Lewy Body Disease

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Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 5/16/2008 9:59 AM (GMT -7)   
 

Lewy Body disease is a dementia it  differs from Alzheimers in its Symptoms and findings after death

What is Lewy Body Disease???

It is simuliar to Alheimer's but the SX are typically different on close examination ,with different signs found IN the brain after DEATH.

The cause is still unknown.


Lewy body disease has relatively recently been accepted as a separate disease in its own right.
The disease gets its name because of the deposits which are found in the brain after death (named after the doctor who first wrote about them). Lewy bodies are round deposits which contain damaged nerve cells. They are probably formed as the cells try to protect themselves from attack.


It is of utmost importance to diagnose the demetia as there are different medications for the differenrt Dementia's as well as symptoms and treatment plans .....Some Family Members have a difficule time believing this COULD / DOES happen to THEIR loved ones............

Symptoms


 

  • The dementia associated with Lewy body disease affects:
  •    memory
  •    language..slurred speech....no talking at all ....yelling.......
  •    the ability to judge distances
  • The abilty to do or perform everyday tasks
  • (things they alwasy did before
  • The ability to Reason
  • (can become very beligerent or introverted
  • (argumentative)...Emotional
  • People with this type of Dementia may often suffer from Hallucinations
  • (They may think they see a cat or animal or even a person on a chair when there is not one

  • Or other things they think they are seeing that are not there

  • AS well
    They may suffer from falls for no apparent reason, because their ability to judge distances and make movements and actions accurately is disrupted.


    They may develop some Parkinson type symptoms such as slowness of movement, stiffness and tremor. In a few cases heart rate and blood pressure are affected.


    The abilities of the affected person often fluctuate from hour to hour, and over weeks and months. This sometimes causes carers to think that the person is 'putting on' their confusion.

                        THEY ARE NOT PUTTING ON THEIR CONFUSION......


  •   DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
     
    Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                   FIGHT the FIGHT with all YOU HAVE
             Be Well All and Stay With Us We are Here To Help
                                   LYN 
       
     
                       
     

    Post Edited (Howlyncat) : 6/9/2008 8:02:30 AM (GMT-6)


    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 6/5/2008 5:48 AM (GMT -7)   
    Add input if you would like plz

    Thanks
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
     
    Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                   FIGHT the FIGHT with all YOU HAVE
             Be Well All and Stay With Us We are Here To Help
                                   LYN 
       
     
                       
     


    odettesmom
    Regular Member


    Date Joined Aug 2004
    Total Posts : 274
       Posted 6/6/2008 5:19 PM (GMT -7)   
    Thank you so very much for the informative discussion of Lewy Bodies. My mother was dx with it a while ago, and it is difficult to cope with her rapid deterioration. The nursing home she is in takes good care of her, and I am relieved by that. However, some relatives seem to blame the nursing home, me and everything but this disease. With your permission, I would like to share the information you have gathered with those who have difficulty in understanding why my mother has changed so drastically. Linda

    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 6/9/2008 6:58 AM (GMT -7)   
    Linda

    BY all means PLEASE do print this and share with them all that is here
    I can also gather more info for you about this

    YES it can / does and WILL make our Loved ones deteriorate very quickly ...........

    I am so sorry about you mom hun.....this is a DD robbing us of so much


    my Mom passed 2 plus yrs ago from AD and Dad just in April of this year..........

    EMAIL me if you would like to talk k or add me to your msn or yahoo
    My info is at the side under my name............God Bless.......LYN
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
     
    Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                   FIGHT the FIGHT with all YOU HAVE
             Be Well All and Stay With Us We are Here To Help
                                   LYN 
       
     
                       
     


    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 6/23/2008 7:11 AM (GMT -7)   
    Linda
    Checking to see how you and Mom are doing

    LYN
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
     
    Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                   FIGHT the FIGHT with all YOU HAVE
             Be Well All and Stay With Us We are Here To Help
                                   LYN 
       
     
                       
     


    odettesmom
    Regular Member


    Date Joined Aug 2004
    Total Posts : 274
       Posted 6/29/2008 7:49 AM (GMT -7)   
    kind of you to check.

    with your helpful info, i confronted cousins about what was going on, and they (at least one of them) accepted that my mother is no longer with us. i continue to take her communion, visit with therapy parakeet (thera-keet) and talk as though she is there. rarely does she look up or wake up at all, but i continue to persevere. the nursing home is working with her doctor at modifying meds so she is comfortable but not over-drugged. they are quick to contact me if anything happens... lately it was mother's leg falling off recliner she's in and getting a cut. i appreciate their care of her.

    according to nurses, she could last months... even years, but never be really awake. her appetite is good, but she is very often asleep and/or withdrawn.

    not much more i can do. i continue to visit with communion and thera-keet but usually get no response. if she does wake up, she almost immediately falls back to sleep/unconsciousness. i share both with other residents of nursing home, especially that special bird. used to take amazon parrot, but he can bite and never sure when he will. the thera-keet is gentle and sweet and has become a favorite on pet day.

    linda

    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 6/30/2008 7:38 AM (GMT -7)   
    Linda
    It sure sounds like she is getting great care in the NH she is in'
    It is hard sweetie I know to have to see her like this but do remember she is IN there somewhere
    Keep talking to her and make some good memories

    I will continue to check on you from time to time
    Any questions plz post okay and I will do my best to answer or find the answer for you
    Your family also can look up the total info on Lewy body DD and they would be more educated that way IMHO

    Take care hun and God Bless
    Lyn
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
     
    Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                   FIGHT the FIGHT with all YOU HAVE
             Be Well All and Stay With Us We are Here To Help
                                   LYN 
       
     
                       
     


    stkitt
    Forum Moderator


    Date Joined Apr 2007
    Total Posts : 32602
       Posted 8/11/2008 5:14 PM (GMT -7)   

    Big Sis,

    Great info and this is a disease I have not heard of.  Thanks for posting this.

    Lil Sis/Kitt


    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 8/12/2008 7:28 AM (GMT -7)   
    Hey Lil sis
    Many have not heard of this but the commonality
    is so large now they really have to DX this properly and totally

    This Dementia is named after the man who found
    the differences of Alzheimers and other dementias
    like Lewy's body
    Loves
    Big sis
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                        Donate at  www.healingwell.com
     
    Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
     
                                        FIGHT the FIGHT with all YOU HAVE
                   Look For The GOOD,Even At Your Lowest
     
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    SnowyLynne
    Veteran Member


    Date Joined Apr 2004
    Total Posts : 1539
       Posted 9/29/2008 7:23 AM (GMT -7)   
    http://www.lewybody.org./
    SnowyLynne


    odettesmom
    Regular Member


    Date Joined Aug 2004
    Total Posts : 274
       Posted 9/29/2008 4:07 PM (GMT -7)   
    Major Update!! Mom is awake and coherent for the most part. Had t/w nurses and they agreed that her medication needed to be adjusted. So mother is off the 3 psychotropic drugs she was on and is doing much better. If i recall correctly, sometimes such medications do the opposite when taken for lewy bodies. Last family meeting went well and all attending were pleased with the way mother is progressing. i also know that with lewy bodies, change can come and go. Still, a big difference from how she was even a month ago. One of the nurses said mother seems to be coming more and more awake and her usual cynical self! linda

    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 10/1/2008 11:46 AM (GMT -7)   
    I am SO HAPPY to hear this great news
    YES it is so true that those meds CAN cause worse problems with ppl DX with Lewy Body Disease

    Glad family meeting went so well

    Keep me posted plz

    LYN
      DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                        Donate at  www.healingwell.com
     
    Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
     
                                        FIGHT the FIGHT with all YOU HAVE
                   Look For The GOOD,Even At Your Lowest
     
         Listen To Your Heart,Look Inside Yourself,Understand You
     
     
     
                        


    odettesmom
    Regular Member


    Date Joined Aug 2004
    Total Posts : 274
       Posted 12/11/2008 6:44 AM (GMT -7)   
    another family conference and good news again. mother is doing well and is taken to certain music events at the home. her appetite is good and she is much more aware now. took some magazines for her to look thru. she also wakes up when spoken to and speech is less slurred. mother is on liquids and pureed food. much relieved that she is in a place where she gets good care. checked visitor list, but i'm the only one stopping by. don't get it, but figure people from her past don't want to see her like this. thanx again for bringing up lewy bodies. hope others read your great description and be aware of this other dx. linda

    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 12/11/2008 1:59 PM (GMT -7)   
    Linda
    I am so glad they got her meds adjusted
    This apparently has been the conflict withinn her
    Alot is not know of Lewy Body DD but more research is being down

    I am slo glad that at least a member or 2 of your family had decided you have been right all along

    Thanks hun for sharing you great news about your mom
    Many do take a liking to music
    My dad it was the "Big Bands" and he would know most of songs

    Take care and keep me in the know luv

    God Bless

    BTW yes sometimes ppl wont go see the AD person as it brings such a sadness to them as well as they may think
    "WHAT if this happens to ME"
    Sad very sad.............
    God Bless...............LYN
     DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
    Fibro & Other DD

    Donate at  www.healingwell.com
     
                                   Moderator@Alzheimer's..
        CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                                ~ FIGHT the FIGHT with all YOU HAVE ~
                   Look For The GOOD, Even At Your Lowest
      We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
       
    ..........LYN


    Howlyncat
    Elite Member


    Date Joined Jan 2005
    Total Posts : 24909
       Posted 3/3/2009 11:01 AM (GMT -7)   
    To the top for new member
     DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
    Fibro & Other DD

    Donate at  www.healingwell.com
     
                                   Moderator@Alzheimer's..
                  CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                                Keep The Fight Going..Or YOu Will Lose
                   Look For The GOOD, Even At Your Lowest
      We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
       
                                         LYN

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