surgery and hospital stay and alzheimers

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hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 3/27/2008 6:34 PM (GMT -7)   
 
Hello all,
My father has suffered with alzheimers for several year now. He is deffenetly in the final phase of the moderate stage. He can not dress himself, communicate very well, gets very angry at times and is easily confused.  To make matters worse he also has bladder cancer that has been unstopable with two rounds of Chemo. The doctors are all recomending removal of the bladder.  The sugery is Major sugery wich will require a 10 day dopistal stay and leave my dad with a bag.  I am very worried about the hospital stay itself. He can not be left at home, my mother is with him.  But how can he be in a hospital room my himself.  I have read that being in a hospital with alzheimers can be very devestating.  I am concerend that his alzheimers will progress even quicker after is surgery.  What questions should be ask the doctors about his stay in the hospital. He is being treated at the VA (WOnderful people) for his Alzheimers.  Can they help in any way.  THe surgery is being done at another hospital.  I am afraid that he will try to leave and become very angy.  We do nor want him restrained in any way, and have heard that sedatives should not be used on Ad patients.  Any advise would be very helpful
Hyrangea
42 yr old female diagnosed in January of 07, asfter being sick for a while.  pentasa 500mg 4 times a day. probiotics,
prednisone (evil) 50 mg a day. Imuran 20 mg a day.
andibiotics.
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/28/2008 5:30 AM (GMT -7)   
THERE are some very safe sedatives for AD ppl to take so first I would ask what the surgury entails
what sedatives ( no ativan IMHO) .how long before he is going to start a physio TX plan and he will need one with the bag ........( at least in Canadian Hospitals they do )
Find all you can out abot the hospital e will be in and what nurses are responsible for him
MAKE sure you put no restraints in writing although sometimes they are needed with certain ppl BUT I understand what you are saying
One of you I am sure can stay with him at hospital take turns if there are more than a couple of siblings and I am sure ALL will work out for the best
I am sure others will post as well and give input
Hope i helped out in some small way
God Bless
Will keep him and you,your family in my prayers
LYNr
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23417
   Posted 3/29/2008 6:22 AM (GMT -7)   
My grandmother has been in and out of the hospital for infections in her kidneys and bladder AFTER her bout of bladder cancer. But unlike your father, she responded very well to chemo and radiation. At the time of her hospitalization for urosepsis, we didn't know about her AZ. She had surgery to insert kidney stents in which they gave her anesthesia. She responded VERY badly to the anesthesia and became highly confused, beligerent and emotional. There were times too that she would find a tube connected to her that she didn't know what it was - well the nurses then told me that she was trying to rip out her catheter! I don't think they ever restrained her but they did put a bed alarm on.

Now gma still has a kidney stent but she also has a nephrostomy tube in which she has to go in every 3 months to have them exchanged. I insist they use only a spinal block and she does wonderfully. I don't know if that would be an option for your father or not since they have to remove his bladder but you can ask. As for him being in the hospital, I know the nurses here are trained to deal with AZ patients as long as they know that is what they are dealing with.
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hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 3/29/2008 12:24 PM (GMT -7)   

Thank you both for your post.  We talked to my fathers surgeon as well as his neurologist, and together (My mothers ultamite decision) we have decided not to do surgery.  His AD is progressing very quickley and his response to surgery in all probability would not be good.  My mother has decided to keep his quality of life as good as she can right now.  The docotrs do not know how quickly to cancer will spread,  or how quickly his Ad will progress. I guess you can say its a 50/50 chance of his caner spreading or his Ad progressing.It was a very hard decision for my mother.  They truly have a great love story.  She has decided to take him to is favorite spot in the country and enjoy the time that they have left together. This is truly a disease that robs you of your loved ones.  I really know the reason behind the saying "The Long goodbye".

God bless,

Hydrangea


42 yr old female diagnosed in January of 07, asfter being sick for a while.  pentasa 500mg 4 times a day. probiotics,
prednisone (evil) 50 mg a day. Imuran 20 mg a day.
andibiotics.
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/30/2008 5:35 AM (GMT -7)   
I personally have to applaud the decision not to do surgury IF he is this far gone it had to have been a heart pain filled decision .......let him and your GM have their love story ending
Beautiful and together...
Thanks for posting and keep us posted plz
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 

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