Not sure what to think about the nursing home doc

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Lynn
Regular Member


Date Joined Jan 2003
Total Posts : 492
   Posted 7/9/2008 4:59 PM (GMT -7)   
Hello everyone,
My name is lynn. I am a normal member for crohn's disease, chronic pain and fibromyalgia. My Mom was diagnosed 6 years ago by a neurologist as having dementia but he never came out and said Alzheimer's Disease. Anyway, my husband and I moved her down to SC to live with us because of our concern for her living alone. 18 months ago her heart began to fail and she had a pace maker implanted in October. One year ago this month she went into congestive heart failure and her heart doc said it was no longer safe to care for her at my home .. thus she ended up in a state funded medicaid bed.
As soon as she entered this facility they took her off the namenda and then 4 months later her aricept. I have to question if this is normal or abuse of some sort. Also, I just found out they have been giving her risperdal. When reading the info on this drug it said "WARNING: INCREASED MORTALITY IN ELDERLY PATIENTS WITH DEMENTIARELATED PSYCHOSIS
It said not to give it to people who have irregular heart beats etc... I am wondering if this doc is trying to kill her and let's face it.. who would know when she was admitted with congestive heart failure. No autopsy would be preformed.
Needless to say I pulled her out of that place this last week. I cannot take it anymore. She has an appt. with our GP Friday and I only hope there hasnt been damage done that cannot be fixed. Also listed below are other medications that the nursing home doc put her on.
I have to wonder if this in not nursing home abuse and malpractice of that doctor too.

They also have her on Simvistatin with this interaction "SIMVASTATIN and RISPERDAL (RISPERIDONE)
Severity: Major

Description: Taking risperidone and simvastatin may cause the amount of simvastatin in your blood to be higher than usual, increasing your risk of side effects. side effects.... muscle cramps or spasms, have muscle pain or stiffness, feel very tired or weak, or have diarrhea.

RYTHMOL SR (PROPAFENONE HYDROCHLORIDE) and RISPERDAL (RISPERIDONE)
Severity: Major

Description: Taking propafenone and risperidone together may cause serious problems with your heart.
WEll excuse me but she is in congestive heart failure... why give her anything that may cause heart problems. duh....

Anyone else find this happening to their loved ones? How can I ever trust anyone but myself to care for her now.
I have to wonder if maybe I should bring a law suit against this place if only to make them more accountable for what they are doing and how they are medicating their patients.
Best of health to all and please ... any suggestions comments... go for it's or don't bother trying to sue.. anything will help me with the huge desicions I am now having to face with having her back in my care 24/7. I myself am on disability for the past 6 years due to chronic inflammatory disease along with the others listed in my signature. Please.. any feed back will be greatly appreciated.
[color=purple>Dx'd 1983 Crohn's Disease, COPD 2000, Psoriasis 2002, Fibromyalgia 2005 along with Cronic Inflammatory Disease 2005. Currently takeing Humira, Pentasa, Lomotil, Elavil, Sinemet, Skelaxin, Advair, Abuterol, Avinza, Percocet and Xanax as needed[/color]


lynnbe
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/9/2008 7:35 PM (GMT -7)   

Sorry to hear about your Mom and your problems also.

When you get sucked into the medical system in this country (U.S.) with all the drugs, I'm sorry to say that you are on a downward spiral of health.

When you understand what really creates health you will understand why I am saying what I'm saying. I've done tons of research over 20 years on this subject, so I'm not just talking off the top of my head.

My Mother just recently got sucked into the system and this is what happend.

Mom had an irregular heartbeat so mostly to see what was going on, we took her to the ER. She was then admitted and started on high doses of Amiodarone to try to correct the arrhythmia. They also started her on loveanox, coumadin (rat poision), crestor, aspirin. All these drugs when she had not even been on any up to this point in her life (age 85). Also, without even talking about why these were being administered. (Her cholestrol reading a few months ago was very good??)

Bottom line, she started internal bleeding a week later and almost didn't make it. In my opinon, you will die quicker once you start the drugs that only treat the symtom and never get the root cause of the disease or problem.
 
To be healthy you must find those things that work with your body for healing. Doctors do not get any training in this area, only in the area of treating symptoms via drugs.
 
Do your due diligence and do not place the care of your health in anyones hands but your own. Emergency medicine has it's place, but for builiding good health, don't expect your doctor to be able to help you....

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/10/2008 6:02 AM (GMT -7)   
HI to both
I am glad you got your mom out and back with you
'I am just hoping no major damage has been done to her at all thru this

I dont knnw what goes in the minds of some of the docs really that look after ppl in NH
I do know from experience a doc is usually there perhaps 20 to 30 min even with over 100 patients
It is a "Push them thru world"

Please kep us posted on how she is doing
LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
                  Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest 
   
 
                   
 


Lynn
Regular Member


Date Joined Jan 2003
Total Posts : 492
   Posted 7/11/2008 6:21 PM (GMT -7)   
Well, we had our appointment with our GP doc today and when I showed him the medications that the nursing home doctor had put my Mom on, and those he had taken away from her he just looked at me and couldn't come up with an answer as to why anyone would do such things especially with her heart being in such poor condition. He was flabbergasted is about the best word I can think of. at any rate he took her off most of the drugs they had her on except for the heart drugs that she was on prior to going into the home, and re-wrote her Aricept prescription etc.
I have decided to notify the state of GA about this home and even contact a lawyer on my mom's behalf. Who knows, maybe I will get lucky and be able to afford in home care for her as her disease worsens. I truly believe they were trying to get rid of her quicker than God intended for her to come home. After all they make much more money with private pay than they do with the unfortunate ones who end up on Medicaid.
[color=purple>Dx'd 1983 Crohn's Disease, COPD 2000, Psoriasis 2002, Fibromyalgia 2005 along with Cronic Inflammatory Disease 2005. Currently takeing Humira, Pentasa, Lomotil, Elavil, Sinemet, Skelaxin, Advair, Abuterol, Avinza, Percocet and Xanax as needed[/color]


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/12/2008 3:40 AM (GMT -7)   
Lynn
There is a thread with Nursing Homes listed and all about them on this page
Check it out

I am so happy you got her to the doc and he saw trhe major mistakes before anything horrid happened
Stay with us and let us know how all goes

LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
                  Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest 
   
 
                   
 


Lynn
Regular Member


Date Joined Jan 2003
Total Posts : 492
   Posted 7/23/2008 6:47 PM (GMT -7)   
lynnb,

My mom was also put on coumadin when she went in to Atrial Fibrilation, that was when they said I couldn't care for her anymore because it would not be safe for her. The Monday just before Thanksgiving I get a call from the nursing home that she had fallen two nights ago but they didn't have time to call me until that Monday. Then I brought her home for the Thanksgiving holiday from Wednesday and took her back Saturday. I bathed her while I had her and she was black and blue from head to toe on her backside. She was bleeding from the rectum, when I went back to the Home with her I made the nurse come to her room and look at her diaper and the blood in the toilet. she said "probably just hemorrhoids, we'll keep an eye on it. The following Monday they call me and ask me to come and take her to the doctor cause she is bleeding from the eye. I said um... I am an hour and a half away.. maybe you better call an ambulance, when she arrived at the er she was all but dead. Her blood count was at 4.1 She had such a terrible urinary tract infection that they ran the test twice because they couldn't believe the result. They gave her 3 pints of blood and one pint of clotting factor. I should have brought her back home with me then. She had been bleeding internally for a week and they neglected the bruising and bleeding and forgive me but the had me convinced they were professionals that could provide proper and safe care. Why oh why didn't I see it before it got to this point?
[color=purple>Dx'd 1983 Crohn's Disease, COPD 2000, Psoriasis 2002, Fibromyalgia 2005 along with Cronic Inflammatory Disease 2005. Currently takeing Humira, Pentasa, Lomotil, Elavil, Sinemet, Skelaxin, Advair, Abuterol, Avinza, Percocet and Xanax as needed[/color]


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/25/2008 4:18 AM (GMT -7)   
OMG
What a horror story and what a time she went thru
YOU have all the right to bring her home
My dad was full of cancer and in his brain as well I brought him to live with me when I moved
Some homes and nurses DONT have time and dont have the caring to worry about ppl in the homes IMHO

Personally IF it were I I would have them PULLED up on the carpet and answering for what your Mom went thru ........

Please do let me know how things go
THERE IS NO resaon that this should have happened w/o them knowing IMHO

God Bless
LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


hope48
New Member


Date Joined Aug 2008
Total Posts : 12
   Posted 9/13/2008 7:38 AM (GMT -7)   

Hello,

When I read posts like this it makes me sick.  My Mom is in a facility where the patients are all demented so the doors are locked.  I certainly hope that you are your Moms POA and Health Care surrogate.  I tell you the stories that I read are so very familiar.  The problem that I have is not only the medications that they put her on, but there is not enough help, but they are in the guidlines for the State of Florida.  Would you not think that those guidelines would change for demented people???  These are people that need constant supervision and one person cannot be in 10 places at the same time.

I really do feel for you as everyone else going through this disease with a loved one.  I have had my Mom in 4 facilities. What does that tell you???  I really don't want to move her again because everytime they are moved with this disease they get more and more confused.

I love her so much but I feel sometimes that I can't take it anymore.  I am on meds for anxiety.  Gee, can't imagine why.  And as far as these doctors go, they put them on what they want.  But I am going to be talking with the doctor today and that is going to change.

A word to the wise.  Be your loved ones advocate.  As I am reading most of you are otherwise you would not be showing such love and concern.  I wish that I had known about advocacy 5 years ago when my father passed away..  If I had of read one report of a test prior to his open heart surgery, then he would have never have even had the surgery.  The report stated on the test that due to being severly debilated a non-ionic dye was used.  When I got this paper and looked up the meaning of this I almost threw my computer at the wall. Severely Debilated - a severly weakened state.  So can you tell me how in the world his surgeon gave him a 95% chance for a better life if he had a mitre and tricuspid valve reapir done?  If you are severely debillated you are not a canidate for open heart surgery.  But I have to say the this was elective surgery and the surgeon knew that he would not agree to it if the odds were not in his favor.  How very sad is that????  What a JERK!!!  When my Mom started receiving medicare papers she was so upset by other things that were done to him she call me everyday to come over and look that them. He had other surgeries that we did not even know about not to mention my mother did not release the authorization to have it done.  My father could never speak again after the surgery.  And if that was not enough, come to find out he had 33 infectious diseases while in the hospital. Was never told of any of them.

Well, I am sorry that I got off track, but it makes me mad.  These elderly are just a number to some people.  I wonder how they would respond if it were a loved one of theirs?

Anyway, I wish all of you the best of luck and by all means stand your ground. If you have the power to make those decisions, then you make the call.  The doctors may not like it, but that is just too bad.  It's your loved one not theirs.

Be Blessed,

Hope


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/17/2008 5:25 AM (GMT -7)   
Hope

I could not have said it better myself
WE have to be very cautios and diligent with our loved ones

OUR ELDERLY are not Throw aways ........they deserve to be treated with all the Dignity and
Respect always no matter whether on medicare or not IMHO

Lets face it IF not for them.............

LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    

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