Xanax and Dementia with Lewy Bodies

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hope48
New Member


Date Joined Aug 2008
Total Posts : 12
   Posted 9/13/2008 8:34 AM (GMT -6)   
HELLO AGAIN,
 
IT HAS BEEN A WHILE SINCE I HAVE POSTED ANYTHING.  BEEN REALLY BUSY WITH DIFFERENT THINGS GOING ON WITH MOM.  YESTERDAY I RECEIVED A PHONE CALL FROM THE FACILITY THAT SHE IS IN AND THEY WANT TO PUT HER ON A DOUBLE DOSE OF XANAX BECAUSE SHE IS MORE ANXIOUS AND DEPRESSED AND IS BANGING ON THE DOOR TO GET OUT. SHE IS IN A SECURED FACILITY DUE TO HER WANDERING. SHE IS ALSO ON CELEXA FOR DEPRESSION.
 
SHE WAS FIRST ON ATIVAN 0.125MG FOR about 6 MONTHS NOW THEY HAVE HER ON XANAX .25MG ONE PER DAY. YESTERDAY THEY CALLED ME AND WANT TO INCREASE HER DOSAGE TO .25MG TWICE A DAY BECAUSE OF THE SHORT SPAN THAT IT STAYS IN YOUR SYSTEM. 
 
I HAVE READ SO MUCH ON THIS BECAUSE SHE IS NOW IN THE LATE MODERATE TO SEVERE STAGE.  I AM AFRAID THAT SHE WILL BE MORE LIGHTHEADED AND AM AFRAID OF FALLS.  SHE REFUSES TO USE A WALKER AND AT THIS LATE STAGE I DON'T THINK ANYONE WOULD BE ABLE TO TEACH HER AND SHE WOULD NOT BE ABLE TO TAKE IT ALL IN.  SHE IS ALSO LEGALLY BLIND. WHEN I SAY THAT, SHE CAN SEE TO WALK BUT EVERYTHING IN A BLURR. 
 
I CALLED THE FACILITY LAST NIGHT AND TOLD THEM OF MY CONCERNS.  I REALLY DO NEED TO TALK TO THEM MORE about THIS.  ACTUALLY FROM WHAT I AM READING THE ELDERLY AND DEBILATED SHOULD ONLY BE TAKING 0.125 2 OR 3 TIMES A DAY. AS IT IS MY MOTHER HAS CHRONIC ATRIL FIBRILLATION AND HAS LOW BLOOD PRESSURE.  IF SHE CONTINUES ON THIS MEDICATION I AM AFRAID THAT I AM GOING TO GET A REALLY DISTURBING MESSAGE THAT SHE HAS FALLEN OR WORSE.
 
I AM LOOKING TO ALL OF YOU GOING THROUGH THIS TO PLEASE HELP ME AND LET ME HEAR FROM YOU about HOW YOU FEEL about THIS. 
 
IF MY MOM WERE TO GO HOME TO THE LORD, I CERTAINLY DON'T WANT IT TO BE BECAUSE OF SOME STUPID MEDICATION THAT CAUSED A CRITICAL REACTION OR BECAUSE OF A FALL BECAUSE SHE WAS TO GROGGY TO WALK AND FELL. SHE WOULD NEVER SURVIVE A SURGERY BECAUSE OF HER HEART CONDITION.
 
WELL, I AM GETTING READY NOW TO CALL THEM THEN I THINK I AM GOING TO GO DOWN THERE.  I AM EXTREMLY WORRIED.  I AM ON KLONOPIN SO I KNOW WHAT THESE BENZO'S CAN DO TO YOU.  ALTHOUGH SHE IS 86 AND HAS OTHER MEDICAL ISSUES WHERE I DO NOT, ONLY ANXIETY.
 
THANKS FOR ALL OF YOUR SUPPORT, IT MEANS MORE TO ME THAN YOU KNOW.
 
HOPE

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/17/2008 6:29 AM (GMT -6)   
Hope
I can only only offer my honest opinion here and I know IF it were my loved one the answer would be flat out NO
There are many benzo's that can cause agitation and make our loved ones worse IMHO
I have been out ill so please DO let me know how you made out and the outcome of all this

God Bless

LYN

 ** BTW .in future hun could you make sure caps are off as it looks like you are yelling** lol and I know you arent....thanks turn


  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


hope48
New Member


Date Joined Aug 2008
Total Posts : 12
   Posted 9/17/2008 7:42 AM (GMT -6)   

Hi Lynn,

Sorry about the caps, I didn't even realize it.

As far as the benzo's go, being on Klonopin myself for anxiety I have tried to ween my myself off and it is impossible.  But going through all of this with Mom, I feel that they are necessary for me at this time. I am on the minimal dosage actually less then that.

I see my Mom get agitated and I don't mind her being on something. But the Xanax is simply out of the question, period!!!  She is now back on the Ativan and take 0.25 mg in the morning and 0.25 at night.  So the dosage is low and that is fine with me.  But if they call me and say that they are going to up it because of more agitation, I am going to tell them to deal with it.  Xanax is just one of those that you have to keep raising because it does not stay in your system long enough. I was on that as well, and thank goodness I was able to switch without going through any withdrawl.

Also, when I get her made delivered to my home from the medicare mail order, I only take down enough for one month supply.  That way I keep track and if she were to run out sooner, then either they are going her more or else someone is stealing them. They have to be locked up in a separate cabinet within the medicine cabinet.

I do hope that you are feeling better now. There has been a lot of sickness going on.  Today I have to go in for an MRI of my neck.  I tend to get dizzy at times.  But, I also do not have a curve in my neck which you are suppose to and that can cause symptoms.

Oh yes, please forgive my ignorance but what is IMHO stand for? confused

Take care,

Hope


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/17/2008 8:07 AM (GMT -6)   
IMHO...........In my honest opinion
I have a thread I am going to bring up for you sweetie
Thanks for your kind words.......I am doing tons better
Sorry you are not dong so well......

NEVER have shame in having to take the meds at all
YOU need them and as far as addiction goes I have been on benzo's for more than 30 yrs ........
I can go off or down and it is not hardly a problem at all
I know nothing about klonopin however as I take Valium or ativan.........

DO keep me posted on how things are with you and with all the other going on...........

DID you ever find the Home she is in on the link in thread I will pop it up again for you

God Bless
LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 9/17/2008 12:18 PM (GMT -6)   
My mother also has lewy bodies. Just had a family/staff conference about her and we are in agreement that she is doing much better without any psych. meds. got so that she was asleep all the time and was not aware of visitors or conversations. There was a time when my mother would go violent toward other patients. The medications, however, threw her in the opposite direction. I hope that meds help your mother. Just be on the lookout for over-medication.

linda

hope48
New Member


Date Joined Aug 2008
Total Posts : 12
   Posted 9/22/2008 8:41 AM (GMT -6)   

Dear Lyn,

She is now off of the Xanax, and back on the Ativan.  There seems to be a communication glitch with the facility and myself as to how much she is given.  I am reading on Dementia with Lewy Bodies that Benzo's are not good for these people.  But how do you ween her off such a small dosage?  I need to see them today after my doctors appointment.  When I went there yesterday I was told that she was having a bad day but not from the person that works there but by 2 family members that saw her when she went into this state. She just sat there and shook. I have seen this before.  She will have a blank stare and her arms will shake. So I wrap her up in a blanket and hold her hands and tell her everything will be okay. Then it shall pass in about 2-3 minutes.

She is also on Celexa and a water pill.  She does have congestive heart failure and noticed yesterday that her one foot was swollen.

I simply hate this dreadful disease.  I hate to see her suffer.  She is aware that she is not right.  She told my husband yesterday that she thought something was wrong with her heart because she didn't feel well.  She would tell him and not me, because she knows that I worry so much.  Well, I can't help it, she is my Mom and I love her.

I will post back when I get home from the facility and let you know what they said.

Thanks,

Hope


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 9/22/2008 4:09 PM (GMT -6)   
Benxo medications tend to exacerbate problems with dementia.In other words it makes the person worse.........
SnowyLynne


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/24/2008 5:16 AM (GMT -6)   
I have to agree with Snowy and the worse one of them all I have seen in my 30 plus career is ativan
I DO hope she can take it and not have the agression and halucinations I have seen others have

Praying for you and for her as well
God Bless

LYN


  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    

Post Edited (Howlyncat) : 9/25/2008 5:14:34 PM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted Yesterday 6:15 PM (GMT -6)   
By the way are they keeping her foot elevated as well
Even when sitting you can use a pillow on a chair
Edema is not good for anyone

Let us know how you made out please

God Bless

LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted Yesterday 6:50 PM (GMT -6)   
I agree with Lyn about the Benzos.Not good for anyone with dementia.......
SnowyLynne


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted Today 5:18 PM (GMT -6)   
Thanks Snowy
How are you making out??
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted Today 10:01 PM (GMT -6)   
Been having breathing problems from regweed.We need a freeze to kill it,lol.
Larry was discharged from the Dr in Dallas who did his back surgery in June.He goes back to Dr Leeseburg who did the hammertoe surgery on Larry the 21st of Oct & will have exrays done to see how it is healing.He got the stitches out & pins came out 3 weeks ago.Larry ordered new balance 855 shoes & is now wearing them but continues to carry a cane for stability,he's been using 2 canes but now uses one.......
Since he has no medical insurance until he's 65(2yrs.) he's going to the VA in Lawton Okla.for meds.or illness if he needs that.But he can get his medications..........
So we are doing pretty good considering.I had problems due to the changes with the surgeries as I was the chief cook & bottlewasher as Larry was before.My Neuro seemed to think I would be fine after things get back to normal the way the were before the surgeries............
SnowyLynne


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/28/2008 8:11 AM (GMT -6)   
Snowy
Your strength and determination is definitely an inspiration to ALL

I hope everything statrs getting even better
You and Larry have gone thru so much
Thoughts are with you and Larry my friend

LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 9/30/2008 2:22 AM (GMT -6)   
Due to the changes I had since June I was experiencing problems getting confused,since I had to drive home & back for follow up appointments in Dallas that nearly did me in.Dr wouldn't order anything for me as he was afraid I might have a wreck driving,nearly rear ended a gal in her little sportscar.Scraed both of us............After that Larry was able to drive thank heaven,lol...........
SnowyLynne


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 10/1/2008 1:44 PM (GMT -6)   
Oh my Snowy please do take care
I cannot drive too much either due to heavy narcotics I am on.......

Thank God Larry can drive
Glad you were not hurt my friend

LYN.
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
                                    Donate at  www.healingwell.com
 
Moderator @ Alzheimer's,Co Mod @ Anxiety/ Panic,Co Mod @ Crohns 
 
                                    FIGHT the FIGHT with all YOU HAVE
               Look For The GOOD,Even At Your Lowest
 
     Listen To Your Heart,Look Inside Yourself,Understand You
 
 
 
                    

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 26, 2016 10:38 AM (GMT -6)
There are a total of 2,694,025 posts in 297,436 threads.
View Active Threads


Who's Online
This forum has 152120 registered members. Please welcome our newest member, kimmylee431.
366 Guest(s), 15 Registered Member(s) are currently online.  Details
sheepguy, pmdancer, blueberrymuffin, gloopstar, 81GyGuy, 0311, Artist Mark, tickbite666, RandyJoe, Myassisonfire, kimmylee431, ks1905, ~ chicken wings ~, Canaveral, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer