Alzheimers and Lyme disease

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 12/3/2008 1:42 AM (GMT -6)   
I had gotten bitten by a tick over 4 years ago and got treated. But 4 years later I was having trouble finishing sentences. I also statr
started getting lost all the time. I would walk into my closet and not know where the things came from. I could not remember
peoples faces. I could not pay my bills. I lost all interest in being social. Because I was not able to keep up and would say odd things.
I would say things to people and not understand why they were mad at me. I had no fear of anything. I found alot of things very amusing
that were not. I could not work anymore. I lost interst in cooking because I couldn't remember how to work my micorwave or oven, and
I was cutting myself badly and not knowing it. I knew that something was wrong. My Dr. could not find anything wrong with me.
I would bump into walls, like I was drunk. I would get very irritated if someone kept using the word"remember" with me. I fet it was rude.
I was going down hill fast but trying to lie and keep my ground. I did not want to lose my kids. I am a single mother with a 5 and 12 year old
I fiannally admitted to my x what was going on. And gave him both of my kids. For me this was the last straw.
My Dr. wanted to put me into a mental hospital because I was so depressed and he was not sure if he could trust me tobe alone in my house....
I lied and told him he could.
I just turned 45 and use to have a succesful carreer. And homes all over the place. I dumped everything. I didn't care about any material things anymore.
I finnaly found out that I still did in fact have lyme disease and that all of my probelms were due to a bug bite.
I came out to Arizona to Envita to get treated for lyme, and all of my mental issues are now gone. it is like someone cleaned my muddy windshield off.
I can see again and feel. And think. I can find my way, and got my 5 year old back. I am getting my life back.
The Dr.s told me that dementia can come from lyme. and so can alzheimers. I had not know all of this before.I only knew that'I was losing my mind and
my kids. But I am better now. If you or someone you love came down with all of these symptom like me, I had my blood test done at IGENEX.COM
and I got my answers back. And now with the correct treatment I got my life back.
best,
marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/4/2008 9:05 AM (GMT -6)   
Thanks for sharing your heartwrenching story cry

I am so sorry for what you have gone thru to find the answers and the TX.........

Please do keep posting here and let us help you as well

You are an asset to the forum IMHO

Again thanks
I have to admit sometimes with the fibro I feel Like I have AD I forget so easily and yes I even bump into walls

YOUR story will HELP someone

God Bless

LYN


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 4/2/2009 6:26 AM (GMT -6)   
Hi,
I wanted to give an update on my progress. I as I mentioned above was a mess and was going to be put into a institution. It just made no sense to me that I could have gotten so mentally ill so quickly and was going down so fast.
I went to a place called Envita for a while. In Scottsdale. They were familair with all of my problems. I also learned that I could be infected by a mosquito for lyme too. So that may explain why I got so much worse over the summer. I get covered in them.
I had different treatments. One was the Ozone treatement. In which they cleaned my blood pint by pint all week. Through my port. The other was a very large doses's of supplements, that I was not happy about having to take twice a day. And the other was chelation therapy. In which they get rid of all of the mercury and pesticides and whatever else my body had stored up over the last 45 years. And I got better. I am better. In is like night and day. Before I had forgoten how to drive, would get lost, and forgot people that I knew, faces and places. And I had many odd personality changes. With the lyme we get many physical problems as well. But I will not bore you with that long list.
But fevers and migraines are easy to spot.
I just got back from a 3 week trip with my 5 year old to Hawaii. I was able to drive about, and care for a child, and had a great time. It is all so sureal to have my mind and body back. I feel as though I have been blessed. But really the people at envita who put up with me for the 3 mos. are the ones who cured me. I was a handful to say the least.
A nasty little temper and a mouth was another thing that I had...lol. and I was always right of course....stupid people....lol
Kidding. I just an still in awe that I made it. So happy. Not one panic attack, and no fainting..and never got lost. And on and on. Just thought that I would share. If you know someone who always was so sharp and who now is going off of the edge...well..I was on the edge too, and I am now better. Thank god. The most important thing is that I now have my children back and my life back. My family back. And I am able to care for them and be the best mommy that I can be...again.
marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 4/2/2009 6:50 AM (GMT -6)   
I just read the stages of Atlz and I was at the high mark. I did wear my PJs to muy daughters school one day. And thought people were being silly about the whole thing. People do sort of look at me funny now. It is like they are afraid to ask me how I feel. I use to get lost coming home from my kids school two streets away from my home. I would just cruise in my golf cart till I found out where I was.
I am trying to take it slow. I do not remember most of the people that I saw over and over for the last 3 years.
I sort of recognize them. But I am just not wanting to work that hard on all of that social stuff right now. I have only been out of the clinic since feb 7th. I am more concerned about getting my house in order and helping my kids feel safe and secure about me again.
I feel the most for my 12 year old, who went through hell with my illness. I am just now getting her back for a whole week. She is still very scared that I am not well. Or that I will slip back to being sick. I understand this. And only time will show her that I am finally back for her.
My 5 year old is very clingy. And this too I understand. So she will not let me out of her sight and is always watching me. But I have proven that I can now cook and clean and drive and care for her. But I can understand how she is still vuberable. I am a single parent and for my kids to watch me go off like that. It was hell for them.
My 12 year old is in therapy and has had terrible probelms with depression. This I hope to restore over time. soon.
All I can do is be there for them 24/7 and do the best that I can. I know that I am up for it now. And I am just going to take it one day at a time.
I am more than happy to answer any questions about my therapy or issues with anyone. Just tap on me to write to me directly. Sharing is caring.:>)
marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


LF1980
Regular Member


Date Joined Jul 2008
Total Posts : 78
   Posted 2/9/2010 5:44 PM (GMT -6)   
How long were you at Envita? Are you still doing well? Are you doing any antibiotics?
Thanks.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/27/2010 12:59 PM (GMT -6)   
It is so great to read a positive post like this one
thank you so much for sharing with us n giving us a good look into your journey
you are doing a good thing with your daughters as well imho

i know that when cait found me in seizure n then i was on life support it really did traumatize her
we both are going thru couselling because of this
when i got home from hospital i did not remember too much of anything i like you was totally blank in many areas i am getting better but still hv bad days
i am totally deaf now as well so that makes it harder to communicate with cait
she is angry and hurt her mom has changed but i think she does see i am coming round
keep posting on how you are
take care n blessings
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I AmW

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN

Post Edited (Howlyncat) : 3/27/2010 12:04:16 PM (GMT-6)


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 5/14/2010 6:45 PM (GMT -6)   
I have just been catching up here as I have not been here for a couple of years. I would love Martha to give another update on how things are going for her.
</DIV>


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/15/2010 6:26 PM (GMT -6)   
yes i too would like that
huggs
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

DONATE TO www.Healing Well.com
LYN


justamum
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/31/2011 9:25 AM (GMT -6)   
My two daughters got ill five years ago.Diagnosed with glanular fever, ibs, etc, wouldnt get better, couldnt go to school, became bedridden , all the time being told its chronic fatigue from virus. getting worse, one constantly nauseous, one hearing voices with unbearable head pain.I was in despair, thought they may die.Had every test going that the NHS  would do (we live in UK) but nothing showed up. so I trawled internt for something or somewhere that would just test them for absolutely everything.( I was convinced they had some kind of infection to have all those symptoms and more) Then I found a place private clinic about 100 miles from where I live and took them there.They took massive amounts of blood, poo,wee the lot and I just had to wait for 4 weeks for results. It came back positive or Lyme!! What a relief to get a proper diagnosis but the fight had just begun.That was in May2009. They have been on constant different antibiotics ever since, some by injection, plus suppliments and meds for yeast overgrowth caused by the antibiotics. There was still no sign of improvement, up until the last couple of months. I was even doubting the only hope we had, but we are finally getting there after 18 months+ of treatment My youngest still cant walk, but they are now going into school 1 hour per week which I never thought would happen.Their Lyme test was sent to Igenex Labs in California. Lyme  disease copies and causes so many symptoms, so get tested at a proper place, and keep on and on with meds.I wish I had known about lyme years before it had got right into their system, then it may have cleared up quicker. i hope my story can help someone.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23353
   Posted 1/31/2011 9:59 AM (GMT -6)   
Justamom, thanks for sharing your story and welcome to Healingwell! I'm sorry to hear about your daughters. You might also want to share this with others on our Lyme forum.

Best wishes and I hope your daughters' continue to improve daily.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis/GAD - Klonopin (.25mgs)
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