holiday & lewy bodies

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odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 11/14/2008 9:04 AM (GMT -7)   
all holidays/lack of family/lack of hope fill me with dread. at least last year did attend thanksgiving/xmas dinner at nursing home but mother was somewhat awake. not this year. she's on fluid diet and mostly bedridden, so would not be with her and in some ways relieved by it. only family (relations) i have (cousins & mother's brother) bailed when the going got tough. friends involved with their family stuff. making it ever more cheerful is that my ms has flared in new and amazing ways, so i'm using walker to get around rather than cane. (would fit in at nursing home... sorry for sick joke)

has anyone dealt with this mess? other pain i feel is that i am genuinely estranged from mother and some guilt is probably at work. did you bear your pain or tell lewy body patient about it.. knowing they might or might not understand????? feel i'm doing all i can via nursing home, but now feeling my own pain about ms and holidays. am to the point of signing up for meals on wheels as less able to prepare food. help??!! linda

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2008 6:19 PM (GMT -7)   
(((((((((( Linda )))))))))

AHHHHHHHHHHH!!! Screaming for you sis!! There is a little sign posted behind each seat in an airplane: "Place your OWN oxygen mask FIRST!!" Especially given your mother's condition . . . be where you feel you need to be. I'm SO sorry you are having so much fall-out from all of your helping and stress.

Some hot tea for you Linda!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/14/2008 6:35 PM (GMT -7)   
I am so sorry for all that you are dealing with
Yes my family all bailed with mom and Dad so I can get that .......

I would have a big holler myself .....
Like Rosie said

YOU have to look after you first hun
No guilt plz

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 11/14/2008 7:59 PM (GMT -7)   
OMG!!! i actually feel better! what did you two do? can i do that too?

wondering if one of my friends would like to go to dinner... or i could even attempt a turkey?

funny how mother's brother was all over her until she signed the car to his son. come time for power of attorney, he totally bailed. said he did it for a friend and it was a lot of work. hell, i have elder care attorney doing it all. house already sold & stuff gone. everything set w/funeral, etc. don't get it. guess being an only child i don't quite get the sibling bull. cousin around until house sold, i gave some bucks to her and sister...maybe not enough? but i sat with her mother until she died. why must relatives be such a burden instead of the support you (wrongly) expect.

don't quite get it, but will somehow make it through. get ms ivig treatment next week and hope it eases some of my troubles.

nite all! sweet dreams... linda

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/15/2008 9:40 AM (GMT -7)   
Hun
You do what you can do
It would be so great if you could do a turkey but if that day comes and you cant
so be it
Also taking a friend out ...awesome idea

WE are always going to be here
YOU sound so much more positive
THAT makes me so happy

Luvs and prayers

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 11/16/2008 11:37 AM (GMT -7)   
yay! invited friend to thanksgiving dinner at a local restaurant, and just made the reservations. what a relief to have done this! linda

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/16/2008 1:37 PM (GMT -7)   
Linda
I am so HAPPY for you and proud of you too

I wish you the best turkey dinner ever

God Bless
Lyn
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN

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