Resources, Daycare etc.

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nanners2
New Member


Date Joined Jul 2004
Total Posts : 2
   Posted 7/1/2004 7:39 PM (GMT -7)   
Hi..I am new here.  My husband of 48 years has Pick's disease, we think.  At any rate, his disease is progressing rather rapidly.  We have been on a merry-go-round for the last 5 months.  I am getting exhausted.  I have visited the nearest Adult daycares that are relatively near me and they are pretty awful.  I have found a very nice residence for him , but am not sure if we are ready for that yet.  I am wondering what Medicare will pay for along the lines of home help and where I can find out about this.  Just getting him through a shower is about more than i can manage.  I fell a couple of weeks ago and I think I need surgery on my shoulder, but that's out of the question while he is home.  Is there a website that addresses the Medicare issue perhaps..TIA  Nanners2
 

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/2/2004 3:08 PM (GMT -7)   
He has NOT been diagnosed yet?A Neurologist is the best person to have..
OR,have him put in a NH, so you can have the surgery.He is no doubt ready,but you are not.Do it!You need help now.........Lynne
SnowyLynne


nanners2
New Member


Date Joined Jul 2004
Total Posts : 2
   Posted 7/2/2004 3:55 PM (GMT -7)   

He has been diagnosed..however, without an autopsy or brain biopsy, it's really not possible to differentiate the various forms of dementia.  Bob also has myasthenia gravis, and has an excellent neurologist, who, because he really likes Bob, is following the progress of this other disease as well. It was the neurologist who originally thought this is Pick's disease, because of the rapid progress of the disease and also because the MRI showed damage in the frontal lobe.  The psychiatrist didn't agree at first, but now she also thinks it is probably Picks...Bob also has auditory hallucinations that are not as commonly associated with Alzheimer's.  We are also waiting to see if Bob will be accepted in a study that will trial a med and also include PET scans.

However, that is neither here nor there..I am interested in finding some help before I am in the same boat as he is...<G>  If there is a website that clearly explains Medicare benefits or other resources available, I would appreciate knowing about it.  nanners


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/2/2004 9:38 PM (GMT -7)   
Go to the Medicare website.I don't know the URL,but type it in your browser....Lynne
SnowyLynne

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