sorry sis . . . enjoy your little break from them. Give dad a big hug from Rosie!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/25/2008 7:41 PM (GMT -7)   
Wolves they are lol
BUT I am like a bear protecting her CUB so they had best be watching their Behinds ya know or they might just get bit .........

Thanks sis for your continuing support and love

Huggs to dad for sure

thanks for the cup 'o tea it was delicious as always

God Bless.....Luvs.......Sis
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 1/25/2008 10:19 PM (GMT -7)   
Hi Goldilocks,

I'm emmie. I hang out on the lupus forum. I also have a diagnosis of HE. I'd be glad to help you out with questions about it. I'm pretty sure my email is in my profile. It would probably be better if we "talked" there. Just so you know, before I was properly diagnosed, I had diagnosed myself with early onset Alzheimers.

Hope to hear from you,

emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/27/2008 11:00 AM (GMT -7)   
Thanks Emmi
You are a sweetie
Hoping we hear back from Goldilocks real soon

Thanks again

Take care

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
    www.healingwell.com Donate today to keep HW helping others
 
                     
 


goldilocks57
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/29/2008 5:33 PM (GMT -7)   
Thanks Emmi. Are you the same Emmi that's on the HELPS website?
Sheryl (goldilocks)

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/30/2008 4:44 AM (GMT -7)   
Glad to see you Goldilocks ..........

Hoping you and Emmi do catch up ........

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
    www.healingwell.com Donate today to keep HW helping others
 
                     
 

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